Melissa - "Living with FKBP14-Related kyphoscoliotic Ehlers-Danlos syndrome."

[@ashleym1565]

Sending love to you! I hope you are doing well!

[@ashm676]

Hi from Ireland 😊 I have kEDS too. Very little known here about it. Is it so rare that there's less than 50 of us globally?

[@carolkerekes2873]

Thank you for your Courage and testimony!! In my thoughts and Prayers! Zebra strong🙋🏻✝🙏🏻💜

[@ashm676]

Where is that kEDS group? I'm not on social media...

[@laura-leebisbal1807]

Thank you so much for this post.

[@kristincarrick6236]

Hi.. i live in Oshkosh, wi and a 48....falling apart and know noone and hae been fighting fir over 30 years. Would love to meet you.