So glad i found this. I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. I have not been diagnosed but all my symptoms scream AS to me. Had pain for 8 years but the last 2 years have been horrendous, daily torture. Worst part is nobody understands how much pain i am in on a bad day
Hi Davy, I'm sorry to hear you're going through this and have been in pain for so long. I'm glad you've been referred to a rheumatologist, as they will be able to do all the correct tests to check for axial SpA. I've replied to your other comment with some links to information about the tests for diagnosis and also our Helpline details. While waiting for a referral, it can be helpful to ask for a referral to a pain management clinic or occupational therapy, as they can give practical tips and support on coping with pain. We also have advice on self care for pain on our website: nass.co.uk/managing-my-as/my-as-my-life/managing-pain/ I hope that's helpful and please don't hesitate to get in contact with our Helpline if you'd like to chat to someone. Take care ~Zoë
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Completely agree - if people
listened earlier - it would save money for the nhs 👍👍👍
Thank you❤
So glad i found this. I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. I have not been diagnosed but all my symptoms scream AS to me. Had pain for 8 years but the last 2 years have been horrendous, daily torture. Worst part is nobody understands how much pain i am in on a bad day
Hi Davy, I'm sorry to hear you're going through this and have been in pain for so long. I'm glad you've been referred to a rheumatologist, as they will be able to do all the correct tests to check for axial SpA. I've replied to your other comment with some links to information about the tests for diagnosis and also our Helpline details. While waiting for a referral, it can be helpful to ask for a referral to a pain management clinic or occupational therapy, as they can give practical tips and support on coping with pain. We also have advice on self care for pain on our website: nass.co.uk/managing-my-as/my-as-my-life/managing-pain/
I hope that's helpful and please don't hesitate to get in contact with our Helpline if you'd like to chat to someone. Take care ~Zoë