What is Tourettic OCD?
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- Опубликовано: 19 июн 2024
- Have you heard of Tourettic OCD? Man, it's a tough one to describe. 😋 It can follow the classic cycle of OCD but it's different. Those who suffer with it often get stuck for minutes to hours completing a task or compulsion that is possibly tic like. Not because of an intrusive thought or even a perceived threat, but because of a premonitory urge.
Let's go through what "Tourettic OCD" looks like and how to do the treatment!
😋😋Bloopers at the end! 😋😋
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#OCD #tics #tourettes #touretticocd
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thIS DUDE JUST CAME IN EXPLAINED MY WHOLE LIFE TO ME and LEFT
😂😂😂😂😂😂
BRUHH SAMEE
Same
Same here! I started watching sweet anita recently and i noticed i was having more tic type issues while watching and it made me wonder if i had tourrettes on top of ocd and adhd, but like i never felt like i didnt have control so i thought i was goin nutts. Then watched this and everything he said was exactly what ive dealt with my whole life.
I swear to god id been having intrusive thoughts but I've been trying to explain to people and my therapist that sometimes I don't have intrusive thoughts all the time so I was really confused and then this man came along and just basically told me exactly what I'm feeling
*Starts showing tic examples*
My ocd: hold my beer
ikr, when he mention wrist movement i started cracking my wrist again (this is an old tick of mine) also had to stretch my finger, fuck this dude yo
Why this true
NOBODY taught me about tourettic ocd, I deadass thought everyone experienced it
I thought it was normal until a girl called me weird and my mom was like "um what are you doing". It's so nice to have a name for it!!!
i knew not everyone had this, i just thought i was weird lol
no bc i always thought this was completely normal. it was only when one of my friends asked me why i kept moving my hand weirdly and i just told them "dude I'm feeling so much tension right now" and they had no idea what i was talking about that i asked them and they said it wasn't normal.
I thought this is how Tourette’s was for everyone??? Apparently not??!
I didn’t realize that was thing but now I feel like the vine where the guy said “ahaha I do that”
Ooh you triggered me quite a lot of times with your examples haha! I found that quite amusing somehow. Thanks for the informative video!
Thank you for your support! I'm sorry I triggered you! 😋
@@ocdandanxiety I have OCD of Intrusive images. I aIso have slightly Tik toureette syndrome. My OCD is not severe. I already knew about the side effects of SSRI's and benzodiazipenes.
Before I go to Phycatrist , I wanna try treatment in Ayurved .
What should I do
It triggered me too 😂 when he said “lift your finger up” I was lifting all mine up😂
yes
@riser were you supposed to be making a joke? Lmao
I'm OCD diagnosed and I always thought it was weird other people didn't get physical sensations.. Like I step on a crack and I FEEL t in my foot, it is so unbearable. Until I step on one in the same spot on the other foot.. I almost broke my other hand when I broke my left. I damn well tried. Or the knuckle cracking. Joint cracking in general. I started at 5. Maybe I should talk to my doctors.. I really thought it was just me.
Thanks for sharing your experience. I would probably talk to a specialist from iocdf.org to see if they can help you figure out what's happening. You may look at my "Just Right OCD" video as well. They are some what similar.
@@ocdandanxiety Thank you so much! I've been struggling with supports. I really, really appreciate you taking the time to respond to me.
Quinn Baker This is exactly how I feel!! Thank you for sharing.
i know right, it’s so hard to explain how it feels to really feel the sensation in your body, it feels like a warmth but it’s not really there and you just feel unsettled
hey, im curious as to what its called. i was told i had ocd but i dont know which kind i have. i was just wanting to know
Watching this video was like listening to someone else describing me! I was diagnosed with OCD at 10 (I'm 24 now) and it's incredibly rare to find someone who knows about/understands this form of OCD. Most mental health professionals assume I have tourettes or that I don't "realize" I have intrusive thoughts related to my compulsions. While I do have intrusive thoughts and did have some compulsions related to them when I was younger, the majority of my compulsions have always been the kind with the premonitory urge. Sometimes I realize what I'm doing, other times it happens without me even thinking. For me it's like someone's placing a weight on my body; I feel a type of pressure on my skin or in my muscles that don't have a tangible cause. Some of them look like tics to others (blinking, sucking my teeth, turning my head quickly, making noises, moving my ears, etc) and others look like normal compulsions. These are usually caused by needing things to be in fours and/or feelings of unevenness that I can physically feel in my body. Things like passing by signs, scrolling through social media, watching a video, stepping on cracks and lines/markings on the ground, and almost any other interaction with the world. These types usually result in me either doing motions (like waving my hand on one side of my face or stepping in a certain way) or flexing my muscles in the exact same spots that I did on the other side (I move one leg one way, I have to flex the exact same muscles in the other leg). I also do it with the ASL alphabet; I feel the urge to spell things out with my hands as I read or listen to someone speak or even as I think. Some of these compulsions can be easy to hide, but some aren't. I also had (and still have) hypersensitivity as a kid! Trying to describe these experiences to others can be incredibly difficult. You describe it so well and so accurately it's almost scary! I've seen and spoken to several mental health professionals about this and you're only the second I've seen that has heard of this; the other was my first psychiatrist who explained it as a "somatic" OCD. He actually had one other patient with it before he diagnosed me. Thank you so much for this video, it really made my day and makes me feel a bit less weird!
