Melinda, thank you for sharing your story. I also was diagnosed with ACC back in December of 2001 after many doctors, tests, scans etc. I had many of the same symptoms you talked about. I was blessed to finally be referred to the Hospital of the University of Pennsylvania and the excellent doctors there. My surgery to remove the tumor was in February 2002. At the time, there was no chemo or radiation for adrenal cancer. As you said, there is/was very little research for this type of cancer. I'm glad to say I'm a 22 year survivor now. I'm so happy to hear you are doing well. I will keep you in my thoughts and prayers. ❤
You are very strong and brave. I’ve been in stage 4 Hodgkin’s lymphoma in and out for about 2 1/2 years. It is a journey and I too am blessed with wonderful friends and family. My faith has held me together through this time. My prayer for you is total remission and that cancer no longer disrupts your life. God bless
When a woman starts getting facial hair, going bald and getting adult acne, there's obviously something hormonal going on. Her adrenal gland should have been looked at immediately.
@@Krujstr1Come on. He doesn't keep anyone from getting cancer. Everyone should be afraid of cancer and take precautions. You can still have your relationship with God.
I also agree-all hormonal affiliated symptoms. Usually those integrative medical doctors run a ton of hormone tests. I worked for a general practice and it wasn’t that uncommon for our docs to run a 24 hour urine test on patients. Hard to understand how she was not diagnosed sooner.
@@melindacnYou’re an courageous, beautiful, young lady & I’m so glad that your allergist was so persistent. The insurance company was so wrong to initially refuse you the scan. Your symptoms were bizarre & potentially life threatening eg high BP. You’re a gutsy girl & I’m so glad you’re doing well. You’ve got an amazing spirit & I wish you a long, happy life! 💕
I still don’t have answers. For the past 4 years I’ve had so many symptoms from blood pressure going up to it going really low when I walk to much. Had an MRI and nothing showed up. Glad you found your problem. God bless you.❤
I still haven't got a diagnosis as well. I've been trying to find someone in the states who tests for spike protein. If anyone knows someone, let me know!
NAD (not a doctor) but my blood pressure as all over too (bradycardia and tachycardia) and my lips would go blue. Naturopath helped me by treating spike proteins with Nattokinase and it helped so much. Was in ER multiple times prior to her help, saw a cardiologist, tested for POTS, etc and scheduled for an MRI. Within a few weeks of doing the supplements my heart rate normalized and I could go back to a normal life, exercise, etc. good luck! It’s so hard when you can’t find answers.
I am yet to be diagnosed, I'm confirmed with hyperaldosteronism but not yet determined if it's ACC or adenoma (or hyperplasia), but my symptoms are so similar to yours and many others with ACC. Your story and positivity shined through here and it made a difference for me mentally. So, THANK YOU so very much for sharing and being transparent about your story on here 💛. / Mia
Good to hear you are doing ok. We had a similar experience. I am 3+ years in remission for a rare blood cancer. For 3 months I was told I had an infection and underwent every infection test which all came back negative. Finally, I developed unusual rash on my face and had to point out to a doctor it was located everywhere I had lymph nodes before and she agree to biopsy it. It turned out to be a form of lymphoma.
It must make you so upset that you have to do all the leg work in order to finally get dianiosed if you never did or couldn't you wouldn't be here any more ..than what like What does the doctor think or say ?? Oh sorry we didn't know??? Weird isn't it?
@@cherylschumaker1366 my test results were inconclusive. It was a hard cancer to detect early and they ran into a lot of insurance denials. Once, they figure it out, I got excellent healthcare.
Basicly you diagnosed yourself! "Look doctor! Lets just do a biopsy from these lymph nodes against your opinion so I can get my cancer diagnosis and care for it!"
Thanks for sharing with us. I’ve started questioning everything, especially government health advice! After reading "Health and Beauty Mastery", I completely changed my approach. This book reveals so many shocking truths about the health industry!
If not for her amazing allergist, this beautiful, young lady might not have made it. It’s disgusting she was initially refused for the scan by her insurance company. She had many bizarre & potentially life threatening symptoms eg her high BP. The healthcare in my country isn’t perfect but I’m very grateful for it. I’d be dead if I lived in the US. You guys deserve much better!
People need to have access to general physicians as opposed to GPs as they are the ones who have trained in getting to the bottom of this type of thing. I've been in the same position as this girl and mine too turned out to be as a result of a tumour and my symptoms were also all over the place as the tumour grew. It took me two years of going from specialist to specialist, GP to GP as well as natural practitioners to get to the bottom of it. Only for one medical person who actually took me seriously did I get to the bottom of it. I had been labelled as stressed and basically a nut job due to the diversity of my symptoms prior to my diagnosis which I still find so insulting. I never got an apology.
