What are HNPP and MCTD? // My Disabilities [CC]
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- Опубликовано: 1 мар 2017
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Here's a bit about my disabilities, Hereditary Neuropathy with Pressure Palsies (HNPP) and Mixed Connective Tissue Disease (MCTD), and what it's like living with them.
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I've got POTS (recent diagnosis, not sure yet if it's due to puberty or an underlying issue) and it's gotten to the point where my boyfriend just walks behind me everywhere to catch me if (when) I pass out. He's gotten very good at explaining it to other people when they inevitably start panicking.
Is MCTD similar to EDS?
Jessica you are a super queen! and i love your makeup could you do an everyday look video?
You look really different with brown hair.
"But now, I'm married, and I own a house, and I have these two little doggies who I really, really love" was my favorite part of this video. Because I feel now like these are not unattainable goals. Thankyou
It's so refreshing to hear people like her talk about simultaneously being sick and having fulfilling lives. 💜
And... A baby on the way 💕
Thank you so very much for this!!! My daughter (13 years old) FINALLY got diagnosed. we searched youtube and we got blessed when your channel popped up. My daughter also came out as a lesbian a bit over a year ago so she explained that she relates to you on so many levels. I know you gave her hope today after watching this, hope she desperately needed. thank you from the bottom of my heart, somehow it was like you were speaking directly to her right when she needed it the most. we are faithful new subscribers, absolutely cannot wait to enjoy more of the content you make and decide to share. I'm so glad she found this inspiration in you when it was most needed!! much love, Emily & Layla
Thank you so much for this lovely comment! I'm really pleased your daughter was able to find hope from my videos- I make them because I was a frightened 13 year old once who didn't have someone to show me I could live with my illness and still have a happy life. Best wishes to you both xxx
not only do i relate to jessica, im also a 14 year old lesbian with ehlers danlos syndrome (chronic disorder than can cause the usual chronic crap and im bad at explainations sorry) so hey! i relate lol
Layla Wolf i
Emily Wolf :)
I almost cried reading this
"It's also why I'm blind in this eye." OH HONEY. Oh my.
im a 22 y/o lesbian who uses a wheelchair and this gave me hope that maybe someone will love me someday
MYxTOURNIQUET someone definitely will, a wheelchair shouldn’t change anything. you are still 100% love-able!
Same except I'm not as old as you and I don't know my sexuality.
Being in a wheelchair won't stop people from loving you
@Phoenix Rutherford no, but it will probably make people reject you but then again those people aren't worth it.
I'm Bi and have been married 20 years and I'm a wheelchair user.
Going blind is one of my worst, rational fears.
I hope neither of us have to go through that.
Also, my friends/family forget I'm visually impaired all the time.
Mom says "what are you, blind?!!"
Me: "YES."
It's hilarious.
Hahaha That exchange between you and your mom made me laugh! Family is the worst soemtimes 😂
I do have eye trouble and wear thick lenses. Anyone can just think back to times they were in total darkness trying to find something. To think that would be permanent!
Me: *fails to see something because I am visually impaired*
Mum: are you blind?
Me: funnily enough, yes.
(This is a joke I'm not actually blind I just have shit vision lmao)
For a woman with so many disabilities she sure is positive and happy, I like that about her. Here I am basically with nothing wrong but still a sad sack
Skeptical Eye if it’s a significant issue (ie major depressive disorder) then you should seek help but it’s okay to be physically healthy but not mentally. everyone has their own struggles
Same actually some mental health problems
Why would disabilities make her sad?
Please don't fixate on how happy she _appears_ to be or compare yourself to her. Everyone goes through rough times and it can be easy to project a false appearance of positivity every when you feel like crap. My point isn't that she's presenting fake positivity, it's that no one ever knows what anyone else is going through, so we should all be kind to one another. Please be kind to yourself and find someone to talk to, a professional if need be.
yep. Love the Foz x
As someone with MD, asthma, vocal chord disfunction, scoliosis, rigid spine syndrome, and chronic fatigue I cried at the end of this video. I’m only 14 and all I used to think about it how I was never going to be a nurse. This past year I have turned my life around. I used to get Ds and Fs because I thought a future was unachievable so there was no point in trying. I decided that wasn’t true and now I have all As. I’ve already started preparing for college. Sure sometimes my life sucks but I get through those parts and start again. I cannot believe I have found another person like me. We have different disabilities but the same outlook on life and I think that is the best kind of similarity. Thank you for making my day.
