This post is so important. I'm in tears. My sis was born w/this condition. Unfortunately it has gone unchecked for 50 years. She is dying slowly & we are all watching. In NYC. HELP me help her.
Thank you so much for this video. I fall into this category as I was diagnosed at 29 and shunted the same year. I appreciate all you guys at the association do for me in understanding and navigating this condition.
Is there a PDF of this presentation I can obtain? For a first-time care giver dealing with this disease, this gives a fantastic walk through I haven't seen anywhere else. It would be a great piece to have when talking with our neurosurgeon.
sincerely my dad was diagnosed with ALS early this year march to be precisely, and was so confused because I love my dad and wouldn't want to lose him so soon so I decided to look possible solution to ride of this ALS despite knowing it has no cure advised by the medical doctor. Everyday my dad's health depreciate keep losing weight and strength a friend advised me to try DR OKOLO ALS herbal formula that she use to cure her dad's heart disease and I was reluctant about it until after a second thought I decided to give a try because no harm in trying immediately I contacted him he assure me my dad will be cured within few weeks of medication and he sent me the medicine and I applied it on my dad as advised by DR OKOLO within 6weeks of using the herbal formula my dad was cured and my dad is free from ALS I went to the hospital that said there is no cure to ALS and informed them about my dad's healing and they were surprised you can contact DR OKOLO via email drokolosolutioncenter@gmail.com via WhatsApp+23407031895935 he also cured diseases like HIV/AIDS HERPES CANCER DIABETES Alzheimer NPH
I hope you got her to a University hospital for care. Go even if you don't have the money. The university hospitals have social workers to help you get aid.
Now I'm scared because I have been on vp shunts for somethime now and I'm also placed on blood thinners too,I actually had a stroke and I have weakness on my left side and vision as well as memory problem and sometimes lack of coordination, should I be worried
There's liquid substance on my daughter's brain. The doctor prescribed for her surgery, a P V Shant. At first I couldnt understand a thing, but now, I'm okay with what the doctor said.
Thank you ! I am in the process of Hydrocephalus evaluation and you info helps me when I next meet my neurologist!
This post is so important. I'm in tears. My sis was born w/this condition. Unfortunately it has gone unchecked for 50 years. She is dying slowly & we are all watching. In NYC. HELP me help her.
Excellent work by both doctors, very informative and helpful.
Thank you so much for this video. I fall into this category as I was diagnosed at 29 and shunted the same year. I appreciate all you guys at the association do for me in understanding and navigating this condition.
Is there a PDF of this presentation I can obtain? For a first-time care giver dealing with this disease, this gives a fantastic walk through I haven't seen anywhere else. It would be a great piece to have when talking with our neurosurgeon.
I pray to god that they shud soon find a permanent cure for Hydrocephalus other than a shunt surgery
Wonderful narration and explanation by Doctors. This is helping me decide. No way at 75, I am going to webble and wobble and not fall down. I HOPE!!!!
what did you decide? Did you have surgery for shunt at 75?
Thank you very much I learned a lot. Hosts: Please allow the speakers to have comfortable seating and water glasses
HI, did you later regain your sight?
Can a shunt be removed because i was wrongly diagnose with hydrocephalus .I have CIDP.
its all about shunt awareness xx
My daughter is 24years she has n p h also 4 lumbar punctures with significant improvement but she has been left and her condition is detereating fast
Why is she deteriorating
sincerely my dad was diagnosed with ALS early this year march to be precisely, and was so confused because I love my dad and wouldn't want to lose him so soon so I decided to look possible solution to ride of this ALS despite knowing it has no cure advised by the medical doctor. Everyday my dad's health depreciate keep losing weight and strength a friend advised me to try DR OKOLO ALS herbal formula that she use to cure her dad's heart disease and I was reluctant about it until after a second thought I decided to give a try because no harm in trying immediately I contacted him he assure me my dad will be cured within few weeks of medication and he sent me the medicine and I applied it on my dad as advised by DR OKOLO within 6weeks of using the herbal formula my dad was cured and my dad is free from ALS I went to the hospital that said there is no cure to ALS and informed them about my dad's healing and they were surprised you can contact DR OKOLO via email drokolosolutioncenter@gmail.com via WhatsApp+23407031895935 he also cured diseases like
HIV/AIDS
HERPES
CANCER
DIABETES
Alzheimer
NPH
I hope you got her to a University hospital for care. Go even if you don't have the money. The university hospitals have social workers to help you get aid.
Now I'm scared because I have been on vp shunts for somethime now and I'm also placed on blood thinners too,I actually had a stroke and I have weakness on my left side and vision as well as memory problem and sometimes lack of coordination, should I be worried
grateful!
There's liquid substance on my daughter's brain. The doctor prescribed for her surgery, a P V Shant. At first I couldnt understand a thing, but now, I'm okay with what the doctor said.
When having hydrocephlus are you qualify for disability
Unfortunately a diagnosis can’t be rushed.
E
I'm sorry but the programable shunt are the WORST!!!!!