BFS Twitching and Anxiety Support / Muscle Fasciculations
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- Опубликовано: 13 июн 2024
- Hi guys, I have had BFS for a very long time and I have spent years helping people with Muscle twitching / fasciculations and anxiety on various platforms.
I have now decided to create some video content focused on muscle twitching and anxiety so that you can get a more personal reassurance whilst looking someone in the eye, so to speak...
BFS / Benign Fasciculation Syndrome is nothing to worry about, yes its scary at first, especially when you consult DR Google but if you have received a diagnoses please stop worrying.
Even if you have not been diagnosed specifically with BFS but your doctor or neurologist said your fine, please move on...
It’s not healthy to dwell and obsess about health related issues and always asking your self "What if".
As I mention in this video, it doesn't matter if you are twitching in your arm, leg, tongue, feet, calves, back, face, eyes or anywhere, location is not special neither is duration or frequency of the actual twitch! A twitch is a twitch!
Please feel free to comment below, I will answer all your questions and even include some questions in my next video!
take care
Ps. I recommend exploring anything that naturally helps the state of relaxation. At home we regularly light a scented candle and enjoy the ambience and relaxation.
I recommend products as found on www.duskbydawn.com as they are high quality, eco friendly, vegan, cruelty free and toxin free.
Leave your comments and questions below, I shall answer each one and select some to address in my next upload!
Thanks for watching guys!
do you still have fasics or have you found something to control the twitching?
Charles Polzin My symptoms go up and down, but I’ve been twitching for many years.. my first hot spot was about 14 years ago..
Great video, and a great outlook on life 👍
I’ve had this for so long not knowing what it was
Hello sir it is normal...twitching my muscle everyday?
I love people are speaking out about this. Thank you
Will Wells I’ve had it a very long time and I’ve seen so many people over the years get worked up about it.. I try my best to help. Thanks
I have had this for 20 friggin years. It comes and goes, as you say. I find magnesium helps. When I don't take it (on purpose), the twitching is more much intense--although this could just be the placebo effect. The most annoying thing about BFS are "hotspots". I can live with random twitches here and there that happen all day long, but when they happen in the same place, it drives me crazy. Two decades of it, and it is still hard. But I found your video very helpful, even after living with this for 20 years!
I agree. It’s going on 19 years for me and it’s still incredibly annoying. After almost 19 years in, a brand new “hotspot” has developed in my left ear last month and it is *BY FAR* the most annoying and most stressful twitch I’ve ever had. I used to think eyelid hotspots were the worst but this ear thing takes the cake.
I’ve tried magnesium over the years but it doesn’t really help me, unfortunately. Or maybe I’m not taking a high enough supplement.
I just hope one day this shit will go away completely.
Comes and goes? Do you really have this type of fasciculations, these type never ever come and go they are constant for life.
I twitch all over my body and even in my head
Do u guy feel weakness ? I have this for almost twelve years or so and such a depression for me
4 months later and I have revisited this video and it gives me so much reassurance you have no idea. I've been switching over 4 months now just when it started to die down and I could ignore it it came back with the vengeance. Again thank you for this video
Your videos really resonate with my personal experience. Love your transparency. Thank you!
libertylover81 Transparency and truth are the best approach. Glad to have helped. Take care
Wow this made me cry. So glad someone in the bfs group posted this. It’s been such a struggle but I do find relief in hearing others stories and knowing I’m not alone. Thank you for posting this. I subscribed and can’t wait to discover more of your videos.
Hmmm, how come the comments above are dated a year ago and your post which was posted 3 MONTHS AGo is down here>!? I didn;t know you could arrange ithe comments this way. It's weird. I though the most recent comments go up
Excellent words of wisdom and experience. I greatly appreciate the understanding, patience, and warmth delivered in this post. Sensitive is spelled with an I.
Great Video, I have been twitching for about 5 months, started in legs but have had them all over, currently have a hot spot on my neck on the left side almost constant. I saw my primary care doctor after a couple of months , she did a full exam did bloodwork and told me that I'm fine. I asked if I should see a neurologist, and she said no. You have to trust your doctor. Definitely what has helped me are your videos and others from fellow BFS sufferers. I still have bad days but more good days than bad.
Thank you so much for this video! I haven't been diagnosed and only just learned it was a thing. my twitches started after I was in the car with an unstable friend of mine, and he decided to drive incredibly fast and I thought he was gonna take us both out. my Doctor didn't seem to have an answer and wasn't really concerned either, and my psychologist just dismissed it as a nervous tick. I've been so terrified of not knowing what the hell is going on with my body for months! and on top of that have to deal with freaking out with loud or ongoing noises (like car engines, boiling kettles, etc.)
I'm so tired of having no idea why I'm like this. I'd never had health anxieties in the past and have dealt with undiagnosed stuff before.
I'm just really glad there are people out there who will actually know what I'm talking about now, I felt really alone before.
sorry for spilling my guts out in this comment
You are a hero ✨ thank you a million times. I will watch this every time i freaked out.
selen laleci Im so glad to have helped you! I’ll be uploading more videos so hit that subscribe 😎
Take care
Me too!
I never realized or gave myself any validation about the traumas I’ve been through in life. One after another. These insights really help. Thankyou.
I am glad my videos have helped you.
Always remember that even though you have been through so much trauma and tough times, you’re here, a stronger & better person as a result.
I wish you happiness and wellbeing for the future, take care.
Thanks brother...you have NO IDEA how much this has helped me.My goodness
Very pleased to have helped. Take care
Fantastic. Very much needed for those new twitchers fearing the worst. Everyone is so similar it SHOULD be very reassuring.
Mark Perry Thanks, agreed people with BFS share a lot of traits. I’ll be uploading more soon, hit that subscribe to follow.
Merry Christmas!
This video was a godsend. Exactly what I needed to hear. I've been spiraling about my twitching for the longest time and its only made it worse. I now know what I need to do in order to live a little easier. Thank you so much
Abby what was your twitches from?
You are the best . Facing a lot from last 2 years .... I had a fear about twitching. thanks for giving positive approach to look at it.❤️👍
Glad to help, take care.
