Did anyone else doubt themselves before diagnosis? I'm finding you on my research journey about endometriosis. I've been reading a lot and watching videos trying to figure out why my periods seem to be getting worse including debilitating cramps throwing up and severe digestive issues that keep me from working. But I keep doubting myself, thinking it's something I'm doing, or because the cramps don't happen every single month that it must be just normal. I have an appointment soon with a gyno soon thank goodness.
I get it. For me it's been difficult because i live with other chronic illnesses and there's some overlap in the symptoms, so some days I start doubting. And there's time when I'll go a really long time without feeling a lot of pain and I start to wonder if it's really bad enough to be concerned. Fortunately my PCP is very empathetic and mentioned in the past that I might have endo. But I don't really know what else I can do at this point
I doubted myself up until I woke up from my first surgery in 2012 and the doc said "You have endometriosis". It's been a tough journey,but please don't give up on yourself. You know your body better than anyone ❤️.
I just cried after I finally confirmed from your videos and listening to other women sharing their stories on different platforms what has been troubling me for 15 years. I suspected endo but ruled it out a bit since my periods were pretty regular and 'normal' except for lower backache and sciatica nerve pain radiating to the right leg and sometimes numbness on my legs to the point of falling down if standing and not being able to walk for hours when it got worse. I felt like not even the Doctor's understood what I was going through. So thank you for sharing your story ❤, very helpful. Long walks, too much sitting or standing, steep hikes, intense work outs like spin class are triggers for me. Stretching, constant moderate exercises such as short regular walks and resting really helps. Interesting about the foods triggers, I will definitely evaluate this. ❤❤❤
Hi! New sub here! I'm 44 and recently diagnosed with Endo Dec of last year. (Sound crazy) After I had a tarot reading, my spirit baby told me to go to the Dr. and get this looked at after putting off the pain for a year. I had surgery for it and it's been better but I can still feel it growing and reforming again. Trying to get pregnant later in life helped me find it and my fertility I feel is coming back after the laparoscopy. I'll especially enjoy watching these vids and can't wait to really dive in . I'd love to share my story with anyone who's been diagnosed so much later in life with it, and what we've been through. Much love to all!
I cut out gluten several years ago to help with another condition i had and last year i stopped eating nightshades (tomatoes, potatoes, eggplant, and peppers). Recently i went a little cray cray and ate a bunch of those foods, thinking, "surely it won't make THAT much of a difference," and not only did my other conditions flare up, but i had notably bad abdominal/pelvic pain at a time of the month that i NEVER have pain, as well as terrible bloating and fatigue. So that was an unpleasant surprise. Apparently eating gluten and Nightshade free (especially potatoes, they seem to affect me the most) really is making a difference.
Thank you so much for sharing this. It is just nice to know that we aren't alone! I agree with all the things you listed, I would say all of these things also affect my flare-ups. I have an flare-up kit with me also at all times, since we never know when it could hit. I use heat, herbs, cbd oil, ice packs, peppermint oil etc... for pain relief.
Thank you for sharing❤ I would relate to all the things you mentioned. Any type of movement that involves bending/stretching - so housework, gardening etc. Can really flare me up. I always think it's important to say that sometimes there's no reason for a flare and it can just come out of nowhere 😢
Definitely running and HIIT 90% of the time😢😢 and it sucks! I used to be an athlete and it is so hard knowing that I can’t do any of those intense workouts I used to love😔but I relate to all of these sadly
Thank you for sharing 💖 I get flare ups with workouts also it used to only be with intense workouts but now even with low intensity workouts. Also a week before my period I start getting flare ups so I know it’s coming then during the week of my period I can’t even get out of bed and then a week after my period I’m still hurting so yeah 3 weeks out of the month I’m pretty much out of commission. Diet has a huge impact on me I cannot eat gluten at all or else I will be in bed in tears and level 10 pain for 4-5 days. I eat a pretty clean diet otherwise and gluten is a big no no. I have also carried what I call my period bag and everyone closest to me knows where to get it if I ask for it. In it I have an extra change of clothes because when my period comes I can fill a cup and a pad in 15 minutes so sometimes if I’m driving for 20-30 minutes, I cannot make it to my next destination before I can change so I must carry extra clothes with me and wipes a heating pad, tea and a blanket, pamprin and just extra things that I know help me deal with my endo period. When I was in high school decades ago it was humiliating staining my clothes and having to be sent home to change… why didn’t my doctor then tell me that what I was going through wasn’t normal? Why didn’t my teachers and school personnel know how to support me? We need more awareness about endometriosis. I was diagnosed in 2011, 20 years after I had started my first period. Before that I didn’t know why I was the only one suffering with such heavy bleeding and excruciating pain in my family, my friend group, and at work. Still now they don’t understand… only my husband and my two children understand. Yes I’m a mom! I have two miracle kiddos. They are truly a treasure and a miracle. I’m so blessed to have had my children even though I have endometriosis. 🙏🥰💞
The only thing I've noticed that causes my flare-ups are my periods. I need to keep a closer eye on whether the exercise I do makes my symptoms better or worse.
