I started with physical therapy and he fired me 🤣 I have been working out 5 days a week for 6 years now. I find great videos on RUclips and mix it up! Good info as always. 👍
Ampyra, AFO for knee hyperextention and a walking pole are getting me around. Definitely going to check out a cooling vest my walking declines rapidly as I heat up.
Thank you Doc for sharing your knowledge! I’ve worried that I started on a rolling walker too early. I enjoy every morning in a local park using my walker.
Great for normal people but if you have brain damage from ms..stroke.. parkinson's. Then you need neuro rehab to overcome things like abnormal synergy patterns and Disassociation..and the real killer Spasticity. Neuro Rehab are Dr.s Yoga teachers are not
Neuro Rehab therapists are Dr.s Yoga teachers are not. Rehab hq on youtube has examples. Brain damage from ms or stroke means you have to literally learn how to walk again..don't think yoga teachers know how to do this.
Definitely sharing this awesome video Dr Beabs❤️💪🏻 I’m pushing the movin n groovin in our group- a little movement builds up. I do think PT is underused in MS. I try anytime I have issues- reassessing myself- could there be a PT movement I could use to help? Excellent education. #Sharingiscaring
I have long standing MS. For winter, Clark’s Cloudsteppers are absolutely my best shoes. During the summer, I wear Trotters memory foam sandals with adjustable straps exclusively.
Use it or lose it! My absolute best exercise is getting outside in my garden and getting busy just like I’m absolutely normal. I don’t get stupid about it and I try to maximize my results from a minimum of effort. You have to plan what you’re going to do. But this minimizes mistakes too, not a bad outcome.
Dr B thanks all you for education on MS and both medical and lifestyle remediations. While I am not unhappy with own Neurologist she isn’t a teacher and a coach like I think of you. Keep posting thoughtful trends on this topic. I have been so far spared from the worst consequences after being diagnosed 12 years ago with relapsing/remitting MS and I intend to keep my physical health as good as possible. Your channel helps!
MS is such a fascinating and frustrating disease. I've had it for 30 years. I'm at an EDSS of approximately 6.5. My walking ability changes not only day to day, but sometimes hour to hour. I could have significant foot drop/leg drag one moment, and have it improve quite a bit within a few hours. This is WITHOUT any change in fatigue or heat levels.
Love my Saucony runners with AFO they are made for orthotics going up one size allows me to fit my giant AFO in. They are Saucony Echelon xt-900. Really wide foot bed and amazing support. Just have to make sure the laces are very loose and I can get it in there with a shoehorn.
This video couldnt come at better time!!! I just did bloodwork/creatinine clearance urine test so i can start amprya. I am just praying my insurance approves it. I miss walking! Walking was my jam! Such a stress reliever and sooo healthy. for Shoes: I have brooks My feet have always hurt and since I switched from sketchers/Nike to brooks no more feet pain. Incredibly expensive but worth every penny ladies. They are cute like sketchers lol I just asked my neuro if I should get a wheelchair. He said don't do it- he's afraid I will see how much easier it really would be and that I will depend on it. I told him I'm being left behind and can't do activities with my family. Then he suggested ampyra. I heard ampyra is life changing for 50% of the people who try it and the other 50% it doesn't help at all
Dalfampridine really helps my walking speed. Without it I’m like the energizer bunny slightly before stopping. Keen shoes last a really long time, though expensive, are my favorites. Though the newer ones of canvas and other non leather definitely don’t last as long.
I would suggest the Mollii Suit! It improves many symptoms in MS. My girlfriend tried it last week and she was much more stable, could walk better and she was pain free! Now we just need to find a way to pay for the suit as it's pretty expensive!
Clark’s also makes great shoes for women. I wore them for years in a professional setting, and they are great for traveling too. I recently got a Campbell walking stick for when I walk for exercise outdoors. It improves my posture over the cane that I use in other circumstances.