Yes indeed, to me it's intellectual lazyness. Since the occurrence of such a cancer is very rare, they just dismiss the possibility, without any further inquiry. It's easier to call you nuts!
Wow, thank you lady for persevering. It’s frustrating how uneducated doctors can not trying to push forward themselves and better help you if not point you in a different specialist direction. Thankful for your recovery, wow!
I thought immediately, Cushing Syndrome, when l watched this short but now read it is cancer in her adrenal glands. Same symptoms, same glands affected, totally different cause and I wish her all the very best indeed for her treatment. Very tough.
Wow you have been through the wringer! Good luck with your cancer fight. Your video is awesome; so much important info. My thoughts and prayers are with you. God bless you!
Stories like this frustrate me immensely. I took one look at this woman and knew she had some form of Cushing's syndrome, the swollen face, blood pressure, acne, hair growth, bloating, easy bruising, amenorrhea line up with it perfectly. I've had Cushing's disease, which is thankfully benign, but causes all of the same hormonal symptoms. Doctor's act like the symptom profile is hard to diagnose, but the swollen face is such and obvious and specific tell that it baffles me they didn't start at least investigating cortisol immediately.
Hi, Thank You for sharing your Story. I’m really happy that are doing Great now. I think more people need to watch these kinds of Videos, so they can learn all the Symptoms that relate to Cancer. You may have saved someone’s Life by making this Video. God Bless you, and Thank God you’re ok now.👍👍❤️
Thank God for your diligence also behind a person who advocates for yourself. I'm afraid of future diagnosis. I get abdominal swelling had full body swelling. But all my specialist were the same w/ me. I thought it was bc I was MA in family practice. I know the frustration. I heard similar symptoms but so far I've discovered RA, Fibromyalgia, had 4 EGD, Colonoscopy.
Cancer doctors only treat cancer and don't study WHY so many young adults and older adults experiencing astronomical increases in cancer, heart attack and stroke ... due to ingestion and inhalation of microplastics from food, water, and air, now six times higher than in the 1990s. For information, global production of plastic was 459.75 million tons in 2019, compared to just 2 million tons in 1950 -- and expected to QUADRUPLE by 2050. All this plastic is breaking down into our food, water and air that we are ingesting and inhaling. Cancer is rampant because plastics are degrading into our food, water, and air.
Agreed. Toxins are all around us. The problem is our “healthcare” system is not designed to keep us healthy. It’s a sick care system designed to treat symptoms and make profit. If they actually made us healthy they would destroy their own business.
There are scientists studying why so many young people are getting cancers that used to be in mostly much older people. Oncologists have their own specialties and are involved mostly with treating patients. Some oncologists are also studying the possible causes, etc.
Thank you so much for sharing your story and mentioning how anyone has a unique case with symptoms that were related to the cancer. That was truly highlighted in my brain. And you look so amazing, by the way. God bless you.
Melinda you are super switched on. Yes ...bio-feedback is essential. Cancer is a mindgame ...and you need to self advocate and have surgeons and doctors that get you and you get them! I consider my GP, Surgeon and his team my extended Cancer Family. I am a Medicinal Chemist and Cancer Survivor. Great that Keytruda is zapping your tumours.
Sure glad they have gone to school for 10 to 12 years ....This girl knows more about this condition than. Most doctors Wonder how long she went to school for ...A doctor right there....My brother died just turned 48 (with 2 teenagers ) of endocrine cancer and it was brutal.....
@cherylschumaker1366 I am a Medicinal Chemist ....Melinda is super switched on. Cancer needs to outwitted ...chemo alone is not intelligent enough to combat cancer...need a combination ....with targeted complimentary supplements
I mean, it's crazy how drs dismiss severe symptoms all the time. The other day I watched a video of a guy, showing his one eye protruding to an extremely extend. He went to several drs, they all dismissed it, saying it was everything from allergy to some bug he got abroad...He has a cp diagnosis, but that obviously does not affect his eyes. It got worse and finally he showed the dr a picture of him before getting the eye issue. THEN the dr reacted sort of in panic and sent him directly to the ER. He was diagnosed with some sort of sinus cancer. He could have lost his sight because of those, turning the blind eye drs.. What seems to be a good thing to get them understanding the problem is for real, is showing images of yourself before your issues. (If like in this case, a swollen face or an eye protuding) But it really shouldnt be necessary to get their attention or having them believe you though ..
