I've never seen anyone portray real cfs life similar to mine, like how putting flowers in a vase is a huge effort. It's very comforting to be able to relate. I appreciate all the extra work in creating and uploading your vids. Thank you 💜
Wow, thank you for your lovely comment. I felt I had no one around me to relate to, hence starting this channel. So even though I wish it wasn't happening to you/others.. It's comforting for me too 💜 Creating videos is a lot harder than people would think, but I love it! It's helped from day one of diagnosis to have something to put my pain into, if that makes sense lol x
It’s not just me then! I have so many nail supplies, as well as makeup. I love doing nails but I’m more drawn to makeup these days as I can do that with less bending of my neck. I tested myself last week, did a set of basic Gel X nails in two hours (prep to complete). Was well proud of myself.. Had a flare for 3 days after! 😩 It’s important we keep doing what we love though ❤️
Holy shit I’ve never related more to everything. My therapist thinks I have fibromyalgia and I’m scared to ask my doc bc of all the gaslighting I’ve experienced over the past 7 years over my pain and symptoms but this was so eye opening bc I live like this and ppl still think I’m supposed to act like my body is fine but I really struggle just like you were in this vid. This was so validating. Thank you for sharing your life with us. I hope you’re making it through okay❤️ you’ve got a new sub from me
Hi Sam 👋🏽 The Gaslighting is unreal isn’t it, and from those that are meant to be trained to look at things differently/openly makes it even more of a kick in the teeth. That being said, as scary as it is you have to keep pushing through & fighting for yourself as sadly no one is gonna do it for you. It is very real & nobody understands yourself better than you so go in with a ‘Take no shit attitude’ and make them listen. I’m glad you can relate but sad at the same time because I wouldn’t wish this on anyone. I am however feeling some improvement since being on Pregabalin & I have also had my first Lidocaine Infusion - So there is hope for us yet! You can do it ❤️ Thank you for your lovely comments too 😊 xx
I went through that with my Dr. , I changed to a different dr in the practice that I heard great things about. She listened, examined did blood work to rule out lupus etc, and after all of that she gave me the diagnosis of fibro… in 3 visits I finally had an answer, one I was trying to get for almost 4 years with my old dr. Don’t be afraid to change drs, you may be better off💜
Daly, You absolutely make total sense to me!! It’s such a whirlwind, loss of words, feeling nauseous during pain, eating, non eating, clothes, no clothes, oh I get it! 😢😢🤗🤗
It’s literally mind boggling isn’t it! Only those that know can ever REALLY know what a nightmare it can be! I hope your week is treating you well 💜 xx
Thank you for posting this - it certainly takes a lot of energy just to exist in those moments, but to actually put a camera in front of it all and mange gracefully - that is amazing. I too manage fibromyalgia. More than 20 years now. I don't experience the pain as often as I have in the past - good trauma therapy has helped - but the amount of fibro fog is enough to frustrate me to the point of not talking. It's horrible not being able to articulate thoughts. My worst is losing vocabulary and completely forgetting what something is - "that thing in the driveway" when I am looking right at it. I wish you the best. I'll be watching for more human moments. Thanks!
Awww thank you! ☺️ I have so many ideas of vlogs I want to do but the brain fog like you say makes it so hard to articulate. I know I need to just grab the camera & go with it but I overthink it and put too much pressure on myself. I’m hoping to film something very soon though! 20 years sounds impossible, but you’re proof it isn’t 💜
Sending you thanks and a hug, typing this with tingling finger tips at the time and feeling soooo tired. Not alone, my friend. Keep on sharing, please.
