Hello and Happy Friday to you Beautiful Daniella. Got to love googling to help us. 😊The best medicine for us fighting through our chronic pain and illnesses, our fur babies make it all better. ❤️🩹My fibromyalgia and chronic pain/fatigue plus more symptoms issues are at max levels, but once I sit and start cuddling my two chihuahua’s fur babies, all my ickyness goes away for a bit. When we get into any pickles, our fur babies to the rescue to help us. 🐶🐾 ❤️Lots of love and shining light to you and all. 🙏🏻🦋💗🌞🌈❤️🩹🍀🌹🕊️🌟🦋
Happy Friday to you too, lovely. You’re so right, there’s nothing quite like the love of our fur babies to help us through those tough days. Your little chihuahuas sound like such sweethearts, and I can just picture them snuggling up with you and melting all that “ickyness” away for a bit. I’m sorry to hear your fibromyalgia and chronic pain have been bad lately, but it sounds like you’ve got the best little companions to keep your spirits up when things get rough. Sending lots of love and light right back to you and your adorable fur babies. ❤️🐾
I see you❤ and I do both! I get to be adventurous when the weather is sunny and not too humid but I also carefully plan stays or getaways that last longer than two days. I try to always consider the weather and add time to rest in between days to make the most of it.
I love how intentional you are about making the most of the good days while planning for rest. And trust me, I get that “paying the price of living life” frustration. It’s so real You’ve got this balance thing down better than you probably even realize. Thanks for sharing, it’s a reminder to me (and probably a lot of others here) to plan smarter and not feel guilty about the rest days ❤️
I can’t do as much as you, hiking, travelling, the most I can do is go to the shops with one of kids for example, but yes I do it, and yes I sure pay the price. Luna is so precious. I hope your allergies are under control now, scary things they are (to me anyways). Hope today is a good day xxx
Oh Cathie, I get it. Just going to the shops can feel like a whole expedition when you’re dealing with so much. It’s not about comparing what we can or can’t do, it’s about making the most of those moments, even if they’re small. Just getting out with one of your kids and tackling the shops is still a big win in my book. And yeah, paying the price afterward is all too familiar. Just remember that what you see on RUclips is really just the highlight reel of my life, the moments when I’m able to push through and do something special. But what’s behind the scenes is a completely different story. Before and after any event, I often don’t leave my house for days, sometimes even weeks. There are stretches where I’m so drained that I can’t even leave my bed. It’s a cycle of saving up every bit of energy for those moments that bring me joy or let me connect with the world. But the toll it takes afterward is something you don’t see on camera very often. And this is why I think it's important to make videos like this one. I share those highlights because they’re the moments that make me feel alive and remind me why I keep going, even when it’s hard. But trust me, I understand the realities of pacing, flares, and paying the price for living life. It’s just part of the reality for so many of us. Luna really is such a little ray of sunshine, she’s been such a comfort to me. Thank you for asking about my allergies! I had a pretty bad attack and was left in bed in agony for 3 days. I cough so bad that it feels like I've been in a car accident afterwards. And the worst part is that there is no rhyme or reason for them. I hope today’s treating you kindly, and that you’re able to rest up when you need to. Sending you big hugs from across the miles, my friend. You’re doing amazing, even on the tough days. 💕
@@tt_looking_glass. Oh I understand what you mean about it sometimes being a highlight reel, even I take just a photo to prove I went out. I also appreciate when you show or just say when things are being rough on you, you’ve made your channel so real and relatable. I thank you for that. I’m sorry about your allergies and especially since there was no notable reason for them, how frustrating. Anyways, love to you and Luna, hope tonight is treating you well. xxx
I was just thinking about when I was in my 20's... I'd work all day and play all night. Now I carefully make choices. I remember when I came down with fibro. I think it had something to do with a tramautic event on my body. I gave birth at 40. I didn't think I could have children and surprise! But I chose her and my daughter is my life. I sure wish you and I were friends next door to each other.. man, the stories we would share. I searched and I can't figure out why I didn't get the notification of your upload. No matter. Found you now and I always watch and look forward to your videos.. Hugs from Michigan!