How are people able to afford going out of state for cancer treatment? How were you able to get your insurance company to agree to out of state coverage if they covered?
❤ Thanks for sharing your story. I'm glad you did so much research. You have to because the whole medical system. Is your such a mass? I've got in to see doctors and they don't even look at me. They look at the computer. I said hi I'm here. I don't care if I'm snobbish to them or not. I'm tired of it. I was a nurse for 35 years. An I know what shouldn't shouldn't be happening in. I've taken a a backstep but anyway. You have done yourself a huge favor by investigation and traveling to see different doctors and I'm so very glad that they were able to remove your tumorand that you can get treatment if you need it and? Enjoy your best traveling life.. Good luck❤
I have all those symptoms 😟 swelling face and hands and feet, tongue issues, hair falling out, missed period for three months, skin issues. Anemic, etc
Thank you for sharing your story 👍 and nothing shocks us 😞our 7 yr old son was playing flag football and he started complaining that his knee hurts I called our dr we had a conversation and he told give him some Tylenol and if he keeps complaining bring him in and we did a week later he said I do not want to guess let’s get an X-ray the next day I went to the dr office after work to see if he got news and he took me into his office put the X-ray up and said THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I FELL TO MY KNEES HYSTERICAL 😩😩 we were rushed to a university hospital we live in California, and after a biopsy they told us he had OSTEOSARCOMA bone cancer and mommy fainted 😩 so nothing shocks us anymore
Another impressive presentation!Bravo! I know it’s tough but stay positive, envision the future you want to be and it will happen! If you dream it, it will happen, but you have to believe! I know I’ll be sticking around, I know that. Thank you for all you do!🙏🫶✨ Edited for clarity.🤪
My allergy symptoms were treated for decades - about 3 years ago I consulted with another doctor - out of the US - and it turns out I had parasites. I had to be treated for a year - but the first day despite it being remarkable in that I was sweating and running a fever - my symptoms improved almost immediately. Treat yourself for parasites - your symptoms also sound much like mine as well - especially the swelling. You can get the medications from overseas pharmacies very inexpensively.
My son was diagnosed with parasite when he was 8 - the only thing that got rid of them was food grade diatomaceous earth 1/2 teaspoon daily x 3 months and they never came back - make sure your taking vitamins and minerals
1000% and when you start to lose weight without trying they still dismiss it because the weight-loss is "good" for you. I unintentionally lost around 40lbs in 2021 mentioned it to my Dr and he wasn't concerned at all. To be fair, I was a new patient to him so he didn't know me well. I've started unintentionally losing again and lost another 10Lbs over the last 3 months along with many other concerning symptoms. He knows me well now and started with a ton of blood work last week, have a CT scheduled for next week and told me I neither of those give us answers he's sending me to a rheumatologist. I'm very lucky I have a dr that cares and listens. Probably doesn't hurt he also treats both of my parents 😂
So I'm confused about the location of this tumor. They said your abdomen and hips but I would think your adrenal gland is higher up. I'm only asking because I've had some issues nowhere near as serious as yours but some similar symptoms
It was on my adrenal gland, but an abdominal CT found it. I think they had to increase the scope of the CT to see the whole tumor. It turned out to be 24cm and 3.2 pounds, so it was huge and taking up a lot of space.
Dr Sircus has a great book about Sodium bicarbonate and cancer - I highly recommend reading it - there is another book called and Iodine Crisis - I did the protocol and everything the book says held true for me. Eidon liquid minerals- transdermal magnesium- you can make it yourself buy magnesium flakes and put in spray bottle mix with water - spray on body start slow - Dr Sircus has a book about transdermal magnesium- you have to start building your immune system up and reduce daily acid build up that leads to cancer
I have great insurance (PPO Blue Cross Blue Shield), which covers almost everything aside from co-pays, a 2k deductible, and travel. I agree- healthcare in America is insane. The NIH (who I mentioned) is a national institute that is free of charge for patients. Unfortunately, I'm still working full time from home so I can keep my insurance and pay all my bills. It's sad, but that's the truth.
@melindacn glad you're doing better. I know you're fully plant based. Please do research about all the plant toxins and carcinogens. I had no idea either I used to think it was the healthiest way to eat till I learned about carnivore and I learned so much from Dr Anthony Chaffee
Yes, I was going to comment this exact thing. I was a whole foods Vegan for 8yrs and recently found carnivore youtubers who have shed so much light on my health issues due to my low fat vegan lifestyle. We need less chemicals and toxins and indigestible fibre, I'm convinced of that now.
