Thank you, Andy, for your informative talk on NETS tumours. I have Carcinoid Syndrome, with an unknown primary. I had no obvious symptoms and so the tumours were found by accident by my lovely doctor when I had high blood pressure 15 years ago. By that time the cancer had spread to my liver and one adrenal gland. I have been very well on Octreatide since then and am very fortunate to remain stable with this treatment. I am 63 now. However, it becomes a chronic disease you have to live with and constantly have injections, blood tests and visits to the specialist and hospital. I am very grateful but would love to know what causes these tumours? Is it genetic? Hopefully one day a cure will be found. Many thanks, Carol.
You are in my prayers. I just recently got diagnosed with a stage 1 Neuroendocrine tumor and still have testing to do. I have been having trouble with digestive issues and b/p going up and down. This is all new to me.
@@johnsmith-ce2nr Thank you John, I will pray for you too. It’s always a bit of a shock at first, I remember. Good luck with your treatment. Yes, I always seemed to be plagued with mild digestive issues too but didn’t know why. I hope you have a knowledgeable oncologist and get well treated and have the slow growing NETS type. Best wishes. Carol
Though neuro-endocrine cells are are present in many organs chiefly the aero digestive passages the lungs are the most common seat of NETS, no one knows why?
I m a that Bangladeshi patient under treatment of TaTa medical canter in Kolkata , India. From 2019 taking treatment but it is increasing . Sir I need your suggestion Thank you Mahtab uddin
Thank you SO much for this video! It is extremely informative! I was diagnosed with a gastric NET but sadly my GI has done an awful job with this process as he’s never encountered this before. Is there any way I can message you with a couple of questions? If I can email you or send a message via a website, please let me know. I could really use some help right now. Thank you so much!
Well put together thanks
Thank you for the enlightening explanation..I had (june 2024) a 18F-Dopa PET/CT-scan.
Thank you for this. Very well explained
Great presentation of a very confusing topic.
Thank you, Andy, for your informative talk on NETS tumours. I have Carcinoid Syndrome, with an unknown primary. I had no obvious symptoms and so the tumours were found by accident by my lovely doctor when I had high blood pressure 15 years ago. By that time the cancer had spread to my liver and one adrenal gland. I have been very well on Octreatide since then and am very fortunate to remain stable with this treatment. I am 63 now.
However, it becomes a chronic disease you have to live with and constantly have injections, blood tests and visits to the specialist and hospital. I am very grateful but would love to know what causes these tumours? Is it genetic?
Hopefully one day a cure will be found. Many thanks, Carol.
You are in my prayers. I just recently got diagnosed with a stage 1 Neuroendocrine tumor and still have testing to do. I have been having trouble with digestive issues and b/p going up and down. This is all new to me.
@@johnsmith-ce2nr Thank you John, I will pray for you too. It’s always a bit of a shock at first, I remember. Good luck with your treatment. Yes, I always seemed to be plagued with mild digestive issues too but didn’t know why. I hope you have a knowledgeable oncologist and get well treated and have the slow growing NETS type. Best wishes. Carol
@@carolstamford4126 I forgot to add mine is in the stomach and they are saying it’s very rare. I will know more when I have these tests completed
Gos is greath
Thanks. This was very helpful!
Though neuro-endocrine cells are are present in many organs chiefly the aero digestive passages the lungs are the most common seat of NETS, no one knows why?
Dose feeling hot and flushing make a symptom of this
I m a that Bangladeshi patient under treatment of TaTa medical canter in Kolkata , India. From 2019 taking treatment but it is increasing . Sir I need your suggestion
Thank you
Mahtab uddin
Great presentation, thank you!
Thank you SO much for this video! It is extremely informative! I was diagnosed with a gastric NET but sadly my GI has done an awful job with this process as he’s never encountered this before. Is there any way I can message you with a couple of questions? If I can email you or send a message via a website, please let me know. I could really use some help right now. Thank you so much!
instablaster.
gracias
Thank you sir^^
Dankjewel