I'm so glad it resonated with you. I appreciate you taking the time to explain what you're experiencing. It can be so helpful for others that struggle with this. I hope you are able to find some support and treatment for this! 😋
I just wanted to say that I can identify with everything you've said here. It's good to not feel alone!
I have the same thing. OCD with tics. I had since I was around 7 years old. I am 50 now and still have it. What kind of medication can a person take ?
My 17 year old cant open her bedroon door for 3 months now. Only going out her window to see doctor. She hasnt touched me in 3 months as well. She has a vocal tic and ocd and has a history with strep. PANDAS?
I feel the same way! It's me too
I always have to lift my eyes multiple times and it looks like in rolling my eyes so I have to cover my eyes with my hand.
My tics and compulsions progressively change every so often (like I'll usually have one for a full year or so before it starts to fade out because it's getting replaced with a brand new, more important, more demanding compulsion), but one of the very first ones I vividly remember having that lasted for all of 6th and 7th grade was repeatedly, and sometimes even aggressively so, having to blink one, or sometimes even both of my eyes. It was so embarrassing having somebody notice cause i always got asked why i winked at them lmaoo
I scrunch my eyebrows, I used to flare my nose but I don’t anymore.
I remember getting in trouble as a kid for this. My mom thought I had an attitude until I told her that I was just rolling my eyes because it felt good. Then she took me to the doctor
@@maiamaiapapaya my mom told me to stop doing that with my face but it honestly did feel good and like i have to do it
@@dumbwithmilan Wow, someone else had the flaring the nose thing? I had that when I was a kid for about 1 year. I HATED it. It was almost painful (mentally), because I could not stop doing it. This is so weird, is this considered tourettic OCD?
Every day I feel like I have to do this very specific ritual, throughout the day, especially when walking or reading. I have to move my fingers in a certain way, flip my toes up and down, and grind my teeth, to the rhythm of whatever song is stuck in my head (default is Yankee Doodle), sometimes while mentally sounding out a sentence I've just heard/read to that tune--and then I sound out the sentence (or sentence fragment) again, but pronouncing all the syllables differently, or lately just spelling out some of the letters so that it fits the tune. It can be soooo exhausting and no one seems to really get it. Idk my psychologist says it sounds like anxiety, but I've literally never met anyone else with such a specific and random ritual. I used to have to hum really specifically and that was awful because I could never hit the right note and make the feeling go away.
Thanks so much for sharing your experiences! It's so helpful for the community!😊
I got the same thing I’ve literally never heard anyone like this, thank u for sharing
Most relatable comment and video ive ever seen. Every single Day i have reoccuring songs stuck in my head. Not even like a whole song but just a sentence or even a sound. I have had what is love baby dont hurt me no more and if you like pina colada and getting caught in the rain and the part in up town Girl where they dont even but just humm oooh ouuoh ooouh ooouh pop into my head atleast 10 times a day for Years. I often reallize that i have rhytms playing that fits for what im doing both in mood and tempo like banging a hammer to the rythm for example. I allmost Every Day have tics that makes me do specific Sounds but ive never had vocabular tics. But after my girlfriend once counted how many times i would Sing or say these specific phrases from songs for a whole Day that really made me wonder if this actually infact is a vocal tic. She counted 38 and i never even thought about the fact that i did it more than other people maybe would. Damn the devil for my tourettes and thank god for my girlfriends patience
omg i didn’t know other people did the grinding teeth to a song thing, i don’t have ocd but i always grind my teeth so this song i heard 6 years ago and sometimes other things and i grind my teeth to other things that are hard to explain but i’m so glad i’m not the only one
@@sebastiannilsson9773 God bless you both! And me too haha I get the musical tics a LOT!! Funnily, just a regular old tip has helped me a lot with getting songs unstuck from my head. My band teacher in HS taught us that you can hum a short and very familiar song to get other songs out of your head; he recommended the Flintstones theme song, but I've found that anything that's familiar without being super catchy works great. I do the Flintstones and the Steven Universe theme songs and they normally do the trick! I love ticking to the beat tho haha, honestly music makes my tics sooooo much more bearable! Instead of twisting and yanking my body around or rolling my eyes painfully I just blink, walk, dance, and cook to the beat!
This makes so much sense and describes me perfectly. I've been diagnosed with OCD but never felt like I completely lined up with it and experienced tics. I will definitely bring this up to my therapist, thank you for showing this part of OCD
I'm glad it was able to help you! I hope you can find out what you are experiencing! 😃
Same here tho ocd dose decribe some of it it never cover these feeling what did you find out about it
FINALLY I KNOW WHAT I HAVE!, thank you lol
I'm glad I was able to help my friend!
I can't describe how relieving this was. I've been trying to find out what is this thing with me for ages. and there were almost no information. I've never heard of this disorder before and it is literally what I've been doing since i was a kid. thank you so so so much for this. such a relief
I'm 27 years old and have struggled with this my entire life. I have permanently damaged my neck and my shoulder blade from this. I never knew what I had until this video. Thank you for this. At least I have a name for what it is now.
