Chronic Fatigue Syndrome Recovery - Why Your Symptoms DON'T Matter

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  • Опубликовано: 17 сен 2024
  • Understandably when it comes to chronic fatigue syndrome (ME/CFS) recovery we get a little fixated on our symptoms. In this video, Pamela, Liz, and myself (who are all fully recovered from ME/CFS!) share our thoughts and experiences with symptom fixation and comparison.
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    WHERE TO FIND LIZ & PAMELA:
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    REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare

Комментарии • 100

  • @movewithdonna
    @movewithdonna 3 года назад +53

    When I first got diagnosed I was relieved that I was not going mad! But then I wanted to be fixed immediately.! Alot of trial and errors were made,.alot on money over the years on supplements, alot of hours research and therapy. But the main thing was that I Had to Listen to myself, I had to tune in to the fact I had to slow down, I had to repair and restore my body. Years of external stress, highly strung, over training and dieting had made me reach complete burnout! I had to SLOW down & listen. My tips... Truly listen to yourself, be gentle with movement, gut health/nutrition, yoga/breathe, and knowing it's ok for life to slow down. 🙂💪

  • @LeaFaye
    @LeaFaye 2 года назад +11

    I suffered as a kid through traumas which caused me severe anxiety and panic disorder. I had a terrible traumatic relationship with my mother and had a father that was always busy - supported me as a young girl when he could through panic but he was still aggressive, controlling and as a I got older - became judgemental and somewhat of a bully during my difficult times. He taught me to do everything on my own - admittingly because he couldn't be there for me. I then started to put so much pressure on myself because i was extremely ambitious but did everything by myself. I adopted his "work like a dog to become successful" mentality. I was the girl at work first and left last and did a million things at once. Always ran around wired and constantly overworked myself. I went HARD at my work, and i wont say i worked very smart. I wanted to be on top. I NOW REALIZE exactly why I am where I am 16 years later since my first recollection of CFS symptoms - it's become so clear to me why i'm here. Now fighting it all to completely change the way i think, my belief system and the way I live to make finally me feel good inside. WISH ME LUCK I NEED EVERY BIT OF IT!

    • @paintsz
      @paintsz Год назад

      Good luck! How are you doing now?

    • @ylvaeriksson4042
      @ylvaeriksson4042 8 месяцев назад

      Check out dr Gabor Mate here on youtube. He has a lot of helpful thougts on trauma.

  • @mirandataylor6385
    @mirandataylor6385 3 года назад +34

    I think the hardest part is even knowing what the next step should be when you are so overwhelmed by your symptoms. It's extremely hard to focus on a solid way to healing, a recovery plan or even know what your tomorrow will look like. Not to mention so many of us are left in a state of confusion where the medical field has just abandoned us. I would be lying if I said I don't struggle with mental illness because of years of being told I'm completely fine when my life was falling apart. They made me feel like I was crazy. I get that many people who have now recovered from chronic fatigue don't want to list what they did in order to not lead people astray or have them focused on tackling symptoms, but I can't explain the comfort it brings to hear things worked for other people that I COULD try if I felt it would benefit me.
    I honestly believe at this point that my chronic pain and fatigue won't be cured until I fix my fight or flight response and PTSD. I love comparing what has worked for others because it helps me see what might aid me along side the best recovery plan I think will help me in the moment.

    • @bobbiev7062
      @bobbiev7062 3 года назад +2

      Hi Miranda! Glad you found Raelan's videos. She has lots of great ideas. I have found that over the years I have had to let go of unsupportive people. This has been a very difficult process but so worth it! I now surround myself with positive and supportive people. I go for quality and not quantity. Hope this helps. 😁

    • @RaelanAgle
      @RaelanAgle  3 года назад +2

      I'm with you Miranda and this all makes a lot of sense. Although I've never found symptom comparison overly helpful, I do definitely want to know overall what is working for others to recover. To me, it just makes sense to see what has been successful for others. Not necessarily because this will be my exact plan as well, but to have options to consider and be more informed. Even now that I am feeling pretty great I am still learning from others who have recovered because they have strategies for health that help me be even healthier and hopefully prevent further illness in the future!

