I have said it before and will say it again thank you for your videos. They have helped me to explain to my employer the pain I feel in terms of my spine and certain conditions. Its hard for employers to understand since MS is a hidden disease. I am just happy the Lord has still enabled me to work and live life normally. Take care, sir!
Such an amazing Dr. You describe MS symptoms on point. Living with this illness is mega hard & we MS sufferer's are just so grateful & blessed to have you Dr. 🧡 Belinda, Melbourne, Australia 🇭🇲
Yesssss!! 4 very real seasons in Ohio. Sometimes all in the same week. The moving with spasticity to avoid more spasticity is one of the hardest things.
I've learned more from you about MS in the last few weeks ,than I ever learned from my specialists in England,since my first symptom about 7 years ago.thankyou.❤
You’re vídeos helped me a lot in the last 3 years dealing with my MS. I took Mavenclad. And now I feel a lot better and my brain is back. My last MRI was not very good but in January after my birthday my Brain woke up and since then I ambwaitying to do another mri from my Neurologist. Hope will do it soon. My Regards from Portugal. María Inocentes
Thank you for all your videos. It helps me understand my recent diagnosis. I've had lermittes phenomenon for over a year and so many people and doctors looked at me like I crazy which was making me feel crazy until my Cleveland clinic doctor diagnosed me. But so many of this symptoms I've been experiencing and thank you for explaining all this and for all your videos
It’s come to the point that my family no longer asks me how my pain is. I haven’t had an MS hug for a couple of years, but I do get the other three throughout the day. Thank you for making this video, Aaron. Great information
The most frustrating thing is how many doctors today cant handle complex symptoms and fall onto a fibromyalgia diagnosis. Once that diagnosis is given other doctors ignore symptoms.
That's exactly right, my son is in a wheelchair with severe disabilities and pegfeeds. I was told by a specialist Dr at Princess Margaret Hospital here in Perth few yesrs ago, that other Drs were afraid of him. I have two younger daughters with autism and other co-morbid conditions and Damon is my eldest. I have autism too and we look after Damon very well my husband and I. Being a Dr and being afraid of how to look after a beautiful loving child in a wheelchair with disabilities is ridiculous not to mention insulting. Yeah it's tough some days, but it can be done and a cuddle a day plus a gorgeous smile is so worth it.
I was originally diagnosed with MS but thanks to a wonderful MS specialist I found out I don’t have MS but NMO. I have all of these everyday. The spasticity is the worst. I can’t walk very well.
Good evening Dr. Boster, I have not been diagnosed with MS, but do have many of these pains. I have had an MRI of my brain and neck which did not show signs of leigions or MS. I have been diagnosed with peripheral neuropathy, carpal tunnel, migraines with and without aura, and several other things such as Hashimoto's. I know there are so many things that can cause these symptoms. I really appreciate your videos and love learning things you put out.
As always, thank you. My mom once said “not all angels have wings”... where do you hide yours? I share the videos on my FB for friends and family to hopefully watch and understand. You rock!
Thank you. I finally have a better understanding of why lifting weights and using resistance bands helps my spasticity. It also helps with my overall fitness.
Thank you Dr B! The optic neuritis pain was what led to my diagnosis of ms. So painful. I was fine if I looked straight but if I moved a mm it was pain.
Great topic! This has given me a better way of describing what is happening to my body. I often say I've started to walk like Bambi lol. Now i can clearly state i have spasms. This has also helped me identify another symptom of my MS. Thank you Mr Boster
Thanks for the video Dr B. Here's another common cause of Neuropathic pain - a simple daily shower - that I experience!!. I get so fatigued and my entire body hurts for about 1/2 hour after a 5 minute shower - even when I use lukewarm/cold water!
Same with me, my skin reacts to even cold water, hot water is a hard no! I get huge red blotches all over my skin and alot of itching and then I'm exhausted..
when i first started my journey it was. with eye issues. 2000 i went blind. the pain in my eye was awful but it took until 2007 before i had a VEP and in between. eye so much pain, moving eye ball, eye movement ugh. I get spasticity in the morning i can barely move my legs i say they are encased in concrete lol. i have a toe that doesnt know what it wants to do, rise up or go down, the cramp somethimes in my feet is excruitiaing. I went 16 years in MS pain. I have had the itching so bad i made myself bleed, spiders running over my skin, been stung by bees, hands feel like i have put them in a bunch of nettles, the list is endless. thank you Doctor for a brilliant video. i dont feel quite so alone now. x wish we had a specialist like you in my country. Its hard to explain MS pain as sometimes it just sounds mad. so constipated right now and it affects my bladder. ugh. i eat so much fibre fruit and veg i cant understand. I drink lots of water too.