Hi. I was diagnosed with fibromyalgia a year ago, but I knew I had it for at least 2 years before they finally agreed that was what it was! I totally understand the brain fog, utter exhaustion, pain, nausea and lack of appetite. I get very tearful and can’t hold myself back from crying 😢. I’m 56yrs old next month and my 82yr old dad is fitter and more active than me!! I’m glad for him. Nice to meet you. I have subscribed. 😊
Hi Jenny 👋🏽 Nice to meet you! I’m glad you finally got heard & the right diagnosis. It can be very tearful days with all we have going on, yet none of it visible to an onlooker. Overwhelm is an understatement 💜 Awww I’m glad your Dad is doing well 😊 What a trooper! I was diagnosed 2 years ago in May but I was definitely poorly before then. No idea how long it had been going on for really as I had so much going on and I’d started making changes to my life that could have “triggered” Fibromyalgia out of hiding so to speak 🤷🏽♀️ Thank you so much for subscribing ❤️
@@ellochaos diagnosed 1998 neurosthenia just found out this year which is CFS fybromyalgia 6 years and pits in the middle sure there all same thing all started after a fall now diagnosed Asperger's hsd link to all these thing brain spinal chord are diffarant had SPD as a child drs didn't no then is fybromyalgia austistic burnout with spd
Wow sounds a lot! Bless you. I guess it makes sense that they would all be interlinked. I’m currently in burnout and it’s just annoying!! I hope you’re being kind to yourself 💜
@@ellochaos doing best to thankyou always have one area the body pain constant upper body.does yours move over time? Albeit years.do you have different pain with your burnout ime told it's also linked to OCD subconscious fear.
@@Truerealism747 Again I believe it makes sense that it would all be linked. In my experience I’m always on high alert, basically in fight or flight, I think due to having ADHD, OCD Bipolar & Fibro. I think it’s a never ending loop of exasperation! Especially if diagnosed later in life too as you’ve spent your life doing your best to “fit in” not realising that you aren’t supposed to.. Quite sad really 🤔 I do have all over body pain, lower back, hips, knees but I am in constant pain with my upper body, especially my shoulders, neck & base of my head and my jaw! It varies in intensity. Depending on how much I’ve done or how little actually. I find my pain is worse for keeping still, yet I can’t be on the move too much either. There is no middle ground 😩 I also have awful Restless Leg Syndrome, it was a lot better for a while but at the moment it’s interrupting my sleep and I wake up in pain and nausea from it. For me burnout is basically all systems shutting down to a standstill pretty much. I’m fatigued, exhausted, body feels heavy, light sensitivity and all around feeling weak. I can’t really eat because I haven’t got the energy to cook nor hold myself up long enough to eat much. I had rice cakes with a slice of cheese for dinner last night lol. I can’t really be around people because words are hard to find, I think I just grunt at them 😂 So apologies for this long post.. I know what I’m trying to say so I hope what I’ve written makes sense 🤦🏽♀️
Bless ya girl 🙏 ,Got fibromyalgia / Fms ( f***ing mad syndrome) well thats what it feels like myself , had it following an accident at work in 2002 so I know what it's like , feeling sick is part of it ,feeling tired and can't sleep and suddenly can't remember what to say and having to write everything down otherwise it won't get done, staying in PJ'S or trackees because its comfy and you can't be assed. Takes ages to get a diagnosis then it's NHS ( No Help Service) just subscribed to your channel .Big UP 😊
Lol I'll be using that one.. "Fucking Mad Syndrome!." Definitely makes you feel as though you are at times! Sorry to hear of your accident 💜 The thing is I'll write things down but then I forget that I've written it down, or where I've written it! (Phone Notes, Sticky Notes, one of my 10 paper pads lying around 😂). I live in Pj's or hoodies, I wanna dress more like a grown up but it's so uncomfortable! Thank you for subscribing 😃 I hope you're enjoying your weekend 🥰
The brain fog is so fkn real… mine is so bad I thought I had early onset dementia… has fibro affected your appetite? Mine is non existent, I was never this way.
Notice no appetite, even when make something I like.. usually end up giving to dogs, chickens...11 years. Pain in body especially legs is the hard part. Just realized it's brain fog and not earlly set dementia! Smile yaaay!! Be 59 next month. Passed California State Bar at 58.. so at least something is working.. wishing and praying for everyone with Fibro blessings and pain free days!
Is actually quite scary isn’t it! It’s hard to say about my appetite because I have other disabilities that really ply a part in that. As well as other medications. But I guess it does because when your in overwhelming pain, it makes me nauseous causing me to not want to eat. I tend to do a lot of snacking rather than full meals 💜
Thank you for posting this. I was diagnosed with fibromyalgia 2 years ago and have fibro fog just as you. Some days are good and some days are bad. I also get nauseous but I"m hungry, but I just can't eat. I know I have to eat, so when I feel that way I usually have soup or something. Low FODMAP seems to be helpful plus gluten free. I feel like I'm in purgatory some days, but you have to keep on going.