    • @bobbiev7062
      @bobbiev7062 3 года назад +1

      I love your platform Raelan,
      and the variety of voices you bring to it! Honestly, it is truly a breath of fresh air! The fact that there are so many different stories and paths to recovery is what makes sharing so important. We get to share our authentic experience of living with CFS in a safe environment. As with you, being open to new ideas has helped my recovery tremendously. An open mind has served me well when it comes to CFS. The doctors don't have all the answers, so we much learn from each other. Because of my personal growth throughout my journey with CFS, I have developed more self-awareness and have made a conscious decision to surround myself with positivity. This decision really came out of necessity and has been crucial in my recovery. I have had to let go of friends in the process because they were very toxic to my recovery. I found out very quickly following my diagnosis which friend were genuine. At times it has been painful, but this has made space for new and supportive people in my life. I have, and continue to, establish boundaries. I truly look at this as a gift that has come from my journey of living with CFS. With much gratitude for all the work you put into this platform, B 😊
      PS Sorry for confusion. In my initial post, I thought Raelan was responding to me. So sorry Maranda. Can I blame it on brain fog, lol.

    • @HealwithLiz
      @HealwithLiz 3 года назад +4

      Hi Miranda! Finding the recovery stories also was very helpful to me, and then I ultimately went with what resonated most with me. That's why this channel is so wonderful. You deserve so much more than what you had to go through. I too had to overcome medical PTSD and feel you. Though I've chosen not to discuss symptoms and struggles on a 1 to 1 basis (since it could open up old wounds & the symptom-treating wasn't how I actually healed my symptoms), I share lots of details on my site about my story and the things I did to heal. Here's an article (I think you'll resonate with number 10): healwithliz.com/ten-things-that-helped-me-heal-from-cfs-me/

    • @gemmacampbell9086
      @gemmacampbell9086 3 года назад +4

      Hi Miranda,
      I had to deal with PTSD before I could start in on the CFS side of my dis-ease. For a start because until I got the PTSD out of the way I couldn't be sure that I was sick with anything else (that's 17 years of well meaning gas-lighting from the medical community talking). But also because I couldn't pace myself when I was panicked.
      What worked for me (maybe it will help you too?) was finding a psychologist who specialised in hypnosis. His method of helping me be calm and relaxed while approaching trauma was a great way to practice not being in fight or flight, rather than the more cerebrally locked CBT. Also you might like to read "CFS Unravelled" it's a book I read recently that proposes that regulating the Autonomic Nervous System (responsible for fight or flight) is key to recovery.
      I'm still working on recovery so can't say for sure what will fix everything, but treating PTSD was my starting point too and it opened up the possibility of leading a consistent, if limited life, rather than being stuck on the energy roller coaster.
      Hugs and best of luck,
      Gemma

  • @jackijasker1463
    @jackijasker1463 3 года назад +9

    Great wisdom. It’s so important to step back and stop information overload. People with Cfs/ME are terrified perhaps to stop the cycle of asking symptom questions as it might mean they won’t get well~ but really it might be keeping them sicker~ these ladies are right and really when I stepped back some time ago to stop hyper vigilant research and wondering about others experiences I began to feel lighter and trust my own self and what I need day by day.
    Don’t be afraid to focus on yourself~we are all unique. It is a huge blessing to share and listen to other’s healing journeys, and at the same time discern when to step away to tune into your own current cfs life story ~