Hi Aaron from VA. Thank you for sharing your videos. I got a new set of symptoms last week. Itchiness from my shoulders up, and Rt half of my neck and Rt ear hurts like I was hit in a boxing match. And the pain mostly feels like a really bad sunburn. It's starting a week later to go down from a 8/10 now to a tolerable 2/10. Getting better but every day is its own. Thank you for the videos, Mike
Thank you Aaron for this informative Video! It's making it way easier to explain to my family and friends how I am feeling every day. Especiall my husband needs explanations when I am in pain. He wants to help meand it leaves him helpless very often. I am trying to make things easier for him and your videos help a lot. I can translate for him and now he knows more about MS pain. Thanks again! Greetings from Lower Franconia/Bavaria/ Germany, Britta
Spasticity life, I moved from California to Oklahoma last month. We had a day of Spring and a day of fake Summer. I think it was an illusion and it's really the 86th day of January.
Dear Dr. Boster, There is a good deal of research study that promise hope in the future, however, these studies have not yet made their way to medical text books yet. For a person diagnosed just last year, I fear that I will be missing out and would regret not trying yet unproven studies early on. As you've mentioned studies have shown that more aggressive treatment seems the way to go to keep the progression slow. Given that, I would love to see videos on your thoughts on Lions Mane, taurine and the Coimbra protocol. It seems that US and Canada have come to a zero tolerance to new lesions while Europe is still on less aggressive DMTs. What is your thoughts on that? Love your work, I can just say thank you.
Thanks Dr. Boster. I have definitely seen an increase in my neuropathic pain over this past year especially when exercising. I have started doing foot soaks with epsom salts and it seems to be helping a bit.
“Itching” For the past 3 weeks I’ve had this very annoying itch on my right arm. I find that applying a hot/cold pad from the freezer helps to temporarily relieve this. It is made from a flannel fabric which is non-irritating to my skin.
Dr Boster another amazing video. You’re analogies are very easy to understand and explain to people what’s going on. I do have a question for your next Q&A video please. I’ve had a stabbing pain within my shoulder for a little over a year now. I’ve found that this pain is triggered by cold and hot temperatures. The colder it is then the more painful it is. I was on gabapentin previously approx 600mg three times a day. The gabapentin done nothing so I’m now off it after speaking to my neurologist. My question is. I have RRMS and I first experienced the pain, before Ocrevus, and had it for over a year now. Is this normal for RRMS? PS when are you doing your cannabis video on different types of cannabis and different ways of taking cannabis?
I got at least 4 of those puzzling and frustrating symptoms, but I will never know what I have until my doctor gives me that MRI I mentioned to him before. And that he will send that MRI to a real specialist to analyze. I can’t have afford to have a doctor at a hospital just breeze over an MRI like nothing is happening.
I was going to ask if there was any connection between MS and looking resulting in nausea and nearly dropping to my knees. I stopped going to air shows 34 years ago because I couldn't enjoy the show.
Would a MS hug cause slipped ribs? I had a case of slipped ribs last year. Pathologic itching was my first symptom over 16 years ago. I was just officially diagnosed with RMS in February 2021. I have experienced everything you have explained in this video. Thank you for sharing this information.
Dysestheia - could bright sunlight hitting my skin feeling like a magnifying glass burning be this???? Its really strange and happens when not that hot out
I share your symptoms! I find myself realizing that I’m absorbing solar radiation and overheating just from that, no matter what activity I’m indulging. I even once tested what I was feeling by having a friend use a laser pointer on the back of my hand and forearm. My eyes were shut and I accurately located the pointer about 75% of the time. So while it does sound crazy, you’re not alone in what you’re feeling.
