man some people dont know how blessed they are, some people dont get to live regular lives and are born with diseases while the rest live good, they dont know how truly blessed they are
I hope you find ways to cope in life that can help you sustain your sanity. I was curious about something, and I hate to ask this but... are your Male genitals large? I'd imagine so if the body wishes to remain proportional growing up.
@@LickerOfAnuses Let me reply to you. My ex boyfriend has acromegaly and he also has issues with maintaining an erection. But when he gets hard, his organ is rather large (although not of an abnormal size). I'm talking of his penis here. By the way, I read somewhere that people affected by this condition literally have big hearts. He certainly is a very good young man with a pure and "big" heart, and it hurts me so much when I see him suffer. I wish him all the best; he was my first sexual partner, the first guy I kissed and slept with - same goes for him. English isn't my first language so sorry for mistakes
I am so sick of hearing doctors think that people in pain are only there for drugs (for other reasons)... What is happening to our medical community. This poor girl went through so much and medical failed her at an early stage... She looks so pretty in this interview...
Tanyas story is just so sad. You see videos of other people with acromegaly/acromegalic gigantism and they usually manage to accommodate themselves and still try to stay positive and follow their dreams, but Tanya is just broken 😔 And you can’t even blame her-she was once a normal happy girl, and now she deals with painful injections and incessant prescription pill usage, has to sleep with a breathing machine, needs a walker/wheelchair to get around, can’t find clothes that fit, and her condition has been completely out of control. Every aspect of her life had been negatively impacted.
I watched her story some years back on mystery diagnosis. I was rooting for her recovery, she had so much optimism inspite of her condition. May she R.I.P
@@nathanwharton1607 i would really love to know your story and how you handle this... Im extremly depressed and suicidal and dont know anyone personally who has to go through this it might help me
Someone should have known right away what she had. I don't understand why they can't remove the tumor. They usually do and go through your nose. She is beautiful.
She was clearly a very kind and loving woman R.I.P.................I says she apparently was normal size when she was 19, but just below 7 feet tall when she passed away, meaing she grew a lot in height as well, after age 19! Isnt that unusual for acromelagy? I thougt it caused everything else but height growth?
1:44 The tumor was determined to be inoperable - that typically means a strong likelihood of attempted corrective surgery killing the patient or giving rise to other, non-lethal complications which worsen their life. Say, paralysis.
Christian Grimes it is too bad to hear that. i hope to be the next to die my head cant stop growing and i am becoming a monster for 3 year i was trying to convince doctors to have transphnoedal surgery and they told me to wait now it is too late my pituitary gland has a severe damage by the micro adenoma phsical look is no longer accepted by any society...rejection..lonelyness
I got swine flu in 2009 and since I have 1. Fibromyalgia Syndrome, 2. Chronic Fatigue Syndrome, 3. Fibrous Dysplasia, 4. Inflammatory Rheumatoid Arthritis, 5. Neurological Functional Tremors, 6. Joint Hypermobility Disease, 7. Arthritis in shoulders, elbows, wrists, hands and fingers, hips, knees, ankles and toes, 8. Fracture 11th Vertebrae, 9. Crumbling Coccyx, 10. Grade 3 Chondromalacia of the Left Patella Femoral Joint, 11. Hemiplegic Migraines, 12. Chronic Endometriosis, 13. None Alcoholic Fatty Liver Disease, 14. Depression, 15. Anxiety, 16. Diabetes, 17. Achilles Tendinitis right ankle 18. High Blood Pressure, 19. My top teeth have weakened, cracked, crumbled and broke off in my gums and because local anesthesia has no affect dentists won't help me. Yes I had a few of these things all my life but the autoimmune illnesses are the worst. The doctors all my life just said I was morbidly obese but up to 2008 I was at the gym 5 to 7 times a week and did ballroom, Latin American, old time musical dancing 3 to 4 times a week and was physically fit. I'm having trouble passing urine at the moment and two days ago when I asked my GP about it he said it's because you are obese and bariatric surgery would help. No help or advice.
deb310red my mum has acromegaly and took two decades to get diagnosed. Unlike Tanya, my mums bones grew out, severely disabling her. People don’t understand it. People are ignorant.
@@homegirl4155 you're lucky you haven't inherited her genetic disorder. there has been a study based on this and how genetic disorders like this in general, can be inherited.
MarioSo I am very lucky. My mum had me later on in life when her condition was worsening but still hadn’t been diagnosed. Out of my 4 siblings, I am the last one, and I have numerous health conditions: auto immune issues, arthritis, adult acne. I’ve always thought there was a link to my mother’s health when she carried me. Might be wrong. Thank you for your comment 🙏
I had Cushing's disease which was caused by the same kind of tumor. It took 6.5 years for me to be diagnosed. The average time to be diagnosed is 5 years. Some people die waiting.