SHOES!!! I worked as a manager in a better quality euro comfort shoe store for 12 years before I had to stop working because of my worsening MS. Another great brand of shoes is ECCO. At the time I retired some styles of ECCO shoes were accepted by the American Podiatric Association for foot health. Generally speaking it pays to spend a little extra on your footwear. Clark's for men run around $125 and ECCO is a little more at $150-$200 (these usually are comfort/casual style shoes). As for athletic shoes New Balance has some excellent walking/running styles. More expensive shoes are usually better quality and will outlast cheaper shoes as well. Bear in mind, I'm talking about MEN'S shoes here, but ECCO and Clark's make fine ladies footwear too. Poor quality shoes are a pet peeve of mine!
Thanks. Clarks is actually cheaper than a lot of other brands for men's formal shoes. I would consider 90% of men's formal shoes to be completely unwearable.
Even though I've had no noticeable improvement in walking speed with Ampyra, I still take it for the benefit of its ability to help with nerve conduction in the brain. I may be wrong, but I experience no side effects and it's worth a shot just to "cool off" my brain.
@@barbaradascalos4411 hard to tell, but I don't want to stop taking it and see my heat intolerance get worse, lol. I live in the high desert of California and summer is ALWAYS tough on me.
My PT recommended a "rocker sole" and Dansko has Mary Jane shoes suitable for the office. Can be pricey but I found on ebay for a reasonable price and they look fine with slacks or skirts
I thought I saw a recording you did on the Fasting Mimicking Diet (FMD) for MS. A large-scale trial is currently underway in Italy. This looks like the short-term remyelination solution. Would it be possible to provide a video on the FMD for MS?
Hello… thanks Doc! Iv had some great luck with ON Cloud shoes they offer light weight shoes for running that offer the support and quality of a shoe thats extremely light weight. I ordered several pair that all are a bit different in weight that are 8oz to under 8oz they are amazing. The cloudboom echo are just amazing. They also have different heal to toe angles to defiantly help dragging a toe. Hope you all get the result I did. They weren’t designed for MS in mind but they sure fit the bill. They are a bit pricy but well worth every penny. Give them a try you will be glad you did. Compare the shoes to find the lightest they offer, thats what I did and again im really happy with the results!! Good luck.
I am 66 & have had MS for 26 yrs I use a walker but the last 5 yrs I can only walk if someone is walking with me, I want to walk alone can you help me?
I can't stand without holding on to something otherwise I would lose my balance. And if I just stand, like waiting in line, the spasticity in my legs becomes worse. Can a person walk better with you chair exercises?
Wearing a brace, using a cane, etc without addressing the muscle imbalances will give you freedom from pain and better movement- but won’t correct the muscle deficiencies. These impairments will worsen over time leading to more assistive devices which further weaken the muscles, worsens balance, and throws off stability JMHO
Video suggestion: how to manage heat with severe intolerance. I have a cooling vest but in 115 degree weather (AZ resident here) it doesn't help at all. It's severe intolerance. I was out in 115 degree last year for an hr at daughters swim meet. Dunked my legs in pool, cooling vest on, hat soaking wet and I was sick rest of day and 2 days later. Any suggestions other than stay inside and miss out on life?
Amazing video- thank you so much. Newly diagnosed & on Kisempta. Doing well & I keep my muscles strong...road bike, yoga & stretching. One topic might be do you see a cure in this century for MS? Seems like there's been huge strides...
Skechers shoes for women, the memory foam ones. Not elegant but you cannot have both elegance and comfort I am afraid. Thanks for the sharing this tips!
@@barbaradascalos4411 they are very light weight and very easy to move in. I got them for PT and still use the same style. I can't feel my feet very well due to neuropathy and these really are good for me. Everyone is so different!
