Wheelchairs AREN'T always a negative thing!?! 🙈♿️
HTML-код
- Опубликовано: 11 мар 2024
- don't forget to subscribe! ♡
-------------------------------
⭐️ instagram ▹ / zara.bethx
⭐️ all socials ▹ portaly.cc/zarabeth
⭐️ join my discord server ▹ / discord
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
-------------------------------
⭐️ become a channel member ▹ www.youtube.com/@zara_beth/join
⭐️ stream my music ▹ distrokid.com/hyperfollow/zar...
⭐️ where i get my music ▹ share.epidemicsound.com/g31jcy
-------------------------------
✰ FAQs ✰
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and orthostatic hypotension along with being neurodivergent!
2. How old are you?
‣ 18
3. What is FND? 🧠
‣ fndhope.org/fnd-guide/
4. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
⭐️ RUclips Setup + Equipment ▹ amzn.to/42QmxCN
⭐️ Recommended Products ▹ amzn.to/41wXJPX
(not sponsored! but these are af links so i make a cut from any purchases💕)
-------------------------------
✰ About Me ✰
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, RUclips and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person. I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accommodations I have to help my daily life. I am an ambulatory wheelchair user showing my life using mobility aids and how chronic illness symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!
I want to add often when a wheelchair user may not be able to do something it’s because the something is not accessible. In that case it’s not the wheelchair that stops the person doing something, it’s the people around them not doing their part to make the world more accessible and inclusive.
true
True
Hey This is true and random but we have the same name!
@@Welove-potatoes ayy twins
Got my first wheelchair today 🎉 this was a very affirming message to get today as i am very excited to be able to do things i havent been able to do in years ❤
I also wanna say that a wheelchair is a sign of health. If you see somebody in a wheelchair it's because they've battled hard enough to find any means necessary of doing whatever an able bodied person can do. Wheelchairs offer freedom.
I'm not personally in a chair but I needed them for a couple of years while recovering from a bone marrow transplant and its complications.
I needed to hear this today. I have joint pain (most likely EDS bc my mom has it too but I haven’t been to a doctor yet) it’s worse in my hips and knees. This week has been really rough and I’ve been struggling to walk and stand for more than half an hour, everything even laying down has hurt because of how much energy I was using to stand up and keep my joints in place, causing me to be even more sore. I just decided and told my mom that if it stays like this I’m going to need a cane.
Both of my parents have used/use canes so I know it’s not bad but I’m a teen and it’s still something I was afraid to admit out loud. Thank you so much, I know this is about wheelchairs not canes but it helped me too. Thank you again, wishing y’all the best
I use a wheelchair but also a cane for shorter trips (I have hEDS and POTS among other diagnosis) and I feel hyper cool with my cane! I think of steampunk, I think of Lucius Malfoy, I think of being a badass. It is not only something that helps me do the things that I want to do but I have made it mine. If your thing isn't the same vibe as me you can also cover your cane with sparkles and pink fluff and be legally blonde, the important thing is to make it yours!
@@judithlashbrook4684 no, that sounds so freaking cool! Mine (at least right now) would be a plain black one that used to be my mom’s. But yeah I’m totally into all that badass steampunk malfoy vibe.
I actually just finished reading something that I really enjoyed where a character has a cane (for sentimental reasons and fashion purposes) and he’s a total badass who fights with it so that definitely helps lol. Thanks for the perspective shift, it helped
@@rosealina1013 black is a great, even as it is! but if you can, you could add stickers or nail varnish ... there are so many options that can make it feel more like a fashion accessory, make it feel more like a part of you... Heck give it a name and make it a friend!
@@judithlashbrook4684 This is how I felt when I started using a cane at around 20. I really owned it. I still do, but I don't need to use it very often after several rounds of PT.
Hey friend, I have EDS too and my knees are the worst affected, so I've been where you are. Please take care of your legs as best you can now, while you have the chance to mitigate damage! I wish someone had told me fifteen years ago that you win no medals for pushing through the pain, and that resting when I needed to and admitting when I'd reached my limit would have bought me more ambulatory years down the line. Get a cane, hell, get a walker if that helps, but don't let the fear of other people's opinions keep you from taking care of your one and only body.
As a guy who suffers with really bad leg pain due to my leg length discrepancy and cerebral palsy, my wheelchair is a literal lifesaver.
Recently got my first wheelchair, an electric one. It's a bit of a change in how people look at you, but to me it gives me more freedom and gets me out of the house more. I've needed it for at least a year but got stuck in a lot of bureaucracy.