Thank you for watching & subscribing 😊 Yes it does feel as though your being punished at times, especially when it’s all new and have no real understanding of what’s going on yourself. I was living on smoothies & rice, if I ate at all. Tried FODMAP, tried it all. I now eat pretty much what I want but keep it simple. Still have that hunger feeling but can’t eat though. Nothing ever feels all that appetising 🤷🏽♀️ I’ve been doing a lot better since changing some things up, medications etc. I need to do a sit down video on it. I hope today is treating you well 💜 xx
Brain fog messes with me so much. Some days I can barely get a full sentence out, and spend most of the day starting something and forgetting literally 2 seconds later. It’s so hard for people to understand.its maddening, especially when I’m at work and people just stare at me.
Yeah some days the best I can do is grunt lol. This illness brings a lot of frustration! It's hard for people to understand because they can't "see" the pain.. Those that don't have it will never understand. Lucky buggers 💜
I was told after an on job injury in 2006, I had this,and now a doctor told me a year ago it was gone. But I still have had all of the symptoms you are having,and more. So how can it be gone? Stay strong 💪 ❤️
Did they say it was gone, or maybe in remission? From what I’ve researched you can have periods of time where you feel so much better that you question if you even had it.. Until it returns with it’s not so subtle reminder! 💜
Omg. It’s like watching myself. I haven’t officially been diagnosed - I keep canceling doctors appts due to the symptoms- but, man if this isn’t me. Thank you for sharing 💜💜💜
When I’m dragging ass I paint, I’m no Monet but it calms my mind and keeps me focused on something other than fibro…. I just sit and watch a Tutorial on here and pass the time… it’s so easy to stay in your head with this stupid condition… 💕
So easy to stay in your head! Especially when your less mobile & bed bound, be in your head is all there is. I watch a lot of RUclips (too much 😂). My go to is makeup at the moment. Or a set of nails depending on how “well” I am & how much neck bending I can do that day 💜
I have many the symptoms but one of the most bothersome symptoms are skin sensitivity to touch. Anything that touches my skin causes widespread body pain with burning, prickling, dull, shocks and warmth to my joints , body aches like I'm sick and the fatigue. Wind from outside hits my skin and I'm whimpering in pain, same with a fan. A sheet of my bed hurts me too. Even the clothes I'm wearing bother me so badly with pain. Laying on my soft bed still hurts me because the pain touch triggers. I'm not diagnosed with fibro yet. I have an appointment with a Rheumatologist on July 11 but I am confident I have it. I tested ANA positive 1:320 titer honeogenous which is pretty high according to my doctor. So that's why I'm being referred but will also ask for fibro testing as well. Any tips to reduce this pain would be greatly appreciated as Tylenol PM doesn't work much 😄
I clearly missed that you’d left a comment.. I’m so sorry!! I hope all goes well with the Rheumatologist, you’ll have to let me know how you get on 💜 It’s hard for me to say what works and what doesn’t in regards to the pain from touch & sensory, because some days I can’t bare anything loose on my skin because every movement of the clothing hurts, so I wear tighter fitting clothes like leggings for the pressure which relieves the pain somewhat. Other times I can’t bare anything tight on my skin so I wear baggy clothes. I understand what you’re saying about bedding etc, same applies. Sometimes I need a weighted blanket, other times I need as little cover as possible. I live in gym wear and tracksuits or nothing but my underwear (as little as possible). I always feel like I have sunburn from face to toes and my skin itches to the bone!! It’s fecking awful. Cool showers, antihistamines, Lycra materials & fleecy style bedsheet is what I do too. Sorry I’m not much help, it really is the guessing game and figuring out how you are on the day and what works for you 💕
@@ellochaos Thank you, hope your doing good. Yes unfortunately I know what you're going through, was diagnosed about 15 years ago . I know I used to annoy my daughters 😂 forgetting what I'm doing or going half way there to do it, or putting things in places they don't belong , like milk in cupboard, and keys in fridge 😒the brain fog gets horrible.