Your comment really touched me. It’s amazing to look back at how life changes, isn’t it? Becoming a mom at 40? That’s such a beautiful twist in your story. It sounds like your daughter is such a blessing, and I love how you said you chose her, that just radiates so much love. ❤️ If we were neighbours I just know we’d have endless chats and probably way too much tea or coffee together! 😊 And about the notifications, RUclips has been kind of weird about that. I try to post every Friday so it's probably best to check the channel of Fridays. Thanks for being here
Love both videos and it is so inspiring to hear your reasoning and how you feel about the concept of living life even if we need to pay a steep price for it ❤️
Thank you so much, Jessie! It’s a tough balance, isn’t it? Pushing through and making memories while knowing the toll it takes. But I think those moments of joy and connection make the price a little more bearable.
Hi Daniela, I watched your Letchworth video a few days ago and I hoped that spending time in the great outdoors would be a healing experience for you. I’m sorry you’re having so much pain but it’s still great that you don’t regret taking that long spontaneous hike with your friend. It looks like you have to be always on the go to feel truly happy and alive, and you can accept and live with the results. That’s what makes you you, and it’s great. Luna is such a sweet puppy! She has that playful and optimistic look on her face because she’s found her forever home. Our newest cat, Eva Marie, is a stray that we took in two winters ago. She was pregnant and we were really looking forward to fostering her kittens but they were stillborn because she couldn’t scrounge up enough food while she was on her own. She just adores my wife and she’s taken over the running of our household. Whenever we color or play board games, or even try to eat at the kitchen table she is always right there, losing our Scrabble tiles, rolling our pencils onto the floor, and trying to steal food from our plates. To some she might sound like a pain in the neck but she’s our spoiled little baby and a great addition to our little family. I hope you’re feeling better soon, and my wife and I are sending big virtual hugs and lots of love your way.❤❤❤
Spending time in nature did bring some much-needed peace, even if it came with a price afterward. It’s like those moments of feeling truly alive make the aftermath a little easier to accept, you know? Luna definitely brings so much joy, she’s my little reminder to stay present, even on the tough days. Eva Marie sounds like such a character! What a sweetheart, and it’s so beautiful that you gave her a loving home after everything she went through. Sending so much love back to you and your wife. You’ve created such a warm, loving space for those around you, both human and animal. That’s something truly special.
Hi friend! SO SORRY I have been MIA. I really missed you! I ended up getting diagnosed with more chronic illnesses, and one of them is scary to me. I was clinging to Jesus like tomorrow wasn't coming! It's SO good to see your face again! For me, I push it too, but that's starting to change because my husband is finally starting to understand that I can't do what I used to do. Went hiking 2 times, and that caused my SI joint to go out of place on the left side. I'm probably going to get the whole "you're going to need back surgery" deal, and I'm going to say NO. I have Ankylosing Spondylitis that is progressing very very quickly. But it was the EDS that caused my SI joint to go out of place. That's the story. Also diagnosed with myalgia. It doesn't end. You are such a bright light for people like us, and I truly missed you dearly! I'm sending you so much love, Daniella ❤️!
Oh Amanda, my sweet friend, I’ve missed you so much too! First off, don’t ever apologize for being MIA. Life with chronic illnesses is an absolute rollercoaster, and just showing up when you can is more than enough. I’m so sorry to hear about all these new diagnoses. I totally understand, and my heart is with you. ❤️ I’m so glad your husband is starting to see and understand what you’re going through. It makes such a difference to feel truly seen. I’m sending you the biggest, warmest virtual hug right now, and please know I’m here whenever you need to vent. You’ve got this, even when it doesn’t feel like it.
I have been in such a bad flare since August. Even doing groceries or cooking/cleaning puts me out for days. I hate feeling like this. I used to do so much, and now I feel like I have no life. Constant pain, mood issues from pain, fatigue has been my life over the last decade but SO bad over the last year.