  • @rudieye6666
    @rudieye6666 3 года назад +12

    Hi Raelan, thank you for this video! I've noticed this phenomenon myself and can relate to this. I divide my experience in phases, and I think each one of us need to go through them. The first phase for me was getting the diagnosis and paying close attention to the symptoms to learn how my body responded and basically understand the illness. Certain symptoms could tell me I had overdone things and were useful to pacing myself better. Others could tell me I was doing things wrong on nutrition or level of physical exercise. I would push myself too hard and crash. I needed this experience. For me, knowing the symptoms was very useful. Before, I never stopped or learned to listen to my body! Then came phase two: Learning from others and their recovery stories, studying and reading research to educate myself. I'm getting wiser by the day! Big thanks to you all among other bright stars and minds! I'm still in phase two, but I think I'm collecting powerful tools to move to phase three very soon: what will work for me. It will certainly be a lot of failing, but then I'll change path untill I find that right one. The winner is not the strongest, but the one that is willing to learn, change and adapt! I'm so sure I'll recover that I don't doubt that for a second! I will, one day share MY recovery story. Unfortunately, a lot of people are stuck in phase one and can't move on, mainly because their minds truly don't believe they can get well. Then they desperately reach out to others to hopefully learn how to cope with their symptoms I order to live as best they can with it. I listened to this for a while in the beginning to start understanding the illness, but as soon as I had my overview, I moved on. Staying there is all you just talked about. It doesn't help you moving on towards recovery. I very soon, again thanks to you all, understood the symptoms were only individual manifestations of the illness, so the answer would be found using a holistic approach to heal the body. Nobody fully knows the root cause, but it's for sure the breakdown of central mechanisms. The answer to recovery must be giving the body and mind the overall condition to repair and heal. Getting from phase one to phase to is all about mindset. It's very hard for a lot of people to believe they can recover when they are swamped with information telling them there's no cure and those who recover didn't really have the illness in the first place. There are also, unfortunately, people who tend to be comfortable being victims and powerless. And others that find the path to recovery too overwhelming and get discouraged. The longest journey starts with one small step! Then another and another. I wish people could get more faith in themselves. You and others, please keep getting the message out there! You reach one, then another until it's undeniable that recovery can be achieved. Then maybe more people will gain faith. Much love, gratitude and optimism from a Norwegian friend.💖

    • @RaelanAgle
      @RaelanAgle  3 года назад +5

      This is SUCH a great point Gertrud about the phases! I do also think that symptoms play different roles for us as we progress along our journey. And also the role of other people's stories affect us, you are so right about needing to get to the phase where you decide for yourself and see what works best for you. Thanks for sharing all of this! Great stuff 💛

    • @wyrdwitch13
      @wyrdwitch13 3 года назад +3

      This mirrors my own experience also, thank you! Phase 1 lasted a few years. Been in Phase 2 this past year, now onto Phase 3. I have had "it" since 2004.

    • @rudieye6666
      @rudieye6666 3 года назад +1

      @@wyrdwitch13 I wish you all the luck in the world finding what works for you. We all know how tough it is. It takes hard work just to get to where we are now and we must keep working hard. But it's worth it. Nobody recovered without hard work and I admire how much courage these people have. They are my heroes! And Oona, we can do this, too! Let's go! 💪🏆🎶

    • @rudieye6666
      @rudieye6666 3 года назад +1

      @@RaelanAgle thank you! You are not only my inspiration and the best couch I could imagine, you're a kind, humble and respectful person. Your genuine interest in others experience and eagerness to keep learning is admirable. Lots of gratitude and love 💞

    • @wyrdwitch13
      @wyrdwitch13 3 года назад

      @@rudieye6666 thank you! You too :)

  • @EvolverWellness
    @EvolverWellness 3 года назад +7

    Eckhart Tolle tells an important story that relates to this: a woman came to him with chronic pain. He counseled her not to talk about her pain or her health problems with anyone except her health professional. Two weeks later she came back to him and she reported that she had had a lot less pain over the last two weeks. This is because there is usually at least some degree of our emotions contributing to our health problems. And it is our mind is what creates those emotions, our thoughts. So not talking about our problems is a very powerful way to improve our health and life.
    These days I mostly talk about problems when I'm really focused on solving them with someone who's qualified, and when we are very focused. And I go further and I meditate so I think less about my problems too. Tolle explains this in a lot more depth, basically it's the loop that exists between the mind and the pain body, which expresses through the physical body. Tolle's work helped me tremendously when I was struggling the most, to find more peace and awareness in my process.
    You should interview me on how a health coach sees CFS!