Very well said! What I love about this YT channel is that we’re a community who can relate to all manner of misperceptions that others might hold about us, as people living with chronic medical conditions.
Instead how we adapt to the lives we find illness foists upon us becomes our triumphs, our milestones, our victories & our testaments to the resolve & success that stems from refusing not to be confined to the lives illness might otherwise inflict upon us.
I look at them and think
" I wonder how fast I can fly down a hill in that thing without killing myself 🤔"
Lmfaoooo, I don't usually use a wheelchair, but when I went to a HUGE convention centre, I opted to rent one of their mobility scooters. That thing could go FAST!!!! I waited until the hallway was empty, but I floored it down a ramp & it was amazing, lmfaooooooo. And most importantly, I lived to tell the tale. 😂🤣
@@ZijnShayatanica 😧😧😧
I used to love doing this in my old chair when I was younger omg 😭😭 the answer is YOU CAN ZOOM
I LOVE LOVE LOVE THIS!!! I was so nervous to get a cane and I just did it! It still awkward, but it helps! ❤
Thank you so much for your content! I have MS and really push against getting a wheelchair even though I often need one. The internalised abilism is strong!
I got mine this month and I‘m so happy I finally get to see different places again 🥹
They're so helpful! So happy for you!
for those of us who need them they're literally LIFE CHANGING for the better, they give us some of the independence we've lost back
Very well said! I do own a wheelchair nicknamed Geraldine, but 90 per cent of the time my walker "Ferdy" serves me better with my concrete type of disability (he was found through trial and error though)
I often feel like I don't deserve mobility aids because I can walk perfectly fine, but between my asthma, anemia, and wobbly legs, deep down I know I would do a lot better with them. Part of what's holding me back is my mother though, and my friends judging me because they know I'm able to walk
People born with these disabilities are well aware wheelchairs are good things
This is just the sign I needed
I've been stuck at home for months due to chronic pain and health issues and standing and walking can be really difficult for me. I think it's time for a mobility aid of some kind.
Thanks for making these videos! Seeing your videos always puts a smile on my face because you show how disability isn't something to hide or be ashamed of. You show us how queer, disabled, neurodivergent people can achieve amazing things in life
Thanks for inspiring me and being such a positive role model 🩷🦋
I wish I had a wheelchair. Because of my disability I'm not able to work and I don't have money for it.
Do you live in the UK? I know there are several services that can provide one.
@@TheOriginalFIO No, I'm from Germany.
@@pandaalita7489surely Germany has something on the healthcare system, especially if you’re unable to work. Or see if there are any local charities that have wheelchairs or can offer funding.
Some people need wheelchairs the way other people (like me) need eyeglasses. By your example, you're doing a real public service in helping people get used to the idea that people in wheelchairs is no big deal. I'm sure there are many wheelchair users who are now more confident and less self-conscious about being out and about in their communities after watching your videos. You're helping educate the next generation, so keep up the good work!
Thank you. You are AWSOME ❤❤
hi zara hope you are having a amazing evening thanks for staying positive I always look forward to your next vid
I've had a wheelchair for as long as I can remember, due to being born with a degenerative condition. I started using my wheelchair fulltime at age 16, but it wasn't my 40s that I stopped using ableist language by saying that I was "confined to it"
My friend who is paralyzed from the waist down is stuck in a wheelchair and honestly he doesn't let that keep his spirits down he always lives his life to the fullest. And I as a friend see this and want to help him by doing loads of fun and different activities as we possibly can.
I agree and love everything you said. I was just recently diagnosed with FND and though I am now medicated and take my medicine daily, my symptoms are still very limiting and tough on my physical mobility which keeps me in the home a lot more than I prefer. I would love a wheelchair just so I could get around more easier and be less homebound.
I have to use ankle braces sometimes in order to do things I like to do because I am prone to ankle sprains, but I usually don't need them. Yet any time any adult I don't know sees me with an ankle brace on, they act like I'm a breakable little kitten, then I go on to climb a rock wall and they start saying "oh you wouldn't be able to do that if you needed those braces" and I'm just like. I don't need them because I'm injured, I need them so I don't get injured doing the active things I love to do.
Actually just watched Dancing With The Stars with my Mom and there was a woman with a wheelchair dancing!
It took two full years before I got a wheelchair, and an additional year for my power wheelchair.