I'm so sorry you're going through this. I feel so bad because I know how it feels. I can only plan one thing a day. Either work and nothing else or grocery and nothing else, etc. I hope a medical person has got you in their hands and you are getting some care.
Oh Angie, I totally get how overwhelming this feels. It’s like your body decides the rules, and no matter how much you try, it keeps moving the goalposts. What you’re describing hits so close to home, grieving the things you used to do and trying to find a way through when it feels like pain and fatigue take up all the space. I just want to say, you’re doing so much more than you realize just by showing up, even on the hardest days. That strength deserves to be acknowledged, even when it doesn’t feel like enough. We’re all here to listen whenever you need to vent. It really means a lot that you shared this, and I know it’s something so many of us can relate to. You’ve got a whole community behind you rooting for brighter days ahead. ❤️
Oh, Jane, I feel this so deeply. It’s such a cruel cycle, isn’t it? You get a little energy, you want to catch up on everything you’ve been missing or putting off, and then…bam, you’re paying for it afterward. I’ve been there so many times, and it’s like this constant tug-of-war between wanting to live and knowing your body has limits. And honestly, sometimes it feels worth it in the moment, just to feel like yourself again. But then comes the crash, and it’s so frustrating and exhausting.
In my last vlog I was preparing spinach ready to freeze. I had been doing this for a couple of days along with housework. I paid for that immediately the next day.
Oh, I totally get that! It’s like you push through to get things done, feeling good in the moment because you’re being productive, but then the next day? Boom, your body makes you pay for it. It’s such a frustrating cycle, isn’t it? You want to keep up with life’s demands and feel accomplished, but the price you pay afterward makes it so hard. Sending you gentle hugs and hoping you can get some good rest to recover from all that effort. ❤️
@ thanks Daniella! Sending gentle hugs your way too! The ironic part was the video title was “having a slightly better day”. That didn’t last long at all 😂
Hello lovely, I'm so sorry you're paying the price for the trip you took, I really hope it eases up soon for you. When I got home from my holiday to Canada & US a few months ago, I was in so much pain but to me paying the price from meeting you, my friends and making memories is priceless and I don't regret it one bit. I'm coming back to Canada at the end of May next year for a wedding and not even my body is going to stop me from missing that. There are days where I do struggle so much to the point I'm stuck in bed, but living on my own I have to get my own food, drink and I have no one to help me to the bathroom etc. So there are times where things aren't worth paying the price for but if you're doing something you love, such as taking trips or meeting up with friends then I think it's worth paying the price. Luna is so adorable with her pumpkin sweater on, my heart just exploded! ❤
I feel so connected to your words. Paying the price for those meaningful experiences is such a bittersweet reality, isn’t it? I can imagine how much that trip took out of you, but meeting friends and making memories, even when it comes at a cost, can be so soul-filling. Make sure to get in touch when you do come back. And Luna, oh my heart! She brings me so much joy, and I’m so happy she brought a little smile to your day too. Sending you strength and love as you keep pushing through, you’ve got such a beautiful perspective, and I truly admire your spirit. ❤️
Oh Daniela, I am so sorry you are going through this now. But I do feel that this memory you made has given you much joy! I watched that video as well, and I saw how it brought you peace and happiness! I know for me too, I try to push through the pain in order to really take in the joys of this life. I am so happy for you that you got to do this special trip! Plus I love seeing your new fur baby!! How precious!! Is her name Luna?....I sure can see how much fun and joy she is bringing you! Our kitty Scooter is so loving too.....He helps so very much especially now with my husband's illness. Our fur babies are so very special Daniela and the unconditional love they bring us is such a blessing!! Sending many well wishes and love and hugs to you dear lady! ! You always keep me inspired and keep me pushing forward!! 🫂🫂💝💝 Geri And thank you for sharing these videos with us!!