    • @RaelanAgle
      @RaelanAgle  3 года назад +3

      I think this is bang on Don and it took me quite a while to appreciate this. My first year when I left Canada I made a decision to not mention my illness ever (for about a year) and wow what a difference it made. Thanks for reminding me of this because obviously this applies to many things in life!
      And funny you should mention the video because I'm working on a collaboration video idea and would love to include the perspectives of a couple people (including you 😁) in this. Let me work out the details and I will be in touch!

    • @etherspin
      @etherspin 3 года назад +2

      I'm weary of how that relates to other conditions that were initially elusive in their mechanism and treated like they hysteria until serious knowledge and treatments e.g. Multiple Sclerosis
      Every country has so many thousands of people with CFS that there are enough to generate people recovering due to something they aren't aware of and thus attributing it to diet or EFT, a magnetic bracelet, graded exercise, counselling, tiring of discussing their symptoms, divorcing their toxic spouse, moving out of a dusty house etc
      I am loving going through the videos and resulting discussions on the channel here but am concerned about generalisations in the broader discussion that can hail back to bundling CFS under the care of psychologists and exercise physiologists

  • @cmawson4726
    @cmawson4726 2 года назад +4

    Such a great message. I wish I had found your channel sooner. Words can't express my gratitude for your excellent work for bringing hope to the ME/CFS community.

    • @RaelanAgle
      @RaelanAgle  2 года назад

      Thank you! I really appreciate it!💓💓

  • @bobbiev7062
    @bobbiev7062 3 года назад +6

    As with you, I am taking a holistic approach to healing. I think that's why I relate so much to your videos. Keep up the great work, Raelan!

  • @veronicahaddon7608
    @veronicahaddon7608 3 года назад +12

    Thank you for this video. At the beginning of my healing journey once I understood what the label/diagnosis was I was fixated on comparing symptoms with others. Mostly, because I was in shock, felt alone, & that I had to prove that I wasn’t imagining things or proving to others (work colleagues) that what I had was real. I felt very desperate at that time. Now, a few years into my healing I don’t discuss symptoms much except when I’m having to work harder at managing them.

    • @jennamartin-payne1653
      @jennamartin-payne1653 3 года назад +1

      Yes I think I probably felt the same way actually, especially when people think ME just means tired and say they are tired too. Their tiredness is of course valid but it doesn't really describe what we have x

    • @reed5823
      @reed5823 11 месяцев назад

      ​@@jennamartin-payne1653exactly!

  • @juliecoombs1895
    @juliecoombs1895 2 года назад +2

    Thanks to each of you and each guest. What I’m learning is appreciated more than I can express. Hearing other’s stories reminds me that the debilitating effects of this aren’t who I am, and that there is hope! I’m sending heartfelt gratitude your way!!

    • @RaelanAgle
      @RaelanAgle  2 года назад

      I appreciate that a lot Julie! Thank you!

  • @factitiously
    @factitiously 3 года назад +12

    I'm also not sure that symptom shaming is healthy. I think people should be free to talk and think about their symptoms and ask if others feel comfortable sharing theirs. I don't really feel the need to focus on mine personally, but some people are really suffering with particular symptoms and need to talk about it.
    And I don't think focusing on symptoms precludes a holistic approach to recovery. I am taking a holistic approach, but some symptoms need more attention than others because they are more problematic in the moment.

  • @gumogumonopistol7491
    @gumogumonopistol7491 2 года назад +2

    The most important thing is not to get depressed. Most people don't believe in CBT but your thoughts are the key to happiness. If you are happy and let yourself be surrounded by friends and family, you'll even forget about your symtoms for sometime. In my case,when I went out with my then-girlfriend, I forgot that I have CFS. Brain fog was gone for that time being. It was in the morning. But when I got back home at noon, I became exhausted and needed a bed for the rest of the day.