Yeaahh. I know the pain. Ill pull muscles bc I just have to feel a certain way
I’m 27 as well and finally feel less alone
Omg. Thank you! I am 30 years old and have struggled with this my entire life. I’ve never talked about it because I couldn’t find anyone who understood or described it as perfectly as you did. It’s honestly just a relief to hear that this is real.
Thanks for sharing what you're experiencing! I hope you can find some relief soon! 😃
fr man. it feels like if i dont release that pressure it feels like that pressure starts to go up my spine and i start to get a headache
I think i have the ocd but is so bad i can even stay at home my self i have to have my son and my wife stay with me is this part of the ocd ? I have so much anxiety i been like the for like 11 years im 40 now
Thank you so much for this. It's one of only two videos on RUclips that give a clear explanation of TOCD. It's a huge relief to hear my symptoms described so accurately. For first time in my life I understand that I'm not imagining a lack of fearful/intrusive thoughts that usually preempt OCD tics or behaviours. Unfortunately, the UK doesn't seem to recognise TOCD yet and I'm struggling to find treatment options. Thank you so much for your insight.
Thanks so much for the kind words! I'm so glad this was able to help you! It needs to be talked about more!😃
Yes! So spot on! I’m 100% with you girl❤️❤️❤️
Same here ❤️ NZ doctors are the same I've struggled with this for over 20 years now and one search, one video later I know what it's called and how it can be treated. How great it is to know we aren't alone as well. I always have been told what I've been experiencing was pretty much not real, such damaging shit to hear when you know what you've been dealing with and the struggle, I hope you can get some help for yours !
oh my gosh!! I'm from the UK and I've heard nothing about this, I've been told by several different therapists/medical professionals that I may have OCD but because my intrusive thoughts aren't intrinsically linked to my compulsions, there was always a degree of doubt over whether I did actually have it, even though my symptoms are so difficult to deal with
@@sarah-sass8908 I’m sorry I missed this reply - I couldn’t agree more. I really hope you’re able to find some help for it at some point down the line. The only things that have helped me are working to reduce general stress/anxiety and forcing myself to relax and experience the horrible urges without responding (like he describes towards the end of the vid).
I was diagnosed ADHD at 38. I started stimulants for the first time right as I was entering a very stressful time in my career. I noticed my compulsion type tics worsened at that time, but was not sure if it was related to the stimulant or the stress. I have never heard of TOCD. I tried multiple times to find out what was going on, as I understood that they looked like tics, but were not involuntary. This describes my experience perfectly. I’ve experienced this since I was a child. They were always referred to as a “nervous tic” or “spasms”, but that never fully made sense to me. I had tried multiple SSRIs over the years for “anxiety” until receiving my ADHD diagnosis. They did not help me. My daughter experiences these as well. I’d love to be able to reduce my compulsions as I’ve developed a lot of pain in my neck and damaged a nerve near my scapula as a result.
I was diagnosed with TOCD and you nailed the feeling I have exactly, When I try and resist and urge it feels like the uncomfortable feeling that you get when your under water and you feel like you need to get out, like you can’t breathe and without the or else part, like you have to get out that’s it, it’s super uncomfortable, but when I don’t get anxious with the actual urge, but when I try to resist it for like even just 2 seconds I get super anxious and I feel like I can punch a wall in 😂 but yeah, you nailed the explanation well, I have tics but it’s more the urge of an tic, and when I do tic, I feel like I haven’t made it equal so like If my left hand bends I feel like my right hand missed out so I purposely tic on that hand with the urge, but cos I started left hand tic then right hand tic, Now I have to do it again, right hand tic then left, but sometimes it gets even worse because what I just done is like a chapter of a book so now cos I started with left then right and right then left I have to do the opposite right then left the left then right, and I have to do it, like I can not not do it, it’s the only when to make me less anxious or less pressure on me, it’s like a release of stress in a way, and the fabric you said, yes there’s a specific fabric that for some reason goes through me and makes my mouth go funny and triggers a tic, and also my friend thinks I have ADHD cos I’m hyperactive a lot of the time but I was not really diagnosed with this, any way thanks for explaining,
Go get labs. You have an autoimmune disorder causing this.
I have been diagnosed with just right OCD since 9th grade, but I think it may be TOCD due to my latest symptoms of tracing my eyes back and forth to a certain set of objects in a room or a certain group of objects in a tv show I’m watching as if I’m programmed to do it. Also I’m just like you with the blinking and elbow movements when I get bored or stressed. I take 90 mg Prozac to this day for ocd but I still have a little ocd but it’s now mostly the blinking and tapping objects along with the visual tracing of objects in 3’s and the need to “stretch” out my fingers until they feel right which I think is definitely a tic even though it gets rapidly worse under stress
@@jpm029this sounds similar to some experiences i have TOCD! i have a lot of eye tics based in looking at objects, looking to the side, or blinking in whatever multiple hits me in that moment, usually 3. my tics also ramp up when i am stressed as well. i think you definitely should look into it more if you haven't already, everything you said sounds really spot-on to what i experience.