You’re so right; even though it’s hard to push through the pain, those joyful moments and special memories make it worth it. I’m so glad that came through in the video. Luna really is such a blessing, she’s brought so much light into my life with her playful, loving energy. It’s amazing how our fur babies just know how to fill our hearts, even on the toughest days. Scooter sounds like such a sweet soul, especially with everything you and your husband are going through. That unconditional love they give us really is like a lifeline, isn’t it? I hope he keeps bringing you those moments of comfort and joy. Thank you for sharing your story and for always being such a kind, encouraging presence here. It lifts me up to know that I can help inspire you even a little bit. Sending you so much love, hugs, and strength.
@@tt_looking_glass You are so kind Daniela, and so insightful! Thank you for your words of encouragment to me! You are a blessing to my heart! I am so very grateful I found you!! 💝❤🥰 Geri
The constant mental math of weighing the price of doing something is exhausting on its own, let alone the pain that follows. Even when you decide to push through, sometimes the aftermath just feels too overwhelming to make it worth it. It’s such a tough cycle.
I’m sorry you had to pay such a high price for having a nice time. I feel like my life just keeps getting smaller because of health issues. I know I’m blessed and that a lot of people have it so much worse than me. Nevertheless, it’s still frustrating. Your new puppy is precious!!
It’s so hard when health issues shrink your world like that. It’s frustrating, even when you try to stay grateful for the blessings you do have. I feel the same way sometimes, and it’s okay to acknowledge that both things can be true.
Hi Daniela. 🙂I'm posting again because I really care that you finally find relevant answers that explain everything. I see you as a very nice person ♥and I wish you to stop being stuck in the eternal carousel of limitations. That's why I last mentioned the starch solution, or a lifestyle where you keep fat in your diet to almost zero. As presumptuous as it may sound, I am deeply convinced that you have a condition called Very Long Chain Acyl CoA Dehydrogenase Deficiency (VLCADD). You cant break down very long chain fatty acids into energy and you end up with mitochondrial dysfunction. Trust me Daniela and get it checked. Also, trust me that if I write to you that it might take a few months for you to heal, just hang in there and continue like this forever. It may be hard to believe, but yes, you can be healthy like never before and forever. 🙂
First, thank you so much for caring enough to write again and share your thoughts with such kindness and heart. I’ll definitely keep your suggestion in mind and look into it.
Oh, I hear you loud and clear, it’s like there’s no such thing as “free” energy. No matter how careful we try to be, the price tag always shows up later.
Haha, you know, I think you might be onto something! Luna does have a bit of a dramatic streak. She has us wrapped up on her fingers though, or should I say her paws? 🐾😂
Luna? Like the famous black panther on RUclips? At least for cats black seems to be a species unto itself. Nobody can look at you like a black cat. It'll be a journey to see what black puppies are like.
@@lumberlikwidator8863 getting the butt? I think that's more of a dog fake insult. No I wouldn't put it past Kitty's borrowing that from their dog brethren
Congratulations on having something decent to take. Why not try this. Only push it during the flare? Why do thst I mean who does that? Obviously nobody nobody's tried that ever. Might seem a little worse than you could have predicted except maybe a little less duration. Please disregard if the pain pill were talking about is tramadol
Honestly, the whole “try this during a flare” thing hits home because, wow, it’s such a gamble, right? Like, you're sitting there wondering if it'll help or if you just signed yourself up for a harder time. I feel you on the unpredictability of it all, every flare feels like rolling the dice. Sometimes even the “decent” options feel like a trade-off, but it’s all about figuring out what might get us through the storm.
@@tt_looking_glass only the most giant gamble ever. Where you know who owns all the cards. The 3-week flare of September which begins on August 29th is bad enough. August 29th as a starting point the next flare r is 32 days after that which is September 30th thus September is a two-flare month. 32 days after September 30th is November 1st. 32 days after November 1st is December 3rd what do you know my very first flair date. That was 2012 December 3rd . 32 days after December 3rd is January 4th. January is the next 3 week flair month. If I recall? You went camping at the end of September during a flare. How could you know? You just survived the hell that which is the primary flare of September. Knowing the 32 day between flare dates. When you posted your camping video? I didn't know there was two fiares s in September until I did the math. I didn't have the heart to tell you. Sometimes I feel like the devil himself a deliverer of bad news. Please mark these dates on your calendar they are regulars rain. Just remember the flare r becomes the weather not the other way around.