Dr. Boster, this may be an odd out question but as a medical student is it possible for someone like me to complete medical school/residency and live a fulfilling life as a competent physician with MS? As a newly diagnosed patient, I’m struggling with the ethics of being a physician with CNS impairment. Studying at a U.S. MD school for reference.
I've had pain in my right rib cage since 2004, bad since 2006. I got on the Fyntenal (bad speller) patch, it work for 3weeks out of a month then 5 to 7 days of pain. It was taken from me Jan. 2021. I was put on 5mg hydrocodone At 1/4 of the strength of the patch. Life is bad.
I find that I get random stabs of pain anywhere on my body, for no apparent reason. Today it could be the big toe on my left foot will get a random jab of pain throughout the day. Tomorrow, it could be my right breast. The next day I can be pain free; the next a spot on my bicep gets a stabbing pain. I’ve even experienced what I can only describe as a needle in my eye. I call them my phantom pains. They’re unpredictable and debilitating. I was having them in my left thigh for a couple days. They were so bad that I very nearly fell to the ground in pain. It’s hard to explain to people when you’re talking to them and you suddenly yell out in pain with no obvious cause. I try to keep upbeat about my MS because so many MS Warriors have it so much worse than I. I suffer from dysphagia and I’ll occasionally go through a coughing fit as a result. It was comical to watch people scatter in terror at the beginning of the pandemic. I would have to assure them that I didn’t have COVID, I simply have MS.
Hi Dr Boster! I have vibrations and tightness in my tailbone/saddle area every time I bend my head forward. One of the consultants in hospital referred to it as L'hermittes, however, my sensation is not like the one you describe in this video. I feel no zap, no pain, no electrical shock travelling down, just an intense localised vibration. Is it still L'hermittes or is it something else? I also had this before my MS diagnosis and the MRI at that time showed no lesions. Thank you.
Could you help me please, I'm struggling with issues in my hips and mobility, I get huge electric shocks in hip joint when I try to walk, it has the pain of a shock,but I'm also wondering if its spasticity issues as well because it feels like the muscle/ligaments in that area are refusing to work properly, it feels like my hip joint is jumping out of place, it's very painful and has been going on for months now, my mobility is suffering, and I'm having to use a cane even to get around in my home,please help if you can.
I feel like I have a screwdriver going through my eye, some days it feels like I have burns on my face, sometimes it feels like someone took a crow bar to my face, other times it just feels bruised. I could barely eat or sleep after going to the dentist because it caused such severe pain in my teeth, I seriously wanted to die because nothing would help the pain. I take Topamax and I feel like Amitriptyline in the evening really works for bad days.
I have said it before and will say it again thank you for your videos. They have helped me to explain to my employer the pain I feel in terms of my spine and certain conditions. Its hard for employers to understand since MS is a hidden disease. I am just happy the Lord has still enabled me to work and live life normally. Take care, sir!
#StrongerTogether #WeHaveMS BosterMS.com
Just listening to you makes me happy!
Thankyou so much for explaining MS pain more clearly than my doctors have!!
I have found out more about MS from you in 5 months ,than I have in 5 years from my team in UK .thankyou.
Such an amazing Dr.
You describe MS symptoms on point.
Living with this illness is mega hard & we MS sufferer's are just so grateful & blessed to have you Dr.
🧡 Belinda, Melbourne, Australia 🇭🇲
Yesssss!! 4 very real seasons in Ohio. Sometimes all in the same week. The moving with spasticity to avoid more spasticity is one of the hardest things.
👑
Southern Lower Michigan here, Snow last week & 81 today.
It's so much fun... 😄
Makes me more confident in my decision to take the LEAP and move to you as my MS neurologist! Awesome video
I would give a year of my life to have this man as my MS neurologist.
It’s so hard to explain especially when you’re in the midst of pain. Great explanations Doc. Sharing is caring. #WehaveMS ❤️
I've learned more from you about MS in the last few weeks ,than I ever learned from my specialists in England,since my first symptom about 7 years ago.thankyou.❤
You’re vídeos helped me a lot in the last 3 years dealing with my MS. I took Mavenclad. And now I feel a lot better and my brain is back. My last MRI was not very good but in January after my birthday my Brain woke up and since then I ambwaitying to do another mri from my Neurologist. Hope will do it soon. My Regards from Portugal. María Inocentes
Thank you for all your videos. It helps me understand my recent diagnosis. I've had lermittes phenomenon for over a year and so many people and doctors looked at me like I crazy which was making me feel crazy until my Cleveland clinic doctor diagnosed me. But so many of this symptoms I've been experiencing and thank you for explaining all this and for all your videos
It’s come to the point that my family no longer asks me how my pain is. I haven’t had an MS hug for a couple of years, but I do get the other three throughout the day. Thank you for making this video, Aaron. Great information
The pain has just become a part of my life now. It is no joke. I have to keep it moving as much as I can.
