Excellent podcast! Absolutely must to listen to everybody with heat/cold intolerance! It explains all really well and helps much to deal with the symptoms. Thank you so much!!!
Great presentation! The only thing i wish she would have touched on was the pathophysiology of uhthoffs phenomenon. With an increased body temperature, nerve impulses are either blocked or slowed in a damaged nerve. Once the body temperature is normalized, signs and symptoms typically reverse
My 7 year old son has been suffering from ADEM for 2 years. If it's hot outside, it's hot, it's 26 degrees up, my son has a fever of 40 degrees. Only cold compresses from the freezer applied to the liver help. I react the same way to IVIG or steroids. Is there any cure for this? Antipyretics don't work, and my son also avoids the sun. He hides in the shade or in a house with air conditioning all summer and when he goes outside he immediately comes back with a fever and very bad mood
Hello, we're so sorry to hear about your son's diagnosis. You can find more info about ADEM on our website at wearesrna.org. You can also join as a member of SRNA at wearesrna.org/join/?swcfpc=1. Membership is completely free and allows you to stay up to date on the latest research, events, news, and information.
5:00 - 1/2 deg. chg in core temp, 10:00 dysreflexia , 16:20 in AC, but baro pressure outside is rising, still affects,
This is such helpful information, thank you for posting this.
Excellent podcast! Absolutely must to listen to everybody with heat/cold intolerance! It explains all really well and helps much to deal with the symptoms.
Thank you so much!!!
Great presentation! The only thing i wish she would have touched on was the pathophysiology of uhthoffs phenomenon. With an increased body temperature, nerve impulses are either blocked or slowed in a damaged nerve. Once the body temperature is normalized, signs and symptoms typically reverse
That's a great point! Thank you for commenting.
@SRNA love the content though! Very informative!
Yes, I would have wanted to hear about that too!
My 7 year old son has been suffering from ADEM for 2 years. If it's hot outside, it's hot, it's 26 degrees up, my son has a fever of 40 degrees. Only cold compresses from the freezer applied to the liver help. I react the same way to IVIG or steroids. Is there any cure for this? Antipyretics don't work, and my son also avoids the sun. He hides in the shade or in a house with air conditioning all summer and when he goes outside he immediately comes back with a fever and very bad mood
@wearesrna please comment
Hello, we're so sorry to hear about your son's diagnosis. You can find more info about ADEM on our website at wearesrna.org. You can also join as a member of SRNA at wearesrna.org/join/?swcfpc=1. Membership is completely free and allows you to stay up to date on the latest research, events, news, and information.
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