@@LickerOfAnuses it's not a genetic disease although there are some conditions that can cause a person to develop tumors. Pituitary tumors are fairly common and are seen in approximately 20% of autopsies and did not contribute to the person's death. Most pituitary tumors are non functioning tumors which means that they don't secrete hormones. The type she has secreted growth hormone. That's the rarest type. The type I had secreted ACTH which signals the adrenal glands to make cortisol which is the next rarest type. The ones that secrete prolactin are the most common type of functional pituitary tumor and the only one that can be successfully treated with medication. Those ones cause you to produce breast milk. Even men. The majority don't do anything at all except for the ones that grow large enough to cause problems with pituitary function or vision changes since the pituitary sits directly below the optic nerve and if it grows large enough to press on it it will cause your eyesight to go bad. The thought is that many pituitary tumors do have a genetic cause but they don't necessarily mean that they're functional tumors. Science and data from research suggests environmental factors can be the cause.
![BLACK BAG - Official Trailer [HD] - Only in Theaters March 14](http://i.ytimg.com/vi/Du0Xp8WX_7I/mqdefault.jpg)
man some people dont know how blessed they are, some people dont get to live regular lives and are born with diseases while the rest live good, they dont know how truly blessed they are
I hope you find ways to cope in life that can help you sustain your sanity. I was curious about something, and I hate to ask this but...
are your Male genitals large? I'd imagine so if the body wishes to remain proportional growing up.
@@LickerOfAnuses Let me reply to you. My ex boyfriend has acromegaly and he also has issues with maintaining an erection. But when he gets hard, his organ is rather large (although not of an abnormal size). I'm talking of his penis here. By the way, I read somewhere that people affected by this condition literally have big hearts. He certainly is a very good young man with a pure and "big" heart, and it hurts me so much when I see him suffer. I wish him all the best; he was my first sexual partner, the first guy I kissed and slept with - same goes for him. English isn't my first language so sorry for mistakes
My son was diagnosed this condition. The operation was successful. This is hard but real.
How tall was he
how old is your son
love you Tanya RIP .
That's so sad, to not be able to control your body and lose who you were but still feel like that person inside. makes my heart hurt. :-(
I had a friend who died from a stroke at 45 from gigantism diagnosed in his teens. It's a really rare condition.
This is so heartbreaking.
I am so sick of hearing doctors think that people in pain are only there for drugs (for other reasons)... What is happening to our medical community. This poor girl went through so much and medical failed her at an early stage... She looks so pretty in this interview...
Theres a pandemic of painkiller addiction in America, they need to get stricter on patients not easier.In her case they were wrong obviously
Rest easy sweet girl
I didn’t know she died. That is so sad
Thank you Tanya.
And I, for years, was complaining about being too short...
RIP Tanya!
Same, I’m short as hell for a male of my age but at least I’m not suffering as much as she is.
Did she pass away?
@@shomshomni2314 yes
Rip. Warm thoughts to you and your family
YOU WILL ALWAYS BE SPECIAL IN MY HEART
I feel so sorry for her😓 But now she is an healthy angel in heaven😘😢😢
Tanyas story is just so sad. You see videos of other people with acromegaly/acromegalic gigantism and they usually manage to accommodate themselves and still try to stay positive and follow their dreams, but Tanya is just broken 😔 And you can’t even blame her-she was once a normal happy girl, and now she deals with painful injections and incessant prescription pill usage, has to sleep with a breathing machine, needs a walker/wheelchair to get around, can’t find clothes that fit, and her condition has been completely out of control. Every aspect of her life had been negatively impacted.
may god bless her and praise her with happiness
and she passed in 2011 at 34... so sad.
I watched her story some years back on mystery diagnosis. I was rooting for her recovery, she had so much optimism inspite of her condition. May she R.I.P
Thanks. My sons surgery went well.
Brett Allen she passed in 2013 not 2011
My Dad had acromegaly. He had huge hands, feet and jaw. He lived to 95 years and died in 2022
Don't be sad, Tanya now with jesus in heaven, her family will gathering and reunite with her finally.
Just so heartbreaking
If only I would of met her she’s so beautiful!!
Very sad story, RIP
I also have acromegaly ...its hell
DJTankwart i have it too its really depressing, everyone is scared of me
@@nathanwharton1607 i would really love to know your story and how you handle this... Im extremly depressed and suicidal and dont know anyone personally who has to go through this it might help me
I hope you can get relief..my thoughts with you.
Im sorry you have to go through this. I hope you feel a bit better now. Im rooting for you 😊
I have it also, some days hell feels like it would be an upgrade.
I remember her being on mystery diagnosis
Rest in peace Tanya
This poor girl this was heart breaking. But damn if she was 6ft6 here than how tall is that reporter walking near her they are the same height
My daughter is 11 and is 294lbs and 6 ft tall and am seeking a Professional in the Houston area to help us with this issue.
Seriously???? You wait that long???
Someone should have known right away what she had. I don't understand why they can't remove the tumor. They usually do and go through your nose. She is beautiful.
She was clearly a very kind and loving woman R.I.P.................I says she apparently was normal size when she was 19, but just below 7 feet tall when she passed away, meaing she grew a lot in height as well, after age 19! Isnt that unusual for acromelagy? I thougt it caused everything else but height growth?
