Hi Chris. Thank you for all of your videos as you were one of several RUclipsrs who I looked to for information and hope when I was diagnosed back in May 2019. I am a 53 year old man and had the robotic prostatectomy performed on July 31, 2019 and am, as of my last PSA test on Dec 31. 2019, cancer free. I am due for my next test and am hopeful to remain this way. Let me just say that I admire your strength and I continue to pray for you and am confident that you will beat this once and for all! Because of posts like yours I too took to sharing my journey and began a series of weekly livestreams which continue to this day. Here on my channel I have most of them posted if you or anyone are at all interested. Cancer is a terrible thing for anyone to endure but posts like yours (and hopefully mine) give other men much needed information and often hope for their journey. Stay strong and I'll update you when I get my next PSA results shortly if you'd like.
Thanks for the videos. I am 57 and had a RP in February of 2020. It has been a year with PSA'S of 0. Now my PSA is going up... Urologist has recommended salvage radiation therapy for treatment. It's like a second blow. Your videos are an inspiration.....thanks for sharing.
I'm sorry to hear about your recurrence, Chris. Me and my fellow prostate cancer support group members are sending you positive energy and healing vibes. Thank you so much for posting. I'm currently 39-months NED after prostate cancer surgery and have a fear of recurrence. My next PSA test is in two weeks. Take care, my friend, and we are looking forward to an update. Gogs
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Keep fighting brother! I head back to MD Anderson next month for my one year post surgery follow up. So far PSA is still 0.0 but I dread every damn blood test. Thank you for your videos. You helped me in my journey more than you know.
I found your video on accident, you seem like such a sweet man. I hope you get the best case scenario and beat cancer as fast as possible. Stay optimistic!
Hi Chris, Thank you for sharing your story! You are a true hero and I wish you the best in your recovery. The frank and honest account of your story has helped me a great deal, I thank you! In 6 days I will have a biopsy to confirm what my very grim MRI showed. Through your story I learned that this is not the end of the world and that I can do this.
I just found your vlog. I am also recovering from prostate cancer surgery in early Dec. Hearing your positive attitude is encouraging. Best to you. Thanks.
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Hi Chris. Thank you so much for sharing your journey. I am also in my 40s (47) and was diagnosed with locally advanced prostate cancer in June. I have been on neoadjuvant hormone therapy with RP planned for January. I empathize with you given our similar age and I am also a Dad with two young kids. I found your videos and they are really helping me emotionally prepare for what is ahead... if you can do it, maybe I can too! My hope and prayers for you will finally beat this thing!
Hello Chris. I have followed your journey which made my own much easier. I'm 8 months post RP and got my 3 months results today, non detectable PSA. I greatly admire your strength and wish you well, keep fighting.
Hang in there Chris.....thank you so much for posting your journey...I am 2 years since prostectomy ...I'm 60. I've been at 0.13 since surgery...no radiation yet. I hope for you. We all appreciate what you are sharing. I know for me personally, you have helped. Thank you and god bless.
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I appreciate your keeping us up to date. Like several here, I am about a year out from robotic prostatectomy and thusfar have undetectable PSA. Always want to know the "what ifs" and you are so courageous and forthcoming with your story. Best wishes and Godspeed! Keep us posted on those PET scans.
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Thanks for sharing your story. I feel and understand your journey, I am on it with you only mine started in 2018. Surgery and Rad and ADT, was not a happy camper after that. Keep up your positive outlook, I find it very difficult at times Thanks I liked watching you.
Chris, thank you for sharing. I am starting my journey and will take a different path from yours. I find your story a very courageous tale and admire your generosity. I know there are many treatments now available and highly recommend the following book: The key to Prostate Cancer for guidance. The videos from PCRI.org are outstanding to help those of us with PC. Good luck and keep sharing.
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Hi Chris, I am so sorry to heard this, you have been a warrior, an inspiration and a model on this journey we share, I am praying for you and for a full recovery. On a related note please look into taking high doses of vitamin C, there are some research done in this area with positive results, I saw a video on you tube about this patient with prostate cancer and thanks to the high doses of vitamin C he was taken (intravenous) he was keeping his PSA under control. FYI, I am on a similar path than yours, I finished my radiation the first week of April and received my first hormone suppression injection in May.
Great to hear your update, going through the same situation, off to oncologist on Thursday for another PSA test on new medication, Darolutamide, I hope it's down. Glenn, Australia.
