Neuroborreliosis with Lyme disease. Dr. Kyle sees these symptoms in 60% of Chronic Lyme Patients:
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- Опубликовано: 12 сен 2024
- In this video, Famous Lyme disease specialist Dr. Kyle Warren, DC, CFMP, in Minnesota, explains "Neuroborreliosis," the symptoms and prognosis, how common it is in the patients he sees, proper testing and natural treatment of Neuroborreliosis. To learn more visit www.LYMEDR.com
I hope for the controversy to be over soon. We have alot of people still sick even after treatment. For anyone experiencing chronic Lyme, I am so sorry and you are not alone. 🙏🙏🙏🙏
thank you ive had this for 18 years
thank you
I'm in tears. Thank you so much. Doctors at Yale in CT says I have ALS a couple of years ago. But they recently said I'm not 'progressing like someone with ALS and we're not 100% sure it's ALS, but we won't test for Lyme because you have atrophy'. How in the world you yell out ALS, and not be 10000% sure? I went elsewhere and this doctor diagnosed me with chronic lyme and said it CAN cause atrophy as well. Through the years I have literally had the MAJORITY of the symptoms listed above, including Bell's Palsy. I had an M.R.I. for a T.I.A, nothing showed. Yale even suggested I see a therapist, someone to 'talk to'. Thank you doctor for this upload!!!!!!!!!!!!!!!
So good to see the many new posts and new info on long term Lyme which mainstream med has scoffed at the existence of for so long, ...20 years for me. Those of us who have been alone in this struggle are always interested in any new ideas or treatment options. Anyone interested in forming local support groups?
As a person living with Neuro Lyme, I think this is the best video I’ve seen on this topic. Thanks!
Thankyou!
@@TrailheadHealth@TrailheadHealth Live in Texas. About to be homeless. Have symptoms of MS or Lyme. Tested for Lyme, came back negative. Maybe I have co-infections. Idk. Is there anything I can do, or am I pretty much doomed?
I'm so glad you did this video and posted it. I had lyme meningitis in August 2019, in the hospital for one week with one month of the stronger antibiotic with a PICC. One year later I developed daily low grade fevers. The tests found that I now have chronic microvascular white matter ischemic disease; problems with memory, attention, verbal function and 'working memory'. I've always liked the research done by the Cleveland Clinic. In Syracuse, NY, there is very little to be done for post lyme treatment or the co-infections.
Thank-you. Appreciate your kind comments and feedback. Our goal is to keep finding the good doctors and practitioners making a difference in health care. We wish you good luck on your health care journey. It’s not easy and we are all in this together. 🙏🏻
Trust me Post and Chronic is real! People who live with it !
This video was incredibly enlightening.
I was empirically treated for Lyme after a very acute episode of vertigo and diagnosed with vestibular neuritis 8 months ago. I had a tick bite with bullseye rash 30 days prior that was untreated. After a 21 day cycle of doxycycline I improved enough to begin to walk & function again but I continue to suffer from lingering vestibular & neurological issues.
I hope this lyme / tick borne illness awareness translates north of the border soon.
-a dizzy Canadian.
My whole family has this awful affliction. I had to fight like a dog to have my mother tested! They wrote her off as dementia after a stroke. I noticed after every infection which required antibiotics she cleared up like a bell, like pre stroke mom.... i gave her rocephin in November which she got super ill day 4and 5 then slept through the last 5-6 days but when she woke they said she was having a lucid moment because she was her bright mommy self for three weeks before she got mentally unstable again... now i only had her tested because my three children have it 2 are an autism diagnosis (ages 8 and 21) and the third never had clear skin always an issue from birth. The kids originally had what doctors said were growing pains and fevers but it was extreme and constant... i began suspecting lyme..After the kids tested negative i found a doctor willing to treat them due to symptoms. At the 90 day mark of Antibiotics they all tested positive and so did me and my husband. I began thinking how mom was always a bit loopy and had so many issues while growing up. We have tested positive for lyme but exhibit bart and babs.... my eight year old has the worst nuero symptoms after mom... back to mom she had almost everything anaplasmosis rmsf bart babs and lyme... this is nuts we live in NYC and I wonder was i born with this? I was diagnosed bipolar as a child and is it possible to born and not show symptoms? This is very confusing.... its sad they would have wrote mom off as a demented elderly woman if the kids would have never gotten sick... now the challenge is finding someone to treat mom and us outside guidelines to make us well. The financial crisis this has caused is crazy.
Hi Angel. So sorry to hear your story. You can reach Dr. Kyle at lymedr.com. He might know of a Functional Doctor in your area who can help you. Wish you the very best in your healing. Please keep in touch.
Very similar situation. Mom got tested positive. Then I tested positive lyme and mycoplasma. Brother tested with mycoplasma. Sister is going through hell, and I'm thinking she might have something too... because I suspect it was passed down as is very possible with lyme. I had severe psychiatric issues when I was first diagnosed, so did my Mom, my sister is have the same. I know my pity doesn't help your situation but keep up the fight with vitamins, antibiotics, CBD, CBG, try and keep trying as I am feeling better doing so. Trying to get Mom to follow suit.