Thx for video. Bless you sweetie. I'm in the same boat. 4 autoimmune diseases, i hv 7 specialist Dr's, 1 Graves disease 2.Sĵodrens disease 3. Small Fiber POLYNEUROPATHY 4 Nodularis skin disease autoimmune induced. Only 61. I hv an Endocrinologist that is treating my graves, a Neuromuscular Dr. Ect. I hv a small nodule on my Adrenal gland they are keeping an eye 👀 on? A nodule on my thyroid gland, keeping an eye 👀 on? Ct scan recently showed a good size enlarged lymph node in my Hilar region in chest, keeping an eye 👀 on? I stay pretty sickly, some days are worse than others, but never very good. Abdominal swollen off & on. I hv so many symptoms i can't even list here, like you had. I'm still waiting for some kind of help. Continues blood draws. Keep telling me we'll recheck in 6 months....over an over. 😢😡 i already hv an Endocrinology problem. ? I'm plum wore out, still sickly. 😢 i only take Metholmazole for Graves disease, 1 pill a day. Monitoring my TSH, T3, T4, ect. I'm not a big pharma gal unless i hv too. I try to eat good but a lot of digestive issues. They say due to the nerves damaged, slows my peristalsis. 🙃 . A medical binder is a great idea i think I'll start. Man you been through sooo much it's unbelievable. You look so good now, so smart & beautiful. Very educational video, you are very informative and very well spoken. Thank you so much for this video. You are helping many i know. You hv good ideas. A wonderful attitude!! PERIOD May God continue to be with you. Precious ❤🙏🏻
Melinda, thank you for sharing your story. I also was diagnosed with ACC back in December of 2001 after many doctors, tests, scans etc. I had many of the same symptoms you talked about. I was blessed to finally be referred to the Hospital of the University of Pennsylvania and the excellent doctors there. My surgery to remove the tumor was in February 2002. At the time, there was no chemo or radiation for adrenal cancer. As you said, there is/was very little research for this type of cancer. I'm glad to say I'm a 22 year survivor now. I'm so happy to hear you are doing well. I will keep you in my thoughts and prayers. ❤
Happy for you ❤️
we love to hear from survivors!
I have all these symptoms but blood pressure. Is not high stays lower and have cradle cap but not scally
Hope and pray you keep feeling better and even that the cancer goes away. 💗
You are very strong and brave.
I’ve been in stage 4 Hodgkin’s lymphoma in and out for about 2 1/2 years. It is a journey and I too am blessed with wonderful friends and family. My faith has held me together through this time.
My prayer for you is total remission and that cancer no longer disrupts your life.
God bless
When a woman starts getting facial hair, going bald and getting adult acne, there's obviously something hormonal going on. Her adrenal gland should have been looked at immediately.
Agree! Especially with her round face..that's a symptom of high cortisol
I agree!
@@Krujstr1Come on. He doesn't keep anyone from getting cancer. Everyone should be afraid of cancer and take precautions. You can still have your relationship with God.
I also agree-all hormonal affiliated symptoms. Usually those integrative medical doctors run a ton of hormone tests. I worked for a general practice and it wasn’t that uncommon for our docs to run a 24 hour urine test on patients. Hard to understand how she was not diagnosed sooner.
always seek multiple opinions if you're not comfortable with one doctor's opinion!
Your allergist is your hero. Best wishes to you.
yes he is!
You’re such an intelligent, articulate young woman, and a great advocate for yourself. Best wishes for a long, happy life.
thank for the kind comment!
Thank you so much! I waas very nervous to be on video, so I really appreciate this.
@@melindacnYou’re an courageous, beautiful, young lady & I’m so glad that your allergist was so persistent. The insurance company was so wrong to initially refuse you the scan. Your symptoms were bizarre & potentially life threatening eg high BP. You’re a gutsy girl & I’m so glad you’re doing well. You’ve got an amazing spirit & I wish you a long, happy life! 💕
I still don’t have answers. For the past 4 years I’ve had so many symptoms from blood pressure going up to it going really low when I walk to much. Had an MRI and nothing showed up. Glad you found your problem. God bless you.❤
I still haven't got a diagnosis as well. I've been trying to find someone in the states who tests for spike protein. If anyone knows someone, let me know!
we hope you find answers soon!