This is a great video and very helpful. Getting outside and being active has been so helpful for me. Just get into nature and absorb how wonderful it is. Going surfing has really been the best thing for me. I seem to not think about twitching when I'm engaged in something I love.
Exactly, I’m so pleased being oitside brings you peace and time out from noticing your twitching! It’s also one of the best things for your mental health, staying active and outdoors! Well done!
God Bless you bro! I was terrified of my twitching that started at the crease of my elbow and now I’m feeling it in my legs and all over. It’s been 3 weeks since it started and I haven’t been able to get any sleep or concentrate because I fear the worst. Your video really helped Thank You!!
Did you have it checked?
Such a reassuring and perfectly delivered piece of information. I've been finding my anxiety quite overbearing since the lockdowns started, but this video has made me feel a lot better about my muscle twitching. Thank you
+David Dougall Always talk about your anxiety, don’t feel you have to bottle it up! I’ve battled it on and off from a kid, I do well now but after many years learning how to manage it! Stay strong and look after your self! Take care
Did the twitches stop?
Im a doctor and I freak out over this time to time. Thats what anxiety does to you...sometimes the anxiety wins, regardless of your knowledge.
+Tveksam Yes, it can play with the minds of all people regardless of your knowledge base in the field. Take care
Yes dear colleague , I am doctor as well a neurologist moreover . Anxiety turns your body totally out of control. I have BFS more than 25 years. In the time of beginning I did not have any information about that . Therefore lived more than 1 year i n daily depressions.
I’m in the thick of what you’re describing, and seeing this video helped me. I’ve been convinced that I have ALS, even though random muscle twitching is my only symptom. I have extreme anxiety and I obsessively think about things. Thank you for your perspective and advice. Thank you.
I hope your doing better now and I’m glad my VLOG has helped you. Take care
Hlo I am also having muscle twitching from few months.does your muscle twitching cured . please tell me I am scared
I have had BFS since I was pregnant with my first son 12 years ago. I have felt so alone for so long with this. It is so nice to find somewhere/someone that can feel what I have been feeling for this long. Thank you.
Mine also started while pregnant... did it ever get any better? Do u also have the painful spasms
+abby devore Thanks for sharing your story, I actually mention this exact point in my VLOG as a common occurrence even for men who become new fathers.
I am glad my vlog has been helpful. Take care
Wow....I needed this. I’m almost in tears. I have OCD and horrible health anxiety and I’m a new stay at home parent. I’m exhausted and terrified. I’m on an SSRI and I’m going to a neurologist, but my rational brain knows I’ve twitched for years. I google, do strength tests, watch videos. I’m so depressed and scared. Everything you said hits home so hard. I’m going to watch your other videos. I needed this tonight. Thank you.
You are not alone, did strenght test because the twitches and fasciculations, high anxiety having panic attacks sure i have ALS and i gonna die, my psychiatrist double my medicine because of the health anxiety it sucks.
Melissa Lupo I hope you’re feeling better with your twitching. Sorry for the delay but life’s been very busy lately and of course with the additional stress of corona virus it’s been tough.
General advice I give to people is to change your thought process, stop giving twitching time and replace that thought process with something you love!
Stop asking yourself “what if” and try to get out for fresh air as often as possible.
Be thankful for nature and all the good things in life!
Try to zone out too, set your phone down and close your eyes and breath.. meditate and just slow down that fast world we all live in.
If you have specific questions please ask, take care.
I keep telling myself it's BFS, because my massive twitching started at the same time as the pandemic. I went weeks of hypochondria moments, from HIV to having ALS. I sat down and wrote down symptoms I noticed AFTER the pandemic and symptoms that happened before. I went 2 months of flight or fight body mode during the Covid outbreak..After writing everything down it boiled down to carpal tunnel syndrome with ulnar nerve compression (waking up with sleepy hands). Everything else, from twitching to "percieved weakness", was something I experienced after the pandemic. I truly believe my anxiety triggered BFS.
Same
Same!
Thanks for sharing and I am glad you have realised the cause and that anxiety is a great and powerful amplifier of symptoms.
Thank you for this! I’m 18 and started twitching four years ago. It’s all over my body but more common on my toes because I have bunions and I imagine the pain from it must cause the sometimes intense and constant twitching there. Annoying, but glad to know we are healthy and it really is just a twitch!
I’ve similar feet issues lol.. my feet have loads of fine twitching my my calves are like 24/7 lightening storms! Stay positive and look after your self! Take care
I’ve been experiencing chronic muscle spasms throughout my body for a few months now. It’s so stressful and anxiety inducing. I hope it’s nothing serious but diseases linked to muscle spasms are so scary. Videos like this are helpful though so thank you.
did u check it out yet?
Did you ever go for a check up? How are you feeling now? Did you also have twitches with the spasms? Honestly I do not even know the difference between spasm,twitch and cramps.
Thank you so much for this video! I’ve been having random twitching for the past 5 years and it’s such a relief to know there are others out there as well! Yes, I have high anxiety and this makes so much sense!
Yes it’s in random spots of my body. It will twitch for a few days then go away. For example: my left thigh, the spot between my thumb and forefinger, bottom of my foot, the back of my arm, one eyelid….
@Krishna Thapa it’s not that good. I’d rather not have to deal with this. 🤷🏻♂️
@Krishna Thapa why don’t you watch the video and get suggestions from there? He has great suggestions for dealing with this.
@@user-db8jz1bu2d Bro, Have u any difficulty walking, Means like u r not getting full strength on ur knees, ... Or muscle hasn't that much Strength, ... I have twitches, But in the same time i have weakness too.... I have been suffering from a severe health anxiety since 2 years ...
@@AHMEDShOaib12RA j’ai exactement les mêmes symptômes que vous. Comment vont les choses de votre côté ?
I’ve had twitching in both calves for just over a year now and have finally plucked up the courage to go to the doctors. Thank you so much for the reassurance. You have no idea how helpful this video is ♥️
Me too, but with soreness and stiffness, what did the Dr saY?