Superrandomperson ! I don't know what country you're in but I wanted to encourage you to work hard in school and then University and get your nursing license!! It's the best accomplishment you'll have. The best part about being a nurse is that you don't have to be on your feet working in a hospital. You can be a traveling nurse, a visiting nurse that goes to someone's home, you could work for a registry and pretty much make your own hours... So many options that I didn't know about. I have multiple sclerosis and because I didn't know about those options, I stopped working.
Best of luck to you and Merry Christmas!
From California, USA
I also have a vocal chord disfunction, in my case chronic and permanent musculoskeletal dysphonia. I was mute when I was young, and even when I could speak I wasn't used to it so I didn't start speaking to others until the first grade. I'm fine now and I haven't thought about it in years. I can get an operation to fix it but I don't want to relearn how to speak when I already made so much progress. I also have learning disabilities. I'm 20 now and in a STEM field, and one of the top students at my university. I believe that you can be a nurse and I think we need nurses like you, who get what it's like to be a patient with a scary condition.
prove them all wrong kid
Superrandomperson ! so proud of you!!
You are amazing, that is the best outlook to have! Congratulations on getting good marks in school, you've clearly worked hard & deserve them! I used to feel down on myself & hated my "broken" body because my life wasn't working out how I'd originally planned. BUT life is what we make it & we can change or adapt our plans to fit in with what we need and that's ok! Sometimes, things take longer but that's ok too! Like they say in Alice In Wonderland, sometimes I do six impossible things before breakfast. Well, for me, that may be eating, showering, getting out of bed, putting clothes on etc - I celebrate everything because my conditions make existing so difficult that I now view it like no achievement is too small to be proud of or celebrate 💕
I'm sorry to say that I started watching your video and thought "oh my God, with all of that, how come she's still so positive???" and then you said "Find the fun, find what makes you happy, give yourself a break, but keep achievable goals and just go for them. You'll be ok. Everything that you achieve from here on is going to feel much more sweeter and it's going to feel so much better than anything you've achieved before!"
This makes total sense!
You are an inspiration! It's so amazing the way you think and see life! I'm just blown away! This could've been a Ted Talk!
I’m not sure why I️ almost cried. Maybe because it is incredible difficult to get out of bed this morning. But this video motivated me. Thank you for sharing and encouraging us.
+Kluermoi you’re so welcome! I hope your day got easier 😘
Me too! I almost cry in the last few minutes when Jessica said those amazing words, I don’t know why but the words really makes me feel happy and I started to see lights in the end of the tunnel😍Everything will be alright😊
Yeah, I'm in a wicked flare up, all my autoimmune illnesses.
I'm watching videos with my pug, trying to get my mind off of the pain. (Bone,muscles,organs and stomach. Haven't eaten in 3 days. Slept 3 hours.)
I have two pride days this week and next. Of all weeks to get a huge flare up.
(Big day for my daughter. Her first Pride Fest. My husband is driving us all, thank goodness.)
I hope you have a better day.♥️♥️♥️
I have type 1 diabetes and nerve damage. Life sucks some times, but for me what is worse is how a lot of people accuse me of being lazy when I'm just sick, fatigued, and tired. Ugh..... If I didn't have a son idk if I would keep going.
PhatDookie 420 ,
I feel that way at times, going on for my kid.
People who tell people who aren't well, that they're lazy. Have no clue what we go through.
(My Gran, step Grandpa & Uncle are diabetic.)
Every flare, im supposed to be on bedrest. I listen to my specialist and my body.
I hate being called lazy, when clearly they saw me before my illnesses got worse and I had my hip replaced.
(I've dealt with it a few times.)
Hang in there.❤
So not only are you deaf, you have also experienced being blind AND paralysed (maybe just arms but still PARALYSED) and you are still so positive, I love you and I am so glad I found your channel today.
JUST her arms? For a year and a half?
DolliLoxz I am completely paralyzed in one of my legs 🦵
“I thought I had to get better before I could have any of that.” Man, that hit me deep. Especially when I’m constantly getting messages (and telling myself) “you need to get better before...” all the time.
Definitely cried when you said that dreams and goals will adapt with you. Thanks for this.
as a medical student I am extremely fascinated by this! you explain this so well! really great coming across your video! you're great!!