During that time, I was in solitary confinement in my home. I couldn't go anywhere. I felt like I was trapped in a cage. My manual chair got me some freedom, at least I could get out and see people and have some independence. My chronic illnesses was, unfortunately, of the kind where I couldn't handle a manual (weak muscles and constant pain), so a power wheelchair is the chair for me.
Tons of red tape later, I have my chair and all I need to worry about is a joystick. I can even adjust the chair so that it's almost flat if I need to rest.
I can now go and do whatever I want.
I'm free.
Thank you for working so hard to build awareness
I absolutely agree ❤ I use a cane and sometimes really struggle with pain and fatigue to the point where I feel having a wheelchair would be beneficial. Sadly my dyspraxia stops me from getting one because I walk into walls constantly and have terrible grip on things. But my stick definitely helps me with things ❤
This goes for every accommodations people need. ❤
Needing to learn its ok to need one. Nit past the embarrassment yet as I'm overweight from meds and life long disability. I am afraid people will think "if she only stopped eating, she'd be fine." CRPS is an invisible disability if you have clothes on.
Not to mention the fact that you are also very beautiful!
Hi love ur videos❤❤ u don't just speak for you u speak for everyone ❤❤
Think of a wheelchair like this: just because some ppl have and iep or a learning disability doesn't always mean it limits you. It also comes with accommodations that help you. Thats a wheelchair. Whatever helps you is ok. It dont matter whay anyone says
Hi I'm a full time wheelchair user and I have a condition were I can't walk but I'm not paralyzed. It's called OI (osteogenesis imperfecta) even tho I can't do much I try to figure things out so I can do more, so kids or adults can see that a wheelchair user can do as much stuff as a average person can😊
so i just learnt like a year ago that being in constant pain isn't normal. apparently i missed that day of school. I am still figuring stuff out (I'm used to the pain in my legs' and adding peruse anywhere else just moves it somewhere its harder to cope with) maybe I'll end up with a mobility aid someday, even if I don't thank you
Thanks so much you make me feel way better about me and my wheelchair I’m paralyzed so I can’t walk so thanks for making me feel better I subscribed to you because you helped me!
Me being focused on the cat in the back
You are so pretty and an inspiration to everyone with a disability you are really amazing have a wonderful day love you ❤
Big love to you. If you can do it, so can I!
I personally don’t need to use a wheelchair to function, but I do have a few small leg conditions that mean I need orthotic inserts and a specific kind of shoes. The condition tends to get more painful with age so when I’m older I might need a brace or extra padding of some kind, maybe even a surgery that will put me in a wheelchair for a few months. If those days come, I’ll remember this sentiment. Also, hello to the cat in the back, he’s very cute and sweet
Very well said. Anything that helps you overcome limitations is a good thing. When people look at others in wheelchairs and feel sorry for them, they should be admiring that person's ability to find ways to continue doing what they love instead.
I am so happy that I still have my power chair cuz on days when I can't get around I do the best I can. There days that I have gout on both my feet I am so glad that I have my power chair
I see my wheelchair as freedom
I absolutely agree with you 🩵
totally agree!
EXACTLY!
I am too struggling with my head its annoying headache almost all the time.😢
I love your videos ❤. They are so interesting and informative. You’re so awesome Zara ❤❤❤.
You're so nice Zara 😁
Congrats 🎉
For me if i would end up in a wheelchair for some reason, i would just want to Disappear. Be goes of my Hobbies and how i live my life. Hope the best for all wheelchair users stay safe🤟
I have been permanently in a wheelchair for a many years now and I have never received negativity from others about this. I personally also think that this has to do with what you radiate. I often forget that I am disabled because people treat me as if I am not. With mental problems I experience more negativity.
That's amazing
You are so brilliant. You taking charge of your own agency is such a powerful & positive example for others.❤🎉
Hi Zara
Another
Good awareness vid..
Well done zara❤
FIRST! I love your videos so much and you are sooooo pretty! 😍
Hey related to your fnd and seizures, do some people say that seizures are like the shaky one (can't remember name) because I had an extremely bad fnd day and i had 3 absence seizures and one of my friends thought it was a shaky one and she said I'm a living ghost and stuff.
i went to a city that had almost no acesibility on the monuments and most were up stairs or steep hills
I don't have to need to use a wheelchair but I know that it can be a mobility aid for people who need them. people can use them even if they are not paralized. ❤❤
Thank you
Its shouldn't be a negative thing, it should be a positive thing cause if you just that little more assistance when you need it
It limits you in the way of an unlimited person can understand. Just like moving inhabited makes me feel as a mostly able person. Its the perspective that matters
Wheelchairs are exclusively positive. They allowed disabled people to get around. 😊
A car or any device that increases your mobility is a good thing
Zara you are so positive ❤
Good on you as today I got mine for fnd
Keep speaking out queen!