Wow 15 years! What things have you learnt over that time to help with it? 😂 yes to all of the above! Except I only have fury kids so they only get annoyed when I forget to give them their treats! 🤣
@@ellochaos When I was first diagnosed I was told to take NyQuil at night that will help my pain and also help me sleep. During the day I take CBD gummies, as well as Kratom teas . Not sure how long Kratom will be around anything natural or homeopathic they try to get rid of . I also use salonpas pain patches. I have polyneuropathy as well so I can't do anything cold .
@@ellochaos Forgot to mention for brain fog I take vitamin B 12 , doesn't always work . Also iron and magnesium, magnesium works the best for it as well as it helps anxiety.
Love yourself my dear. The challenges you face are real and seen. Iam praying you have peace, Jesus will help you ❤ it's difficult I understand with fibromyalgia, it's fog, fatigue adhd brings thoughts, and brings hyperactivity ❤❤❤😂😊😊you made me laugh few times, I have compassion for this kind difficult ❤❤jessy typing.
I've never seen anyone portray real cfs life similar to mine, like how putting flowers in a vase is a huge effort. It's very comforting to be able to relate. I appreciate all the extra work in creating and uploading your vids. Thank you 💜
Wow, thank you for your lovely comment. I felt I had no one around me to relate to, hence starting this channel. So even though I wish it wasn't happening to you/others.. It's comforting for me too 💜 Creating videos is a lot harder than people would think, but I love it! It's helped from day one of diagnosis to have something to put my pain into, if that makes sense lol x
You aren’t alone my friend. Your nail supplies had me tearing up. I do one hand at a time and it takes me 8 hours. Don’t give up on your passions. ❤
It’s not just me then! I have so many nail supplies, as well as makeup. I love doing nails but I’m more drawn to makeup these days as I can do that with less bending of my neck. I tested myself last week, did a set of basic Gel X nails in two hours (prep to complete). Was well proud of myself.. Had a flare for 3 days after! 😩 It’s important we keep doing what we love though ❤️
Holy shit I’ve never related more to everything. My therapist thinks I have fibromyalgia and I’m scared to ask my doc bc of all the gaslighting I’ve experienced over the past 7 years over my pain and symptoms but this was so eye opening bc I live like this and ppl still think I’m supposed to act like my body is fine but I really struggle just like you were in this vid. This was so validating. Thank you for sharing your life with us. I hope you’re making it through okay❤️ you’ve got a new sub from me
Hi Sam 👋🏽 The Gaslighting is unreal isn’t it, and from those that are meant to be trained to look at things differently/openly makes it even more of a kick in the teeth. That being said, as scary as it is you have to keep pushing through & fighting for yourself as sadly no one is gonna do it for you. It is very real & nobody understands yourself better than you so go in with a ‘Take no shit attitude’ and make them listen. I’m glad you can relate but sad at the same time because I wouldn’t wish this on anyone. I am however feeling some improvement since being on Pregabalin & I have also had my first Lidocaine Infusion - So there is hope for us yet! You can do it ❤️ Thank you for your lovely comments too 😊 xx
Thank you for the sub too 😘
I went through that with my Dr. , I changed to a different dr in the practice that I heard great things about. She listened, examined did blood work to rule out lupus etc, and after all of that she gave me the diagnosis of fibro… in 3 visits I finally had an answer, one I was trying to get for almost 4 years with my old dr. Don’t be afraid to change drs, you may be better off💜
Same here
Daly, You absolutely make total sense to me!! It’s such a whirlwind, loss of words, feeling nauseous during pain, eating, non eating, clothes, no clothes, oh I get it! 😢😢🤗🤗
It’s literally mind boggling isn’t it! Only those that know can ever REALLY know what a nightmare it can be! I hope your week is treating you well 💜 xx
Thank you for posting this - it certainly takes a lot of energy just to exist in those moments, but to actually put a camera in front of it all and mange gracefully - that is amazing. I too manage fibromyalgia. More than 20 years now. I don't experience the pain as often as I have in the past - good trauma therapy has helped - but the amount of fibro fog is enough to frustrate me to the point of not talking. It's horrible not being able to articulate thoughts. My worst is losing vocabulary and completely forgetting what something is - "that thing in the driveway" when I am looking right at it. I wish you the best. I'll be watching for more human moments. Thanks!