Thank you x
same here
"don't let me hug you.. i'm a hugger.. i will hug!!!!! ... DON'T LET ME HUG"(4:46)... lmao!!!
haha! I'm a hugger what can I say...
julius p I read this comment as it was said so weird!😂
That made me smile as well 😀
Id will hug Jessica🤗
My disability is C-PTSD. I really relate to your comment of "Your goals will adapt to you".
that sarcastic tone whenever you mention a symptom and you’re like “it does it’s own thing lol” that is the epitome of being disabled tbh I felt that
Geez Jessica why didn't you pick better parents!?
I jest because when I took a metabolic disorders class in my undergrad, the professor would always say "...and they should have picked better parents!"
Ha ha ha, my own parents say that! x
Jessica Kellgren-Fozard I just found your channel and I have to say you are really incredible and brave to talk about your conditions. I have some questions: Did your parents previously know that they are carrying these "wrong" genes or did it only became known when the doctors diagnosed you??? If they didn't know how they reacted???
I'm sorry if my questions are too personal....This video just made me wonder :)
Hi! I have Ehlers Danlos Syndrome but I also have POTS! It's really cool finding someone else with one of the same conditions as me. I'm eighteen and I found out when I was about fifteen, so I'm still relatively new to this. I somehow didn't know about the caffeine thing, so I'll have to remember that. Thank you for being here and making videos, it's really nice to know that there are other sapphic people with disabilities on this planet.
Hi Cat! I'm just here to share a bit of happiness, so pleased you liked the video. Stay strong x
Cat Hitachiin Hi!!! Do you watch Simon and Martina? Martina also has EDS and is such a wonderfully optimistic, motivating person. Check them out maybe? Best wishes!!!!!!
I also have eds and POTS!! I found out about my eds about three years ago when i was 12, and i found out i had pots only about three weeks ago (im now 15)! This coment made me really happy since its really hard to find people w these conditions (except for my mom haha). I hope you are having a wonderfull day!
Try the caffeine carefully! It makes mine worse.
Cat Hitachiin I have both of those also! I’m 21 now, but was diagnosed at 16
Describing many issues I deal with... the "malaise" is a pain in the bum, I'm tired of my brain always screaming that something is wrong, I have to deal with the American healthcare system and no amount of "I know something is wrong" helps me see a doctor more quickly.
sameeeeeee
I can totally relate. My Dr's 10 years ago kept saying it's just severe Fibromyalgia. I kept saying it's more. Finally my newer GP said he too agreed it was MS. I was sent to UCSF and had a spinal tap. Nerve tests, more MRI's for hrs, bloodwork. So all the Docs finally said ok. You have MS, Fibromyalgia, Raynaud's Phenomena, Hashimoto's Thyroiditis, inverse psoriasis, Erythema Nodosum, severe Gluten & Dairy Intolerance, a cyst crushing my L5/S1 about half way, 6 or 7 bulging discs in my spine, scoliosis, neuropathy, osteoarthritis, leaky gut, level 3 kidney disease, and interstitial lung disease, and anxiety disorder/w major depression and sleep apnea.
I swear when women go to the Dr. they don't listen. They blamed Fibromyalgia and Anxiety disorder for 10 years for all these things that are actually wrong with me plus more. They said it will take years to get disability because they will keep denying it. The US medical system is all kinds of messed up! I am lucky to have some of the best medical, optical, dental in California and they still drop the ball. It's a sham.
If you think the U.S. medical system is bad just look into what people in Canada and other countries go through to see a doctor. Sure it’s got problems but it does many things right.
I consume a LOT of caffeine, and sometimes I notice when I stand up quickly, I feel like there's too much pressure inside my head for a few moments. After you explained about caffeine being a vasoconstrictor, that makes a lot of sense.
Best medical explanation of deafness! I laughed out loud. Each of those disabilities can be a struggle on their own to deal with and the combination just can make it that much worse on any given day. I'm so glad you have adapted to the new life and have made it your own! You have a lovely wife and I'm so glad you are happy!
Ha ha, glad you enjoyed it! I definitely have an amazing wife and she always pulls me through x
So here I am almost crying. That motivational part at the end got me.
I have bipolar disorder, and although it's an invisible disease it is very serious. You get a lot of physical symptoms: insomnia, you sleep and don't feel rested, back pains, lots of other pains, weight gain, lack of memory. And of course the mental ones: depression, anxiety, suicidal ideation, self destructing habits, guilt, lack of accomplishment, panic crisis. I kinda know what you feel, in a much smaller proportion, because living with bipolar is also trying to build a castle in sand. Your castle seems to be holding on really well.