@@brentpope100 I’m so sorry to hear you have experiencing the same. I haven’t had any other symptoms. The doctor referred me to a neurologist who has put it down to benign fasciculation syndrome, however I have an EMG next week just to ensure it’s nothing more serious x
@@brentpope100 are your twitches constant throughout the day? How are you feeling now? Have they died down? Did you get it checked out?
Good now?
@@aimeechappell8750how did you make out?
This helped me so much thank you so much, mine started in my right thigh right above my knee and stayed for 4-5 days and I was convinced this was ALS then it went away and started in my left calf, that’s been going on and off for weeks, now it’s firing all over my body, will be 3 seconds in my eye , 3 seconds in my chest, 3 seconds in my thumb ect. After 3 months of this no other symptoms I am finally starting to relax and get over it and accept it
Did you have it checked? Did it stay the same?
Thank you for this video. I couple weeks ago I started noticing tremors in my hands and soon after started getting constant muscles twitches all over my body. I laughed watching this because I'm that person that is constantly sticking out my tongue, walking on my tiptoes, and doing push ups to check my strength. In February, I left the US for a new job in another country where I didn't know anyone. I am still under a lot of stress trying to learn to navigate my new life apart from my family and friends. I think one of the major breaking points for me was when Covid hit as I was just moving into my new place. I was so paranoid about contracting it that I checked my temperature every hour of every day and never left my apartment unless it was to go to work. As someone who is an extremely hypersensitive hypochondriac, I know my thoughts are irrational but it's hard to over look them. I've recently booked an appointment with a therapist to try to get in a better mindset and I'm getting tests done by a neurologist in a few weeks. I know these twitches are most likely anxiety induced, but I need that confirmation from my doctor just for my own peace of mind.
+Victoria Pargas your story syncs up with many of the points I mentioned in my videos! I hope your doing better now! Take care
@Krishna Thapa Do u have twitches ?? Along with that anything ?
Great video here. I have had BFS for 12years now. I was the biggest skeptic when this first started. It is annoying as hell. Recent flare up once again. I found this video very well put together. Thank you for sharing this.
Hlo sir.how you confirmed that you have bfs.i am so scared😭I am experiencing from few months..do you treated for it please help me sir
Hi, I confirmed that I have BFS by a neurologist. As a matter of fact, I went in for a check-up just a couple months back and after 12 years, the diagnosis is the same, BFS/CFS. There is no treatment other than exercise lightly, eat well, sleep good, avoid alcohol and try and relax and find a hobby. No worries. You are going to be fine!
You’ve just told about literally ALL worries I had for the last month. Even about staying on a tiptoe it’s 100% bullseye man. It’s unbelievable how many people have the same exact worries all around the World
НИЩЕТА И СОБАКИ I am so glad to have provided you some reassurance. I’ve been helping for years and I’ve seen thousands of people with the same issues.
Hit subscribe as I’ll be uploading more support for both BFS & Anxiety. Take care
How I doin now man
@@mcannon7097 just fine
I appreciate you putting this video out to help calm people's nerves, literally. lol. I started having this twitching about 3-4 yrs ago. Started with the eye fluttering often, then it spread to every single part of my body, even inside my ear and in my nether regions, which is something I never hear about from anyone (perhaps it's taboo to talk about). Only had occasional, very mild, twitching in the years leading up to this. I've had anxiety my whole life, but now have much better coping mechanisms, so the anxiety is much less than before, but as a single parent have had responsibilities piled on top of me, which didn't help matters. I drink pop and smoke cigarettes, which I'm sure also doesn't help. I was told it might be Vitamin D deficiency since my levels were low, and have taken vitamin D and magnesium for some years now, but it's not making any difference with the chronic twitching, but it seems to have boosted my immune system, which is a nice side effect. Given the stressful situations that I've had to deal with lately, it's hard to quit my habits of pop and cigs, though I'm working on a plan to quit both. Not sure if it will make a difference with this though.
@Krishna Thapa Forgot I left this comment somewhere. Twitching has gone way down because I found out that my thyroid is messed up (hypo-thyroid). I'm now taking supplements for it which has taken the twitching way down. Will be getting on medication for it as well. Stress can cause thyroid issues. So if anyone has these same symptoms, please get your thyroid checked!!
This video makes me cry... Thanks bro🙏🏾💐
You’re welcome, glad to be able to help. Take care.
Thank you thank you thank you... I've been absolutely terrified; unable to sleep.. but this.. this helped tremendously..
Got me smiling and laughing at how this applies to me.♥️♥️♥️♥️
Thank you and God bless your kind soul ♥️
I am very happy to help, take care.
You are amazing brother. Thank you really much.
This all started for me back in June and hasn't really stopped. Twitches move around here and there might settle in a spot for a while. One thing I've noticed is the twitching loves your attention. Have one on my lower eyelid driving me nuts!! Great video very informative 👏
How are you doing now. Do you still twitch. Is it or was it most of the time everyday for you or just once or twice a day. Also did it stay at one spot. I know you said it was here and there and sometimes at one spot but how was your experience. Would you please be able to share
@@headacheification Hi👋 Yes I still get twitching here and there. I've still got the lower eyelid twitch which depending on stress and mood, have good and bad days with. Went to a doctor and he said it waa myokymia and no further investigation was needed. Have had various hotspots pop up... last was my left knee. In my case I think it's driven by anxiety and stress and how handle it. Not gonna lie its a battle.
@@benny-S thank you for sharing and glad to know you are doing okay 🙏🏻
@@benny-S how r u feeling now... Pls rply
@@premmysterio4018 hey... Doing okay get random hotspots now and again. I try to ignore them and hopefully they disappear on there own over time. I try also try not let my health anxiety get on top of me. Very tough to do though. Only takes a few negative thoughts and Google searches!
Thank you very much for this video. I was very deep down. I thought that I had ALS. I have fasciculations for about 3 months. The only symptom that I have are fasciculations all over my body but nothing else.
I will be father in a couple of weeks from now in a coronavirus times and ,maybe, all this together gives me anxiety generating this BFS.
I have done blood test, GP visit and neurological visit.
They have said. There is nothing wrong with you. You are in a perfect health condition don’t think about it.
Thank you again because maybe the fasciculations weren’t the main source of my anxiety.