Awww thank you! ☺️
I have so many ideas of vlogs I want to do but the brain fog like you say makes it so hard to articulate. I know I need to just grab the camera & go with it but I overthink it and put too much pressure on myself. I’m hoping to film something very soon though! 20 years sounds impossible, but you’re proof it isn’t 💜
I also find it frustrating not to be able to articulate my thoughts!
It’s so annoying to constantly have that word or sentence at the tip of your tongue!!
Sending you thanks and a hug, typing this with tingling finger tips at the time and feeling soooo tired. Not alone, my friend. Keep on sharing, please.
❤️💜
Hi. I was diagnosed with fibromyalgia a year ago, but I knew I had it for at least 2 years before they finally agreed that was what it was! I totally understand the brain fog, utter exhaustion, pain, nausea and lack of appetite. I get very tearful and can’t hold myself back from crying 😢. I’m 56yrs old next month and my 82yr old dad is fitter and more active than me!! I’m glad for him. Nice to meet you. I have subscribed. 😊
Hi Jenny 👋🏽 Nice to meet you!
I’m glad you finally got heard & the right diagnosis. It can be very tearful days with all we have going on, yet none of it visible to an onlooker. Overwhelm is an understatement 💜 Awww I’m glad your Dad is doing well 😊 What a trooper!
I was diagnosed 2 years ago in May but I was definitely poorly before then. No idea how long it had been going on for really as I had so much going on and I’d started making changes to my life that could have “triggered” Fibromyalgia out of hiding so to speak 🤷🏽♀️
Thank you so much for subscribing ❤️
@@ellochaos diagnosed 1998 neurosthenia just found out this year which is CFS fybromyalgia 6 years and pits in the middle sure there all same thing all started after a fall now diagnosed Asperger's hsd link to all these thing brain spinal chord are diffarant had SPD as a child drs didn't no then is fybromyalgia austistic burnout with spd
Wow sounds a lot! Bless you. I guess it makes sense that they would all be interlinked. I’m currently in burnout and it’s just annoying!! I hope you’re being kind to yourself 💜
@@ellochaos doing best to thankyou always have one area the body pain constant upper body.does yours move over time? Albeit years.do you have different pain with your burnout ime told it's also linked to OCD subconscious fear.
@@Truerealism747 Again I believe it makes sense that it would all be linked. In my experience I’m always on high alert, basically in fight or flight, I think due to having ADHD, OCD Bipolar & Fibro. I think it’s a never ending loop of exasperation! Especially if diagnosed later in life too as you’ve spent your life doing your best to “fit in” not realising that you aren’t supposed to.. Quite sad really 🤔
I do have all over body pain, lower back, hips, knees but I am in constant pain with my upper body, especially my shoulders, neck & base of my head and my jaw! It varies in intensity. Depending on how much I’ve done or how little actually. I find my pain is worse for keeping still, yet I can’t be on the move too much either. There is no middle ground 😩 I also have awful Restless Leg Syndrome, it was a lot better for a while but at the moment it’s interrupting my sleep and I wake up in pain and nausea from it.
For me burnout is basically all systems shutting down to a standstill pretty much. I’m fatigued, exhausted, body feels heavy, light sensitivity and all around feeling weak. I can’t really eat because I haven’t got the energy to cook nor hold myself up long enough to eat much. I had rice cakes with a slice of cheese for dinner last night lol. I can’t really be around people because words are hard to find, I think I just grunt at them 😂 So apologies for this long post.. I know what I’m trying to say so I hope what I’ve written makes sense 🤦🏽♀️
Thank you! This is how I feel daily.
Sending hugs 💜
Bless ya girl 🙏 ,Got fibromyalgia / Fms ( f***ing mad syndrome) well thats what it feels like myself , had it following an accident at work in 2002 so I know what it's like , feeling sick is part of it ,feeling tired and can't sleep and suddenly can't remember what to say and having to write everything down otherwise it won't get done, staying in PJ'S or trackees because its comfy and you can't be assed. Takes ages to get a diagnosis then it's NHS ( No Help Service) just subscribed to your channel .Big UP 😊
Lol I'll be using that one.. "Fucking Mad Syndrome!." Definitely makes you feel as though you are at times! Sorry to hear of your accident 💜
The thing is I'll write things down but then I forget that I've written it down, or where I've written it! (Phone Notes, Sticky Notes, one of my 10 paper pads lying around 😂). I live in Pj's or hoodies, I wanna dress more like a grown up but it's so uncomfortable!