I seriously can't believe I'm not the only one who feels this way. My doctor diagnosed me with OCD and I thought it fit because I do have obsessive thoughts, but my physical compulsions aren't directly linked to alleviating the fear from those obsessions, but rather the sensational pressures I feel within my body. My obsessions focus primarily on my body image, but my compulsions are completely at the whim of my sensory perception if that makes sense. Even while typing this I've had to erase a bunch of lines of letters that my fingers decided they needed to type. It's such a relief to know other people have these feelings too.
I also have this having to erase lines of letters while typing re read the lines .
Wow, I felt this. I relate to this & it’s such an overwhelming and frustrating feeling...
Very informative. Thank you!
Wow I never connected with my ocd diagnosis cause it felt like more and you hit the nail on the head thank you
This really helped me figure some things out. Thank you!
You really understand it and describe it well. Thanks for the video, very helpful.
Thank you so much for helping me understand my loved one x
Finally. Glad you made this video. I was wondering about things. Now things are clear.
This helped me sooo much!! It explains everything that’s wrong with me lol!
I didn't even know that was a thing, I finally can put words on what I've been feeling my whole life
Oh my God, thank you so much. I actually feel better. I feel like I've been lifted from a hole, or at least shown where the footholds are to get out.
@Sarah Percival i also have the need to "stretch" my eyes and throat it's so weird and tiring
@@laurene111 omg eye stretching is so painful, it gives me such bad headaches
i’m not diagnosed with tocd (i do think i have it though) because everything you explained is things that i’ve been doing for years!! it’s so hard to explain but it makes sense to me. i never knew what it was until i found this not too long ago. it finally gave me some answers of what i THINK i have. and i feel like when you talk about it, it gets worse! i feel like i’m more hyper aware of my involuntary motions when you talk about it. i should probably get this diagnosed and this isn’t me diagnosing myself, but i just relate to this a lot. :)
I’m glad you were able to figure out what you were experiencing. You may be able to get a good diagnosis if you go to iocdf.org and find someone on there.
Thank god you made a video about this so it can be presented to people as explanation
What about tics in reaction to stressful thoughts instead of physical feelings? When I have a stressful though, I could have a motor tic or mentally repeat random words again and again, recently I've even blurted the word out, all in response to a stressful thought because the tic blocks the stressful thought out, like it distracts from the thought. If I'm just going through a generally anxious time in my life I may just have more of these tics in general too. Is this tourettic ocd?
I have exactly what you have just described too. For me I get a thought- which is usually a memory of an event and I feel intense shame, which triggers an “automatic” motor and verbal tic: either I shout a word/phrase, click, hit something..etc..The words come in phases so for a long time I may be “stuck” on a certain few phrases or movements until different ones develop. A lot of the time the tics are so quick that I’m unsure of what the original stressful thought/memory was, only that I felt shame and the only way to get the feeling out my body was to tic - which does relieve the feeling. It also gets extremely exhausting sometimes and holding them in in for instance social situations where I am around others is seriously draining.
Describing this is so difficult and hearing that you go through the same thing is reassuring. Thanks for your comment😊
@@kibblekibble5385 I feel like the only way to cure this thing we have to deal with the underlying feelings that trigger the tics. Or maybe some therapy that works on replacing the tic behavior in response to the feeling with something more productive or acceptance of the feeling? Idk these are just my own ideas 😓
@@kibblekibble5385 You described what I’ve been going through my whole 19 year old life perfectly. Thank you
@@kibblekibble5385 Me too
@@kibblekibble5385 yes yes yes that's it! I've been saying the words out loud involuntarily, and getting caught on phrases that don't even make sense. They pretty much all stem from "kill" though, maybe because my brain is saying "kill yourself" but the weirdest and longest atm is "kill me and you're dead if you don't die, too." It all comes out at once and usually I can't stop it. Sometimes I can catch myself midway and change it to "killlll-amanjaro" or something. I have no idea if this is tourettic ocd or what but it's driving me crazy and it happens dozens of times a day
This is what I have been feeling my whole life. :( Not the thoughts but sensations and urges!
My facial tics were going off throughout lol. I resonate with this. The pressure is for sure the thing i get with them! Thank you for helping make sense of it! ☀️
This was very helpful, I've been dealing with this my entire life it is a lot
Can I cry?? You've explained so well my sensations, thank you so much
Thanks so much man! I've had this my whole life and the tics keep progressing and changing, I finally decided to start looking into what it might be and you got me to a T
You videos are literally the only things that ive found helpful stuff from,and you are so calming lol, i cant thank you enough really, OCD makes me find myself not wanting to be alive most days.
This video is so helpful as a suffering of TOCD since I was 4 but my tics were amplified though watching it lol
This explanation of TOCD Is amazing and the best I've ever seen! This has been my life for the last 20+ years
Omg I can’t tell you how happy I feel, I’ve went my whole life trying to figure out what’s happening to me until I found this video, you explained it so perfectly, thank you so so SO much! (I definitely didn’t cry watching this)
I’m having some tics right now! Thank u for putting this video out! I get word urges to throw my shoulder up or click or clap, it’s really helpful tysm 💖
This is what i been trying to explain to my psychologist! he explained it exactly like how I experienced it. Thanks for the video!