Have a nice day.
Your story is a common one, big changes in life, extra responsibility and so on..
look after yourself, eat well, sleep well and stay active. Take care
Javier, how are you doing today?
this is great - I think it would also be helpful to have a video about some of the other symptoms that go with BFS. It compounds the anxiety level for me. Not only twitching but pain as well.
davewreslt Thanks. This was pretty much aimed as an introduction, I plan to get more focused on specific points in future videos.
Also replying to some of the comments like yours in the future videos.
If you have any particular issues or concerns just ask.
Thanks again.
@@bfsanxietysupport gotcha. look forward to your future videos!
davewreslt Thanks ! Keep in touch and take care
@@bfsanxietysupport oh yes. you will be seeing my posts on the facebook group! I've seen some of yours
This is wonderful. Thank you!
+Marcus B Your welcome, thanks for watching & I am glad you found it helpful.
It’s the most crazy thing ever. Just been diagnosed. It’s worst at night too!!! Keeps me awake
It’s strange for sure and many say it’s worse at night due to sitting still and having time to notice it more. Try to filter it out and not give it time.
This is a fantastic video and is as close to a silver bullet as one could find for this type of thing . I am a Type 1 Diabetic and am very hyper vigilant and hyper aware of changes . I have random calf twitches with pre-cramp/crawling sensation. Went as far as having a vascular specialist check circulation in legs for any issues . Nothing major/noteworthy found . Thanks for sharing .
You’re welcome, thanks for the feeble back too, it’s much appreciated and I love that you called it a silver bullet! Take care!
Becoming a parent has caused this for me. When my baby was 4 months old he stopped sleeping through the night. I was exhausted and unable to think straight. I brought my baby to swimming and when I got home I noticed my arm was exhausted from holding his baby seat. The tiredness kept up all day so I googled tiredness in the arm. Then ALS popped up. I absolutely freaked out. I started noticing absolutely every single minute movement my arm would make. I started over thinking everything my arm was doing convincing myself it wasnr right. I had several severe panic attacks and sleepless nights. Then after about 2 months of this my arm began to twitch. Then my leg, my neck, my thumb, my toes wouldn't hold still at night from all the twitching and I felt like I was internally shaking. It's been almost 9 months now and I haven't gotten any weaker now are my muscles atrophying; just twitching so I know its not ALS. I'm going to see a neurologist on the 22nd of Jan to rule anything because my mother has MS but its only lately I have copped on to the fact I don't have Motor Neuron Disease. Its very easy to get caught up in the twitching and go back to the "what if the twitching is something serious?" thought but I'm trying to take care of myself. Getting more sleep, eating right and exercising. Gut health is hugely linked to all this and brain health in general. I highly recommend looking into it!
Michelle O Your right and your matching a lot of the points I mentioned in this video..
I had bfs and it went away more or less then when my second child arrived it went into over drive.. many of the same things you mentioned I and so many other can relate too!
Glad your doing better now! Thanks
How are you doing Michelle?
@@Ellen-85 Hi Nel, thanks so much for asking. Things have gotten so much better. Nothing showed up in my MRI and the Neurologist was very happy that I didn't have ALS because while I felt like my arms were weak, they actually weren't. It still took me a while to calm down but now I'm getting more sleep and exercise I feel like I'm on top of things, I still twitch every now and then but it's practically gone. It returned in times of high stress but doesn't frighten me anymore. Life is good 😊
Thank you 🙏🏼🙏🏼 needed this.
Hello Im from South Africa Ive been twitching for about 21 years now they come and go, Thank you for this video
Thank you for making this video.
apphacker Your welcome, glad it helped you. Take care
this helped me so much thank you ❤️
Shannon Cook Your welcome, glad it helped. Take care
Just want to thank you for this and other videos
Thank you so much for your video!
I do appreciate your efforts in helping others with bfs.You affirm that things will get better. My question is how did they get better for you? I understand that you've twitched most of your life but yet still do? That's not too reassuring . I'm sorry if that may offend some.Im just keeping it real.
lastcall170 The battle is coming to terms with the twitching, fully believing they are harmless then mentally you can move forward with no fear or anxiety.
As I mention in this video, BFS is like a rollercoaster, it gets highs and lows in terms of frequency of twitching. You just have to ride it out.
I can promise that reducing anxiety does help.
very genuine and very helpful!!!
Thanks, glad to be able to help. Take care.
Thank you so much for your videos ✨✨
You’re welcome, I’m glad I’ve helped. Take care
I went down the rabbit hole 10 years ago thinking I had ALS body was twitching aching weak arms was checking for muscle shrinkage it was terrible 18 months in the end symptoms gradually went an mins calmed then had times in the last 10 years were twitches come back last week the twitches have come back an scareimg me again but I just got to tell Myself this is just my mind it’s anxiety
Thank you so much! ❤️
Are floaters normal with this ?? I got them 2 month after the twitching
+The Greek Freak You can get floaters from anxiety.. always see your doctor though as there can be many reasons and most easily treatable. Hope your doing better!
You have had an Epstein Barr or mono infection prior to BFS which can causes protein buildup in the eyes. Do you remember being sick/lymph nodes hurting?
I’ll get twitches around my left chest almost close to my heart and it gave me an anxiety attack. I do believe I’m just hypersensitive about my health now but thanks for this video Definitely cleared up my anxiety.
Allrise Really glad to have helped! Take care
Allrise oh man, i just started to have it too on the left side of the ribcage. It comes and go on certain day and sometimes it could last very long in a day. Feels like a heartbeat but heart beats normally. Plus anxiety kicks in whenever i search up for answers on the net.
I just saw a neurologist today to rule out ALS because I’ve had full body twitches for over a month now. He said BFS but to come back in a few months to follow up. How long after you were told it’s BFS did it take for you to accept that and stop worrying it could still be something horrible. I’m currently struggling with that even though tests today were normal. I suffer from health anxiety and general anxiety as well and this video really helped!
Also, curious if your twitches are just in hot spots or do they move around throughout the day
Hannah Hendricks Hi there and so glad your Neuro said you ok and that they are keeping an eye on you.
Don’t panic, it’s great they are following up!