NAD (not a doctor) but my blood pressure as all over too (bradycardia and tachycardia) and my lips would go blue. Naturopath helped me by treating spike proteins with Nattokinase and it helped so much. Was in ER multiple times prior to her help, saw a cardiologist, tested for POTS, etc and scheduled for an MRI. Within a few weeks of doing the supplements my heart rate normalized and I could go back to a normal life, exercise, etc. good luck! It’s so hard when you can’t find answers.
What was the deal at the hair salon?? Explain it because we are not mind readers!!! Made ZERO SENSE!!
@@KaraLey98 Melinda got hair extensions once her hair started growing back. It was an amazing moment for her on her healing journey 🤍
I am yet to be diagnosed, I'm confirmed with hyperaldosteronism but not yet determined if it's ACC or adenoma (or hyperplasia), but my symptoms are so similar to yours and many others with ACC. Your story and positivity shined through here and it made a difference for me mentally. So, THANK YOU so very much for sharing and being transparent about your story on here 💛. / Mia
Good to hear you are doing ok. We had a similar experience. I am 3+ years in remission for a rare blood cancer. For 3 months I was told I had an infection and underwent every infection test which all came back negative. Finally, I developed unusual rash on my face and had to point out to a doctor it was located everywhere I had lymph nodes before and she agree to biopsy it. It turned out to be a form of lymphoma.
glad you kept advocating for yourself to get answers!
It must make you so upset that you have to do all the leg work in order to finally get dianiosed if you never did or couldn't you wouldn't be here any more ..than what like What does the doctor think or say ?? Oh sorry we didn't know??? Weird isn't it?
@@cherylschumaker1366 my test results were inconclusive. It was a hard cancer to detect early and they ran into a lot of insurance denials. Once, they figure it out, I got excellent healthcare.
Basicly you diagnosed yourself!
"Look doctor! Lets just do a biopsy from these lymph nodes against your opinion so I can get my cancer diagnosis and care for it!"
Melinda you are such an inspiration to us all
yes she is!
Thank you so much!
Thanks for sharing with us. I’ve started questioning everything, especially government health advice! After reading "Health and Beauty Mastery", I completely changed my approach. This book reveals so many shocking truths about the health industry!
I got it, one of the best books ive read
I heard about that
Exactly!
Gov health advice = Sick care...
If not for her amazing allergist, this beautiful, young lady might not have made it. It’s disgusting she was initially refused for the scan by her insurance company. She had many bizarre & potentially life threatening symptoms eg her high BP. The healthcare in my country isn’t perfect but I’m very grateful for it. I’d be dead if I lived in the US. You guys deserve much better!
People need to have access to general physicians as opposed to GPs as they are the ones who have trained in getting to the bottom of this type of thing. I've been in the same position as this girl and mine too turned out to be as a result of a tumour and my symptoms were also all over the place as the tumour grew. It took me two years of going from specialist to specialist, GP to GP as well as natural practitioners to get to the bottom of it. Only for one medical person who actually took me seriously did I get to the bottom of it. I had been labelled as stressed and basically a nut job due to the diversity of my symptoms prior to my diagnosis which I still find so insulting. I never got an apology.
Is Jesus going to order scans for people like these? Or will Jesus wake the doctor up to take sick patients seriously?
Yes indeed, to me it's intellectual lazyness.
Since the occurrence of such a cancer is very rare, they just dismiss the possibility, without any further inquiry. It's easier to call you nuts!
@@ecduf Exactly.
so sorry to hear you had that experience
@@ThePatientStory Thank you.
💛You're just so positive and sweet I'm glad you got a diagnosis and I hope things go well for you❤
thank you for the kind comment!
Thank you so much!
Wow, what a journey. My hope and prayers for your continued recovery and remission. 🏳️🌈❤🎉❤🏳️🌈
thank you for sending well wishes!
I wish you all the best in your cancer journey Melinda. Thanks for sharing, and I'm glad you're doing better.
thanks for listening to her story!
Beautiful, smart young lady. I keep my fingers crossed for you. Thank you for sharing your story! ❤😘🫂🤝🤞
WOW! Yes, you do have to keep advocating for your self. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Wow, thank you lady for persevering. It’s frustrating how uneducated doctors can not trying to push forward themselves and better help you if not point you in a different specialist direction. Thankful for your recovery, wow!
What a saga! I wish you nothing but full healing and remission going forward ❤️
I thought immediately, Cushing Syndrome, when l watched this short but now read it is cancer in her adrenal glands. Same symptoms, same glands affected, totally different cause and I wish her all the very best indeed for her treatment. Very tough.