Thank you so much for this explanation... You've made it sound so much simpler
THANK YOU KING LIFE SAVER
I just discovered your channel. I suffer from this as well as intrusive thoughts. For instance if I grab something without an intrusive thought and don’t perform the action properly an intrusive thought sets in then I’m stuck in a compulsion. It’s really tricky, or sometimes I have to just stand still and not move till the thought subsides then finish the compulsion till it’s enough to move forward. Very tiring. I subscribed to your channel and thank you for the content. Some don’t realize how crippling and horribly tiring exhausting this OCD actually is.🙏🏼
I dont want to self diagnose myself but omg I think I have this, I've been doing this stuff for years (im 17) and you describedmy situation perfectly. thank you sm :)
Wow! My therapist have alway tried to get me to explain the thought. And I’ve been like I don’t think the same way as you do. The just right feeling drives it mostly on day to day level. This explains it better
This is the best video I have ever seen on OCD. You are talking about me!!!! I'm no stranger to therapy either but this speaks about my physical urges I've had since age 5. I'm 65 now! I have regular OCD too but have always felt " infested" by these physical tics. Yes I've discussed it with my anxiety specialist I see but NEVER has anyone spoken so directly and at such length about this condition! I'll Google it but if u can tell me of other links publications ECT about T OCD I'd be forever grateful. Hell I already am!!!
I’ve never heard anyone explain what I experience as accurately as this. This is PRECISELY what I’ve always experienced. I had no idea there was a name for it. Mind blown. Thank you.
THANK YOU FOR THIS VIDEO!!!! ive experienced everything in this video throughout my entire life and i remember when i was a kid being so distressed by them because i thought i was the ONLY person who experienced them and couldnt understand why i was having these sensations in the first place, but now i know its tourettic ocd!!!!!!
You gave me the answer ive been searching for for months!!!
Ive had OCD since I was 7, im now 25 but this past year ive been having these urges to twitch when im in socially stressful situstions. I recently switched psychiatrists but ones been able to tell me what was going on, I thought honestly thought I was developing tourettes or parkinsons or something.
Im struggling really to find a doctor who can address the issues im having effevtively cause this doesnt seem commonly understood. Really glad i found this info, thank you.
Holy cow this helped put a way I feel into words. I've had intrusive thoughts and compulsive behaviors since I was a kid but I've never gone to get a diagnosis for anything aside for Generalized Anxiety disorder. It wasn't until recently did I start to wonder if I had OCD as well. I've had these feelings in my body where I feel the need to suddenly shrug my shoulders and jerk my head sideways. To do it makes me uncomfortable because it's sudden and quick but to not do it makes me even more uncomfortable. It reminds me of yawning cycles (as in: once I do it, I may trigger the urge to do it again and be locked into cycle that lasts roughly 10ish minutes). I've tried to explain it to my therapist because it usually happens when I'm trying to sleep but I haven't been able to communicate it well. I'll make sure to send him this video.
OMG I'm not alone thank you!!! (joint pressure / feeling / urge to crack to relieve)
Thank God for RUclips man I've been doing this like most of my life and I was like it's just like thank God for RUclips now I know what this is
Thank you so much for making this! I was diagnosed with OCD at the age of 9 but we realised I had Tourettic OCD because I was always really confused with CBT as there was never any thought to work with and SSRIs didn't reduce the rituals, but an antipsychotic did. I am so happy to see some awareness on Tourettic OCD, it seems a lot more well known now than when I was younger which is great. For me personally, ERP did make me worse due to the suppression element, but then I had out of body sensations termed phantom tics which made it even more complex and I had the premonitory urge in my whole body like a massive pressure and it was unbearable and if I suppressed it then it would come out as extreme rage attacks, so I personally wouldn't reccomend suppression for severe cases, but for milder cases it may do something but I don't have experience with that thanks for making this video, you have a really informative channel!
Very well explained!!! My son struggles with this and although the coprilalia is gone, his anxiety is through the roof.
This is so helpful and eye opening! As a kid I was diagnosed with counting type ocd but because I moved from germany to america during that time english wasn't my first language and I had a hard time explaining what was going on. I wasn't able to convey that I didnt have any intrusive thoughts, but that it felt like my skin was crawling or separating from my body If I set a cup down wrong so id have to do it over until the feeling left or I did it an even number of times.
Thats crasy to know, O. C. D is horrible and very scary, but we are in control! 🙏🙏🙌 I really like these videos, very helpful.
Thanks for sharing! 😃 You are in CONTROL!
I think you just explained my life Hahaha I was told I have minor tics and OCD but I haven't really ever had the threat part. A lot of it is the sensation. I've noticed when I drink coffee I'm more likely to have my tics/sensation issues. I couldn't pin it down till I just searched the two together and found this! Omg this is going to help me so much with my doctor!
So many of my symptoms felt more like Tourette’s, though I know I have Just So ocd, so I looked up Tourettic OCD to see if it’s a thing, and lo and behold! I’ve struggled with conveying my experience to therapists as well, so this really hit the nail on the head. Thank you so much for the video, it’s always so comforting to see someone who understands.
