How I Learned I had a Rare, Blood Cancer - Kristin | Myelofibrosis | The Patient Story

Поделиться
HTML-код
  • Опубликовано: 26 дек 2024

Комментарии • 81

  • @tanishanixon14
    @tanishanixon14 11 месяцев назад +9

    I have multiple myeloma and had a Stem Cell Transplant in August 2023. I live in Maryland and went to University of Maryland and was in the Bone Marrow Transplant unit as well. I loved the care I received, I'm in remission now and appreciate your story. I pray your daughter and you continue to be blessed.😊🤗

    • @michelsooriah692
      @michelsooriah692 11 месяцев назад

      BMT oct 19 in india. Greetings from mauritius.

  • @asesukatinas
    @asesukatinas 11 месяцев назад +13

    I have Myelofibrosis too. I had 3. Stamcell Transplants. They all failled. My sickness is progressing .
    I am happy for you and your beautiful daughter. ❤ Life is so precious.

    • @nat7891
      @nat7891 11 месяцев назад +2

      Don't lose hope! Every day we are closer and closer to finding cures for cancers, and you never know when one is found for Myelofibrosis! Much love from Cali!

    • @lesleymaclennan7899
      @lesleymaclennan7899 9 месяцев назад

      ❤❤🙏

  • @kylieharrison3782
    @kylieharrison3782 10 месяцев назад +5

    Thats amazing! Basically you only found out your daughter was ill because you were and needed help. If that hadnt of happened your daughter may not have found out about her own illness till it was too late treat. It's pretty neat how sometimes things work out in such an amazing way.

  • @donnaflowers1994
    @donnaflowers1994 Год назад +20

    I still believe in Amazing Grace
    That there's power in the blood
    That he walks with me and talks to me. That because he lives, I can face tomorrow. All because of the Old Rugged Cross.

  • @sandradalessandro2935
    @sandradalessandro2935 Год назад +18

    This is an amazing story as you literally saved your daughters life if not for your diagnosis she may have not known about that tumor till it got really bad!!! I am a refractory lymphoma B cell patient stage four. I have such respect for the positive attitude and strength u have going thru stem cell. I just did car -T. And I am exhausted!!! Not sure if it worked yet too soon. But you are amazing fit strong and handling this with grace!!! Sending up prayers for u. And gratitude to god as you saved a life Just happened to be the one u brought into this world Crazy. Miracles are real♥️♥️♥️god. Bless u

    • @Ceerads
      @Ceerads Год назад +1

      Thank you for mentioning lymphoma. I wondered if her daughter had some form of lymphoma rather than lung cancer, but the narrator never said this.

  • @ElephantsRock19
    @ElephantsRock19 Год назад +13

    Amazing and inspirational story, thank you for sharing!
    I'm very sorry you and your daughter are going through each of your health issues, but isn't it a blessing (if you can call it that) that your daughters cancer was found & can be treated!
    Sending up prayers for you and your daughter's continued journey! 🕊️🙏❤️🕯️

  • @Secular-Serenity
    @Secular-Serenity Год назад +13

    Sounds like what went on with you might have saved your daughter’s life. Glad you and your daughter are doing well and have a wonderful support system.

  • @jazthing1
    @jazthing1 Год назад +2

    I happy she survived and had support. Some people don't but they get through it anyway.

  • @CityGirl_InTheCountry
    @CityGirl_InTheCountry 11 месяцев назад +1

    What an inspiration you are! I appreciate your attitude. I hope both you and your daughter are doing well. I was recently diagnosed with post-ET myelofibrosis.

    • @ThePatientStory
      @ThePatientStory  10 месяцев назад

      Thank you for sharing. Would you be interested in sharing your story on our platform? If so, are you able to fill out our intro survey: thepatientstory.com/share-your-story/

  • @dgator3599
    @dgator3599 Год назад

    I'm sorry you and your family has to go through this. I'm so very proud of you for your courage and perseverance.

  • @boraborabob1
    @boraborabob1 Год назад +5

    Finally somebody mentioned the 10 day thing. I thought after watching too many tubes that 2nd and 3rd day were bad ones. Thank you for telling us a nurse told you around day 10 is worse. I fell and got hurt durinf 2nd and 3rd Chemo around day 9-10. I could have been more careful.

    • @heidi1651
      @heidi1651 Год назад +3

      The day/s you're most affected usually depends on what type/s of chemo you get.

    • @amarmata1
      @amarmata1 11 месяцев назад +1

      Yes this is called crs ( cytokone release syndrome ) which usually happens around day 8-12 ish

  • @Floodland-bn3ol
    @Floodland-bn3ol 10 месяцев назад

    Great video. Thanks for sharing your thoughts on this.

  • @veronicavanvuuren3512
    @veronicavanvuuren3512 Год назад +3

    My husband also had a stemcell transplant. It saved his live

  • @kellygarvin9006
    @kellygarvin9006 8 месяцев назад

    She’s beautiful and so are you 😍

  • @joannadavis6716
    @joannadavis6716 11 месяцев назад +3

    Vaxxed and boosted!

  • @mcdesert944
    @mcdesert944 Год назад +5

    My blood was outta whack too and I fasted for ten days and bloodwork was normal!! Fasting makes your own stem cells!!?? Something to think about.