Thank you for sharing your story! I'm totally blind, born premature at three and half months early. I was born blind. I'm 34, and I also suffer from ptsd, a low-grade depression called persistent depressive disorder, and adjustment disorder. For those struggling, I send you my love! Don't let your disabilities stop you!
I’m just an average 14 year old girl who is looking thru random videos for her own amusement. Somehow I found the words you said on the last part of this video to be the most uplifting and motivating thing I heard of and I just ಥ_ಥ bless your soul-
The pep talk at the end made me cry, in a good way. I've been going through a really rough patch with my health (and, subsequently, my mental health) and you managed to say exactly what I needed to hear! Thank you 💗 (and since you're a hugger, ::hugs::)
Your conditions are fascinating. Well, I find pretty much all conditions academically fascinating. They also sound horrendously frustrating, and I'm in aw with how you're always so positive about things!
They have a lot of symptomatic overlap with several of mine as well (though, yours seem to be more intense), which is why I was so curious about them! (I have too many conditions to list here, but I can give you my blog link if you want and you can see what they are.)
I also have some sort of dysautonomia... I was diagnosed with POTS two years ago, but my new cardiologist suspects I may have something else (I have always had orthostatic hypertension, never hypotension, and my diastolic bp is impossible to control). The temperature misregulation is by far the most frustrating part for me!
Anyway, thank you so much for making this video! It satisfied my nosey little curiosity :-P and that pep talk was just what I needed this morning!!! Best wishes 💗💗💗
Sorry I missed replying to this earlier lovely, I'm really glad this video helped you to feel better. I'm here whenever you need a pep talk! ::hugs:: x
I love your attitude. I also love that you can make POTS and chronic fatigue syndrome sound fun lol
ha ha, thank you! x
I love your ending words on how everything is going to be ok! I have Crohn’s disease which has mainly led to me being exhausted and staying in bed for most part of the day. But I have an amazing girlfriend and pets, a beautiful garden that we created ourselves, trying for a baby and starting a publishing business. I feel so lucky and loved but some people have a really hard time getting that because I take these really long naps.. It’s so comforting hearing your words, it helps me to stay grateful. So happy Stevie linked your channel yesterday, damn you’re badass. Hugs from Scandinavia
I feel like I can never complain again 😭😱
Please don't feel that way! Just because someone doesn't struggle with health problems doesn't mean their problems are invalid. As someone with it a disability, it makes me sad when my friends treat me as if they can never complain or talk to me about their problems. It makes me feel like I'm not a whole person, like I'm so delicate I must be treated with care. Your problems are important too! (Obviously, this doesn't mean saying things like, "Well, if you think THAT'S BAD, let me tell you about the one time I did " That's one-upping, which no one likes, disabled or not.)
Star, I totally agree! I have a few disabling conditions and some people in my life will start explaining about their problems and then abruptly stop when they remember about my issues. They say things like “Oh, but it’s nowhere near as bad as what you have to deal with” or “I don’t want to burden you when you have so much to cope with”. Burden me! You’re not disallowed to have problems, with your health or otherwise, because I have a disability! In some cases you can wallow for a little while together, and then boost each other up. I know they do it because they care, but I’ve been dealing with this for years now, I can cope with others having a tough time and telling me about it ❤️ xxx
@@gamergrill4956 Exactly! Friendship is about supporting each other. But if you decide you don't want to burden us, it's rather infantilizing because we can decide for ourselves what we can do. Obviously it's well intentioned, not malicious! And it's always ok to ask if a certain subject is too heavy for us to talk about at that moment- it doesn't mean a moratorium on it forever. Basically, it's all about good communication and treating us like adults, which we really should strive for in every relationship!
The best response I’ve heard to that line of thinking is: “Misery is not a competition”
Jessica, there is only one word to describe you and it is lovely. Everything that is “wrong” with you is what is also "right" about you; it forms part of who you are. I am not thinking in any spiritual sense simply that illnesses are life experiences and through them we, as you say, learn and adapt. Health is often assessed in purely medical terms but what is the benefit in being a sports car if one has no destination. You strike me as a Morris Minor, it may take longer to get there but by golly it will get there and everyone will enjoy the views along the way. Just keep doing what you do so well, being you x.