They may have noticed you were anxious and simply want t offer a follow up to reassure you further.
Typically a clinical examination is all you need and you passed. If you were twitching for other reasons other than BFS the Neuro would most likely have seen other issues for concern and they did not.
Go enjoy your day 😎
Hannah Hendricks Have a look at my other videos. I never stop in the calves but I twitch head to toe! Random pops all over for years and at times it heats really busy and others pretty quiet as I seem to filter out the noise.
My fasciculations (mainly left calf muscle) started in January. The skin on my legs feels desensitized and I tremble almost all of the time ( probably due to anxiety). I have vestibular migraines, oral dysesthesia and tinnitus - all neurological conditions and I am 64, right in the ballpark for a degenerative disease. I also know someone with MND (ALS) for whom it took 18 months for a diagnosis. Went to GP, referred to neurologist and got the appointment for six months hence then Coronavirus hit and I am locked down alone. So all of these things together have contributed to a near mental collapse as I had convinced myself that I in early stage MND.
Yes I did Google the symptoms and likely outcome and it was only then that I found out about BFS. I am given to somatic analysis so I am hoping this is what it turns out to be. Won’t be convinced until I have an EMG whenever that may be with this dratted lockdown.
Sorry for my “life story” just wanted to say thank you for your channel to which I have just subscribed. RUclips obviously has seen me researching because it led me to you. I think the worst of my panic about MND is over - for the time being anyway. More strength to you for helping and sharing.
Thanks for sharing your story, I really love to see people do this as it encourages everyone to speak openly which really helps everyone deal with their issues! I hope you’re doing well now! If you want anything addressed in future videos just ask! Take care!
Hi! I stumbled upon your post and I related so much because I have cervical dystonia and vestibular migraines. My twitching and trembling started 6 months ago. Nothing has come up in my MRI's but I am terrified. When the trembling and twitching started my stress had hit an all time high, I rational do think my new symptoms are 100% stress and anxiety because they started when I was EXTREAMLY stressed and I notice them Alot less when I can calm down a bit.
I really just wanted to let you know I appreciate your post because it lets me know im not alone and I hope it helps you to know you are not alone either. ♥️
How did you make out?
Having blood work done and neurological tests next week absolutely bricking it!!
How were your tests?
docter told you which blood checking plz tell
Nothing to report. Anxiety driven
Wow. General anxiety - yep. Health anxiety - yep. Hyper aware - yep. Major life events - yep. Stuck in fight or flight - yep. 😫🤦🏼♀️
Katie Williams Your not alone, so many share these traits. I’m so glad the VLOG is helping you. Take care
Try magnesium for your anxiety.
Hi @Neurophysiology. I hope you are well. Going off topic quickly, is Benign Fasiculation syndrome a brain disorder? And what can be the causes? It’s just about 6 months ago I caught covid, and about a week later I took ketamine for the first time. 2 days later I woke up with involuntary twitching and myclonic jerks. A few days later it went, but the one thing that happened a few days after that, and has stuck ever since, is that both of my calves constantly twitch at rest, and it led me to having a mental breakdown. I paid to see a private neurologist and he told me that it is all anxiety related, as I am scared that using drugs once has ruined my whole life. I had an emg on my calves and it came back clear. Of course I’m not asking for medical advice over the internet. But in your opinion, do u think this can go away? And would something like Botox be a suitable treatment? Thanks
You make me feel peasfull and i,m Happy to find such understendinding peaple. THANK YOU, thank you alot
I was cry all day and nobady understends me exept You. Sorry for my english. Anastazia Благодарю
That’s lovely to hear, I am glad you found support in my videos! I hope you are keeping well now! Take care
THANK ALOT, YOU SAVE MY LIFE. NO ONE COULD UNDERSTEND ME , EXEPT YOU, I HAD TIMES I THOUGHT OF DEATH, SUICID, TRYING TO TALK WITH FAMILY, BUT THEY WONT LISTEN, YOU SAVE ME . THANK YOU .
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I seriously never thought of it this way. I've had this for more than a decade now. I switched high schools and took it real hard, super stressed and anxious. Thats when they started. They weren't that bad and I weren't concerned about them in particular. They'd come and go at varying intensity (most of the time they were not an issue) but then 10 years later I got into a relationship that was very stressful to say the least and lasted way longer than it should have. I noticed more and more getting consistent twitching. When the relationship finally ended last year twitching was through the roof. And instead of my anxiety going down, it seemed to just get transferred to focusing on twitching. Like you said, super aware of everytime my body moves. It's exhausting. How do you go back once you become super aware...
+tommyboy Your story sounds very familiar and typical of many with BFS! I hope my VLOG is helping you! To answer that last question... Becoming less hyper aware is tough, you will possibly always be wired this way now but you can filter out the noise if you keep busy, stop focusing on the twitching or your body.. Get outside and enjoy life! Just dont dwell on things and clear your mind!
I am sorry. BFS is a real pain in the ass. I am going on 4 years now. All of my muscles twitch at different times. All of them, oh my...LOL
I have them since two months (24/7 in calfs and occasionally all over the body). Did you check your Vitamin B6 level in the blood? I have tested it and it resulted out double then normal. I read in internet that Vitamin B6 intoxication can cause fasciculations. I am looking forward now to see if lowering down my B6 with time (it takes long to dissolve in the body) will reduce my fasciculations.
I’ve had full blood works and nothing was found. I do take supplements daily though and I believe they help. I talk about this in another video.
Hello. Same by me. B6 to high. How is the Situation by you now ? Thanks
I had an EMG which showed carpel tunnel in one hand. I have finger twitching, mostly indie finger in both hands, mostly right. Is this BFS? EMG found nothing but carpel in one hand. Thanks
Thanks!
Thank You!
I am 38 years old and have had twitching since nearly 2 years now. It started with my legs and now it's all over my body. I visited a neurologist and after 2-3 visits he said it's because of anxiety. But I really get scared when I search the net and ALS comes up. Sometimes it's hardly noticeable and sometimes it's persistent for some days and really annoying. As more I think about it more it happens. Today I saw this video of yours and it really relaxed me a bit that my twitches might not be harmful. Hope you can give me some advice to cope with it...