I damaged my spine years ago and because of some misguided young idea of being proud I refused to use a wheelchair and dragged myself about at work using a peice of wood for support. My older self would definetly see the benefits and I would have suffered a lot less if I had just got a wheelchair during recovery.
What, 'blows,' is when such certain people don't even say anything, so you literally don't know if it's their thought/belief. Maybe, unless, you're a mind reader or psychic - and are rarely, if ever, wrong.
However... Those around wheelchair users can't 'do their part' to help change anything simply because of their incorrect thought(s)/belief(s).
There's also those that do know, but their, 'nature,' their level of respect, is they rarely, if ever, 'speak up' - which there are valid and invalid reasons for this as well.
My mom has a wheelchair 😊
We are only ever stuck because things aren’t made for accessibility, not because we use a mobility tool
Hello I saw in your bio you have functional neurological disorder, one of my close friends recently got diagnosed with FND. I’ve done some research but I think it would be nice to hear directly from someone who has it. If you feel comfortable could you share some of your experience and what I can do to support my friend. Thank you so much
Not all wheelchair enjoy having to use it - especially those who don't have the choice. It's very important to recognise this and that not everybody's experience are the same.
Hi, i have Tourettes and I'm going on a plane really soon. Do you have any tips because I'm just embarrassed and scared of people making fun of me because I've had some of those experiences at school.
Wheelchairs are very convenient.
❤❤
Uhm how do you get a wheelchair? And what kind would you reccomend? Is it best to get the foldable if your a part time user?
This 100%
5
Hi Zara can you please do more Autistic videos I really think Im Autistic and I would like if you done a video for symptoms
wat is your reason for fainting because I do to and idk why
Love from india❤
Congratulations 🎉🎊 second 🥈
Quick question: Is it wierd or a bad idea to go up to a wheelchair user with a cool wheelchair and complement their wheelchair?
I always enjoy when people talk to me about my wheelchair stickers! As long as you're being nice and I'm not like in a hurry or something I'm happy to talk!
@@queer_unicorn thank you!!
THERE IS ABILITY IN DISABILITY!!!
And you deserve to use mobility aids even if you "do not need them". If you "could go without". If, all things considered, a mobility aid would on net improve your life, and you can afford it, go get it! You don't need to prove to anyone that your situation is "bad enough".
GOD BLESS YOU ZARA MAY GOD BLESS YOUR LIFE WITH LOT'S AND LOT'S OF LOVE, HEALTH, HAPPINESS, SAFETY AND PROSPERITY❤❤❤❤ ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
Yeah theyre not that bad at all obviously its a shame if you do need them but its a much lesser evil than struggling to walk or back pwin etc
they refuse me because i can walk most of the time and i cant afford getting one privately
Cat 🐈
Do u still faint
She will always have FND so yes
if youre stuck in your wheelchair, it may be too small
why do you have a rainbow flag on your wall?
its the pride flag
@@TherianTardigrade
that is disgusting, people are proud to be a part of that community?
@@Hello-ig1px You can love who you love.
@@luvbettyx
its weird and nasty and should not be something anyone is proud of
@@Hello-ig1pxyk autism is also pride becuase pride means difference , also autism is pride and pride dosnt just mean lgbt but also means happiness of being you
I was having severe issues with my overstimulation and tics in learning support the other day. I use chewlery and there was this voice in my head saying it made me appear childish and I tried to deprive myself of it. And I thought 'Zara would tell you to do what you need, you deserve to use it' and allowed myself to do what I needed. Disability aids should be normalised, they're wonderful. Thank you Zara 🫶🌈
i have sever disabling POTS and my mom refused to let me get a wheelchair until she became desperate for me to get out of bed only for me to faint from pain and pots. i’m getting one soon after trying to convince her for over a year. i’ll be getting a tilt and recline wheelchair hopefully
Hey i have a question foe you, i saw one of your other videos where you fainted in class, and i dont know if your still in school but if you are whst happens if You faint just before the bell goes? What i mean is what if you faint in one class but Your faint spell last for awhile and it last into the next lesson, do they have to Transport you to a different class? Sorry im just wondering- my friend has some really bad issues and she has been having fainting episodes recently-