I was just formally diagnosed 3 weeks ago (after 17 years!). So far I've only noticed is bending over too much causes a flare up. Now that I know this is what that pain is I'm trying to be more aware of what could be triggers. Now bloating, that's an almost everyday thing. So, no jeans for me!
@@endoemmm Thanks. That means a lot 💙 Right now I'm in a weird state of accepting. Mainly because, I knew I had endo, but it seemed like I couldn't get doctors to hear me or at least fully. It was a constant, 'that's a possibility so here's birth control or let's change your birth control to never come off if it' Finally getting surgery all I could think is, 'This whole time! I knew it.'
![BLACK BAG - Official Trailer [HD] - Only in Theaters March 14](http://i.ytimg.com/vi/Du0Xp8WX_7I/mqdefault.jpg)
Did anyone else doubt themselves before diagnosis? I'm finding you on my research journey about endometriosis. I've been reading a lot and watching videos trying to figure out why my periods seem to be getting worse including debilitating cramps throwing up and severe digestive issues that keep me from working. But I keep doubting myself, thinking it's something I'm doing, or because the cramps don't happen every single month that it must be just normal. I have an appointment soon with a gyno soon thank goodness.
I get it. For me it's been difficult because i live with other chronic illnesses and there's some overlap in the symptoms, so some days I start doubting. And there's time when I'll go a really long time without feeling a lot of pain and I start to wonder if it's really bad enough to be concerned. Fortunately my PCP is very empathetic and mentioned in the past that I might have endo. But I don't really know what else I can do at this point
I doubted myself up until I woke up from my first surgery in 2012 and the doc said "You have endometriosis". It's been a tough journey,but please don't give up on yourself. You know your body better than anyone ❤️.
I just cried after I finally confirmed from your videos and listening to other women sharing their stories on different platforms what has been troubling me for 15 years. I suspected endo but ruled it out a bit since my periods were pretty regular and 'normal' except for lower backache and sciatica nerve pain radiating to the right leg and sometimes numbness on my legs to the point of falling down if standing and not being able to walk for hours when it got worse. I felt like not even the Doctor's understood what I was going through. So thank you for sharing your story ❤, very helpful.
Long walks, too much sitting or standing, steep hikes, intense work outs like spin class are triggers for me.
Stretching, constant moderate exercises such as short regular walks and resting really helps.
Interesting about the foods triggers, I will definitely evaluate this.
❤❤❤
Hi! New sub here! I'm 44 and recently diagnosed with Endo Dec of last year. (Sound crazy) After I had a tarot reading, my spirit baby told me to go to the Dr. and get this looked at after putting off the pain for a year. I had surgery for it and it's been better but I can still feel it growing and reforming again. Trying to get pregnant later in life helped me find it and my fertility I feel is coming back after the laparoscopy. I'll especially enjoy watching these vids and can't wait to really dive in . I'd love to share my story with anyone who's been diagnosed so much later in life with it, and what we've been through. Much love to all!