Hi, het is een jaar gelden dat ik nog eens langs jou youtube kanaal langs kom. Hier in belgie is het weer te koud om lang buiten te blijven. Het kost me veel energie om mijn lichaams temperatuur op peil te houden. Dus ben nu meer huis gebonden. Weet je dat er op youtube goede videos zijn waar er goede sport oefeningen zijn om je conditie op peil te houden?Nog steeds gefrustreerd in het vinden in de balans van inspanning en rust te vinden zie ik in de laaste videos. Jammer is een herhaling ben percies een jaar niet weg geweest had gehoopt op andere soort videos. Tip maak minder videos veel te veel druk voor je. Sociale media zijn energie vreters. Groetjes stijn
Hi Stijn, it’s so nice to see you back on my channel! It sounds like things have been really tough for you, especially now that it’s getting colder. I completely understand how much energy it takes just to keep your body temperature regulated, and how that can leave you stuck at home. Finding that balance between activity and rest is such a challenge, and I struggle with it all the time too. Videos with good exercises to maintain fitness can definitely help, but I know how hard it can be to even find the energy to do them. And you’re so right, social media can be such a drain on energy. I’m really trying to be mindful of how much I take on so I don’t overdo it. Hang in there in Belgium, and I hope you can find some warmth and rest during these colder months. Sending you lots of good vibes and strength, and thank you so much for your kind message! ❤️
Dank u, wintertijd en verandering van het uur vraagt veel van mijn lichaam. Het missen van een ritje op mijn ebike bij goede dagen in de natuur werkjes in de groenten tuin valt weg. Het vinden van een nieuwe dagelijkse routine is een hele uitdaging steeds opnieuw. Het is zeer verleidelijk deze op te vullen met schermtijd. Slow living is de sleutel en de dingen mindfull te doen. Het enige aan de winter tijd wat leuk is het genot van de woodstoof de warmte en de flammen te kijken beter dan televisie. Een goede dagelijkse routine voor mensen die huis gebonden zijn in de winter zou mss een goed idee zijn om een nieuwe video te maken? Eten binnhuis huis oefeningen, hoeveel en kwaliteit schermtijd, avond routine om een zo goed mogelijk slaap te hebben enzo.. grtj
Hello and Happy Friday to you Beautiful Daniella. Got to love googling to help us. 😊The best medicine for us fighting through our chronic pain and illnesses, our fur babies make it all better. ❤️🩹My fibromyalgia and chronic pain/fatigue plus more symptoms issues are at max levels, but once I sit and start cuddling my two chihuahua’s fur babies, all my ickyness goes away for a bit. When we get into any pickles, our fur babies to the rescue to help us. 🐶🐾 ❤️Lots of love and shining light to you and all. 🙏🏻🦋💗🌞🌈❤️🩹🍀🌹🕊️🌟🦋
Happy Friday to you too, lovely. You’re so right, there’s nothing quite like the love of our fur babies to help us through those tough days. Your little chihuahuas sound like such sweethearts, and I can just picture them snuggling up with you and melting all that “ickyness” away for a bit.
I’m sorry to hear your fibromyalgia and chronic pain have been bad lately, but it sounds like you’ve got the best little companions to keep your spirits up when things get rough.
Sending lots of love and light right back to you and your adorable fur babies. ❤️🐾
I see you❤ and I do both! I get to be adventurous when the weather is sunny and not too humid but I also carefully plan stays or getaways that last longer than two days. I try to always consider the weather and add time to rest in between days to make the most of it.