I would say to watch my vlog, take in what I say for each video and you should realise BFS is annoying but ultimately harmless. Take care
Thank you
Santiago Poznansky You’re welcome, I hope my uploads helped.
I thought it was ALS, twitching mainly in my legs especially when I sit down or lying in bed. I was scared, still am. I've had some health anxiety for a long time but this has scared me the most.
so did u get it checked out?
How are you doing nowadays. Did this resolve or did you get checked out.
U good
My calves have been twitching hundreds of times a minute for 21 years. Never have they stopped. I am unique! I like freaking others out when they look at the lightening storm in my calves. It is all random - can't predict the next twitch at all. Quantum physics are at work.
Thank you for your video I really appreciate it . Actually I started having calf fasciculations and sometimes into other parts 24/24 since 3 months ago. I had a urinary infection on February that caused me pain, little fever, great tensions and then fasciculations and great ashtenia. Now I have fasciculations and small shocks on the legs. I can do everything basketball, weights lifting, running, have no more ashtenia. I made lot of exams (blood, emg, 2 neurologic exams, magnetic risonance of the spine, covid too) and all was negative. Should I consider them benign? I believe that everything started after that infection but I didn't find the responsible of it. Sometimes I m really worried about it
+IACOPO GARAVELLO You can’t ask someone on the internet to evaluate your symptoms and diagnose, don’t fall for that..
The only people that can diagnose you is your doctor or neurologist.
I am sure that after al Rhodes gets , if you doctors thought something was not right, you would be well informed. Keep fit and make good lifestyle choices! Enjoy your life ! Take care
If this is purely psychological, anxiety, please explain this to me. These twitches stop instantly once I leave home and go outside. They always happen inside my home. At least for the last 5 months. Before, i never had anything like it, and even during way more stress than currently. Perhaps its EMF radiation? Wifi? Smart meters? Mold? How can you be sure its anxiety? Hell lot of people are anxious or depressed and dont have such twitches
man, it's been going on in my legs for a couple of years.. Both legs! now its been happening in my left thumb. I can feel my hand starting to cramp then my thumb twitches for a couple seconds then stops. I was concerned about ALS since that's were Dr. Google sent me. Saw my GP, he tested my reflexes and my strength and sat down looked at me and said you don't have ALS. I do struggle bad with Health Anxiety. He raised the dose of my anxiety meds, added one and sent me on my way. Still so concerned
+J Berner33 I’m really sorry to hear your having a difficult time with this, it’s touch and some people just find it harder to deal with.
If your doctors are saying your ok, you just need to believe them and find ways to break the worry cycle!
I’ll be uploading a series of videos focused on anxiety soon which should help.
Have you watched all the videos in my VLOG ? There’s one about anxiety and one about FAQs which should also help you. Take care man!
What a great video. Thank you.
L Colon Thanks, Check out my other videos in this BFS vlog series. I hope they help.
Thank you so much for this video. My husband has been twitching for around 9 months now. He's been always extremely anxious about stuff. Always overthinking even the most little things.
I think what scares him the most is the fact that his grandfather died of bulbar ALS. Even when the doctors said that it was because of the fact that he served in the army during war.
The twitches seemed to have started after him drinking for a few months. Since he had been dealing with severe anxiety, he found himself to feel more "chill" if he had a few beers everyday. Which I totally hated, but it was so hard to convince him to not do it.
Then the twitches started, and he totally stopped drinking. The twitches never went away tho. And that's when he started to fear the worst.
He kept saying that his left leg had atrophy because it looked different than the right leg. That lasted a few months. Then he said that even tho he had twitches all over, he felt really weird ones in his left ankle and thought the muscle was wasted. After he got over that, it was his shoulder that felt "weird". Then he had a little bit of cold and kept clearing his throat and attributed it to ALS. And the last spot that he feels uneasy about is his left hand! He says it looks different than the right one. That the creases are not the same. Which is true. But he doesn't take in consideration the fact that his thumb was almost cut of when he was a teenager. And his pinky also had an injury that never healed right. To this day he cannot extend it. It's forever bent.
He's scared of going to the doctor, and I can't convince him.
He has some good days. But the bad days are horrible. He gets incredibly pessimistic. And want to fit himself in all the rarest cases of ALS when the twitching came first. Or when it affects a very young person.
He's been doing pushups and he actually started by doing 40 every day and improved to the the point of doing 70 in a couple of weeks. Still, he thinks the worst.
I try to stay as positive as I can, but it's wearing on me so bad that sometimes I find myself believing all the things that he believes and thinking that he's truly sick. If it's bad for me, I can't imagine how bad it is for him.
I won't show my concern to him, because it will make it worse. But it's been hard.
Any advise?
Thank you in advance!
The best action is to speak with the Neuro, they are the only place to seek reassurance.
You’ve described a lot there but I’d also say work on the anxiety and stress, it may not be connected but if he is in a high state of anxiety it certainly won’t help matters.
Remember, we all get injuries and long term issues but it’s irrational to go to the worst possible case in your line of thought, that’s unhealthy and I suggest to work on that.
I hope he feels better soon.
How's your husband doing now? He sounds a lot like I am. I am a girl and with a lot of stuff going around me I developed these twitches. I can identify with what he is going through. One important thing I found during my online research is that ALS is not as common as we think. And it is not as common in younger people. Secondly, I developed my twitches when the pandemic put a pause to my heavy exercise routine. Instead of exercise, stress, sedentary lifestyle and physical exhaustion began to rule my life. I doubt ALS or anything similar can affect people who are active. I am worries about my condition but I am trying my level best to address it positively and give my body time to adjust...
@@appugiri he's got bad days and good days. It's been a year and half now with the twitches. Some days he'll go through without saying anything about them. Some days he comes up with a new "weird" thing that looks like ALS to him. Even in his good days, I can tell he's anxious, over reacting to little things for example, thinking the worst case scenario. He still doesn't want to go to the doctor. There's no way I can convince him. Every time I bring it up, he says he's scared and prefers to wait. "If three years pass and I'm ok, then I'll stop worrying about it". Which is ridiculous to me to live your life this way because you are afraid. It's no way of living.
