I am from Algeria. I have a daughter who suffers from spinal muscular atrophy. She is 7 months old. She is now suffering silently and is dying slowly... In countries where I am not even aware of the disease... knowing that I have a child who died in 2019 with the same disease.... Can you help me and sponsor With the treatment of my daughter, I lost all means, and I could no longer bear to see her get tired and die, as is the case with her brother.
My son is 8 years old sma type 3 currently on Spinraza and recently took his 8th. dose. Despite Spinraza administration and physiotherapy he is suffering from progressive spinal lordosis and we are afraid that he will soon get to the point of not being able to move around except on a wheelchair. We need any advice or support that could effectively help him. We live in Turkey and willing to travel anywhere support can be found.
I am from Algeria. I have a daughter who suffers from spinal muscular atrophy. She is 7 months old. She is now suffering silently and is dying slowly... In countries where I am not even aware of the disease... knowing that I have a child who died in 2019 with the same disease.... Can you help me and sponsor With the treatment of my daughter, I lost all means, and I could no longer bear to see her get tired and die, as is the case with her brother.
My son is 8 years old sma type 3 currently on Spinraza and recently took his 8th. dose.
Despite Spinraza administration and physiotherapy he is suffering from progressive spinal lordosis and we are afraid that he will soon get to the point of not being able to move around except on a wheelchair.
We need any advice or support that could effectively help him.
We live in Turkey and willing to travel anywhere support can be found.
How can I get treatment for sma india?
How can I get treatment for sma india?
How can I get treatment for sma india?
How can I get treatment for sma india?
How can I get treatment for sma india?
How can I get treatment for sma india?
How can I get treatment for sma india?
How can I get treatment for sma india?