I'm actually in tears hearing you describe what I have been recently undergoing medicated intervention for. I have always known I had some quirks as a kid that I found out a few years ago under "dermatillomania" as a form a self-harm. I was (and still am) hypersensitive as a kid most likely onset by a series of physical traumas between 2-7 years of age. My parents weren't knowledgeable or aware to get me the help I so desperately needed. This led to self medication with alcohol and drugs as well as other forms of self harm that I finally put myself into treatment for 2 years ago. Now I have finally been relieved of SOME symptoms such as lip biting and scalp scratching but am noticing other things that you described here as I explore the dosages under the care of my psychiatrist. I feel a sense of relief coming across this video and will mention this to my doctor for further evaluation. Thank youuu!
my god, i never knew there was a term for this. ive been experiencing this for years. like 5+ years. never told anyone because i thought it was just like a thing i did and not a big deal. but in reality, in my day-to-day-life, it is quite a huge deal, and its so frustrating. kind of comforting to know that this is an actual thing and im not the only one. my only concern is that i wont be able to get diagnosed because there arent many psychologists and therapists in my area, and i dont know how educated they are on these kind of specific or "fuzzy-in-between"-illnesses, but i mean, im not a psychologist, i know nothing about that. still afraid to bring it up to anyone since ive tried to keep it hidden for such a long time. thanks for this video, though. it was super helpful and insightful.
I’m so GLAD I found this video, thank you so much, I’ve got these weirdos tics for 3 years now and I also have intrusive thought but idk if it’s possible to have normal OCD and Tourette OCD, I’m not diagnosed since my mom doesn’t want me to take to a psychologist and I don’t want to self diagnose but I always thought that my tics where caused by normal OCD, so this video has helped me a lot ...thank you I’m gonna talk to my mom today and ask her if I can go to a professional psychologist and not just the school one, I am also very distracted and forgetful but I though that it was just a trait of my character
I freaking love you👊🏼 You just said what I’ve been trying to put into words my entire life. Especially the tic in your brain that you “can’t do.” I’m watching this at 1 o’clock in the morning and my mind is blown
Amazing! I’m glad it helped my friend!😜 Get to bed!😉
Thank you! I was so confused before I watched this video. I'm 16 but I am just really hoping to be 18 and go to a doctor because my parents just laugh at me whenever I try to describe these symptoms, and living in an abusive household it is so difficult to even think about saying anything! I mostly have these tics inside my head, which makes it hard to focus on anything, taking me twice the time and is honestly so exhausting because I cannot even think a sentence or watch an object without "having" to constantly repeat those words in my head or something. I am so tired of all of this!
I can’t believe I’ve never heard of this before. I’ve had the ocd diagnosis for several years now (although I’ve struggled with it since I was very young), but this explains so many things I do and feel that I could never explain or understand fully with the regular ocd diagnosis. It still blows my mind that other people can’t FEEL it when the compulsion strikes. It’s so unbearable.
I do also have adhd, hypersensitivity and a learning disability. Wow haha
Omg i feel like someone generally understands me
Oh, my god. Watching this video was such a validating experience. I've never been able to accurately describe to anyone how I feel about my OCD compulsions but this makes so much sense. The best way I've been able to put it into words is by saying, for example, if I touch something "wrong," then it feels like I'm wearing these invisible gloves that are too tight and really uncomfortable in every way. The only thing that makes it go away is if I can fix the touch by washing my hands, or at least wiping them off, and then touching it the "right" way. Thank you for more accurately describing my lived experience. You have no idea how it feels to have my own experiences validated in this way.
Jesus Christ I think I finally found what's wrong with me, thank you so much for this I've been searching for almost a decade I've seen every doctor out there nobody knows what's wrong with me you just described exactly what I feel T ocd
Indeed, it's amazing to know that I'm not alone in this, and that there is a type of tic-centered OCD with no intrusive thoughts. I kept thinking there must be something I was missing, a thought/fear I was ignoring, but there really isn't. Seeing this video made me feel more at ease with myself - I know I can heal the tics one by one! Thanks ^^
I always thought I had OCD but when I heard people talk about OCD I always related to everything except for the intrusive thought and threats and I'm not diagnosed with any OCD either. Sometimes I thought I was copying people with tics or Tourette and thought that I didn't have OCD but this explains everything to me thank you so much for talking about it now I can talk to me doctor or counselor about it?
Oh my god! I never realised this existed I just thought It was just magical thinking
I hope it was able to help you! 😃
this explained everything i have ever felt. i shared it with my therapist to help describe how this is so sensory-based and yet not "just-right ocd". she was very interested in learning about this and is researching how to work with me on it if i want to. this video made me feel so validated, i have always had ocd issues but my compulsions never were fueled by intrustive thoughts, but by an internal pressure and weight. the knuckle cracking example is spot-on. when you said that the "intrusive thought" is that the feeling will never go away, it hit me like a ton of bricks. you got my experience right and explained it perfectly, something i have never had before. thank you for this video, it helps so much. not only do i feel less alone in this experience, but it has helped direct my therapist in what my issue is. it is so, so valuable, thank you!
Yes!!!! watching this made me feel so much better. One of my really bad tics is kind of rolling my eyes a certain way because it doesn't feel "right" or like "even" I can't really describe it but I hate it and every time I feel the need to do it when i'm around people i either "scratch" my forehead (which covers my eyes) or look away.