  • @karent5198
    @karent5198 3 года назад +7

    I dont spend a lot of time focusing on symptoms but why I see some discussion of symptoms to be important is for the validation it gives us when we realize there are others that are having similar issues. This makes me feel, for instance, less concerned about an individual symptom because it is part of the me/cfs package and not something "on top" of all the other issues we are already dealing with. Validation is not under-rated as well in the world in which we deal with doubting Thomases, do-gooder advice all the time or worse yet, "You really need to go see the doctor about that - I am worried about you" scenarios that I hear on a daily basis (like they have a magic pill). There is a balance with a fine line between facing the reality of where we are (acknowledging our symptoms) while maintaining hope and anticipation of the good things the future has to hold.

    • @einbisschenwasvonjenem
      @einbisschenwasvonjenem 6 месяцев назад

      Yes I agree. And sometimes we need a safe space to be hopeless, anxious and fed up with all we have to deal. Not permanently but sometimes and with the possibility to let go our painful emotions also.

  • @gingerschultz3258
    @gingerschultz3258 3 года назад +1

    This is such a good point that how I have healed may not necessarily work for others on the micro level. If you zoom out to the bigger picture I see a theme in everyone's recovery and what it seems to take is a multifaceted approach to healing. It takes a mind, body, emotional, spiritual approach to healing and understanding what the body needs to heal and be healthy.

  • @chantellegus2069
    @chantellegus2069 3 года назад +5

    Symptom chasing is futile but also sometimes we need to manage a symptom to do all the other work to get better. Also there are reasons for our pain and symptoms our body is trying to tell us something. For me headaches are stress/ overdoing/ perfectionism. where as my stomach is anxiety and stored trauma. my job on this journey is to get quite enough to actually listen to my body and be my own detective, i couldn't possibly compare my symptoms to others because I'm not the same, i haven't had the same experiences.

    • @RaelanAgle
      @RaelanAgle  3 года назад

      Great point, Chantelle! This makes a lot of sense 😊

  • @jayverasummer
    @jayverasummer 5 месяцев назад

    In terms of pain, I've found it doesn't really matter where it is in my body or how severe it is and I should probably not pay much attention to it. But once I got the advice to think back to my earliest symptoms long before I thought of myself as sick, because that might hold insight, and it helped me a lot. In childhood, I had nausea and stomachaches fairly often and I have found that changing my diet has been one of the most helpful things I could do. I also recently learned I have food allergies I'd never known about, because I don't have what I'd think of as allergy symptoms.

  • @annettewilford7568
    @annettewilford7568 2 года назад +3

    Fully recovered!!!!!!!!!..

  • @ann-kristinsundell5906
    @ann-kristinsundell5906 Год назад

    Thank you lovely people for sharing your stories and wisdom. I found it really helpful to have a vocabulary to describe my symptoms and a diagnosis of chronic fatigue syndrome. Once I had that I could search online and find so much information including this channel. While I agree comparing specific symptoms and disease courses is maybe not the most helpful but it’s so helpful to have a basic understanding of what’s going on so you can understand these weird things that are happening to you are part of a common pattern of disease. I found it made it a little less scary it easier to wrap my head around.

  • @chelseadunstan7722
    @chelseadunstan7722 10 месяцев назад

    This was so comforting to watch. Thank you

  • @someoneusa
    @someoneusa 3 года назад +3

    I think it's important to listen to your body and pay attention to what it's doing/telling you. This means also paying attention when there are improvements and acknowledging that. Not dwelling on what isn't happening but what is improving. Comparing to other people and treating symptoms are bad ideas IMHO. The body works as complete unit with the mind and other people are not you, they have different genetics, lifestyles, experiences, diets, name it, they aren't you. I do think you treat the body, you get to know areas which you can improve in, diet, mindset, whatever it may be.

  • @me-cfs-strategiesforhealing
    @me-cfs-strategiesforhealing Год назад +1

    My ME symptoms almost killed me so not sure about this.

  • @avamihalik7531
    @avamihalik7531 10 месяцев назад

    Great video as always. I don't treat any of my symptoms individually, because it didn't work in the past and now I know the root cause. There were maybe still some times when I go down an old pathway like to hear people had the same symptoms, at onset it was really helpful but now of course it only keeps them alive. Love you! xxoo Ava

  • @memye288
    @memye288 3 года назад +2

    Meningitis triggered my Cfs. I've come to accept I might never "recover" to the way I was before. The constant stress and worry about recovering was making things worse for me. Personally I just try to focus on one day at a time and my new normal...