Thank You so much! God Bless you! I had my prostatectomy in January. Went in for follow and PSA levels and after removal PSA was .074. So I am now waiting on a call from Radiologist to see what measures we should do next. Unfortunately the cancer may have breached the borders of the Prostate. Stay Strong and Stay Safe
Hi Chris, thank you for sharing your story. I'm 51 got diagnosed in the beginning of this year and underwent a prostatectomy in march. PSA is low but not undetectable after 7 months - and my doctor advised to wait a little bit more before passing on to radiation therapy. For now PSA is quite low but he would advise immediate action if it increases even a tiny bit. In the middle of this Corona virus crisis it's not easy to get in touch with other men to talk about all the issues, fears, hopes, ... even doctor's visits are kind of awkward in hospitals. Makes me feel a bit to be alone in this all. That's why watching your videos are a different approach for dealing with it to me - hearing you say all those things I don't always want talk about with family and friends - it helps. Wishing you all the best!!!!
Hello. After prostatectomy my PSA was 0.16 then up to 0.29 in five months .At that point went for radiation (33 sessions). My first PSA after radiation was still a bit up, but after that it has been a constant 0.1, and no ill effects. As with the surgery I did not combine the treatment with hormone therapy, the reason being that the HT can delay the result if the treatment has not worked. The argument for HT is that it makes the cancer smaller! Pre radiation I would advise you to really put a lot of work into Kegel exercise , as after radiation incontinence might stay at the level you have and not get any better. There are various treatments for incontinence, so no real problem. Anything with caffeine: Tea, Coffee, sports drinks, and alcohol, is a no. The radiation treatment is non invasive, they put a tiny dot tattoo on you that they line up the machine with each time you come. I found it relaxing. Wishing you all the best, from a Gleason 9 T3B.
Just received a Gleason 8 result and am in the initial stages of additional diagnosis and treatment. Have had Bone scan, CT scan tomorrow, and consultation with Radiology Oncologist soon. Your videos are great and I applaud you for sharing your stories. Thank you and Blessings your way.👍🏽
I am a survivor. I have watched your video blogs and have often thought how you were doing. I had my prostate removed and will soon have an operation to stop my incontinence. My prostate cancer is still undetectable after 18 months. Having cancer is a journey and I hope you will be cancer free soon.
Hello Todd. Would be interested how you are getting on re prep re the operation for incontinence. June 2018 I had robotic, first PSA 0.16 then up to 0.29. December 18 started radiation , finished February 19. The incontinence was a minor problem , but seems to be getting worse. Because of the Corona virus ,the hospitals are running a bit behind. I am down for more treatment but it will be in the New Year before an op if needed, will be getting a few tests and help with Pelvic exercises till then. Was given a month supply of "Tolterodine 2mg" but after two tablets , slight pain and discomfort had to stop taking them. Good Luck
Thank you for sharing this journey....you look healthy...you are realistic...and compassionate to offer your story with others. May I say...I hope tiny increases in psa represent "tiny" increases in danger..
For those men who has been diagnosed with prostate cancer who are in their 40s, 50s or even 60s and has been advised to wait and monitor the cancer before deciding on treatment, based on my personal experience, I strongly advise you to get the surgery done ASAP, do not wait. In my opinion, based again on my personal experience, waiting just increase the chances of some cancer cells getting out of the prostate and moving to a different part of your body, the consequences of this most likely will be cancer recurrence and you may find your self in a similar situation than Chris and my self. I wish you all the best and the best of luck fighting this illness.
My experience agrees with your advice. Biopsy Gleason 6 included the choice to wait and monitor but I chose surgery. Path turned out Gleason 7 with tertiary 5 and pni. Don't wait for it to get worse.
@@contemplator1993 The Gleason score ranks tumor cell populations by most prevalent grade first (primary), next most prevalent grade second, but there can be other grade cells as well. My tumor did have some of the most malignant cells (5) as the third population. That was called "tertiary 5". PNI is perineural invasion. Cancers can invade nerves (which naturally is also not good.) Both those results meant that what seemed on biopsy a Gleason 3+3 turned out upon removal to be more serious. Don't wait for it to get worse.
@@nebuchadnezzarsmith7846 My father had surgery in 2014 with Gleason score 7 & was on androgen depression for raising PSA. In Feb 2020, CT scan showed bladder neck local reccurrence, it's biopsy gave result as Gleason score is 4+4 = 8 & Penineural Invasion. Now I am bit scared bcoz I thought since, it local reccurrence, we still have chance to cure it by Radiotherapy.
@@nebuchadnezzarsmith7846 Sir, What u think about High Dosage Vitamin C IV. I am thinking of administrating to my father. Does it have any serious side effects? My father is goin for RT in next 2 days?