Wow you have been through the wringer! Good luck with your cancer fight. Your video is awesome; so much important info. My thoughts and prayers are with you. God bless you!
Stories like this frustrate me immensely. I took one look at this woman and knew she had some form of Cushing's syndrome, the swollen face, blood pressure, acne, hair growth, bloating, easy bruising, amenorrhea line up with it perfectly. I've had Cushing's disease, which is thankfully benign, but causes all of the same hormonal symptoms. Doctor's act like the symptom profile is hard to diagnose, but the swollen face is such and obvious and specific tell that it baffles me they didn't start at least investigating cortisol immediately.
Hi, Thank You for sharing your Story. I’m really happy that are doing Great now. I think more people need to watch these kinds of Videos, so they can learn all the Symptoms that relate to Cancer. You may have saved someone’s Life by making this Video. God Bless you, and Thank God you’re ok now.👍👍❤️
Thank God for your diligence also behind a person who advocates for yourself. I'm afraid of future diagnosis. I get abdominal swelling had full body swelling. But all my specialist were the same w/ me. I thought it was bc I was MA in family practice. I know the frustration. I heard similar symptoms but so far I've discovered RA, Fibromyalgia, had 4 EGD, Colonoscopy.
Hos can somebody go through all that. I know people suffer with illness. I’m so pleased you got through it ❤️
Yes! ❤️🩹
thank you for the kind comment :)
Thank you so much!
You are a beautiful survivor.
Always crazy how some doctors without answers judge other doctors looking for answers 😂
Cancer doctors only treat cancer and don't study WHY so many young adults and older adults experiencing astronomical increases in cancer, heart attack and stroke ... due to ingestion and inhalation of microplastics from food, water, and air, now six times higher than in the 1990s. For information, global production of plastic was 459.75 million tons in 2019, compared to just 2 million tons in 1950 -- and expected to QUADRUPLE by 2050. All this plastic is breaking down into our food, water and air that we are ingesting and inhaling. Cancer is rampant because plastics are degrading into our food, water, and air.
Agreed. Toxins are all around us. The problem is our “healthcare” system is not designed to keep us healthy. It’s a sick care system designed to treat symptoms and make profit. If they actually made us healthy they would destroy their own business.
There are scientists studying why so many young people are getting cancers that used to be in mostly much older people. Oncologists have their own specialties and are involved mostly with treating patients. Some oncologists are also studying the possible causes, etc.
doctors and researchers are out there doing their individual, respected work on this issue!
Hmmmm....a certain vaccine?
@@VM-123 Read a medical science book about vaccines and stop pushing anti-science nonsense.
Thank you so much for sharing your story and mentioning how anyone has a unique case with symptoms that were related to the cancer. That was truly highlighted in my brain. And you look so amazing, by the way. God bless you.
thank you for listening to her story!
You are truly inspirational 💙
You are looking great. Wish you good health and all the best
I agree with her about giving doctors a diagnosis that they can run with and not think beyond that diagnosis.
Thank you so much for sharing your story here. You're an awesome person and I wish you great travel adventures in the years to come.
thank you for the kind comment!
Melinda you are super switched on. Yes ...bio-feedback is essential. Cancer is a mindgame ...and you need to self advocate and have surgeons and doctors that get you and you get them! I consider my GP, Surgeon and his team my extended Cancer Family. I am a Medicinal Chemist and Cancer Survivor. Great that Keytruda is zapping your tumours.
thank you for your words of encouragement :)
@ThePatientStory If you ever find yourself in London....let me know ...I will be happy to show you around the sights.
Sure glad they have gone to school for 10 to 12 years ....This girl knows more about this condition than. Most doctors Wonder how long she went to school for ...A doctor right there....My brother died just turned 48 (with 2 teenagers )
of endocrine cancer and it was brutal.....
@cherylschumaker1366
I am a Medicinal Chemist ....Melinda is super switched on. Cancer needs to outwitted ...chemo alone is not intelligent enough to combat cancer...need a combination ....with targeted complimentary supplements
Thank you for saying that!
There are too many specialists, and not enough common sense. The body is a whole system. Primary care doctors should be taught this, not memorization.
Being in the medical field this is completely wrong and a deadly way to be thinking.
@@DaisyG37 I’m also in the medical field. It’s all a money grab! I’m not afraid to say it.