  • @Jane-pg8jv
    @Jane-pg8jv 3 года назад +2

    Thank you so much ❤️❤️❤️❤️❤️❤️

  • @kathystoner5239
    @kathystoner5239 3 года назад +8

    Great video! I totally agree! With the ANS Rewire he teaches not to talk about your symptoms. I think my overthinking on symptoms it causes you to stay in that fight or flight or stressed mode. It doesn't aide in recovery. I tend to look at a more holistic approach, although i do take trazadone for sleep and have been taking it for 5 yrs now.

    • @RaelanAgle
      @RaelanAgle  3 года назад +5

      Yes!! How great to hear that ANS Rewire teaches this. I think you are so right - fixating on symptoms can keep up perpetually stressed and not in a great place to heal. And sleep is a tough one, I still sometimes struggle with it. And sleep is so important that I think we all have to do what's necessary to get it. Sleep at all costs, I say!

  • @azu_rikka
    @azu_rikka 2 года назад +1

    I also share the opinion that CFS should be addressed holistically.
    I first developed CFS in 2010 after an Epstein Barr Virusinfection. It took me two years to feel human again, to feel almost "normal". I am not able to name what helped my recovery, as I didn't do any special treatment, just improved my diet and lifestyle.
    Five months ago I suffered from two consecutive flu's within one months' period. I am feeling ill again, same as in 2010 and so far no improvement. It is scary and frustrating.
    Makes me wonder whether my first " recovery" was just luck..

  • @rachelk5272
    @rachelk5272 3 года назад +2

    Listening to this reminds me of the book the secret. Just think positive and it will manifest in your life lol that’s all it takes. I don’t particularly focus a lot on my symptoms and a lot of the time I ignore them but it doesn’t change anything. I had vulvodynia for 15 years and for about 8 years I just ignored it, it didn’t go away, it wasn’t until I saw a dr. who tried the right treatment that it finally resolved bc I had an actual physiological problem.

    • @RaelanAgle
      @RaelanAgle  3 года назад

      This is incredible Rachel! I'm so happy for you ❤️

    • @rachelk5272
      @rachelk5272 3 года назад

      @@RaelanAgle thank you, they treated me with testosterone and estrogen as well as having me go off birth control pills.

  • @kimwarburton8490
    @kimwarburton8490 3 года назад +5

    Atm iv made myself a tad worse cos o all the attention im paying to mecfs stuffs cos im doin alot o research refreshing my 'education' now that my brain can comprehend better, now that i realised i rejected/ignored the neurological tools ...
    Lots of selfanger n grief that iv potentially wasted 6yrs xD

  • @jennamartin-payne1653
    @jennamartin-payne1653 3 года назад +2

    Generally I don't really think about symptoms individually as my pattern seems to be that random symptoms flare a lot for a few weeks and then swap with others. However recently I was getting these really strange stomach pains which I assumed were ME and ignored for months. Turned out I had an ulcer! Previously symptoms of a genetic condition I have called haemochromatosis merged with my ME symptoms and could so easily have not been realised. So it's tricky but I think once people have had it for a while and know their symptoms everything generally becomes easier to understand symptom wise x

    • @RaelanAgle
      @RaelanAgle  3 года назад

      Oh no! I'm sorry to hear you had to go through that. You're right Jenna - it's a bit of a balancing act isn't it! It seems that you can't ignore symptoms completely of course, I think you're right that in time you start to know what's what.