Thank you for subscribing 😃 I hope you're enjoying your weekend 🥰
The brain fog is so fkn real… mine is so bad I thought I had early onset dementia… has fibro affected your appetite? Mine is non existent, I was never this way.
Notice no appetite, even when make something I like.. usually end up giving to dogs, chickens...11 years. Pain in body especially legs is the hard part. Just realized it's brain fog and not earlly set dementia! Smile yaaay!! Be 59 next month. Passed California State Bar at 58.. so at least something is working.. wishing and praying for everyone with Fibro blessings and pain free days!
Is actually quite scary isn’t it! It’s hard to say about my appetite because I have other disabilities that really ply a part in that. As well as other medications. But I guess it does because when your in overwhelming pain, it makes me nauseous causing me to not want to eat. I tend to do a lot of snacking rather than full meals 💜
Congratulations on passing the Bar! 👏🏽💜
Thank you for posting this. I was diagnosed with fibromyalgia 2 years ago and have fibro fog just as you. Some days are good and some days are bad. I also get nauseous but I"m hungry, but I just can't eat. I know I have to eat, so when I feel that way I usually have soup or something. Low FODMAP seems to be helpful plus gluten free. I feel like I'm in purgatory some days, but you have to keep on going.
Thank you for watching & subscribing 😊
Yes it does feel as though your being punished at times, especially when it’s all new and have no real understanding of what’s going on yourself. I was living on smoothies & rice, if I ate at all. Tried FODMAP, tried it all. I now eat pretty much what I want but keep it simple. Still have that hunger feeling but can’t eat though. Nothing ever feels all that appetising 🤷🏽♀️
I’ve been doing a lot better since changing some things up, medications etc. I need to do a sit down video on it.
I hope today is treating you well 💜 xx
Brain fog messes with me so much. Some days I can barely get a full sentence out, and spend most of the day starting something and forgetting literally 2 seconds later. It’s so hard for people to understand.its maddening, especially when I’m at work and people just stare at me.
Yeah some days the best I can do is grunt lol. This illness brings a lot of frustration! It's hard for people to understand because they can't "see" the pain.. Those that don't have it will never understand. Lucky buggers 💜
Prayers for you ❤️🙏😢 Your not alone ❤
❤️🙏🏽
I was told after an on job injury in 2006, I had this,and now a doctor told me a year ago it was gone. But I still have had all of the symptoms you are having,and more. So how can it be gone? Stay strong 💪 ❤️
Did they say it was gone, or maybe in remission? From what I’ve researched you can have periods of time where you feel so much better that you question if you even had it.. Until it returns with it’s not so subtle reminder! 💜
You don't just get over fibro
It can hide, then when the stress comes out...BOOM...Hello, fibro!😢
Yes! Exactly that!!! 😤😫
@@sharonshearouse5611 exactly. It never went away. My symptoms have never gone away. It's worse when it rains. And during the winter.
Rain makes my body ache more. Brain fog with it
I tend to have more flares in the summer. I can’t handle the heat anymore 😩
Heat wrecks me as well-- and I'm stuck in Texas 😣
Same here. Rainy days make me feel worse too. I know we need the rain so I try not to complain about it
Omg. It’s like watching myself. I haven’t officially been diagnosed - I keep canceling doctors appts due to the symptoms- but, man if this isn’t me. Thank you for sharing 💜💜💜
I know it’s hard but try and get to your appointment. You deserve to be heard!
💜 Thank you for watching ❤️
I def will! Taking a couple of weeks off this month to do all of the testing.