Hello Chris Same time-line. Surgery then radiation. Incontinence _ The first year saw gradual improvement then it started to get worse. Tried altering diet , no caffeine etc. This last year has been a bit odd, now found out have kidney stones, so that might have been a factor re incontinence. Intermittent pain followed by being quite normal. Have a CT scan booked on the 1st Feb which is a relief. Drinking lemon juice , apple cyder vinegar and a few other things. Lemon juice can dissolve some very small stones. All the Best
Chris I have been following all your videos and thank you for the invaluable information and inspiration. Just on my second week of radio for reoccurring psa with less than 3 month doubling time. Have you any info on Axumin used in PET scan for locating cells at very low psa levels. Keep surviving.
Very courageous video. Thank you for your guidance. You are indeed a blessing. Just diagnosed with prostate cancer. Will probably have to go with the radical P. Gleason is 4+3, psa 3.8. Large family history. Scared as hell! Talking to Urologist on Monday . two days to go.
In March my Gleason score was 4+4, and my PSA was 129. I'm 69. I was tested back in 2008 had a 4.6 psa. In 2012 my psa was 12.4. ln 2014 my psa was 38.4. My last reading was 9/21 my psa was 129. I guess it's time to handle the situation. I will start EBRT next week, hopefully things will turn out fine I really don't care about psa numbers.
@@howellwebb5758 Yes, I agree with you. You should start doing some thing about it and it looks like you’re heading in the right direction. Keep me posted and I hope things turn out exactly as planned.
Chris, it’s been awhile since we last heard from you. I want you to know that you are in our prayers. Let us know how you are doing whenever you are ready.
Wow. Sorry to hear this, and hope for the best for you from here on out. You're videos were really helpful making it through some of the more difficult parts of this "journey". Post again soon, let us know how you're feeling, are you still running? all that. I'm 3 months post surgery, my next PSA is scheduled for August. Take care.
Thank you for sharing . Have you considered a PSMA Gallium 68 scan? I think it’s the most advanced currently available. You can probably get it at MD Anderson. If not, UCLA does them... that’s where my hubby is being treated
Hi Chris we have been following your story for a while now and understand how disappointing these setbacks must be, and hope you confuse to get all the right help and treatment to knock this on the head. So far we have been counting our blessings as my husbands PSA has remained undetectable since soon after surgery but the ‘what if’ question never quite goes away. If you don’t mind us asking when you had your initial tests did they give you a ‘Gleason score’ and after surgery confirm they stage / grade of your cancer? It may be in one of your videos but we can’t recall. Sending you all our best wishes from across the Atlantic!
Thank you for sharing your exeperiences with treatment, which is very helpful to me. I underwent RPE /G-9 very successfully in May 2020. I found that Bromhexinhydrochlorid (BHH) was descibed as Transmembrane Protease Serine 2 type II (TMPRSS2) inhibitor in adenocarcinomas by Jared M. Lucas ea in Cancer Discov 2014 Nov. Do you know recent updates on BHH ?
Hi..Chris thank you for sharing the video because my husband just got diagnosed with Prostate Cancer 3 months ago now he just waiting for the Dr.to decide what is the best treatment for him...I hope you are feeling well and getting better ..
Just checking to see where your at now after the new year? Im pretty much in the same boat as you. My psa is up to .394 Next test is next month end of March. Kinda in a holding pattern for it to rise high enough to be seen on a scan to see where the cancer is now.
I am 70 years old. Have five cores at 3 + 4 equals 7. Two biopsy reports. Both completely different! Seeking a third. The original biopsy report had low volume four. The second biopsy had a HIGH volume four!!!!! WTF!!!???? Sing what you're going through and hearing stories I just wish the gosh that I never had a PSA test when I was 70 years old!!! All the stress and anxiety I have been going through. I have a big lesion which probably has been their growing for the past five or six years. I am in perfect health. So..... If they would have gave me a PSA test 5 or 6 years ago I would have been on radiation hormone treatments or had a prostatectomy by now!!!! And for the past five or six years since treatment would have begun I would have been miserable!!!! It is a slow-growing cancer.
Hi Chris, Thank you for your videos! My husband was diagnosed with advanced stage metastatic prostate cancer. His cancer dr, started him on hormone therapy, both shots and pills. Great news is that his PSA has come down a lot. This coming Tuesday he starts radiation. The dr said that because of his age and the advancement of the cancer, he was not a good candiate for surgery. He hasn't been feeling himself, get tired very easy. What can we expect out of the radiation?
