May god bless you, I myself was born with hydrocephalus and spina bifida occulta ( dimple) with tethered spinal cord syndrome I had a VP shunt surgery after having seizures on the left side of my body, I was born paralyzed but by age 2 yrs old, I took my first steps I wasn't supposed to be able to do it but I considered it a blessing, i now have problems with my legs they are slowly shutting down I haven't had any surgery on my lower spine yet I have a 40 percent chance of ever walking again, I also have degenerative disc disease, fractured vertebrae's fractured pelvis and fractured tailbone, my spine is deteriorating I have to many problems in one area the neurologist surgeons won't do surgery to much of a high risk, I live in chronic nerve and muscle pain lots of tears but I take one day at a time the best way I can
My kid is also Noah,, was born with spina bifida,got operated on 5 months,,, but has problem with bile and bladder,don't know when urine and faces can come.canT feel them either
May god bless you, I myself was born with hydrocephalus and spina bifida occulta ( dimple) with tethered spinal cord syndrome I had a VP shunt surgery after having seizures on the left side of my body, I was born paralyzed but by age 2 yrs old, I took my first steps I wasn't supposed to be able to do it but I considered it a blessing, i now have problems with my legs they are slowly shutting down I haven't had any surgery on my lower spine yet I have a 40 percent chance of ever walking again, I also have degenerative disc disease, fractured vertebrae's fractured pelvis and fractured tailbone, my spine is deteriorating I have to many problems in one area the neurologist surgeons won't do surgery to much of a high risk, I live in chronic nerve and muscle pain lots of tears but I take one day at a time the best way I can
I've had 31 Shunt revisions and 2 intestinal bypasses due to a shunt infection due to hydrocephalus.
Im sorry you had to go through that sir.i had 2 in the past couple years so i kinda kow what your going through. Stay strong.
@@odin-fr9et you don't have to apologize im doing great today my last shunt revisions was 18 years ago.
My kid is also Noah,, was born with spina bifida,got operated on 5 months,,, but has problem with bile and bladder,don't know when urine and faces can come.canT feel them either