    • @jennamartin-payne1653
      @jennamartin-payne1653 3 года назад +1

      Ah thank you. Both of them were resolved and it was quite amazing seeing something be treated and go so it wasn't too bad really.
      That's one of the reasons I religiously watch your videos because there is no bias, just raw stories, all with different ingredients. It is helpful in opening my mind up to what could be helpful so although I have said it a thousand times probably, thank you! X

    • @jennamartin-payne1653
      @jennamartin-payne1653 3 года назад

      Oh and I keep meaning to say, have you seen something called the chi machine? It's an almost passive exercise machine. I took a break from it as my joints are hypermobile and can flare but when I can do it I really love it. It reminds me of what you said before about swinging your arms about. It kind of does it for you and you just lie down x

  • @factitiously
    @factitiously 3 года назад +1

    I don't think information is ever helpful, so I don't mind if other people want to share their symptoms with me or if they want to know about my symptoms.
    I think one of the reasons people like to compare symptoms is because the scientists are thinking that there might be different subsets of the illness. So different subsets may be healed through different means. That might be one reason that people like to compare symptoms. Maybe the underlying thinking is that if this person had a similar symptom set to me maybe they are in a similar mecfs subset and therefore what heals them may be more likely to work for me than if we were in different subsets.

  • @Nichole2228
    @Nichole2228 3 года назад +5

    I have been treated with antidepressants which never worked. I was also diagnosed with ADHD, and I finally decided to try meds. Adderall helps both the ADHD and Chronic Fatigue. In fact, it is the only thing that helps.

    • @bobbiev7062
      @bobbiev7062 3 года назад +1

      Thanks for sharing.

    • @oceans4739
      @oceans4739 3 года назад

      Ritalin helped me until I crashed after a mnth n the doctor abruptly stopped it!hope the adderal continues to help u!

  • @gregjoubert5118
    @gregjoubert5118 Год назад

    I am surprised they use Bilstein 5100 even for the entry level upgrades. That's about as low as you can go in the aftermarket for an upgrade.

  • @christinavelazquez8931
    @christinavelazquez8931 3 года назад +2

    What does one do when you try to excercise excercise excercise only to get exhausted after minor excercise?

    • @RaelanAgle
      @RaelanAgle  3 года назад +1

      I can only answer for myself, but for me when I finally was successful with exercise I had to start with only one minute of gentle exercise every second day and build from there 😊

    • @christinavelazquez8931
      @christinavelazquez8931 3 года назад

      @@RaelanAgle can I ask you have u ever tried resveratrol? I wonder if this will work for me? I keep hitting dead ends!😤☹️☹️❓

  • @brushingponies7222
    @brushingponies7222 3 года назад +2

    Raelan what do you think about the obvious men underrepresentation? Do men recover less? Do they tend to share less their stories? What's up with that?

    • @RaelanAgle
      @RaelanAgle  3 года назад

      From what I've seen in my reading on ME/CFS they make up a smaller percentage of cases than women, and just from my own observations it seems they are far less likely to share their health journeys on social media. Just my take on this!

  • @bonnieaxon5410
    @bonnieaxon5410 3 года назад +1

    When I first logged onto this post there was a list of resources I could go to and groups to join but I’ve lost that now - can someone point me to where I can find that again ?

    • @RaelanAgle
      @RaelanAgle  3 года назад

      There's a list in the expanded video description - maybe that's what you saw? If you click on "show more" (on desktop) under the video description or the down arrow key (on your phone) next to the video description it will expand and list some resources 😊

  • @Tess3996
    @Tess3996 10 месяцев назад

    What feedback,all of you kept saying the same thing,not to compare symptoms.The title is misleading I clicked on it in the hope of getting information on how and what you did to get better!.

  • @diptisharma7980
    @diptisharma7980 2 года назад +1

    I have all symptoms that u told but i have muscles swelling all over body and very bed tinnitus also what this symptoms allso includ in cfs??sorry for my english

    • @RaelanAgle
      @RaelanAgle  2 года назад

      Hard to say, Dipti. I wish I knew!

  • @JonahEfaw
    @JonahEfaw Год назад

    Just curious how this mindset works with additional conditions. I have EDS and when I get a tendonitis flair up do I treat it how I normally would or like cfs?

  • @justritasimi
    @justritasimi Год назад

    I actually nearly poisoned myself a few times from certain supplements and even got oxalate poisoning from too much green juice..in the hopes that something would help or be the cure ...I wish I had known then that I didn't need to do the extreme things I did in an effort to get better ! Just stay out of the body's way and be good to it!