Thanks for the update Chris ! My doctor has decided to stop the Eligard treatments allowing my testosterone to rise.In August I go back for a PSA check. If it has risen then it’s either back to the Eligard or new experimental treatments like you mentioned. I’m just looking forward to maybe a few months of no hot flashes and not feeling like a Steer .You are a brave warrior 🙏🏻
Ed here, my journey is similar. started in march 2019 with radical, which was very painful. 1.5 yrs. later psa started doubling within 3 months. took 33 doses of radiation with lupron inj. the lupron seems to have given me awful body sweats, was very easy to dehydrate when outside in summer! still sweating 4 months later, psa is zero! cancer is sneaky thing, so have to monitor.do you have update in 2021?
Hi Chris. I'm curious if you have an update after the radiation treatment. (I assume no video updates is good news) Your videos have been useful for me. Take care.
The radiation did not work. I belive now the cancer was not in the prostate bed as originally assumed. We have found the cancer in a lymph node and will be doing that radiation in two weeks. so round 2.
Hello Chris. I am more or less on the same timeline as yourself, but without the HT. one study I read was"51% recurrence within eighteen months" for people in our situation. Have been on the non-invasive route. 53 HBOT before the corrovnus stopped it, and three days since my last fast (19 days 15 hours) Lost a bit of muscle this time, but will work at building it up again. PSADT is the marker! My last radiation was 6Feb 19, my last PSA was 26April 20 @ 0.1 The area that I live in Scotland, if you are 0.1 or below, and no movement, they just leave it at 0.1, if it moves then they add a decimal place. After Surgery my PSA was 0.16 then 0.22, went on 21day water fast brought it down to 0.17 then up to 0.29, then Radiation within six months of Surgery. As I have got rid of surplus fat, cannot do another long fast, all is not lost!, I am on a simple Keto diet: Chicken, fish no carbs. Do not feel deprived, so all is OK. Also am getting used to a form of OMAD, at the moment though and before the fast, it was more like a six-hour window. I for one, and no doubt many others hope you continue to post. All the Best A bonus would be if the PSADT was yearly or so.
Hi... I’m experiencing the same issue . I had prostatectomy. Pathology showed that cancer was contained. My first PSA was 0.002. But 6 weeks later it was 0.03. The doctor was concerned but he said it could be a few things. I waited 3 more weeks and had blood re drawn and now waiting foe results . We haven’t heard from you in some time. How are things?
@@javar888 After the 0.03 my PSA came back 0.00 but then a few month later it was back to 0.02. He wanted to wait 6 mths. I just had my blood redrawn 12/15 and I’m waiting on results. Erections are not were I’d like. But , I use viagra 100mg and inject myself with something my doctor prescribed when my wife and I have sex. It keeps me hard enough to have sex which works well for us
Get into clinical trial PSMA scan. There are trials for psa recurrence. Some are free, others not and expensive BUT they do have a much higher chance of seeing the spot. I believe something like 65% chance with .29 psa.
Hi Chris. Thank you for all of your videos as you were one of several RUclipsrs who I looked to for information and hope when I was diagnosed back in May 2019. I am a 53 year old man and had the robotic prostatectomy performed on July 31, 2019 and am, as of my last PSA test on Dec 31. 2019, cancer free. I am due for my next test and am hopeful to remain this way.
Let me just say that I admire your strength and I continue to pray for you and am confident that you will beat this once and for all!
Because of posts like yours I too took to sharing my journey and began a series of weekly livestreams which continue to this day. Here on my channel I have most of them posted if you or anyone are at all interested.
Cancer is a terrible thing for anyone to endure but posts like yours (and hopefully mine) give other men much needed information and often hope for their journey. Stay strong and I'll update you when I get my next PSA results shortly if you'd like.
Thanks for the videos. I am 57 and had a RP in February of 2020. It has been a year with PSA'S of 0. Now my PSA is going up... Urologist has recommended salvage radiation therapy for treatment. It's like a second blow. Your videos are an inspiration.....thanks for sharing.
Thanks for the update. Really hope things go better for you.
Thank you, Chris. You really help others when you share.
Thank you for sharing. You are an inspiration to many. Know that many are praying for you.
Chris,
Hang in there! Hope you are doing well. Best wishes always and thanks for the update!
Hi Chris!
Thanks for the update. As always, I wish you good luck. Hang in there.
May God bless you Chris and give you grace through this.
