Stuart's Story

Speakers: Chris O’Donnell Person Centred Approaches and Engagement Lead - Enfield Integrated Learning Disability Service
Sarah Pope Service Manager - Enfield Integrated Learning Disability Service
Aneta Karnas Clinical Lead - Edenvale Care
Chairs
Irene Tuffrey-Wijne & David Jeffrey
Stuart Hasler died in 2020. In this webinar, the staff who supported him share the story of his life, dying and death - a story we can all learn from.
This is the inspirational story of a man with learning disabilities who spoke up for himself; of a wide team of professionals who supported him to do so; of choices made at the end of life - ranging from enabling Stuart to be supported at home to helping him say goodbye to friends and fundraise for the funeral he wanted.
Stuart Hasler won (posthumously) the 2021 Linda McEnhill Award, awarded by the PCPLD Network for outstanding end of life care. One of Stuart’s legacies is the Victoria & Stuart Project (named after him), aimed at developing resources and guidance that will enable other people with learning disabilities to be involved in planning their end of life care.
In this webinar, you will learn:
· How a man with learning disabilities was able to plan for his own end of life
· How a very wide range of health and social care professionals were able to work together - and what this involved (including learning disability teams, palliative care team, mental health team, hospital team and family)
The webinar will be of interest to anyone working with people with learning disabilities, anyone working with people at the end of life, families and carers, policy makers and commissioners. People with learning disabilities are also welcome to watch the webinar. Most of the webinar is accessible, although there may be some difficult words and concepts. We recommend that you don’t watch it on your own, but with other people; and that you take some time to talk about it together afterwards.