I woder if doctors use artificial inteligence for diagnose @@DaisyG37
@@marielarue6591 💯💯💯
Keep up your fight! You are Awasome ❤
I mean, it's crazy how drs dismiss severe symptoms all the time. The other day I watched a video of a guy, showing his one eye protruding to an extremely extend. He went to several drs, they all dismissed it, saying it was everything from allergy to some bug he got abroad...He has a cp diagnosis, but that obviously does not affect his eyes. It got worse and finally he showed the dr a picture of him before getting the eye issue. THEN the dr reacted sort of in panic and sent him directly to the ER. He was diagnosed with some sort of sinus cancer. He could have lost his sight because of those, turning the blind eye drs.. What seems to be a good thing to get them understanding the problem is for real, is showing images of yourself before your issues. (If like in this case, a swollen face or an eye protuding) But it really shouldnt be necessary to get their attention or having them believe you though ..
a great example of trusting your gut and seeking many opinions until you find an answer you are confident with!
How are people able to afford going out of state for cancer treatment? How were you able to get your insurance company to agree to out of state coverage if they covered?
Respect. ✨ Thank you for your story.
This lady is amazing and she's really intelligent. I'm so glad that she's feeling so much better now. ❤
thank you for listening!
I hate that you were dismissed and that it made you temporarily doubt yourself.
thank you for listening to her story!
❤ Thanks for sharing your story. I'm glad you did so much research. You have to because the whole medical system. Is your such a mass? I've got in to see doctors and they don't even look at me. They look at the computer. I said hi I'm here. I don't care if I'm snobbish to them or not. I'm tired of it. I was a nurse for 35 years. An I know what shouldn't shouldn't be happening in. I've taken a a backstep but anyway. You have done yourself a huge favor by investigation and traveling to see different doctors and I'm so very glad that they were able to remove your tumorand that you can get treatment if you need it and?
Enjoy your best traveling life.. Good luck❤
You are my hero!
I have all those symptoms 😟 swelling face and hands and feet, tongue issues, hair falling out, missed period for three months, skin issues. Anemic, etc
Keep pushing for good treatment!!
seek medical attention if you are concerned with your symptoms
Low cholesterol = Low immunity
High cholesterol= good immune system.
Thank you for sharing your story 👍 and nothing shocks us 😞our 7 yr old son was playing flag football and he started complaining that his knee hurts I called our dr we had a conversation and he told give him some Tylenol and if he keeps complaining bring him in and we did a week later he said I do not want to guess let’s get an X-ray the next day I went to the dr office after work to see if he got news and he took me into his office put the X-ray up and said THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I FELL TO MY KNEES HYSTERICAL 😩😩 we were rushed to a university hospital we live in California, and after a biopsy they told us he had OSTEOSARCOMA bone cancer and mommy fainted 😩 so nothing shocks us anymore
Omg, i am so sorry you are going through this. It is so scary to see your baby in pain. Wishing you all a positive outcome. Stay strong for him. 🙏
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Oh my brother had the same tumor pheochromocytoma tumor. It was a terrible ordeal he needed open heart surgery.
Another impressive presentation!Bravo! I know it’s tough but stay positive, envision the future you want to be and it will happen! If you dream it, it will happen, but you have to believe! I know I’ll be sticking around, I know that. Thank you for all you do!🙏🫶✨
Edited for clarity.🤪
My allergy symptoms were treated for decades - about 3 years ago I consulted with another doctor - out of the US - and it turns out I had parasites. I had to be treated for a year - but the first day despite it being remarkable in that I was sweating and running a fever - my symptoms improved almost immediately. Treat yourself for parasites - your symptoms also sound much like mine as well - especially the swelling. You can get the medications from overseas pharmacies very inexpensively.
My son was diagnosed with parasite when he was 8 - the only thing that got rid of them was food grade diatomaceous earth 1/2 teaspoon daily x 3 months and they never came back - make sure your taking vitamins and minerals
Best of luck.
Also if you are overweight you can be overlooked
Yes that is so true. Sad 😢
1000% and when you start to lose weight without trying they still dismiss it because the weight-loss is "good" for you. I unintentionally lost around 40lbs in 2021 mentioned it to my Dr and he wasn't concerned at all. To be fair, I was a new patient to him so he didn't know me well. I've started unintentionally losing again and lost another 10Lbs over the last 3 months along with many other concerning symptoms. He knows me well now and started with a ton of blood work last week, have a CT scheduled for next week and told me I neither of those give us answers he's sending me to a rheumatologist. I'm very lucky I have a dr that cares and listens. Probably doesn't hurt he also treats both of my parents 😂
So I'm confused about the location of this tumor. They said your abdomen and hips but I would think your adrenal gland is higher up. I'm only asking because I've had some issues nowhere near as serious as yours but some similar symptoms
Huh? Your adrenal glands sit atop your kidneys and are located in your abdominal cavity.