Thank you for sharing! Sending you light, love, and healing energy 💜
That’s great! 😊 I hope all goes well for you ❤️💫🦋 xx
Glad you ate. ❤❤
When I’m dragging ass I paint, I’m no Monet but it calms my mind and keeps me focused on something other than fibro…. I just sit and watch a Tutorial on here and pass the time… it’s so easy to stay in your head with this stupid condition… 💕
So easy to stay in your head! Especially when your less mobile & bed bound, be in your head is all there is. I watch a lot of RUclips (too much 😂). My go to is makeup at the moment. Or a set of nails depending on how “well” I am & how much neck bending I can do that day 💜
I can draw on my face but anything on paper I’m hopeless 😂 (unless it’s poetry). I’m glad you’ve found something that works for you 😊
@@ellochaos make up makes everything better!!🤣💕
@@Angel-qf6if If only! 😩😂 It is like therapy though 🙌🏽 xx
I have many the symptoms but one of the most bothersome symptoms are skin sensitivity to touch. Anything that touches my skin causes widespread body pain with burning, prickling, dull, shocks and warmth to my joints , body aches like I'm sick and the fatigue. Wind from outside hits my skin and I'm whimpering in pain, same with a fan. A sheet of my bed hurts me too. Even the clothes I'm wearing bother me so badly with pain. Laying on my soft bed still hurts me because the pain touch triggers. I'm not diagnosed with fibro yet. I have an appointment with a Rheumatologist on July 11 but I am confident I have it. I tested ANA positive 1:320 titer honeogenous which is pretty high according to my doctor. So that's why I'm being referred but will also ask for fibro testing as well. Any tips to reduce this pain would be greatly appreciated as Tylenol PM doesn't work much 😄
I clearly missed that you’d left a comment.. I’m so sorry!! I hope all goes well with the Rheumatologist, you’ll have to let me know how you get on 💜
It’s hard for me to say what works and what doesn’t in regards to the pain from touch & sensory, because some days I can’t bare anything loose on my skin because every movement of the clothing hurts, so I wear tighter fitting clothes like leggings for the pressure which relieves the pain somewhat. Other times I can’t bare anything tight on my skin so I wear baggy clothes. I understand what you’re saying about bedding etc, same applies. Sometimes I need a weighted blanket, other times I need as little cover as possible. I live in gym wear and tracksuits or nothing but my underwear (as little as possible). I always feel like I have sunburn from face to toes and my skin itches to the bone!! It’s fecking awful. Cool showers, antihistamines, Lycra materials & fleecy style bedsheet is what I do too.
Sorry I’m not much help, it really is the guessing game and figuring out how you are on the day and what works for you 💕
Check for tick bourn illness
Me fybromyalgia are same ime sure just symptoms change over decades for myself
Just found your channel, I know exactly what you mean , you are not alone .
I'm sorry to hear that you know exactly what I mean 👎🏽
I hope today is treating you well 💜
@@ellochaos Thank you, hope your doing good. Yes unfortunately I know what you're going through, was diagnosed about 15 years ago . I know I used to annoy my daughters 😂 forgetting what I'm doing or going half way there to do it, or putting things in places they don't belong , like milk in cupboard, and keys in fridge 😒the brain fog gets horrible.
Wow 15 years! What things have you learnt over that time to help with it? 😂 yes to all of the above! Except I only have fury kids so they only get annoyed when I forget to give them their treats! 🤣
@@ellochaos When I was first diagnosed I was told to take NyQuil at night that will help my pain and also help me sleep. During the day I take CBD gummies, as well as Kratom teas . Not sure how long Kratom will be around anything natural or homeopathic they try to get rid of . I also use salonpas pain patches. I have polyneuropathy as well so I can't do anything cold .
@@ellochaos Forgot to mention for brain fog I take vitamin B 12 , doesn't always work . Also iron and magnesium, magnesium works the best for it as well as it helps anxiety.
I have felt like this this week, i feel your pain, fibro is the pits 😢😢😢
It really is. Are you feeling any better today? 💜
@@ellochaos yes thank you for asking x
Like watching ur fibro vlog, relate myself suffer too gentle hugs from Australia
Gentle hugs to Australia 💜 Thank you for watching 😊
Love yourself my dear. The challenges you face are real and seen. Iam praying you have peace, Jesus will help you ❤ it's difficult I understand with fibromyalgia, it's fog, fatigue adhd brings thoughts, and brings hyperactivity ❤❤❤😂😊😊you made me laugh few times, I have compassion for this kind difficult ❤❤jessy typing.
I can't accepted this pain🥹🥹🥹 please 🙏 God take me
💜❤️
Jag vet hur det är att ha fibromyalgi ❤
Sending ❤️
#same friend
I’m sorry to hear that. Better days are on their way! 💜