Thank you for sharing your story...Its a hard illness to manage. And i resonate with all you have said...yes life is a challenge...but its one huge learning curve...becoming your own expert. Speaking up for yoyrself with ignorant Endo's!! Struggling with fatigue and low mood at the mo. But Jills nutrition workshop will help so many....including me...thanks Jill. Amazing woman warrior.❤❤❤ I felt alone before i found Jill and the uk Adiisons patient self help group....now i no longer feel alone. With all you lovely souls sharing your stories...we will get the message out there. And educate all....we have been let down by the medical proffession in many ways....But we can educate...they wont forget us. We will continue with jills Dad's lecacy...and not tolerate ignorant Endo's..!! They will listen....and learn...xxx❤❤
I got Addison’s disease and I know exactly what you’re talking about there’s days I’m doing OK but I still get tired. I have to lay down and then there’s other days I can’t do nothing at all and I’m not on any medication not yet, but I am very scared. I’m scared to death, I knew something was deadly wrong with me. I felt like I was dying and when I went to the hospital the second time they found out that I had Addison’s disease thank you for your interview. It has helped a lot and you’re right people don’t understand don’t have control you just can’t function, I just have to lay down and rest. It sucks because I used to be very very active. I was a hard worker always doing things now it’s like I’m crippled. It sucks prayers for you. I pray that Jehovah God will help you pray for me and anyone and everyone that has Addison’s disease I wish they had a cure for the scariest thing there is.
oh yes friend...I understand and I am glad you find the videos helpful..thank you so much for your kindness. Yes it is an up and down and feel good one hour and feel horrible the next. We need research and better understanding for sure!
I also told my endo ( I have diabetes) that I suspected Addison’s. Dark lines on nails. I’m normally ‘tanned’ so didn’t pay attention to people commenting about my tan.
My little boy has Addisons, recently diagnosed but I really needed this video, made me feel alot better today to watch your video and hear you talk about some people's accomplishments with the disease
I never was told the probability of my adrenals are 90 percent damaged if now especially my doctor started me on hydrocortisone. I’ve been diagnosed since 2019, and now has significantly gotten worse . You’ve given me knowledge to ask the right questions for answers . Thanks so much!
I can hardly find anything on people talking about their symptoms. I can't get Dr's to listen to me. The few I've seen I can relate. It's disturbing to go through things without knowing what it is and having Dr's say it's just in your head. How do I get them to test me?
@@elliekerr6899 I did and he said there wasn't enough to indicate anything. I am still not ok. It's like this everyday, worse after I've had an overactive day, it takes several days to get back to the abnormal normal.
I’m so sick I can’t get out of bed. Stress begets stress, and I have a bad hip, I need a hip replacement but I have diabetes, and the hydrocortisone makes my insulin not work, so I just don’t know what to do. My cortisol levels were at 3 when I got tested in the morning when it’s at its highest. It really feels hopeless to me, I don’t have Addisons disease but i think what we’re experiencing is very similar because in the end my adrenal gland just isn’t working. Maybe I’m wrong though? Anyone that has advice or any help for me I would be very grateful.
Hey there...how are you doing? Push for blood work especially ACTH blood tests and an endocrinologist if you haven't seen one. Keep fighting and listening to your body and instincts!
I am not diagnosed yet. I have had one crisis in 2021 and I never want to go through that again. It was miss diagnosed at the time. However my general labs are wnl if I am not in a stressful situation, sick, or both and that is when all my symptoms hit. My question to you is do you think it is a good idea to wait to see a endocrinologist after I have been sick or in a stressful time where my labs will show the high eosinophils low sodium and high potassium? Pay cash to get my labs drawn. Then make my appt after I have proof.
Sounds like that might be a good idea...have they tested your blood ACTH levels as well? Such a scary roller coaster as the adrenal slowly deteriorate...bigs hugs friend...
Endocrinologists can takes 6 months to get in in the US- I think there is a shortage- retirement age hit for a lot of them and the new ones aren’t in place yet. So definitely make your appointment now if you can. I started seeing a naturopath and acupuncturist through a school they have near me, and it has really helped me stabilize. I was diagnosed early- saw an endo for my thyroid and she narrowed in the Addison’s. So I am on hydrocortisone as needed, and I don’t have to take it much- I did for taking a flight recently and I am building up my fitness and weightlifting and am taking it as I add in days of intense exercise. So if you are early on, the naturopath/acupuncture might be helpful until you can get in to see the endo?