The most frustrating thing is how many doctors today cant handle complex symptoms and fall onto a fibromyalgia diagnosis. Once that diagnosis is given other doctors ignore symptoms.
Nailed it!
That's exactly right, my son is in a wheelchair with severe disabilities and pegfeeds. I was told by a specialist Dr at Princess Margaret Hospital here in Perth few yesrs ago, that other Drs were afraid of him. I have two younger daughters with autism and other co-morbid conditions and Damon is my eldest. I have autism too and we look after Damon very well my husband and I. Being a Dr and being afraid of how to look after a beautiful loving child in a wheelchair with disabilities is ridiculous not to mention insulting. Yeah it's tough some days, but it can be done and a cuddle a day plus a gorgeous smile is so worth it.
@@barbaramarshall5271 many prayers of blessings for your family
I was originally diagnosed with MS but thanks to a wonderful MS specialist I found out I don’t have MS but NMO. I have all of these everyday. The spasticity is the worst. I can’t walk very well.
What is NMO?
Good evening Dr. Boster,
I have not been diagnosed with MS, but do have many of these pains. I have had an MRI of my brain and neck which did not show signs of leigions or MS. I have been diagnosed with peripheral neuropathy, carpal tunnel, migraines with and without aura, and several other things such as Hashimoto's. I know there are so many things that can cause these symptoms.
I really appreciate your videos and love learning things you put out.
As always, thank you. My mom once said “not all angels have wings”... where do you hide yours? I share the videos on my FB for friends and family to hopefully watch and understand. You rock!
Spasticity is a curse when you're heat intolerant 😓
It truly is!
I'm cold intolerant. We had a cold front roll through last week, and it triggered a severe spasticity episode.
I’m both heat and cold intolerant and I definitely suffer from spasticity.
Thank you. I finally have a better understanding of why lifting weights and using resistance bands helps my spasticity. It also helps with my overall fitness.
Thank you Dr B! The optic neuritis pain was what led to my diagnosis of ms. So painful. I was fine if I looked straight but if I moved a mm it was pain.
Great topic! This has given me a better way of describing what is happening to my body. I often say I've started to walk like Bambi lol. Now i can clearly state i have spasms.
This has also helped me identify another symptom of my MS.
Thank you Mr Boster
Thanks for the video Dr B. Here's another common cause of Neuropathic pain - a simple daily shower - that I experience!!. I get so fatigued and my entire body hurts for about 1/2 hour after a 5 minute shower - even when I use lukewarm/cold water!
Same with me, my skin reacts to even cold water, hot water is a hard no! I get huge red blotches all over my skin and alot of itching and then I'm exhausted..
Well said!
Another great video. This will help me explain some of my symptoms to family and friends. Thank again Dr. Boster
Thankyou for doing this one, so much appreciated. Have a great day.🌅
You are so welcome!
Wow! You described my pains exactly like what I go through..crazy!
Thank you for another informative video. Truly helps me and my family xxx
Thanks for the video Doc. Thank God I was put on baclofen because my spasms were violent.
AMEN to that statement.
when i first started my journey it was. with eye issues. 2000 i went blind. the pain in my eye was awful but it took until 2007 before i had a VEP and in between. eye so much pain, moving eye ball, eye movement ugh. I get spasticity in the morning i can barely move my legs i say they are encased in concrete lol. i have a toe that doesnt know what it wants to do, rise up or go down, the cramp somethimes in my feet is excruitiaing. I went 16 years in MS pain. I have had the itching so bad i made myself bleed, spiders running over my skin, been stung by bees, hands feel like i have put them in a bunch of nettles, the list is endless.
thank you Doctor for a brilliant video. i dont feel quite so alone now. x wish we had a specialist like you in my country. Its hard to explain MS pain as sometimes it just sounds mad.
so constipated right now and it affects my bladder. ugh. i eat so much fibre fruit and veg i cant understand. I drink lots of water too.