That is an excellent way to describe me and ill people in general: "it may take longer to get there but by golly it will get there and everyone will enjoy the views along the way"! Totally nabbing the Morris Minor idea for future explanations to confused people. Thank you x
You are welcome. Is there any connection between MCTD and EDS (Ehlers Danlos Syndrome)? I ask because I read something about POTS and EDS and some of your symptoms sounded a bit similar to EDS.
Yes there is a link in that they're both connective tissue disorders- we share a lot of symptoms!
I was going to ask this question! My roommate has EDS and I attend a lot of her appointments with her. It was great to hear your perspective.
Where do I begin? The last 2 minutes of this video hit me hard. I've recently been diagnosed with Ehlers-Danlos Syndrome and I'm losing my ability to walk and becoming more dependent on my wheelchair. I'm really struggling to find a job (over 300 applications in 7 months) and I was close to giving up on everything. I should give myself a break because I've been so hard on myself about everything since I finished university and having my disability at 23 years old (not that disability discriminates against age), but I had all these plans and now they're just gone... Nobody plans for a life where they become disabled, but if I've learned one thing, it's that you can still have a life!
Thank you for your inspiring words :) They mean more than I can express. I love how you try to make light of your disabilities and use this platform to inform and educate, all while looking absolutely fabulous :)
im also 23 and been bedridden for 18 months and sick since 17 ( made it a couple years into college before leaving but wish i kept gong bc i got so so so much worse). I've been diagnosed with eds as well, pots, 4 autoimmune diseases?, but they cant ecpain neurologic problems or sight or twitching or anything.its a struggle... i feel so alone. you rock, I'm glad your still going for it and i wish i had tried harder before ( to be fair i did try work, ect but was already sick disabled and undiagnosed ( listened to a couple doctors that just shrugged and assumed i was exaggerating i had tumor remove surgery at 15 and learned to walk again and was fine i don't tend to exaggerate). thanks for sharing.
@@kookoo4pandas grr. I have a doctor as well who doesn't take me and my symptoms seriously. I am changing him soon.
Hello. Fellow Ehlers-Danlos and POTS person.
I know this is an older comment, but you should look up Simon and Martina here on YT. Martina has EDS and she often talks about her experiences. And she has a community that also often talk about how they build a ladder every day to give themselves the tools to be happy.
You have the most beautiful voice 😍
Sad part is she cant hear her beautiful voice
@@shyannemarie7585 from what i understand she can but not what she's saying and it basically just sounds like really foggy noise
OH MY GOD!!!!! She is deaf,blind in one eye AND has 2 different disorders! But she doesn't give up!!! She inspires me and I love her !
Also a pots sufferer took a long time to get that diagnosed along with chronic fatigue. This was really really comforting. Thank you *hug*
sophie johns me too!! I hope you are doing better now!
Best of luck to everyone with these conditions and here's someone to look up to cause she got more going for her than most people with zero health issues do.
That is really the take home point. If she can make her life work, so can nearly everyone else.
“*Sudden moment of realization* Deafness! I’m deaf! I forgot about that!” Honestly me too, sometimes I forget that it’s a result of my conditions
i don't have these disabilities but i teared up when yousaid "It sucks and I'm sorry about it" at 10:05
I have mental illnesses and aspergers (which is cool and the dx saved my life but life will always be hard). idk why but this hit me hard. thank you for this video!
Id will be your friend🤗🤗🤗
Just found your channel today, and I'm hardcore binging.
I freaking love you gurl, your spirit is so inspiring! And also, your accent!!!!! I DIE
Thanks lovely! x
Asmita Dasgupta literally same ong
I'm so sorry, sweetie!!!! You are SUCH a beautiful, wonderful & amazing person. To be so up-beat, positive and - even if you have to push to show it - B-R-A-V-E, is a huge task. But you have figured out how to deal with it (an understatement, I know) the best you can and go on from there. I know that life's not what you had planned but, as you said, you are "really proud of how far you have come". And that is what is important. And look at you now.... encouraging & inspiring others across the globe!!! What a blessing!!! I know & understand what it is to be thankful for what others so easily take for granted: sight; hearing; not hurting so much you want to just lie down on the couch, cradle your head and sob all day every day; not having yet another (fill-in-the-blank-body-part here) fall out/swell up/just QUIT because of (fill-in-the-stupid-blank again) autoimmune disease. But we can't give up. Even tho sometimes we want to, we really REALLY want to. You are beautiful. And you are such a cute couple!!! Thank you for sharing your struggles with the world; you could have just whined about it but instead you show up with your usual sweet smile in all of our in-boxes! You are a ray of sunshine and you need to know that. Thank you for your incredible personality, which has been made all the more lovely by all of this. Good wishes from Texas!!