So you should really go to the Neuro and put your mind at rest! I'm sorry you have to go through it! I hope you get better! :)
@@stephaniedunker6699 , wow! You sound like my wife. I started with a arm twitch a month ago and after googling my twitches went everywhere... scared the crap out of me. They settled in my calves and some days are better than others. I still have my strength and went to a Nuero who said they’re benign but he ordered an mri and emg for me (I think he knew I wouldn’t believe him alone). Anyhow, how is your husband today?
@@stephaniedunker6699 how is ur husband feeling
I have never heard somebody hit on every point that I live..Daily... I literally thought I was the only person that had been diagnosed with BFS.. I'd love more info!! Currently at the no quality of life phase of BFS
Thank you for helping, My symptoms started about a month before my wife left me which made the fear worse lol... like did she ditch me cause I may have some bad illness? and the first symptom was constant random pointed sharp electrical pains jumping all over my body. then came the muscle spasming about 3 weeks later. Now I have both of these symptoms all the time. Is the small but very painful points jumping around a common symptom? Ive not heard that specifically referred to. Thanks! p.s. the craziest are the inner ear spasms that sound like rumbling... I never even knew I had those things lol
Hi, brother, you are doing great hope more people find this..and get a slice of satisfaction for there talking.
From Dec'19 till today my body's certain parts twitch like most of the time lips and facial twitching something finger twitch or sometimes cramps happen. I have migraines too.
These twitching are so irritating that I'm not able to focus...
I have anxiety and stress issues also these twitches started first then anxiety issues started second...
Is my condition is the same as you are talking about...?
Akash Tiwari Thanks, I try my best to help the BFS community.
BFS can effect any voluntary muscle, whilst I can’t diagnose anyone I’ve seen plenty of people who have the same symptoms you describe.
My advice is always check with your doctor as they are best placed your review your situation. Don’t waste time trying to work it out yourself as it will only create anxiety and stress.
When you get your BFS diagnoses or even the “your totally fine except your twitching” diagnoses then watch more of my videos and try to put it to the back of your mind.
Take care
Bhai same problem
@@somethingnew....everytime6127 hi 😭
What supplements and how much do you take? Thank you 🙏🏼
Hi, i’ve got this twitching on my left ribcage at the side. Its annoying coz i’ve never had this before. Searching on google for answers and and i’m hit by anxiety coz im worried its heart attack.
Hi do you experience cramping? I've always had cramping in my legs and feet I feel since BFS it's more prevalent
I really enjoy your videos. Thank you! You did not mention muscle cramping or soreness or perceived weakness. Did you have any of those symptoms? I’ve only been twitching a month and these are the worst. Thanks!
Ashley Mccain Good comment and I’m glad you enjoy my videos! There’s so much to talk about with BFS so I’ll get that added into one.
Thanks again
Hey Ashley .. I also have been dealing with this and yes I have perceived weakness and sore muscles everywhere even burning pain in some areas
@@markandre4347 SAME ! .. but no weakness. pains and burning.
@@markandre4347 , did your soreness ever go away?
@@nrocowboy my sorness is still on and off. Now it's when I use my muscles they get sore easily. But when I'm not doing anything my pain and soreness went away
thank you
+Sean Taylor Your Most well one, glad to be able to help! Take care
Hi there, I have a question, you mention at the beginning that you can be person #1. But can your doctor really tell you it’s not something else without further tests? How can you be diagnosed on the spot?
I know it’s not the same for everyone but I’ve been taking magnesium supplements and they really do make a difference. And a bit off topic but they’ve really helped with my period cramps as well. So I’d definitely recommend them if you’ve not taken them before
+88tazler88 I take supplements everyday and magnesium is one of them. Keep a balanced healthy nutrition, good sleep and general active lifestyle where possible. Take care
This may seem really weird but I’ve had twitching for as long as I can remember. I’ve never really seen it as a ‘problem’ and just accepted it.
I just come across this video and thought it interesting.
As I said at the start, this may seem weird to some of you but I actually enjoy the twitches.
I’ll sit and watch them just out of sheer curiosity. Sometimes I even find them therapeutic to watch.
I’m interested to know if I am the only one that feels this way??
that is not weird at all im actually the same way, always twitched
Obviously you don't twitch 24/7
Almost driven me to suicide
Hi great video thank you I’m 59years is pins and needles a symptom I have both twitching and pins and needles also sensitivity to cold and a breeze blowing only on my calves both calves only
+Julie Bailey You mean you get the cold skin sensation on areas? I would get that on my left leg on and off.. there was a few months it was happening a lot. Pins and needles is very common with BFS for some reason.
You ever had when you're holding your phone but your hand is like shaking?
Considering how often people use their phones these days, it’s not difficult to over work or fatigue your hand or even have some degree of repetitive strain.
Always speak to your doctor, take care.
Hey yes i do, did it eventually go away?
@@Tarek-eb6uh mine did. I dont have fear of twitching no more so I am fine.
Yes I've developed similar shakes associated with my BFS
Hi. Thanks for this video. I must have watched all types of videos from ms to als and the confusion is unreal. Six months after giving birth to my son my right eye began twitching out of nowhere. Two years later I am just beginning to twitch in different body parts. I’ve seen so many doctors about my symptoms. Every day for the past two years I have this episodes that happens that can’t be figured out and I feel awful. I feel that in my case everyone jumps to the conclusion that it’s anxiety and I absolutely do not buy it. I can be at home just not even doing anything and this happens. How do you heal when it seems like this is progressing from an eye to all over body twitching?
BFS is a strange condition, it can ease for periods then go off the charts! No real identifiable reasons but I would advise to watch more of my videos and see how they relate. Btw, getting bfs after Ha ring a child and new responsibilities with extra stress etc is a common correlation. Take care
@@bfsanxietysupportI have muscle weakness and hand tremors with twitching everywhere. I have long Covid for three years with shortness of breath, most days I feel I won’t live long… Caught Covid at 45 as a nurse on a Covid wing back in 2020 it destroyed my life..Thank you, you have a very soothing way about you! A new subscriber ❤
thanks
I am twitching since May, I've had an appointment at the neuromuscular specialist after having a clean EMG in July and she said it's benign. still, it's hard for me to realize the fasciculations are benign because before may I was all ok not a single twitch and now nonstop fasciculations all over with hot spots sometimes. I hate it so much.