#StrongerTogether Hedgehog & Wildlife Junction. #WeHaveMS
Hi Aaron from VA.
Thank you for sharing your videos.
I got a new set of symptoms last week. Itchiness from my shoulders up, and Rt half of my neck and Rt ear hurts like I was hit in a boxing match. And the pain mostly feels like a really bad sunburn. It's starting a week later to go down from a 8/10 now to a tolerable 2/10. Getting better but every day is its own.
Thank you for the videos,
Mike
Thank you for the video on pain. Enjoying my coffee in hand in this four season pain center i of Lyndhurst Ohio.
Wow-Always learn more from you !
Glad to hear that!
Thank you Aaron for this informative Video! It's making it way easier to explain to my family and friends how I am feeling every day. Especiall my husband needs explanations when I am in pain. He wants to help meand it leaves him helpless very often. I am trying to make things easier for him and your videos help a lot. I can translate for him and now he knows more about MS pain. Thanks again! Greetings from Lower Franconia/Bavaria/ Germany, Britta
Glad it was helpful Britta! It's wonderful to hear from you and I hope that you are well!
Well said, Dr. Boster. Thank you. 👍 You’re awesome. Y
Sincerely, your Massillon patient. Terri
Spasticity life, I moved from California to Oklahoma last month. We had a day of Spring and a day of fake Summer. I think it was an illusion and it's really the 86th day of January.
You left out the bugs crawling all over your skin.
Dear Dr. Boster,
There is a good deal of research study that promise hope in the future, however, these studies have not yet made their way to medical text books yet.
For a person diagnosed just last year, I fear that I will be missing out and would regret not trying yet unproven studies early on. As you've mentioned studies have shown that more aggressive treatment seems the way to go to keep the progression slow. Given that, I would love to see videos on your thoughts on Lions Mane, taurine and the Coimbra protocol.
It seems that US and Canada have come to a zero tolerance to new lesions while Europe is still on less aggressive DMTs. What is your thoughts on that?
Love your work, I can just say thank you.
Thanks Dr. Boster. I have definitely seen an increase in my neuropathic pain over this past year especially when exercising. I have started doing foot soaks with epsom salts and it seems to be helping a bit.
Thanks for sharing!
I have trigeminal neuralgia. And it sucks. 🥺
Thank you, your comments are always helpful and welcome. 😊
You’re welcome 😊
“Itching” For the past 3 weeks I’ve had this very annoying itch on my right arm. I find that applying a hot/cold pad from the freezer helps to temporarily relieve this. It is made from a flannel fabric which is non-irritating to my skin.
Thank you very much for sharing your thoughts and facts.
Thank you for the info. Very helpful!
You're welcome!
Thank you so much 🌟
Any time!
Thank you for all the hard work you put into making these videos.
Dr Boster another amazing video. You’re analogies are very easy to understand and explain to people what’s going on.
I do have a question for your next Q&A video please.
I’ve had a stabbing pain within my shoulder for a little over a year now. I’ve found that this pain is triggered by cold and hot temperatures. The colder it is then the more painful it is. I was on gabapentin previously approx 600mg three times a day. The gabapentin done nothing so I’m now off it after speaking to my neurologist. My question is. I have RRMS and I first experienced the pain, before Ocrevus, and had it for over a year now. Is this normal for RRMS?
PS when are you doing your cannabis video on different types of cannabis and different ways of taking cannabis?
I have no lesions in my spine but regularly get the MS hug
Good Morning, Dr. B. Would love to hear your thoughts on I-ViG vs steroid therapy to stop an attack.
I got at least 4 of those puzzling and frustrating symptoms, but I will never know what I have until my doctor gives me that MRI I mentioned to him before. And that he will send that MRI to a real specialist to analyze. I can’t have afford to have a doctor at a hospital just breeze over an MRI like nothing is happening.
Thank You.
You're welcome
I was going to ask if there was any connection between MS and looking resulting in nausea and nearly dropping to my knees. I stopped going to air shows 34 years ago because I couldn't enjoy the show.
Would a MS hug cause slipped ribs? I had a case of slipped ribs last year.