I'm sorry to hear about your recurrence, Chris. Me and my fellow prostate cancer support group members are sending you positive energy and healing vibes. Thank you so much for posting. I'm currently 39-months NED after prostate cancer surgery and have a fear of recurrence. My next PSA test is in two weeks. Take care, my friend, and we are looking forward to an update. Gogs
Chris, thank you for this update and best wishes for a speedy and complete recovery.
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Keep fighting brother! I head back to MD Anderson next month for my one year post surgery follow up. So far PSA is still 0.0 but I dread every damn blood test. Thank you for your videos. You helped me in my journey more than you know.
I found your video on accident, you seem like such a sweet man. I hope you get the best case scenario and beat cancer as fast as possible. Stay optimistic!
Hi Chris, Thank you for sharing your story! You are a true hero and I wish you the best in your recovery. The frank and honest account of your story has helped me a great deal, I thank you! In 6 days I will have a biopsy to confirm what my very grim MRI showed. Through your story I learned that this is not the end of the world and that I can do this.
I just found your vlog. I am also recovering from prostate cancer surgery in early Dec. Hearing your positive attitude is encouraging. Best to you. Thanks.
I am keeping you in my thoughts! STAY STRONG AND POSITIVE!
Chris Thanks So Much for sharing. I have appreciated you sharing your story. I am just behind you on a similar journey. You are in my prayers
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Hi Chris. Thank you so much for sharing your journey. I am also in my 40s (47) and was diagnosed with locally advanced prostate cancer in June. I have been on neoadjuvant hormone therapy with RP planned for January. I empathize with you given our similar age and I am also a Dad with two young kids. I found your videos and they are really helping me emotionally prepare for what is ahead... if you can do it, maybe I can too! My hope and prayers for you will finally beat this thing!
Hello Chris. I have followed your journey which made my own much easier. I'm 8 months post RP and got my 3 months results today, non detectable PSA. I greatly admire your strength and wish you well, keep fighting.
Hang in there Chris.....thank you so much for posting your journey...I am 2 years since prostectomy ...I'm 60. I've been at 0.13 since surgery...no radiation yet. I hope for you. We all appreciate what you are sharing. I know for me personally, you have helped. Thank you and god bless.
Chris, thanks for the update my surgery was 9/19. Praying for a complete recovery for you.
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I appreciate your keeping us up to date. Like several here, I am about a year out from robotic prostatectomy and thusfar have undetectable PSA. Always want to know the "what ifs" and you are so courageous and forthcoming with your story. Best wishes and Godspeed! Keep us posted on those PET scans.
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Thanks for sharing your story. I feel and understand your journey, I am on it with you only mine started in 2018. Surgery and Rad and ADT, was not a happy camper after that. Keep up your positive outlook, I find it very difficult at times Thanks I liked watching you.
Thanks for sharing, hope you are well.
Chris, thank you for sharing. I am starting my journey and will take a different path from yours. I find your story a very courageous tale and admire your generosity. I know there are many treatments now available and highly recommend the following book: The key to Prostate Cancer for guidance. The videos from PCRI.org are outstanding to help those of us with PC. Good luck and keep sharing.
Good luck bro, I truly wish you the best! I starting my journey Mar 31st with surgery. I am 3 weeks post surgery. Good days and bad.
May God bless and heal.
Thanks Chris I just finished 39 radiation treatments. I had a RP before. Be well and keep fighting. You’re too young not to!
Chris, thank you for continuing to share you journey. We're so glad to have you as part of the ZERO family. We are here for you. #ZEROstrong
Thank you ZERO for what you do!!!!!!!
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Hi Chris, I am so sorry to heard this, you have been a warrior, an inspiration and a model on this journey we share, I am praying for you and for a full recovery. On a related note please look into taking high doses of vitamin C, there are some research done in this area with positive results, I saw a video on you tube about this patient with prostate cancer and thanks to the high doses of vitamin C he was taken (intravenous) he was keeping his PSA under control. FYI, I am on a similar path than yours, I finished my radiation the first week of April and received my first hormone suppression injection in May.
Hello Sir! can you share the link to that video.
Great to hear your update, going through the same situation, off to oncologist on Thursday for another PSA test on new medication, Darolutamide, I hope it's down.
Glenn, Australia.