I cut out gluten several years ago to help with another condition i had and last year i stopped eating nightshades (tomatoes, potatoes, eggplant, and peppers). Recently i went a little cray cray and ate a bunch of those foods, thinking, "surely it won't make THAT much of a difference," and not only did my other conditions flare up, but i had notably bad abdominal/pelvic pain at a time of the month that i NEVER have pain, as well as terrible bloating and fatigue. So that was an unpleasant surprise. Apparently eating gluten and Nightshade free (especially potatoes, they seem to affect me the most) really is making a difference.
Thank you so much for sharing this. It is just nice to know that we aren't alone! I agree with all the things you listed, I would say all of these things also affect my flare-ups. I have an flare-up kit with me also at all times, since we never know when it could hit.
I use heat, herbs, cbd oil, ice packs, peppermint oil etc... for pain relief.
Thanks for sharing!!
Thank you for sharing❤ I would relate to all the things you mentioned. Any type of movement that involves bending/stretching - so housework, gardening etc. Can really flare me up.
I always think it's important to say that sometimes there's no reason for a flare and it can just come out of nowhere 😢
Definitely running and HIIT 90% of the time😢😢 and it sucks! I used to be an athlete and it is so hard knowing that I can’t do any of those intense workouts I used to love😔but I relate to all of these sadly
Thank you for sharing 💖
I get flare ups with workouts also it used to only be with intense workouts but now even with low intensity workouts.
Also a week before my period I start getting flare ups so I know it’s coming then during the week of my period I can’t even get out of bed and then a week after my period I’m still hurting so yeah 3 weeks out of the month I’m pretty much out of commission.
Diet has a huge impact on me I cannot eat gluten at all or else I will be in bed in tears and level 10 pain for 4-5 days.
I eat a pretty clean diet otherwise and gluten is a big no no.
I have also carried what I call my period bag and everyone closest to me knows where to get it if I ask for it. In it I have an extra change of clothes because when my period comes I can fill a cup and a pad in 15 minutes so sometimes if I’m driving for 20-30 minutes, I cannot make it to my next destination before I can change so I must carry extra clothes with me and wipes a heating pad, tea and a blanket, pamprin and just extra things that I know help me deal with my endo period.
When I was in high school decades ago it was humiliating staining my clothes and having to be sent home to change… why didn’t my doctor then tell me that what I was going through wasn’t normal? Why didn’t my teachers and school personnel know how to support me? We need more awareness about endometriosis. I was diagnosed in 2011, 20 years after I had started my first period. Before that I didn’t know why I was the only one suffering with such heavy bleeding and excruciating pain in my family, my friend group, and at work.
Still now they don’t understand… only my husband and my two children understand. Yes I’m a mom! I have two miracle kiddos. They are truly a treasure and a miracle. I’m so blessed to have had my children even though I have endometriosis. 🙏🥰💞
You have such a beautiful angelic present thank you for all these amazing videos
Means so much to me- thank you for the kind words
@@endoemmm Really glad i found you going through all this with no information you helped me a lot
Castor oil packs with heating pad.
Thank u for sharing. This is very helpful ❤
The only thing I've noticed that causes my flare-ups are my periods. I need to keep a closer eye on whether the exercise I do makes my symptoms better or worse.
For me once my Endo know I’m under stress flare up ⬆️ like from 0-10😢
I was just formally diagnosed 3 weeks ago (after 17 years!). So far I've only noticed is bending over too much causes a flare up. Now that I know this is what that pain is I'm trying to be more aware of what could be triggers. Now bloating, that's an almost everyday thing. So, no jeans for me!
Congrats on your diagnosis 🤍 Thinking if you during the healing process!
@@endoemmm Thanks. That means a lot 💙
Right now I'm in a weird state of accepting. Mainly because, I knew I had endo, but it seemed like I couldn't get doctors to hear me or at least fully. It was a constant, 'that's a possibility so here's birth control or let's change your birth control to never come off if it' Finally getting surgery all I could think is, 'This whole time! I knew it.'
How are you doing ? Hope you are fine and god is with you don’t and will get you through it. Please stay strong always ❤️
I have Endo flair ups
The little girl inside me is so glad I found your channel 💙 🤍