This is the exact thing I feel coupled with regular OCD and Aspergers.
I was diagnosed with OCD thursday at the age of 26.
I even had a test done that showed my tics wasnt neurological and they still did not find that I had this type of OCD.
Thank you so much for this video!
So it has been a few days since I found this video (and shared it with my NOCD therapist)
Adjusted my focus during ERP to recognize and resist the movements and it was horrible! Burning and tightening in my chest, pressure in my face, tingling in my hands, pain in my upper arms and shoulders. Delayed, but couldn’t stop at first. And now in just a short time I am recognizing it more consistently and am stopping it, and the intense discomfort and pain is subsiding faster than even yesterday.
I am exhausted and keep falling asleep because of all this intense discomfort and pain. But so worth it if this is the key!! Seriously feeling hopeful!
Been fortunate to work with several highly trained OCD/ERP therapists thru a PHP program and NOCD, and none of them clocked this.
Thank you so much for this video!!
Not diagnosed but I have been struggling with this for a few years and had NO idea what it was until I watched this video right now. Thankyou.
I do also have intrusive thoughts that are unrelated to T OCD, and I just assume they are related to my Mixed Anxiety Depressive disorder (diagnosed). Although at times I have had to complete compulsions due to these intrusive thoughts, but mostly its just feeling bad about having the thought and thinking that it makes me bad and etc etc.
I've never been diagnosed with OCD, but I have been a little suspicious for years and this video describes me so well. I have been struggling with facial tics for a while, specifically forehead/nose scrunching over and over again, and the urges are almost painful at times. Not to mention it feels embarrassing when you have to do it mid conversation with people, which doesn't help the social anxiety in any way :/
Thank you for this video that perfectly describes & educates it. OCD heavily runs in my family and I’ve had tourettic OCD since I was 11 in the summer right before my first year of middle school and up until now I’ve gotten bullied, weird looks, “she’s faking tourettes” comments, even if I’ve mastered suppressing the tics.
The only way I can describe the sensation is like an itch that you have to scratch but it continues to come back.
THIS IS HOW I FEEL :0 I think I also get these when I'm nervous
oh my god. thank you, thank you so much for this. thank you. My issue has always been shrugged off bc it doesn’t really affect my life too much but my weird little sensations have been confusing me for ages now. It was first pointed out to me in 10th grade biology, a girl loudly asked “why do you keep moving your fingers like that?!” it wasn’t embarrassing per se, but just frustrating bc I knew I did it but was often to in my head about this urge that I didn’t realize how odd it looked to others. This was a decade ago and I’ve still never had an explanation where every single second I was yelling “YES” “OMG THIS IS IT”. I’ve had other things come close but it felt like I was forcing it to be the case just to have a label or an explanation and that never helped. It’s never been intrusive, it’s just this sensation in my fingers, then extends to my arms to entire sides of my body, sometimes strange throat urges like clearing it many times or this odd chirp like sound my mom would point out to me as a child. It drives me insane sometimes but more so the not having any idea of what it was drove me more insane. this is so great. I’m going to talk to my therapist about this, I’ve never addressed it in therapy bc I’m too busy working on other issues that I didn’t want to distract from the direction we were going in for something that seemed a bit trivial. but since my major issue is panic disorder this really could help accompany the work I need to do.
My son was diagnosed Tourette's and OCD when he was in the 5th grade, he is now a grown man. This information would have been so great to have as this explains his evening tendencies and need to touch things. I wish I would have had this info to better help him.
I've been wondering for years what this was I was experiencing. I was diagnosed with OCD at a young age and am very familiar with it. However I started these random tics in my face a couple years ago, and this is exactly what this is, I feel these sensations and my body feels uncomfortable until I complete it. It's like this intense pressure, almost tingly. I feel like crying.. I finally found out that I am not crazy. Thank you so, so much.
This makes so much sense to me!! I’ve been doing this for as long as I remember. A lot of the time it’s not too distruptive, tapping one foot after I’ve tapped the other. If I don’t do it, I’ll feel on edge and very uncomfortable until I do it, and I find it nearly impossible to resist. However, it’s worse if I have a bruise on one hand and I feel the urge to bruise the other too and have to resist it, or I’m reading a book and I feel the urge to flip back to the start of the book using my other hand. The symmetry thing was so relatable to me, that’s exactly what I do. If I do something or touch something with one hand, I have to do it with the other, same with literally anything else. I’ve always thought it was possibly something ocd-related, but I didn’t have the anxiety part. Tysm for this, this made so much sense to me!!
I think I might have this!! I was diagnosed with Tourettes at 4 and I have been researching and I found out that a lot of my motor tics present differently than others. When I was younger, I explained my tics as feeling an intense urge to stretch a certain area and it was from a sensation. Even with eye rolling, before I was diagnosed, I would say that I was “Stretching my eye”. This is good information. Thank you!
I was diagnosed with it, and I was confused to why everybody else who had ocd, or when I’d see videos on it it’d be about things needing to be ordered, doing a compulsion otherwise something bad will happen, or otherwise just obsessions. But now I can really relate to this video, I wonder, how common is it though?