I love mine they are made for orthotics going up one size allows me to fit my giant AFO. They are Saucony Echelon xt-900. Really wide foot bed and amazing support. Just have to make sure the laces are very loose and I can get it in there with a shoehorn
I started with physical therapy and he fired me 🤣 I have been working out 5 days a week for 6 years now. I find great videos on RUclips and mix it up! Good info as always. 👍
Rehab hq has the best neuro rehab on youtube.
@@barbaradascalos4411
MS Gym is great too!
Ampyra, AFO for knee hyperextention and a walking pole are getting me around. Definitely going to check out a cooling vest my walking declines rapidly as I heat up.
Thank you Doc for sharing your knowledge! I’ve worried that I started on a rolling walker too early. I enjoy every morning in a local park using my walker.
What do you mean by you're worried that you've started it too early?
Yoga gently improves balance, strength and posture. All of these help you walk.
Great for normal people but if you have brain damage from ms..stroke.. parkinson's.
Then you need neuro rehab to overcome things like abnormal synergy patterns and
Disassociation..and the real killer Spasticity.
Neuro Rehab are Dr.s Yoga teachers are not
@@barbaradascalos4411 my local MS support organisation offers yoga specifically tailored to PwMS.
Neuro Rehab therapists are Dr.s Yoga teachers are not. Rehab hq on youtube has examples.
Brain damage from ms or stroke means you have to literally learn how to walk again..don't think yoga teachers know how to do this.
Definitely sharing this awesome video Dr Beabs❤️💪🏻
I’m pushing the movin n groovin in our group- a little movement builds up.
I do think PT is underused in MS. I try anytime I have issues- reassessing myself- could there be a PT movement I could use to help? Excellent education.
#Sharingiscaring
As always, another wonderfully informative video. Thank you, Dr. Beaber!!!
Thanks. I'm glad you enjoyed it Deb.
Great information, thank you.
I have long standing MS. For winter, Clark’s Cloudsteppers are absolutely my best shoes. During the summer, I wear Trotters memory foam sandals with adjustable straps exclusively.
Thanks for sharing! This is great☺️
Thanks
Use it or lose it! My absolute best exercise is getting outside in my garden and getting busy just like I’m absolutely normal. I don’t get stupid about it and I try to maximize my results from a minimum of effort. You have to plan what you’re going to do. But this minimizes mistakes too, not a bad outcome.
You're absolutely normal you can be on a wheelchair you are normal ❤
Dr B thanks all you for education on MS and both medical and lifestyle remediations. While I am not unhappy with own Neurologist she isn’t a teacher and a coach like I think of you. Keep posting thoughtful trends on this topic. I have been so far spared from the worst consequences after being diagnosed 12 years ago with relapsing/remitting MS and I intend to keep my physical health as good as possible. Your channel helps!
MS is such a fascinating and frustrating disease. I've had it for 30 years. I'm at an EDSS of approximately 6.5. My walking ability changes not only day to day, but sometimes hour to hour. I could have significant foot drop/leg drag one moment, and have it improve quite a bit within a few hours. This is WITHOUT any change in fatigue or heat levels.
Try Dalfampridine
Love my Saucony runners with AFO they are made for orthotics going up one size allows me to fit my giant AFO in. They are Saucony Echelon xt-900. Really wide foot bed and amazing support. Just have to make sure the laces are very loose and I can get it in there with a shoehorn.
This video couldnt come at better time!!!
I just did bloodwork/creatinine clearance urine test so i can start amprya. I am just praying my insurance approves it.
I miss walking! Walking was my jam! Such a stress reliever and sooo healthy.
for Shoes: I have brooks
My feet have always hurt and since I switched from sketchers/Nike to brooks no more feet pain.
Incredibly expensive but worth every penny ladies. They are cute like sketchers lol
I just asked my neuro if I should get a wheelchair. He said don't do it- he's afraid I will see how much easier it really would be and that I will depend on it. I told him I'm being left behind and can't do activities with my family. Then he suggested ampyra. I heard ampyra is life changing for 50% of the people who try it and the other 50% it doesn't help at all
Dalfampridine really helps my walking speed. Without it I’m like the energizer bunny slightly before stopping. Keen shoes last a really long time, though expensive, are my favorites. Though the newer ones of canvas and other non leather definitely don’t last as long.