You have two adrenal glands, they sit on top of your kidneys. And they have lots of different jobs to make your body run smoothly.
It was on my adrenal gland, but an abdominal CT found it. I think they had to increase the scope of the CT to see the whole tumor. It turned out to be 24cm and 3.2 pounds, so it was huge and taking up a lot of space.
@@melindacn 3 lbs!
Thank you for sharing. You look much healthier
I battle late stage Lyme disease and my risk is very high for all cancers . I'm scared
Dr Sircus has a great book about Sodium bicarbonate and cancer - I highly recommend reading it - there is another book called and Iodine Crisis - I did the protocol and everything the book says held true for me. Eidon liquid minerals- transdermal magnesium- you can make it yourself buy magnesium flakes and put in spray bottle mix with water - spray on body start slow - Dr Sircus has a book about transdermal magnesium- you have to start building your immune system up and reduce daily acid build up that leads to cancer
Most of the patient here who have cancer are almost either a runner or very athletic, what’s going on?
cancer does not discriminate no matter how healthy your lifestyle may be
What kind of scan? MRI? CT? Other?
How did you pay for all of this? How much out of pocket from you? Please share this if you don’t mind. We need to know!
I have great insurance (PPO Blue Cross Blue Shield), which covers almost everything aside from co-pays, a 2k deductible, and travel. I agree- healthcare in America is insane. The NIH (who I mentioned) is a national institute that is free of charge for patients.
Unfortunately, I'm still working full time from home so I can keep my insurance and pay all my bills. It's sad, but that's the truth.
@melindacn glad you're doing better. I know you're fully plant based. Please do research about all the plant toxins and carcinogens. I had no idea either I used to think it was the healthiest way to eat till I learned about carnivore and I learned so much from Dr Anthony Chaffee
Yes, I was going to comment this exact thing. I was a whole foods Vegan for 8yrs and recently found carnivore youtubers who have shed so much light on my health issues due to my low fat vegan lifestyle. We need less chemicals and toxins and indigestible fibre, I'm convinced of that now.
I’m glad you’re doing better. Did you by chance get the Covid vaccine?
That is what I always want to know too but people seldom answer it seems.
She was diagnosed in November of 2021 and had symptoms months before which would have been before she would have been eligible for the vaccine.
Just so people are aware, though rare, a pheochromocytoma can be malignant.
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Wow 🙏🏿🙏🏿
thank you for sending well wishes!
Tans female to male
Crystal
why did you have a cardiologist?
I have a congenital heart condition (unrelated to cancer) bicuspid aortic valve.
@@melindacnI have BAV too
Cancer rates have escalated since the Covid vaccination
Thx for video. Bless you sweetie. I'm in the same boat. 4 autoimmune diseases, i hv 7 specialist Dr's, 1 Graves disease 2.Sĵodrens disease 3. Small Fiber POLYNEUROPATHY 4 Nodularis skin disease autoimmune induced. Only 61. I hv an Endocrinologist that is treating my graves, a Neuromuscular Dr. Ect. I hv a small nodule on my Adrenal gland they are keeping an eye 👀 on? A nodule on my thyroid gland, keeping an eye 👀 on? Ct scan recently showed a good size enlarged lymph node in my Hilar region in chest, keeping an eye 👀 on? I stay pretty sickly, some days are worse than others, but never very good. Abdominal swollen off & on. I hv so many symptoms i can't even list here, like you had. I'm still waiting for some kind of help. Continues blood draws. Keep telling me we'll recheck in 6 months....over an over. 😢😡 i already hv an Endocrinology problem. ? I'm plum wore out, still sickly. 😢 i only take Metholmazole for Graves disease, 1 pill a day. Monitoring my TSH, T3, T4, ect. I'm not a big pharma gal unless i hv too. I try to eat good but a lot of digestive issues. They say due to the nerves damaged, slows my peristalsis. 🙃 . A medical binder is a great idea i think I'll start. Man you been through sooo much it's unbelievable. You look so good now, so smart & beautiful. Very educational video, you are very informative and very well spoken. Thank you so much for this video. You are helping many i know. You hv good ideas. A wonderful attitude!! PERIOD May God continue to be with you. Precious ❤🙏🏻