I love how intentional you are about making the most of the good days while planning for rest.
And trust me, I get that “paying the price of living life” frustration. It’s so real
You’ve got this balance thing down better than you probably even realize. Thanks for sharing, it’s a reminder to me (and probably a lot of others here) to plan smarter and not feel guilty about the rest days ❤️
I can’t do as much as you, hiking, travelling, the most I can do is go to the shops with one of kids for example, but yes I do it, and yes I sure pay the price. Luna is so precious. I hope your allergies are under control now, scary things they are (to me anyways). Hope today is a good day xxx
Oh Cathie, I get it. Just going to the shops can feel like a whole expedition when you’re dealing with so much. It’s not about comparing what we can or can’t do, it’s about making the most of those moments, even if they’re small. Just getting out with one of your kids and tackling the shops is still a big win in my book. And yeah, paying the price afterward is all too familiar.
Just remember that what you see on RUclips is really just the highlight reel of my life, the moments when I’m able to push through and do something special. But what’s behind the scenes is a completely different story. Before and after any event, I often don’t leave my house for days, sometimes even weeks. There are stretches where I’m so drained that I can’t even leave my bed.
It’s a cycle of saving up every bit of energy for those moments that bring me joy or let me connect with the world. But the toll it takes afterward is something you don’t see on camera very often. And this is why I think it's important to make videos like this one.
I share those highlights because they’re the moments that make me feel alive and remind me why I keep going, even when it’s hard. But trust me, I understand the realities of pacing, flares, and paying the price for living life. It’s just part of the reality for so many of us.
Luna really is such a little ray of sunshine, she’s been such a comfort to me. Thank you for asking about my allergies! I had a pretty bad attack and was left in bed in agony for 3 days. I cough so bad that it feels like I've been in a car accident afterwards. And the worst part is that there is no rhyme or reason for them.
I hope today’s treating you kindly, and that you’re able to rest up when you need to. Sending you big hugs from across the miles, my friend. You’re doing amazing, even on the tough days. 💕
@@tt_looking_glass. Oh I understand what you mean about it sometimes being a highlight reel, even I take just a photo to prove I went out. I also appreciate when you show or just say when things are being rough on you, you’ve made your channel so real and relatable. I thank you for that. I’m sorry about your allergies and especially since there was no notable reason for them, how frustrating. Anyways, love to you and Luna, hope tonight is treating you well. xxx
I was just thinking about when I was in my 20's... I'd work all day and play all night. Now I carefully make choices. I remember when I came down with fibro. I think it had something to do with a tramautic event on my body. I gave birth at 40. I didn't think I could have children and surprise! But I chose her and my daughter is my life. I sure wish you and I were friends next door to each other.. man, the stories we would share. I searched and I can't figure out why I didn't get the notification of your upload. No matter. Found you now and I always watch and look forward to your videos.. Hugs from Michigan!
Your comment really touched me. It’s amazing to look back at how life changes, isn’t it? Becoming a mom at 40? That’s such a beautiful twist in your story. It sounds like your daughter is such a blessing, and I love how you said you chose her, that just radiates so much love. ❤️
If we were neighbours I just know we’d have endless chats and probably way too much tea or coffee together! 😊 And about the notifications, RUclips has been kind of weird about that. I try to post every Friday so it's probably best to check the channel of Fridays. Thanks for being here
I hope you’ll feel better soon.
I always have to pay and i choose carefully.
I try to find special moments and fun in small things at home.
thank you. ♥️
Love both videos and it is so inspiring to hear your reasoning and how you feel about the concept of living life even if we need to pay a steep price for it ❤️
Thank you so much, Jessie!
It’s a tough balance, isn’t it? Pushing through and making memories while knowing the toll it takes. But I think those moments of joy and connection make the price a little more bearable.