Thank You so much! God Bless you! I had my prostatectomy in January. Went in for follow and PSA levels and after removal PSA was .074. So I am now waiting on a call from Radiologist to see what measures we should do next. Unfortunately the cancer may have breached the borders of the Prostate. Stay Strong and Stay Safe
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Hi Chris, thank you for sharing your story. I'm 51 got diagnosed in the beginning of this year and underwent a prostatectomy in march. PSA is low but not undetectable after 7 months - and my doctor advised to wait a little bit more before passing on to radiation therapy. For now PSA is quite low but he would advise immediate action if it increases even a tiny bit. In the middle of this Corona virus crisis it's not easy to get in touch with other men to talk about all the issues, fears, hopes, ... even doctor's visits are kind of awkward in hospitals. Makes me feel a bit to be alone in this all. That's why watching your videos are a different approach for dealing with it to me - hearing you say all those things I don't always want talk about with family and friends - it helps. Wishing you all the best!!!!
Hello.
After prostatectomy my PSA was 0.16 then up to 0.29 in five months .At that point went for radiation (33 sessions). My first PSA after radiation was still a bit up, but after that it has been a constant 0.1, and no ill effects.
As with the surgery I did not combine the treatment with hormone therapy, the reason being that the HT can delay the result if the treatment has not worked. The argument for HT is that it makes the cancer smaller!
Pre radiation I would advise you to really put a lot of work into Kegel exercise , as after radiation incontinence might stay at the level you have and not get any better. There are various treatments for incontinence, so no real problem. Anything with caffeine: Tea, Coffee, sports drinks, and alcohol, is a no.
The radiation treatment is non invasive, they put a tiny dot tattoo on you that they line up the machine with each time you come. I found it relaxing.
Wishing you all the best, from a Gleason 9 T3B.
Just received a Gleason 8 result and am in the initial stages of additional diagnosis and treatment. Have had Bone scan, CT scan tomorrow, and consultation with Radiology Oncologist soon. Your videos are great and I applaud you for sharing your stories. Thank you and Blessings your way.👍🏽
How old were you in what were your Gleason scores at the time. How about the volume ., also, what treatments did you end up doing.
Hi Chris, thank you for sharing your story. How are you feeling now? Looking forward to the next update.
I will pray for you.
Be Strong and keep fighting Chris😤🙏
I am a survivor. I have watched your video blogs and have often thought how you were doing. I had my prostate removed and will soon have an operation to stop my incontinence. My prostate cancer is still undetectable after 18 months. Having cancer is a journey and I hope you will be cancer free soon.
Hello Todd.
Would be interested how you are getting on re prep re the operation for incontinence.
June 2018 I had robotic, first PSA 0.16 then up to 0.29. December 18 started radiation , finished February 19.
The incontinence was a minor problem , but seems to be getting worse. Because of the Corona virus ,the hospitals are running a bit behind. I am down for more treatment but it will be in the New Year before an op if needed, will be getting a few tests and help with Pelvic exercises till then. Was given a month supply of "Tolterodine 2mg" but after two tablets , slight pain and discomfort had to stop taking them.
Good Luck
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Thank you for sharing this journey....you look healthy...you are realistic...and compassionate to offer your story with others.
May I say...I hope tiny increases in psa represent "tiny" increases in danger..
For those men who has been diagnosed with prostate cancer who are in their 40s, 50s or even 60s and has been advised to wait and monitor the cancer before deciding on treatment, based on my personal experience, I strongly advise you to get the surgery done ASAP, do not wait. In my opinion, based again on my personal experience, waiting just increase the chances of some cancer cells getting out of the prostate and moving to a different part of your body, the consequences of this most likely will be cancer recurrence and you may find your self in a similar situation than Chris and my self. I wish you all the best and the best of luck fighting this illness.
My experience agrees with your advice. Biopsy Gleason 6 included the choice to wait and monitor but I chose surgery. Path turned out Gleason 7 with tertiary 5 and pni. Don't wait for it to get worse.
@@nebuchadnezzarsmith7846 sir what u mean by teritary & pni ?
@@contemplator1993 The Gleason score ranks tumor cell populations by most prevalent grade first (primary), next most prevalent grade second, but there can be other grade cells as well. My tumor did have some of the most malignant cells (5) as the third population. That was called "tertiary 5". PNI is perineural invasion. Cancers can invade nerves (which naturally is also not good.) Both those results meant that what seemed on biopsy a Gleason 3+3 turned out upon removal to be more serious. Don't wait for it to get worse.
@@nebuchadnezzarsmith7846 My father had surgery in 2014 with Gleason score 7 & was on androgen depression for raising PSA. In Feb 2020, CT scan showed bladder neck local reccurrence, it's biopsy gave result as Gleason score is 4+4 = 8 & Penineural Invasion. Now I am bit scared bcoz I thought since, it local reccurrence, we still have chance to cure it by Radiotherapy.