    • @marymarth7298
      @marymarth7298 10 месяцев назад +2

      Can you tell us how you fasted for 10 days please?

  • @maxinef6654
    @maxinef6654 5 месяцев назад

    I bruise real easy too. I hope I don’t come down with that disease. 😥

  • @celestialcircledance
    @celestialcircledance Год назад +3

    So if your daughter hadn't volunteered to be your donor her tumor could have gone undetected for a lot longer ? It sounded like a wild ride but I'm glad you're both doing okay !

  • @NoodlesEaton
    @NoodlesEaton 2 месяца назад

    I was on the bone marrow donor list but at 60 they threw me off due to my age.

  • @MarMarFinds
    @MarMarFinds 10 месяцев назад +2

    Did. you get the jab?

  • @kilianvkv3803
    @kilianvkv3803 3 месяца назад

    Sorry, but the quality of the sound is not very good.

  • @jeffwatson151
    @jeffwatson151 11 месяцев назад

    I beg to differ about increasing platelets these people don't know all they think they know honestly they're just experimenting my WBC is low most times on 7/12/23 my WBC was 2.7 platelets were 144; on 10/7/23 I started making and using 4 tablespoons of homemade sea moss gell in my morning smoothie, that's a good amount of moss, and by 11/18/23 my WBC was 2.9 and platelets went up to 169 I am going to have repeat labs next month so these folks can see whatever the hell they're trying to see.

  • @witteney3334
    @witteney3334 11 месяцев назад +1

    I have low platelets and itchy skin and I do see an oncologist but nothing else appears wrong.

  • @Tracymcgrath-p3e
    @Tracymcgrath-p3e Год назад +1

    ❤❤❤

  • @mcdesert944
    @mcdesert944 Год назад

    Gerson Therapy would help you. It’s working for me!! I’m itching and waiting for diagnosis.

  • @jodeeblue9663
    @jodeeblue9663 8 месяцев назад

    ❤❤❤🙏🙏🙏

  • @MC-iw6nv
    @MC-iw6nv 11 месяцев назад +5

    This all happened around the time that the 💉 was rolled out. Now we're hearing about these stories globally. Stage 4 cancer overnight. It's an unstoppable wreckage that is coming, and they know it. Very sorry to hear your story.

  • @jacquelinebryant6056
    @jacquelinebryant6056 Год назад +15

    Did you take the covid vaccines?

    • @Lisa_RNHealthHub
      @Lisa_RNHealthHub Год назад +7

      Why would you ask that?

    • @Ceerads
      @Ceerads Год назад +8

      Stop spreading misinformation. 🤮

    • @srkusa
      @srkusa Год назад +8

      I did and now similarly to this person, I've suddenly developed Hematology issues. Just had a bone marrow biopsy and awaiting dr's diagnosis.

    • @jacquelinebryant6056
      @jacquelinebryant6056 Год назад +3

      @@srkusa I am reaĺly sorry.

    • @priscillafranklin5633
      @priscillafranklin5633 Год назад +6

      Valid question.

  • @susannemoore6636
    @susannemoore6636 11 месяцев назад +2

    Did you get vaxxed?

  • @baronghede2365
    @baronghede2365 Год назад +4

    To anyone who finds my comment that is suffering from cancer: eliminate, pork, sugar, redmeat, candy, sweets, processed food and fried foods from your diet and juice every hour on the hour, Blessed Be.

  • @debradavis3935
    @debradavis3935 10 месяцев назад +2

    I’m asking this question from a medical perspective not a political one. Did you get the Covid vaccine? It seems that a lot of the videos I’m watching that have rare and unusual cancers manifesting are in patients who took the vaccine. Based on what we know about the technology behind the vaccine. I find this very concerning!

  • @pattimercer9357
    @pattimercer9357 Год назад +4

    First of all, you did not have ‘lobotomies’. You would have had ‘phlebotomies’. The first is the removal of the front of your brain. The second is blood removal.

    • @LynO5392
      @LynO5392 10 месяцев назад +5

      Maybe show some kindness and not police her words. You knew what she meant

  • @californiadoll6273
    @californiadoll6273 Год назад +7

    This is proof God doesn't exist!

    • @irishgal353
      @irishgal353 Год назад +6

      Miracles are real❣️. Praise the Lord❣️🙏🏻🔥

    • @ocglamtan6763
      @ocglamtan6763 Год назад

      It’s actually proof he exists. Cancer is from our society. They spray us with poison all day. God warned us the medical community deceives us. Many can’t handle the truth so we will continue to be poisoned. Maybe if you read the book you would understand it’s the devil doing this by deception.

    • @californiadoll6273
      @californiadoll6273 Год назад +4

      @@irishgal353 your lord gave her incurable cancer with no donor matches and also gave her daughter stage3 cancer at age 23... uhm yeah sounds realllll miraculous lmao 🤣

    • @velmamoorman7099
      @velmamoorman7099 Год назад +4

      Why so mean and hateful?

    • @irishgal353
      @irishgal353 Год назад +1

      @@velmamoorman7099 What do you mean by mean and hateful? I said miracles do happen and praise the Lord? Have a nice day😊