Thank you for such a lovely, lovely comment! You've made my day 🌞
"My body is always trying to make itself better, all the time, and its just not happening.. poor thing" I lost it. You have such a great attitude even though every day could be a hardship and I find you absolutely hilarious to watch. You're great!
You're amazing! And also I needed that bit at the end. 💜
I admire you greatly!
Thank you x
I’m 37 and you’ve taught me a lot. I am crying. You are so lovely and hilarious. Thanks for just being you and sharing your story and wisdom with us. I’ve been telling my rheumatologist about how my legs and feet go numb if I’m sitting with my feet on the floor for years. I’ve sprained my ankle multiple times because I couldn’t feel my legs or feet at all and didn’t even realize I was standing with my ankle turned until the feeling (and pain) came back in them. I also pass out or fall right back down if something wakes me up and I stand up from a previously prone position. I was previously on a treatment that caused symptoms that mimic MS. I’ve had people ask me about if I had POTS many times but my doctors have not done anything else besides increasing my dosage of Gabapentin many times and put me on a medication for restless legs. Sometimes I feel like my doctors are just kinda waiting for me to die. I have been to soooooooooo many different doctors over the past decade but it’s always like they are interested in doing as much as possible to help my quality of life when I’m a new patient or serious new symptom starts and then they just go back to “Come back in 3 months for a follow up.” Do they not realize these 3 months keep adding up to years and decades of progressively getting worse and meh. I’m sick of writing about it. Anyway, thanks for your beautiful outlook on life and living with disabilities. You are sweet and refreshing.
You’re a legend, like an absolute angel legend ❤️
Oh my, Thank you for that pep talk I needed it ❤!
Beautiful message! Thank you.
Admirable in every aspect.. 💕
I loved this video, how informative it was, and especially the ending.
Thank you so much for making this video 😊 you're so nice and I'm so glad I've found your channel!
You're so freaking hilarious! I'm glad youtube recommended you so I could subscribe. ❤️😎👍
You're such an inspiration ! Love your style and energy :) Just subscribed :) Kisses from Portugal !
Your an amazing person and you inspired me in the moment when i needed it, thank you have a great wonderful life !
Thank you so much for taking the time to make those videos, and especially for the message at the end of this one
You are a hero
I really needed this today, thank you sooo much jessica!!! I'm so glad I found your videos. You are like a little fairy of positivity I can call everytime I feel down❤🌹
the last bit hit my feelies hard, you're amazing c:
I'm a new subscriber and I love your videos and your honesty. I'm so happy you're content! Can't wait to watch more of your content!
you're one of the smartest person I've ever seen ❤
I have MS, and so so many of the symptoms you describe I suffer from as well. It does keep life "interesting", you never know what to expect when I wake up. May main issues are... who am I kidding they are all main issues, they just decide almost themselves which one will really wreak havoc for the day.
You should be so proud of what you have managed to achieve in your life, it is just lovely to see how accomplished you are. People without disabilities take so many things for granted, something we take great pleasure in doing or experience means nothing to them. I think this makes us appreciate the more simple things in life, and it also makes us more compassionate and empathetic to other peoples differences.
I agree with your theory, we don't take that many things for granted! Thank your for sharing your story x
You’re so inspiring and wonderful!!! I love watching your videos so much!! 💖💖
I'm so so incredibly proud of you! I've just discovered your channel and already I'm so inspired by you! Thank you for speaking up and staying strong! You're amazing!!
Jessica: you are so classy, beautiful, intelligent and inspiring I am absolutely in awe of you whenever I watch your videos! You've got yourself a fan in Spain 😊 Also, you are the most feminine lesbian/bisexual I have ever seen, so thank you for putting yourself out there so that people can realize not all of us are butch! 😂
Much love x
You're welcome and yes we LGBT women come in all shapes and styles! 😉
Catalina Velasco she’s really the most feminine bi sexual you’ve ever seen?
Catalina Velasco she’s not even bi lol she’s lesbian
This video never fails to have me near tears at the end. Thanks, Jessica.
I just love you so much, I felt so happy about life after this thank you
You explain things really well, thank you for sharing
I love your humour and comedic timing ahaha subbed!