@@nebuchadnezzarsmith7846 Sir, What u think about High Dosage Vitamin C IV. I am thinking of administrating to my father. Does it have any serious side effects? My father is goin for RT in next 2 days?
Hello Chris Same time-line.
Surgery then radiation.
Incontinence _ The first year saw gradual improvement then it started to get worse. Tried altering diet , no caffeine etc.
This last year has been a bit odd, now found out have kidney stones, so that might have been a factor re incontinence.
Intermittent pain followed by being quite normal.
Have a CT scan booked on the 1st Feb which is a relief.
Drinking lemon juice , apple cyder vinegar and a few other things. Lemon juice can dissolve some very small stones.
All the Best
Hope you have a good" New Year".
Chris I have been following all your videos and thank you for the invaluable information and inspiration. Just on my second week of radio for reoccurring psa with less than 3 month doubling time. Have you any info on Axumin used in PET scan for locating cells at very low psa levels.
Keep surviving.
Very courageous video. Thank you for your guidance. You are indeed a blessing. Just diagnosed with prostate cancer. Will probably have to go with the radical P. Gleason is 4+3, psa 3.8. Large family history. Scared as hell! Talking to Urologist on Monday . two days to go.
In March my Gleason score was 4+4, and my PSA was 129. I'm 69. I was tested back in 2008 had a 4.6 psa. In 2012 my psa was 12.4. ln 2014 my psa was 38.4. My last reading was 9/21 my psa was 129. I guess it's time to handle the situation. I will start EBRT next week, hopefully things will turn out fine I really don't care about psa numbers.
@@howellwebb5758 Yes, I agree with you. You should start doing some thing about it and it looks like you’re heading in the right direction. Keep me posted and I hope things turn out exactly as planned.
Chris, it’s been awhile since we last heard from you. I want you to know that you are in our prayers. Let us know how you are doing whenever you are ready.
Wow. Sorry to hear this, and hope for the best for you from here on out. You're videos were really helpful making it through some of the more difficult parts of this "journey". Post again soon, let us know how you're feeling, are you still running? all that. I'm 3 months post surgery, my next PSA is scheduled for August. Take care.
Thank you for sharing . Have you considered a PSMA Gallium 68 scan? I think it’s the most advanced currently available. You can probably get it at MD Anderson. If not, UCLA does them... that’s where my hubby is being treated
Hi Chris we have been following your story for a while now and understand how disappointing these setbacks must be, and hope you confuse to get all the right help and treatment to knock this on the head. So far we have been counting our blessings as my husbands PSA has remained undetectable since soon after surgery but the ‘what if’ question never quite goes away. If you don’t mind us asking when you had your initial tests did they give you a ‘Gleason score’ and after surgery confirm they stage / grade of your cancer? It may be in one of your videos but we can’t recall. Sending you all our best wishes from across the Atlantic!
Thank you for sharing your exeperiences with treatment, which is very helpful to me. I underwent RPE /G-9 very successfully in May 2020. I found that Bromhexinhydrochlorid (BHH) was descibed as Transmembrane Protease Serine 2 type II (TMPRSS2) inhibitor in adenocarcinomas by Jared M. Lucas ea in Cancer Discov 2014 Nov. Do you know recent updates on BHH ?
Hi..Chris thank you for sharing the video because my husband just got diagnosed with Prostate Cancer 3 months ago now he just waiting for the Dr.to decide what is the best treatment for him...I hope you are feeling well and getting better ..
Just checking to see where your at now after the new year? Im pretty much in the same boat as you. My psa is up to .394 Next test is next month end of March. Kinda in a holding pattern for it to rise high enough to be seen on a scan to see where the cancer is now.
I feel so sorry for you. I was just diagnosed - but I’m 71.
I am 70 years old. Have five cores at 3 + 4 equals 7. Two biopsy reports. Both completely different! Seeking a third. The original biopsy report had low volume four. The second biopsy had a HIGH volume four!!!!! WTF!!!???? Sing what you're going through and hearing stories I just wish the gosh that I never had a PSA test when I was 70 years old!!! All the stress and anxiety I have been going through. I have a big lesion which probably has been their growing for the past five or six years. I am in perfect health. So..... If they would have gave me a PSA test 5 or 6 years ago I would have been on radiation hormone treatments or had a prostatectomy by now!!!! And for the past five or six years since treatment would have begun I would have been miserable!!!! It is a slow-growing cancer.