Best description of the overall state of the science, and possible symptoms, surrounding Lyme Disease I've heard. Thank you Dr. Warren.
Such a shame that most UK GP's refuse to acknowledge Lyme disease....wont follow guidelines and are totally dismissive of patients needs. Mindblowing..frustration. Designated to suffer later chronic problems....Grrrrrr
Same here, I'm now having neurological symptoms, what is wrong with the UK and Lyme
My son is in the hospital with lyme n now has a pacemaker. It's been 10 days.
I would lie to hear about post infection neurological symptoms from Cat Scratch Disease compared to Lyme Disease. Both are caused by a bacteria that is hard to detect. They both have a long list of very simular symptoms or should I say identical symptoms; and they are both treated the same way- with three weeks of antibiotics. After several years and several hospital visits I am suppost to be recovered. I still feel as though I have some residual brain damage and physical damage.
Sorry to hear that. Hope you recover soon!
I have chronical lyme, thay after 30 years come out in full specter, they diagnose me with functional nevrological disorder, because they didnt know what is causing all the symptoms, it is fascinated that i thought that when i was a kid and have lyme it was over, but unfortunaly not..i take some amazing herbs and eat only meat😊
Alzheimer related from lyme disease??
I am afraid of that future everyday.
Being tested for it and have had Lyme for over 20 years.
I have been diagnosed with Lyme after many tests,I need help but my insurance has expired.any help would be so great full.its been 10 yrs I've been fighting this.still haven't talked to a doctor who knows anything about it.thanks
Dr. Warren might be able to help. You can get a free 15 minute phone call with him. He helps patients from all over the country. Learn more at Lymedr.com
I have had this for 15 m. Antibiotics did not help. Now on teasle tincture.
If you want to learn more or have specific questions on Lyme please visit Lymedr.com A lot of very useful information there. Dr. Warren often offers a free 15 minute if interested. He will be able to guide you further. Thanks and Goodluck!
What kind of testing is best? What if you don’t recall a tick bite.
It depends on your symptoms. When you work with Dr. Kyle he first takes your complete history to then determine which tests are best suited for you. Most of these tests are out of pocket expense and he is sensitive to that. One thing though he encourages for most patients; to test for not just Lyme but also co-infections. So many patients get tested and treated just for Lyme. It’s important to test and be treated for co-infections too. Hope this helps. Please feel free to reach out with more questions. Good luck with your healthcare journey. Thankyou.
You can learn more on lymedr.com
Thank you for video i took doxy for 5 months in 2016 for lyme i have since had severe vestibular neuritis dizziness everyday and developed a lump near clavicle bone severe throbbing in head to heartbeat and dystonia in neck and now same deep spasm feeling or pulling deep behind my nose eyes jaw and ears making me feel like gonna pass out and adrenaline rushes into my head .. my Dr thinks its an in between stage of an autoimmune but can it just be the lyme i’m exhausted running back and forth to Drs all these years cant drive or work no straight forward diagnosis....
So sorry to read this Maria. Where are you located?
@@TrailheadHealth Thank you for replying I am in North Carolina
Maria, I’ve had a similar experience: treated for Lyme for 6 mo in 2018, only to have neurological symptoms a few years later. I began with an infectious disease Dr who specializes in Lyme 2018 which turned out to be a mistake; I wasn’t helped until in 2023 when I found a true Lyme-literate Dr ( aka LLMD).
have you found the help that you need? Hopefully yes but if not please reach out.
Have loads of those symptoms. After I thought I beat Lyme Disease. Twice. Does any doctor know how to get rid of sensory overload? When it's a sunny day, it's a lost day. During the height of the summer, I have to stay indoors with 90% of the sunlight blocked. I can get Very Ill indeed from loud music (life circumstance cannot free myself from it always). And when my husband gets a coffee, I come running out of another room (with the door closed...) to search for the fire! Can't stand oranges, or deodorant . Temperature troubles, dizzy, POTS, tinnitus, extreme exhaustion, headaches...
So sorry for hear that. You can learn more in lymrdr.com Hopefully Dr. Warren can help you.
Of course Lyme can stay in your system even when you use Doxy... I used doxy for a few months after I had the Lyme tick bite with bullseye rash. It happens all the time. I had it happen, and so did so many others. It is not even controversial.
truth.
How do i see you ? Im postive with lyme over 10 years my body is dying fast
Dr. Kyle practices in Minnesota. All patients need to come at least once to see him for treatment. If that works for you, please fill out the form on lymedr.com
@@TrailheadHealthLive in Texas. About to be homeless. Have symptoms of MS or Lyme. Tested for Lyme, came back negative. Maybe I have co-infections. Idk. Is there anything I can do, or am I pretty much doomed?
@@fyc7116carnivore way of eating really helps me😊
@@fyc7116me and you are in the same boat Houston Texas no doctor will treat to the test negative
do u treat long covid? Are there similarities in root causes of sx between both diseases
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