Achievable goals! that's the key ! Thank you so much Jessica! my mother and father have been living with serious disabilities since they were young. Disabilities never stopped us to be a happy and dynamic family ! Disabilities are just a part of us and we adapted our life to our conditions without losing the will to live our life fully
That's lovely to hear, gives me hope for my future x
“Find the Fun” that is PERFECT! Thank you!
I’m crying... thank you. ❤️Thank you❤️
What a spectacular human being you are! Here I am feeling sorry for myself because I have been struggling with my health (chronic pain, undiagnosed neurological issues etc etc) but I have a wife, a son, I am well enough now to be back at work in a job I love. Your words really hit home with me. Thank you SO much! Xx
You're so welcome! Stay strong lovely 💗
Informative,positive, and fun.Always a pleasure watching your videos
Thank you for sharing- it really hit home for me. Keep crushing your goals❤️
I’ve been having a shitty few months but the ending made me feel a lot more optimistic and motivated about life. I love your personality 💖😊
I love how articulate you are! Also now I feel kinda bad for complaining of my less dramatic health issues. You are amazing.
This video is so inspirational! Thank you for being such a beacon
You are such an inspiration
I have POTS too. I'm on a medication called midodrine that helps to constrict my veins. I used to not be able to stand for more than 5 mins without getting all weak and dizzy and almost fainting. And I always had no energy. The medication does help. Its good that you're educating people. You seem to have a very positive attitude.
Thank you! Glad you've found something that works for you xxx
Thank you for being you! I'm a new subscriber and what can I say, you just... Thank you.
So kind of you, thank you! 🌸
New subscriber here! You're so incredibly positive and informative and fun. I love this channel!
Thank you so much to putting it all out there. I am one person who needed to hear/read this information.
Thank you for sharing something so personal about yourself! You are so positive in spite of and I admire that!
Thank you 💗
Just found your channel, and binge watched a ton of your videos... you are truly inspiring and beautiful, inside and out!
Thank you so much and welcome to the channel! x
You’re amazing! Love your attitude and out look. Thank you for sharing your story. ❤️
You are such an inspiration! 💕
This video brought me to tears, especially the part in the end when you mentioned “this is who you are now, but it will be okay.” I just got diagnosed with HSD/hEDS, and have POTS along with several other issues and things have just constantly been an uphill battle for the last two years since everything snowballed health-wise and plans have changed, but it definitely doesn’t mean life cannot and will not be fulfilling and meaningful. Thank you for your encouragement and for showing others that there is hope with the illnesses ❤️
You are so awesome and I'm really happy to have found your channel!
Thanks :)
Thank you so very much for these videos! They and you are wonderful.
Jessica, you are my hero! Love and light to you.
You're remarkable. God bless you.
Thank you 🌟
I love the way you are able to talk about your health issues! You strike a wonderful balance between conveying the suck and being positive. I have POTS and sometimes it's so hard to keep it from sounding whiny. And like, okay, I will certainly complain to the people closest to me sometimes, but that isn't what I'm going for with strangers, haha. But throw the social anxiety in there with the brain fog and it can certainly turn into a great big glob of awkward.
Hey I'm here from the collab you did with Ash. You are so positive! I'm looking forward to watching more of your videos and getting to know your channel!
your story puts many things in perspective, thanks for being positive!
This was such a beautiful and powerful message. Thank you. As weird as it sounds, I'll keep this video in my heart
Hi Kelyrin, that is very kind of you, thank you ❤
you are such an incredibly positive and inspiring person. you just brightened up my day. i simply adore your energy and radiant smile! i have chronic joint pain and trigeminal neuralgia, which drives me insane, but i do my best not to let these things affect my life and keep doing the things and work i love! also grateful to have a partner who accepts me for who i am! there are definitely days when i feel frustrated and down with all my chronic pains but looking at you i know i can be just as strong.
tokyorockstar
❤
What a lovely video, you put a smile on my face, thank you for that :)
You’re so inspiring and motivating ! You’re amazing ! watching you helps me to get through all of the bad things that are happening in my life . Thank you so much .
I cannot get over your strength of character Jessica, a very sincere tip of the hat to you! :-)
A very sincere thanks to you x
Omg wow! You are just wow! Your look on life is amazing and you are a huge inspiration! I wish you and your lovely wife a lifetime of pure happiness
Thank you x
I love watching your videos. Your spirit and humor is amazing!
New sub!!!!😆 I love your content. Loved you’re motivating speech towards the end. ❤️❤️