Hi Chris, Thank you for your videos! My husband was diagnosed with advanced stage metastatic prostate cancer. His cancer dr, started him on hormone therapy, both shots and pills. Great news is that his PSA has come down a lot. This coming Tuesday he starts radiation. The dr said that because of his age and the advancement of the cancer, he was not a good candiate for surgery. He hasn't been feeling himself, get tired very easy. What can we expect out of the radiation?
Thanks for the update Chris !
My doctor has decided to stop the Eligard treatments allowing my testosterone to rise.In August I go back for a PSA check. If it has risen then it’s either back to the Eligard or new experimental treatments like you mentioned. I’m just looking forward to maybe a few months of no hot flashes and not feeling like a Steer .You are a brave warrior 🙏🏻
Dear Chris -i have followed your treatment. Any updates? I'm on the journey also. Hope you are doing well.
Ed here, my journey is similar. started in march 2019 with radical, which was very painful. 1.5 yrs. later psa started doubling within 3 months. took 33 doses of radiation with lupron inj. the lupron seems to have given me awful body sweats, was very easy to dehydrate when outside in summer! still sweating 4 months later, psa is zero! cancer is sneaky thing, so have to monitor.do you have update in 2021?
Hi Chris. I'm curious if you have an update after the radiation treatment. (I assume no video updates is good news) Your videos have been useful for me. Take care.
The radiation did not work. I belive now the cancer was not in the prostate bed as originally assumed. We have found the cancer in a lymph node and will be doing that radiation in two weeks. so round 2.
Chris, did your DR order an MRI prior to your surgery? I will be having the surgery sometime soon. Best wishes for your recovery.
have you tryed a PSMA Pat scan to show where the prostate cancer is located>
Yes I have had several and now go in for annual PSMA scans. Last one was Oct 2023 and can out with no detectable cancer.
How your symptoms start sir ?
Get a PSMA PET Scan. Don't wait.
My story sounds a lot like yours, I’ve been on Lupron for 3 years, it’s been awful
So is that a CT scan or pet scan where they could not detect. Just wondering going through the same thing. Doctor ordered pet scan
Thank you so much for making the video. I will definitely keep following. I know I ask stupid questions.
Hello Chris.
I am more or less on the same timeline as yourself, but without the HT.
one study I read was"51% recurrence within eighteen months" for people in our situation.
Have been on the non-invasive route. 53 HBOT before the corrovnus stopped it, and three days since my last fast (19 days 15 hours) Lost a bit of muscle this time, but will work at building it up again.
PSADT is the marker!
My last radiation was 6Feb 19, my last PSA was 26April 20 @ 0.1 The area that I live in Scotland, if you are 0.1 or below, and no movement, they just leave it at 0.1, if it moves then they add a decimal place.
After Surgery my PSA was 0.16 then 0.22, went on 21day water fast brought it down to 0.17 then up to 0.29, then Radiation within six months of Surgery.
As I have got rid of surplus fat, cannot do another long fast, all is not lost!, I am on a simple Keto diet: Chicken, fish no carbs. Do not feel deprived, so all is OK.
Also am getting used to a form of OMAD, at the moment though and before the fast, it was more like a six-hour window.
I for one, and no doubt many others hope you continue to post.
All the Best
A bonus would be if the PSADT was yearly or so.
RIP
Hi... I’m experiencing the same issue . I had prostatectomy. Pathology showed that cancer was contained. My first PSA was 0.002. But 6 weeks later it was 0.03. The doctor was concerned but he said it could be a few things. I waited 3 more weeks and had blood re drawn and now waiting foe results .
We haven’t heard from you in some time. How are things?
Hey Danny....I was reading your post. Hope everything goes well for you.
@Michael Eaton.... Thank you
Danny, how did things turn out for you? Did your PSA stabilize?
@@javar888
After the 0.03 my PSA came back 0.00 but then a few month later it was back to 0.02. He wanted to wait 6 mths. I just had my blood redrawn 12/15 and I’m waiting on results. Erections are not were I’d like. But , I use viagra 100mg and inject myself with something my doctor prescribed when my wife and I have sex. It keeps me hard enough to have sex which works well for us
@@dannyemerson6018 sounds under control to me . Feeling well?
Get into clinical trial PSMA scan. There are trials for psa recurrence. Some are free, others not and expensive BUT they do have a much higher chance of seeing the spot. I believe something like 65% chance with .29 psa.
I'm a believer Chris, therefore l pray for you, that you'll be healed in Jesus name. Amen.
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Hope you can determine where the cancer is and that it can be eliminated. Best of luck!