Hi Daniela, I watched your Letchworth video a few days ago and I hoped that spending time in the great outdoors would be a healing experience for you. I’m sorry you’re having so much pain but it’s still great that you don’t regret taking that long spontaneous hike with your friend. It looks like you have to be always on the go to feel truly happy and alive, and you can accept and live with the results. That’s what makes you you, and it’s great. Luna is such a sweet puppy! She has that playful and optimistic look on her face because she’s found her forever home. Our newest cat, Eva Marie, is a stray that we took in two winters ago. She was pregnant and we were really looking forward to fostering her kittens but they were stillborn because she couldn’t scrounge up enough food while she was on her own. She just adores my wife and she’s taken over the running of our household. Whenever we color or play board games, or even try to eat at the kitchen table she is always right there, losing our Scrabble tiles, rolling our pencils onto the floor, and trying to steal food from our plates. To some she might sound like a pain in the neck but she’s our spoiled little baby and a great addition to our little family. I hope you’re feeling better soon, and my wife and I are sending big virtual hugs and lots of love your way.❤❤❤
Spending time in nature did bring some much-needed peace, even if it came with a price afterward. It’s like those moments of feeling truly alive make the aftermath a little easier to accept, you know?
Luna definitely brings so much joy, she’s my little reminder to stay present, even on the tough days. Eva Marie sounds like such a character! What a sweetheart, and it’s so beautiful that you gave her a loving home after everything she went through.
Sending so much love back to you and your wife. You’ve created such a warm, loving space for those around you, both human and animal. That’s something truly special.
Hi friend! SO SORRY I have been MIA. I really missed you! I ended up getting diagnosed with more chronic illnesses, and one of them is scary to me. I was clinging to Jesus like tomorrow wasn't coming! It's SO good to see your face again! For me, I push it too, but that's starting to change because my husband is finally starting to understand that I can't do what I used to do. Went hiking 2 times, and that caused my SI joint to go out of place on the left side. I'm probably going to get the whole "you're going to need back surgery" deal, and I'm going to say NO. I have Ankylosing Spondylitis that is progressing very very quickly. But it was the EDS that caused my SI joint to go out of place. That's the story. Also diagnosed with myalgia. It doesn't end. You are such a bright light for people like us, and I truly missed you dearly! I'm sending you so much love, Daniella ❤️!
Oh Amanda, my sweet friend, I’ve missed you so much too! First off, don’t ever apologize for being MIA. Life with chronic illnesses is an absolute rollercoaster, and just showing up when you can is more than enough. I’m so sorry to hear about all these new diagnoses. I totally understand, and my heart is with you. ❤️
I’m so glad your husband is starting to see and understand what you’re going through. It makes such a difference to feel truly seen.
I’m sending you the biggest, warmest virtual hug right now, and please know I’m here whenever you need to vent. You’ve got this, even when it doesn’t feel like it.
@tt_looking_glass awwwwwe! Sending so much love to you!!! Hugs my friend ❤️.
I have been in such a bad flare since August. Even doing groceries or cooking/cleaning puts me out for days. I hate feeling like this. I used to do so much, and now I feel like I have no life. Constant pain, mood issues from pain, fatigue has been my life over the last decade but SO bad over the last year.
I'm so sorry you're going through this. I feel so bad because I know how it feels. I can only plan one thing a day. Either work and nothing else or grocery and nothing else, etc. I hope a medical person has got you in their hands and you are getting some care.
Oh Angie, I totally get how overwhelming this feels. It’s like your body decides the rules, and no matter how much you try, it keeps moving the goalposts.
What you’re describing hits so close to home, grieving the things you used to do and trying to find a way through when it feels like pain and fatigue take up all the space. I just want to say, you’re doing so much more than you realize just by showing up, even on the hardest days. That strength deserves to be acknowledged, even when it doesn’t feel like enough.
We’re all here to listen whenever you need to vent. It really means a lot that you shared this, and I know it’s something so many of us can relate to. You’ve got a whole community behind you rooting for brighter days ahead. ❤️
sounds just the same here! Thankyou for sharing, majes me feel like I am not so alone i this
@@klb374money exactly!