I would suggest the Mollii Suit! It improves many symptoms in MS. My girlfriend tried it last week and she was much more stable, could walk better and she was pain free! Now we just need to find a way to pay for the suit as it's pretty expensive!
Love you videos Ty! Also your book love it!
Was wondering if you could, if it's possible to do a comparison between Kesimpta and Ocrevus?
Here you go: ruclips.net/video/BVhN4_sEi1s/видео.html
Thank you for making sucha great video
I'm glad you liked it.
Clark’s also makes great shoes for women. I wore them for years in a professional setting, and they are great for traveling too.
I recently got a Campbell walking stick for when I walk for exercise outdoors. It improves my posture over the cane that I use in other circumstances.
SHOES!!! I worked as a manager in a better quality euro comfort shoe store for 12 years before I had to stop working because of my worsening MS. Another great brand of shoes is ECCO. At the time I retired some styles of ECCO shoes were accepted by the American Podiatric Association for foot health. Generally speaking it pays to spend a little extra on your footwear. Clark's for men run around $125 and ECCO is a little more at $150-$200 (these usually are comfort/casual style shoes). As for athletic shoes New Balance has some excellent walking/running styles. More expensive shoes are usually better quality and will outlast cheaper shoes as well. Bear in mind, I'm talking about MEN'S shoes here, but ECCO and Clark's make fine ladies footwear too. Poor quality shoes are a pet peeve of mine!
Thanks. Clarks is actually cheaper than a lot of other brands for men's formal shoes. I would consider 90% of men's formal shoes to be completely unwearable.
@@DrBrandonBeaber and that's nothing compared to what women go through with their shoes!
@@andrewreisinger6860 True
Even though I've had no noticeable improvement in walking speed with Ampyra, I still take it for the benefit of its ability to help with nerve conduction in the brain. I may be wrong, but I experience no side effects and it's worth a shot just to "cool off" my brain.
Andrew do you notice you can stand longer on it?
Did you notice better heat tolerance..?
@@barbaradascalos4411 hard to tell, but I don't want to stop taking it and see my heat intolerance get worse, lol. I live in the high desert of California and summer is ALWAYS tough on me.
thanks Dr.!
Missed you. Sir!!! I'm crazy out here g from bp2 to schizophrenia!!!! Thanks steinlauf females, you're crazy c 8 I AIN'T CRAZY RIOTS FROM THESE WOMEN
MS patients ask your Dr about Dalfampridine. Mark Cubans cost plus. Could be a life changer
My PT recommended a "rocker sole" and Dansko has Mary Jane shoes suitable for the office. Can be pricey but I found on ebay for a reasonable price and they look fine with slacks or skirts
Everyone convinced me to get Danskos when I was a 3rd year medical student, but I hated them. Your mileage may vary.
I thought I saw a recording you did on the Fasting Mimicking Diet (FMD) for MS. A large-scale trial is currently underway in Italy. This looks like the short-term remyelination solution. Would it be possible to provide a video on the FMD for MS?
I mention the study you are referring to in this video: ruclips.net/video/egHRA4ZOLVM/видео.html
Hello… thanks Doc!
Iv had some great luck with ON Cloud shoes they offer light weight shoes for running that offer the support and quality of a shoe thats extremely light weight. I ordered several pair that all are a bit different in weight that are 8oz to under 8oz they are amazing. The cloudboom echo are just amazing. They also have different heal to toe angles to defiantly help dragging a toe. Hope you all get the result I did. They weren’t designed for MS in mind but they sure fit the bill. They are a bit pricy but well worth every penny. Give them a try you will be glad you did. Compare the shoes to find the lightest they offer, thats what I did and again im really happy with the results!! Good luck.