Hey, you just need to believe your doctors. Your going to have bad anxiety and stress if you continue to second guess them.
Take care
Did you have tingling and hot flashes?
@@amstelveenamsterdam8530 nope but still twitching
hi, i hope its okay to ask. most of the videos i see of BFS talk about twitches that are quite fast or constant in one area... for me they are accompanied with internal vibrations starting first, but the twitches are random and most often a single twitch here and there, cheek, shoulder, back, bottom..sometimes a few... although in feet it could feel like a bit more activity... does BFS twitches change? does it evolve? or is it always the same kind of speed/ type? thank you in advance.
Good question, I actually mention in my first video that it doesn’t matter about location, duration and type of twitch, fast or slow etc watch that video as I am sure it will help you!
For me twitching started with the eyelid twitch two and a half years ago which lasted for over a month. In the meantime, I had it in both eyelids and in both eyes (sometimes it persisted for over a month in the same place), and sometimes it was present in index finger. Other than that, I'm having random twitches, but they are too random for me to take notice of them. I'm having regular checkups with neuro regarding migraines, I tried to bring this twitching thing up a couple of times, but he would just brushed it off as a psychosomatic thing. During the years, I stopped worrying about the eyelid twitches altogether.
Couple of days ago, a twitch started near the tip of my elbow (think this muscle is called anconeus). So I googled what could it mean, and of course I'm terrified ever since. So I have a couple of questions:
1. (knowing that you're not a doctor) Does this look like BFS? I wasn't diagnosed, but it looks like that to me.
2. Can these focal elbow twitches (without weakness and atrophy) could be indicator of something more sinister?
Thanks for the response and informative video.
Rowley Birkin Hi There, firstly sorry about the delay, your post was filtered to spam for some reason..
Ok, I don’t give any diagnosis’s as only doctors can do that but what I can do is share what I’ve observed over the years personally and in various support groups.
Twitching in BFS typically starts in one location and relatively quickly appears everywhere. Eye lids are really common even in people with no BFS.
If your worried about atrophy, just stop, you wood be noticeably weak if you had it.
Never self test.
Please try not to worry and see your doctor if your concerned.
My video is here for practical clear advice, I’ll upload more videos over the Xmas holidays, take care.
How is your finger twitch now?
twitching everyday for over three years now. i was cleared by a neurologist so i dont worry about it just aggravating sometimes. some days i twitch a lot in the same spot other days barely twitch at all
I'm starting to have this twitches on December and I'm still having twitches, I'm kinda scared but right now, the moment I've red your comment i suddenly feel hopefull. That u can have twitches and still be clear and fine.
+piano geek Thats how it is.. some periods I can be almost no twitching then it can be off the chart!
Interesting. Had my daughter, lost my gf, had to fight for custody, got a new gf, she dumped me a year later, graduated, got a new job, I got fired for the first time, then a global pandemic happened. Maybe that had something to do with why I have anxiety out of nowhere. I haven't seen a doc about it but I'm not going to until I've been working at my new job for a month or so. Thanks for the insight
Wow you’ve been through a lot, of course this will have mental impact, after all you aren’t a robot!
Look after yourself, eat well, sleep well, get fresh air and exercise.
Remember life is a journey and we control our own choices, we can’t make other people’s choices so try to be at peace with your choices and make the best call as often as you can!
All we can do is our best, don’t get stressed about what the world thinks you should do..
I hope that makes sense. Take care
I twitch all over, 24/7. Been eighteen months now. Started around the time of foot pain and subsequent surgery. I find them maddening and am so troubled by them. Anxious. Here's my question that I can't seem to find an answer to....
are these twitches likely to go away over time? Is it more likely that they're a lifetime curse?
+Jen Bremner Thanks for sharing some of your story! It’s a good question, unfortunately there is no defined answer as everyone’s BFS journey is a personal one.
It may increase or decrease, it may almost stop completely but at 18 month in, provided you’re feeling good, aside from twitching my advice is to stop thinking about it.
The mind can filter out the noise for most of the twitching.
@@bfsanxietysupport thanks. I'm well, except for the twitching. I can't seem to make peace with them. I have at least thirty of them, every minute of every day. Acceptance is the answer, but I'm having a big struggle with that.
I'm in the first category. I got pretty much every neurological test done. I don't have MS, ALS, Parkinson, no deficiency, nothing. I just got these twitches and they are ANNOYING. They are completely random, don't get triggered by anything really and last as long as they want to. 1 second, 1 Minute, 1 hour, 1 day.
I've never had any muscle twitching till late September of 2023 and I now I have it and I just don't unterstand why. They are not constant. I twitch every day though. It's most annoying around the eye region for me.
I'm not afraid of any disease (I was in the beginning) now I'm just afraid of the twitching itself. Which really doesn't help.
Love this video....
Do you get aches with BFS???
My legs and back of neck ache more as I wake in the morning. Is this where my twitches have been going on all night whilst asleep??
I twitch all over and my jaw aches too.
It goes on all day.
If your stressed or anxious you may be clenching your jaw at night and not fully relaxing, look up TMJ. There’s various things that can be rolled into BFS or become magnified because of BFS and the concerns around twitching.
Ok now plz reply
I have had this 5 years and tried so many things to get relief, but to no avail. I let it ruin my life (job loss, etc) and the anxiety it caused with sleep problems. Not sure what to do now, hard to live with. Know it could be a lot worse, but that does not help the suffering i am going through and i am someone who does not accept illness well (who does)?
4 days ago I began having this weird muscle
Fasciculation around my sternum area, it's when I breath out only, when I breath in, it goes then repeats soon a I relax and take breath out. I had a ecg, blood work and chest xray which was normal. These spasms are causing me to tense and lay/sit in awkward positions every waking hour to try and help. Has any experience this and what was the outcome of investigations and did what treatment help? Thank you so much if you can help me