  • @christinakoufoudakis8310
    @christinakoufoudakis8310 Год назад +2

    LOL at “it led me to purchasing tree bark shopped directly from Africa.” You ladies are the best. Thank you for giving us hope! ❤️ I think doing everything we can while we figure it out no matter how crazy it sounds demonstrates an inspiring survivor spirit. Most people who recovered have stories about crazy things they tried that hideously failed but they never gave up! Not everyone was lucky enough to have you incredible women as pioneers, and had to do a LOT of painful trial and error over many years to find their way out. Many of my symptoms are very different from those of others but thanks to you all, and them, I know that the way out will involve optimizing my body’s natural healing abilities, and figuring out how to bring my central nervous system back into balance. 🤔💪🏼❤️‍🩹

  • @jasond626
    @jasond626 2 года назад

    So what do we do to get rid of it?

  • @cynbod
    @cynbod 3 года назад +2

    A lot of these symptoms overlap with fibromyalgia. Which is, with endometriosis, the only thing I was diagnosed with. Are these advice and stories also relevant for fibro?

    • @RaelanAgle
      @RaelanAgle  3 года назад

      I don't know the answer to that unfortunately. I read recently that there is a 60% overlap with CFS and FM, so it seems that much of this would apply 😊

  • @dakine4238
    @dakine4238 2 месяца назад

    What worked to heal it? We get it symptom comparing isn't helpful the video is a bit drawn out and redundant.

  • @EvolverWellness
    @EvolverWellness 3 года назад +1

    Lol, that clip of you w two laptops and a tablet...lol... question: how do u find all the great video clips that u so deftly put together? My channel is in the works...

    • @RaelanAgle
      @RaelanAgle  3 года назад +1

      Hey Don! haha glad you liked my device round up clip. For stock video I have a subscription with Envato. Best of luck with the channel!!

  • @SleepDisorderedBreathing
    @SleepDisorderedBreathing 3 года назад +1

    I'm sorry but the lady with greens eyes is gorgeous.

  • @neilbrannigan4461
    @neilbrannigan4461 3 года назад +1

    Hi
    Fab videos btw ☺
    Not going into massive detail about my me/cfs
    I have just one question if I may
    Is less definitely more ?
    Regards to agility activeness mobility im struggling to get a fist of how much exercise movement mobility is right or wrong
    Hope that makes sense
    Many thanks
    Neil

    • @RaelanAgle
      @RaelanAgle  3 года назад

      Hey Neil, so glad you're liking the videos and thanks for taking a moment to let me know 😊
      I can obviously only speak to my own experience, but for me less was definitely more. I had to start with such small and gentle amounts of movement that it seemed like it couldn't possibly be helping anything at all. But anytime I tried to do more I felt worse. But that's just me 😊 Wishing you all the best with this, Neil. :)

  • @mirajordanov28
    @mirajordanov28 5 месяцев назад

    Well ....I leaned nothing from these video , except that they don't talk about specific symptoms,but treat their body as a whole ....how is this helpful for God sake....😅

  • @morsy51
    @morsy51 Год назад +1

    You havnt said how you got better! ..cut to the chase instead of talking about symptoms If I’m right it’s ExTREME FATIGUE that’s the main symtom.😢😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂

  • @RaelanAgle
    @RaelanAgle  3 года назад +4

    WHERE TO FIND LIZ & PAMELA:
    Liz Carlson - Blogger, RUclipsr, and Wellness Concierge (and Stellar Human! 💗)
    WEBSITE: healwithliz.com
    INSTAGRAM: instagram.com/healwithlizc/
    RUclips: ruclips.net/channel/UC1kcBp7UKcJXWiuCX7MbnTg
    Pamela Rose - Fatigue Coach (and Queen of Awesomeness! 🌟 )
    WEBSITE: www.pamelarose.co.uk
    INSTAGRAM: instagram.com/myliferescue/
    FACEBOOK: facebook.com/myliferescue/

  • @RaelanAgle
    @RaelanAgle  7 месяцев назад

    👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101