Hello, I follow this diet and I also am a vegan that works out three times a week at home.
I am 66 & have had MS for 26 yrs I use a walker but the last 5 yrs I can only walk if someone is walking with me, I want to walk alone can you help me?
I can't stand without holding on to something otherwise I would lose my balance. And if I just stand, like waiting in line, the spasticity in my legs becomes worse. Can a person walk better with you chair exercises?
Wearing a brace, using a cane, etc without addressing the muscle imbalances will give you freedom from pain and better movement- but won’t correct the muscle deficiencies. These impairments will worsen over time leading to more assistive devices which further weaken the muscles, worsens balance, and throws off stability JMHO
Do you have any reviews of the new Cionic Neural Sleeve (fes)? Thank you 😊
I don't believe any of my patients have used this specific device. It looks like it was only recently FDA approved
Is Ampyra ok to take if I’m on Tysabri?
Will there be anything on the market that works sufficiently?
Clarks and Dr Scholls are great for women too
:)
Video suggestion: how to manage heat with severe intolerance.
I have a cooling vest but in 115 degree weather (AZ resident here) it doesn't help at all.
It's severe intolerance. I was out in 115 degree last year for an hr at daughters swim meet. Dunked my legs in pool, cooling vest on, hat soaking wet and I was sick rest of day and 2 days later.
Any suggestions other than stay inside and miss out on life?
move to indiana 😂😂😂😂
Please do a video on Vumerity 🙏
Thanks for the suggestion.
@@DrBrandonBeaber I live in LA how can I get an appointment with you? Im not Kaiser.
I'm taking PAMPYRA ALMOST A YEAR BUT STILL MY WALKING NOT YET GOOD.DO I NEED TO STOP IT ?
Amazing video- thank you so much. Newly diagnosed & on Kisempta. Doing well & I keep my muscles strong...road bike, yoga & stretching. One topic might be do you see a cure in this century for MS? Seems like there's been huge strides...
It's difficult to speculate about this, but I do have a video discussing the potential for an MS cure ruclips.net/video/QR9Sic56KgQ/видео.html
Skechers shoes for women, the memory foam ones. Not elegant but you cannot have both elegance and comfort I am afraid. Thanks for the sharing this tips!
I love mine they are slip on style tennis shoes. Air cooled memory foam.
Isn't it just a big foam insert..how do they help you walk better..?
@@barbaradascalos4411 they are very light weight and very easy to move in. I got them for PT and still use the same style. I can't feel my feet very well due to neuropathy and these really are good for me. Everyone is so different!
I hope this went through, these are the the shoes and Amazon has best price.
@@barbaradascalos4411 It's like not having shoes or walking on a cloud. No blisters, no constrictions, no tightness.
Do you feel it’s safe to prescribe amputated to someone who had a febrile seizure at 18 mos of age due to tonsillitis? Thank you
I'm not sure what you mean. I think you may have misspelled "amputated"
@@DrBrandonBeaber so sorry, that’s supposed to be Ampyra
@@elizabethrash7370 Sorry. I would prefer not to comment on such a specific question. You should talk to your own provider.
@@elizabethrash7370 I was told ampyra is contraindicated in people with seizure disorders.
Heard it can cause seizures..so be careful.
#Sharing is caring💖
👍😇🇺🇸💧💦🌊🌎🌍🌏😘💖
Remiyelinizasyondan bahset
It's very difficult to find shoes that work well with an AFO🤷♀️
Most of my patients with an AFO use tennis shoes.
I love mine they are made for orthotics going up one size allows me to fit my giant AFO. They are Saucony Echelon xt-900. Really wide foot bed and amazing support. Just have to make sure the laces are very loose and I can get it in there with a shoehorn
@@Sharla1213 thank you!
🇹🇷🇹🇷🇹🇷🇹🇷🇹🇷
Good info here! Thank you!