That's so sad...she didn't get surgery?
1:44 The tumor was determined to be inoperable - that typically means a strong likelihood of attempted corrective surgery killing the patient or giving rise to other, non-lethal complications which worsen their life. Say, paralysis.
I can’t fathom what is so hard about diagnosing acromegaly
RiP Angel 👼
Faleceu dia 14 de Janeiro de 2013
Is there any updates May 2022? 🥺
She died in 2013 from a heart attack.
I am so sorry. She is a sweet girl
💮💮💮🌹❤️🌹💮💮💮
I'm jealous in one regard, I need the extra HGH and our government won't wake up to the fact it's needed.
God help her and me
she died last year in January RIP
Christian Grimes it is too bad to hear that. i hope to be the next to die
my head cant stop growing and i am becoming a monster
for 3 year i was trying to convince doctors to have transphnoedal surgery and they told me to wait
now it is too late my pituitary gland has a severe damage by the micro adenoma
phsical look is no longer accepted by any society...rejection..lonelyness
riad katous I would love to be your friend
+ramzi ramzy don't worry... You aren't a monster... The important it's what's you have within!
How are you going now? I hope things are somehow better for you? I’m thinking of you and praying for a miracle for you 💖رمزي يتكلم والكلّ يتعلم
Nugget
There's no reason to believe in an intercessory God
😭
Nobody survive Acromegaly
plenty of people live long relatively healthy lives with acromegaly. My uncle Will had it and lived to be 77 yrs old
Ella quería seguir viviendo para mejorarse pero se ve que la enfermedad no la dejo. :(((((
Im so scared
I got swine flu in 2009 and since I have
1. Fibromyalgia Syndrome,
2. Chronic Fatigue Syndrome,
3. Fibrous Dysplasia,
4. Inflammatory Rheumatoid Arthritis,
5. Neurological Functional Tremors,
6. Joint Hypermobility Disease,
7. Arthritis in shoulders, elbows, wrists, hands and fingers, hips, knees, ankles and toes,
8. Fracture 11th Vertebrae,
9. Crumbling Coccyx,
10. Grade 3 Chondromalacia of the Left Patella Femoral Joint,
11. Hemiplegic Migraines,
12. Chronic Endometriosis,
13. None Alcoholic Fatty Liver Disease,
14. Depression,
15. Anxiety,
16. Diabetes,
17. Achilles Tendinitis right ankle
18. High Blood Pressure,
19. My top teeth have weakened, cracked, crumbled and broke off in my gums and because local anesthesia has no affect dentists won't help me.
Yes I had a few of these things all my life but the autoimmune illnesses are the worst. The doctors all my life just said I was morbidly obese but up to 2008 I was at the gym 5 to 7 times a week and did ballroom, Latin American, old time musical dancing 3 to 4 times a week and was physically fit.
I'm having trouble passing urine at the moment and two days ago when I asked my GP about it he said it's because you are obese and bariatric surgery would help. No help or advice.
Honestly she doesn't eat Pasta. Once you have used Essie on your toe nails then Four Freedoms Vodka, then you can eat pasta again.
Comment from Rob Schneider...”that’s a huge bitch”
Comment from your mom…”I should have terminated”
May everyone be blessed with a happy life
It took five years for her to be diagnosed.
deb310red my mum has acromegaly and took two decades to get diagnosed. Unlike Tanya, my mums bones grew out, severely disabling her. People don’t understand it. People are ignorant.
@@homegirl4155 you're lucky you haven't inherited her genetic disorder. there has been a study based on this and how genetic disorders like this in general, can be inherited.
MarioSo I am very lucky. My mum had me later on in life when her condition was worsening but still hadn’t been diagnosed. Out of my 4 siblings, I am the last one, and I have numerous health conditions: auto immune issues, arthritis, adult acne. I’ve always thought there was a link to my mother’s health when she carried me. Might be wrong.
Thank you for your comment 🙏
I had Cushing's disease which was caused by the same kind of tumor. It took 6.5 years for me to be diagnosed. The average time to be diagnosed is 5 years. Some people die waiting.
@@LickerOfAnuses it's not a genetic disease although there are some conditions that can cause a person to develop tumors. Pituitary tumors are fairly common and are seen in approximately 20% of autopsies and did not contribute to the person's death. Most pituitary tumors are non functioning tumors which means that they don't secrete hormones. The type she has secreted growth hormone. That's the rarest type. The type I had secreted ACTH which signals the adrenal glands to make cortisol which is the next rarest type. The ones that secrete prolactin are the most common type of functional pituitary tumor and the only one that can be successfully treated with medication. Those ones cause you to produce breast milk. Even men. The majority don't do anything at all except for the ones that grow large enough to cause problems with pituitary function or vision changes since the pituitary sits directly below the optic nerve and if it grows large enough to press on it it will cause your eyesight to go bad. The thought is that many pituitary tumors do have a genetic cause but they don't necessarily mean that they're functional tumors. Science and data from research suggests environmental factors can be the cause.