Pathologic itching was my first symptom over 16 years ago. I was just officially diagnosed with RMS in February 2021.
I have experienced everything you have explained in this video. Thank you for sharing this information.
Wow super great doctor
Good afternoon DR.
Is Tinnitus related to MS? My audiologist has told me the Tinnitus is a neurological condition.
Ohio sounds like Melbourne in Victoria, four seasons in a day. I definitely get the symptoms of MS I just have to find a neurologist in Perth to help.
Dysestheia - could bright sunlight hitting my skin feeling like a magnifying glass burning be this???? Its really strange and happens when not that hot out
I share your symptoms! I find myself realizing that I’m absorbing solar radiation and overheating just from that, no matter what activity I’m indulging. I even once tested what I was feeling by having a friend use a laser pointer on the back of my hand and forearm. My eyes were shut and I accurately located the pointer about 75% of the time. So while it does sound crazy, you’re not alone in what you’re feeling.
Dr. Boster, this may be an odd out question but as a medical student is it possible for someone like me to complete medical school/residency and live a fulfilling life as a competent physician with MS? As a newly diagnosed patient, I’m struggling with the ethics of being a physician with CNS impairment. Studying at a U.S. MD school for reference.
Yay
Lhermitte was the starting point, but it's gone now. Pins and needles are what's worst.
I've had pain in my right rib cage since 2004, bad since 2006. I got on the Fyntenal (bad speller) patch, it work for 3weeks out of a month then 5 to 7 days of pain. It was taken from me Jan. 2021. I was put on 5mg hydrocodone At 1/4 of the strength of the patch. Life is bad.
I find that I get random stabs of pain anywhere on my body, for no apparent reason. Today it could be the big toe on my left foot will get a random jab of pain throughout the day. Tomorrow, it could be my right breast. The next day I can be pain free; the next a spot on my bicep gets a stabbing pain. I’ve even experienced what I can only describe as a needle in my eye. I call them my phantom pains. They’re unpredictable and debilitating. I was having them in my left thigh for a couple days. They were so bad that I very nearly fell to the ground in pain. It’s hard to explain to people when you’re talking to them and you suddenly yell out in pain with no obvious cause.
I try to keep upbeat about my MS because so many MS Warriors have it so much worse than I. I suffer from dysphagia and I’ll occasionally go through a coughing fit as a result. It was comical to watch people scatter in terror at the beginning of the pandemic. I would have to assure them that I didn’t have COVID, I simply have MS.
The shocking I have happens in the non textbook areas. Lower ribs and collar bones. And it's not associated with neck movement.
Hi Dr Boster! I have vibrations and tightness in my tailbone/saddle area every time I bend my head forward. One of the consultants in hospital referred to it as L'hermittes, however, my sensation is not like the one you describe in this video. I feel no zap, no pain, no electrical shock travelling down, just an intense localised vibration. Is it still L'hermittes or is it something else? I also had this before my MS diagnosis and the MRI at that time showed no lesions. Thank you.
Could you help me please, I'm struggling with issues in my hips and mobility, I get huge electric shocks in hip joint when I try to walk, it has the pain of a shock,but I'm also wondering if its spasticity issues as well because it feels like the muscle/ligaments in that area are refusing to work properly, it feels like my hip joint is jumping out of place, it's very painful and has been going on for months now, my mobility is suffering, and I'm having to use a cane even to get around in my home,please help if you can.
I wish i could get online observation by you. My neurologist seems like she's is a "rookie".
BosterMS.com or call us at 614-304-3444 to schedule a consultation
My pain got so unbearable it caused a relapse and made a new lesion which was 1.5 cm .
The headachs are off the chart with m.s. my god i find myself with my head between my legs in the fetal position in a dark room almost every day 😞
I feel like I have a screwdriver going through my eye, some days it feels like I have burns on my face, sometimes it feels like someone took a crow bar to my face, other times it just feels bruised. I could barely eat or sleep after going to the dentist because it caused such severe pain in my teeth, I seriously wanted to die because nothing would help the pain. I take Topamax and I feel like Amitriptyline in the evening really works for bad days.
Also a magnesium soak calling living the good life naturally. I think that has helped when I have really bad days.
Can I come see you? Where are you at?