Thank you for sharing your story...Its a hard illness to manage. And i resonate with all you have said...yes life is a challenge...but its one huge learning curve...becoming your own expert. Speaking up for yoyrself with ignorant Endo's!! Struggling with fatigue and low mood at the mo. But Jills nutrition workshop will help so many....including me...thanks Jill. Amazing woman warrior.❤❤❤ I felt alone before i found Jill and the uk Adiisons patient self help group....now i no longer feel alone. With all you lovely souls sharing your stories...we will get the message out there. And educate all....we have been let down by the medical proffession in many ways....But we can educate...they wont forget us. We will continue with jills Dad's lecacy...and not tolerate ignorant Endo's..!! They will listen....and learn...xxx❤❤
I got Addison’s disease and I know exactly what you’re talking about there’s days I’m doing OK but I still get tired. I have to lay down and then there’s other days I can’t do nothing at all and I’m not on any medication not yet, but I am very scared. I’m scared to death, I knew something was deadly wrong with me. I felt like I was dying and when I went to the hospital the second time they found out that I had Addison’s disease thank you for your interview. It has helped a lot and you’re right people don’t understand don’t have control you just can’t function, I just have to lay down and rest. It sucks because I used to be very very active. I was a hard worker always doing things now it’s like I’m crippled. It sucks prayers for you. I pray that Jehovah God will help you pray for me and anyone and everyone that has Addison’s disease I wish they had a cure for the scariest thing there is.
oh yes friend...I understand and I am glad you find the videos helpful..thank you so much for your kindness. Yes it is an up and down and feel good one hour and feel horrible the next. We need research and better understanding for sure!
I also told my endo ( I have diabetes) that I suspected Addison’s. Dark lines on nails. I’m normally ‘tanned’ so didn’t pay attention to people commenting about my tan.
My little boy has Addisons, recently diagnosed but I really needed this video, made me feel alot better today to watch your video and hear you talk about some people's accomplishments with the disease
Yes we can have normal lives...ups and downs for sure but with educating yourself and being prepared we can do anything. thank you for the comment
I never was told the probability of my adrenals are 90 percent damaged if now especially my doctor started me on hydrocortisone. I’ve been diagnosed since 2019, and now has significantly gotten worse . You’ve given me knowledge to ask the right questions for answers . Thanks so much!
I hope this is helpful friend ❤️thank you for watching ❤️
The pickle juice inside the pickle jar, delicious and a life saver
LOL yes it is!!!
Thank you for this video
Thank you for watching ❤️ Carol did a great video ❤️
Very often I feel completely out of control and like I'm standing beside myself screaming for the Addison's part of me to just shut up 🤯
I completely understand friend...that was me last night!
@@chronicallyfit_withjill I'm sorry you suffer too 😔
I can hardly find anything on people talking about their symptoms. I can't get Dr's to listen to me. The few I've seen I can relate. It's disturbing to go through things without knowing what it is and having Dr's say it's just in your head. How do I get them to test me?
wish I had the magic answer...just keep asking and asking. Try and get a ACTH blood test at least..it would be a start and it is easy to get
Thank you, I'm calling them right now to request that test.
@@jjxartisthey did you get the blood test ?? Hope you’re feeling ok ❤
@@elliekerr6899 I did and he said there wasn't enough to indicate anything. I am still not ok. It's like this everyday, worse after I've had an overactive day, it takes several days to get back to the abnormal normal.
This gave me so much hope on a difficult day- thank you for sharing your story 🙏 ❤️
That is great...Carol is amazing..I am glad her story gave you hope. Be well friend...take care
I’m so sick I can’t get out of bed. Stress begets stress, and I have a bad hip, I need a hip replacement but I have diabetes, and the hydrocortisone makes my insulin not work, so I just don’t know what to do. My cortisol levels were at 3 when I got tested in the morning when it’s at its highest. It really feels hopeless to me, I don’t have Addisons disease but i think what we’re experiencing is very similar because in the end my adrenal gland just isn’t working. Maybe I’m wrong though? Anyone that has advice or any help for me I would be very grateful.
Hey there...how are you doing? Push for blood work especially ACTH blood tests and an endocrinologist if you haven't seen one. Keep fighting and listening to your body and instincts!
I am not diagnosed yet. I have had one crisis in 2021 and I never want to go through that again. It was miss diagnosed at the time. However my general labs are wnl if I am not in a stressful situation, sick, or both and that is when all my symptoms hit. My question to you is do you think it is a good idea to wait to see a endocrinologist after I have been sick or in a stressful time where my labs will show the high eosinophils low sodium and high potassium? Pay cash to get my labs drawn. Then make my appt after I have proof.
Sounds like that might be a good idea...have they tested your blood ACTH levels as well? Such a scary roller coaster as the adrenal slowly deteriorate...bigs hugs friend...
Endocrinologists can takes 6 months to get in in the US- I think there is a shortage- retirement age hit for a lot of them and the new ones aren’t in place yet. So definitely make your appointment now if you can.
I started seeing a naturopath and acupuncturist through a school they have near me, and it has really helped me stabilize. I was diagnosed early- saw an endo for my thyroid and she narrowed in the Addison’s. So I am on hydrocortisone as needed, and I don’t have to take it much- I did for taking a flight recently and I am building up my fitness and weightlifting and am taking it as I add in days of intense exercise. So if you are early on, the naturopath/acupuncture might be helpful until you can get in to see the endo?
Where is the addisons community?
there are lots of fb groups and you can go on FB and find TEAM ADDISON CANADA...this is a group I run!
Thank you!