Holy shit this is gonna make me cry this is the most accurate video I've seen. An example of something I have is I'll be scrolling through Instagram with my thumb on my right hand. I only have been using my right thumb and then that finger gets uncomfortable or warm so I move to the other thumb but it doesn't help I can't do anything and sometimes it gets really bad
My girlfriend has Tourettic OCD, and this video helped me learn a lot about it. Thanks!
I knew I had this but didn't know what it was called! Knew it was feeling-based and not thought-based, didn't know what it encompassed. I have bodily-comfort tics but then also sometimes if something is the right size or shape my brain needs me to throw it... Like really far because my arms just get tired and stiff.
Also the texture thing is part of this??? Oh damn I love when things are finally explained
Ok Ik that you posted this two years ago so u probably won’t see this but I have been diagnosed with ocd since I was 7. Lately I’ve been hearing all the stuff with ocd about intrusive thoughts and compulsions to relieve anxiety and so I was invalidating my ocd bcs that’s not what I experience. Then I saw this and I was like “I THINK THIS IS WHAT I HAVE!!!” Thank you for this video. Because of u I’m gonna talk to my psychiatrist and see if my diagnosis is wrong. Tysm :)
WOW. this is the first time I've ever heard this explained. My therapists throughout the years have always mentioned ocd but I was never officially diagnosed for anything so I didn't think about it much.
I had a lot of tics when I was a child that were so exhausting. Then I felt that I grew out of them, or more like I was better at disgusting them and making them more subtle. But I still always had (and still have) these small movements I do every single hour of every day. Subconsciously, most of the time-I have gotten so used to them.
Sometimes I briefly tense-up and release my arms/legs/toes, touch objects a certain way when I place them down, touch things with the back of my hand, etc. AND THE PEN EXAMPLE!😂 When you did it I started giggling because I was lazy to click on this video at first but didn't expect how accurately it would describe me.
I haven't sought out treatment for these because I feel that these small motions are not a problem to me. I will take them any day over the tics I used to experience. However, the urges I get concerned about are those that are more risky or could be harmful: I have this one where I have to touch the lightbulb or surface of a hot desk lamp, baking pan, or curling iron. Also, once I start driving, I hope that I do not develop the urge to take my hands off the wheel for moments at a time.
Thank you so much for making this video! I'm going to watch a bunch more after this for sure!
this makes so much sense. when i was younger whenever i looked in one direction i had to look back slightly before i could move forward again and repeat it a lot sometimes, or same thing when i’d slide my finger across the wall, i’d need to slide back. i don’t do that anymore but now i scrunch my nose until it feels right, i never knew it was a thing
I‘ve been this way since I was a kid and I’ve never been able to explain it to a person who understood. When I get that overwhelming sensation to fix how i’m touching something I do it, and when the “pressure” of something out of reach isn’t right i jerk my head or touch my thumb to my pointer finger to ease it. I’ve been trying to research for years so I settled with “Just Right OCD” but it still didn’t seem exactly right. I came across this video tonight and bam you explained me exactly! I’ve always felt so alone with this, thank you!!
I have always wondered why some of my symptoms didn’t line up with common OCD symptoms. This pinpoints what I cannot explain myself. I didn’t know it was a type of OCD. Thank you!
I'm glad it helped you!
Finally an explanation why I have to a but no real obsessions or compulsions that tie to one another it’s more physical. I’ve always had an issue with clothes and socks. The feel of certain fabrics and seams.
i didnt know this existed, im not diagnosed but i do these things, very informative!
I have to say thank you! Thank you from the bottom of my heart. This video, listening to you, made me feel so......... normal. I’ve always been very aware of my tics/the urge to tic when I’m around people. Always trying to disguise the tics as something else. For example; I have some facial tics, and when ever I’m around people and I feel the urge, I’ll do the tic. But then cover it up, like I have something in my eye or something (so I you might be able to guess, I very often “have something in my eye”😂). But after seeing this video, I feel that it’s okay. It’s okay to address this issue, and it’s nothing to be ashamed of. And just like you said, it’s not a thought or even anxiety that trigger the tics. It’s simply an urge. Usually the urge (the facial tics) is strongest for me, when I have to focus on something. If I have to sit still and pay attention or even just sit still and relax. It’s like I NEED to release some sort of pressure. Other tics are triggered by excitement and joy. I feel the urge to release that bubbling pressure. Even though it’s something positive that triggered it, it’s still there, and I need to release it. I’m definitely gonna try the techniques you talked about. Again, I can’t thank you enough. For the first time EVER, I felt understood. You just made my day!
Ps. I have ADD. And when you said that some people with ADHD/ADD struggle with this. I was like YEEEEEES!!!😂❤️
this describes me so well i'm so glad there's a name for it. i havent been diagnosed with OCD but ever since i was a kid ive had different tics. right now its like, moving my hands a lot and making vocalizations, but its happened in so many different ways like clearing my throat, counting the steps i take etc. i feel like i have a mix of this and "regular" ocd, it happens the most when im excited or getting ready for something (which can be annoying) and when im tired.
FINALLY someone has explained what I deal with... and I thought it was just me being weird. But it's an actual thing that someone has described that others deal with.
Your videos are so helpful!!!!!!!! Thank you so much!!!
Thank you so much!!