Thanks for sharing beautiful ❤
Thanks for watching!
Most of time I do and suffer the results. At the time it is nice to feel better Play catch up. Suffer after
Oh, Jane, I feel this so deeply. It’s such a cruel cycle, isn’t it? You get a little energy, you want to catch up on everything you’ve been missing or putting off, and then…bam, you’re paying for it afterward.
I’ve been there so many times, and it’s like this constant tug-of-war between wanting to live and knowing your body has limits. And honestly, sometimes it feels worth it in the moment, just to feel like yourself again. But then comes the crash, and it’s so frustrating and exhausting.
In my last vlog I was preparing spinach ready to freeze. I had been doing this for a couple of days along with housework. I paid for that immediately the next day.
Oh, I totally get that! It’s like you push through to get things done, feeling good in the moment because you’re being productive, but then the next day? Boom, your body makes you pay for it. It’s such a frustrating cycle, isn’t it? You want to keep up with life’s demands and feel accomplished, but the price you pay afterward makes it so hard. Sending you gentle hugs and hoping you can get some good rest to recover from all that effort. ❤️
@ thanks Daniella! Sending gentle hugs your way too! The ironic part was the video title was “having a slightly better day”. That didn’t last long at all 😂
Hello lovely, I'm so sorry you're paying the price for the trip you took, I really hope it eases up soon for you. When I got home from my holiday to Canada & US a few months ago, I was in so much pain but to me paying the price from meeting you, my friends and making memories is priceless and I don't regret it one bit. I'm coming back to Canada at the end of May next year for a wedding and not even my body is going to stop me from missing that. There are days where I do struggle so much to the point I'm stuck in bed, but living on my own I have to get my own food, drink and I have no one to help me to the bathroom etc. So there are times where things aren't worth paying the price for but if you're doing something you love, such as taking trips or meeting up with friends then I think it's worth paying the price. Luna is so adorable with her pumpkin sweater on, my heart just exploded! ❤
I feel so connected to your words. Paying the price for those meaningful experiences is such a bittersweet reality, isn’t it? I can imagine how much that trip took out of you, but meeting friends and making memories, even when it comes at a cost, can be so soul-filling. Make sure to get in touch when you do come back.
And Luna, oh my heart! She brings me so much joy, and I’m so happy she brought a little smile to your day too. Sending you strength and love as you keep pushing through, you’ve got such a beautiful perspective, and I truly admire your spirit. ❤️
Oh Daniela, I am so sorry you are going through this now. But I do feel that this memory you made has given you much joy! I watched that video as well, and I saw how it brought you peace and happiness! I know for me too, I try to push through the pain in order to really take in the joys of this life. I am so happy for you that you got to do this special trip! Plus I love seeing your new fur baby!! How precious!! Is her name Luna?....I sure can see how much fun and joy she is bringing you! Our kitty Scooter is so loving too.....He helps so very much especially now with my husband's illness. Our fur babies are so very special Daniela and the unconditional love they bring us is such a blessing!! Sending many well wishes and love and hugs to you dear lady! ! You always keep me inspired and keep me pushing forward!! 🫂🫂💝💝 Geri And thank you for sharing these videos with us!!
You’re so right; even though it’s hard to push through the pain, those joyful moments and special memories make it worth it. I’m so glad that came through in the video. Luna really is such a blessing, she’s brought so much light into my life with her playful, loving energy. It’s amazing how our fur babies just know how to fill our hearts, even on the toughest days.
Scooter sounds like such a sweet soul, especially with everything you and your husband are going through. That unconditional love they give us really is like a lifeline, isn’t it? I hope he keeps bringing you those moments of comfort and joy.
Thank you for sharing your story and for always being such a kind, encouraging presence here. It lifts me up to know that I can help inspire you even a little bit. Sending you so much love, hugs, and strength.
@@tt_looking_glass You are so kind Daniela, and so insightful! Thank you for your words of encouragment to me! You are a blessing to my heart! I am so very grateful I found you!! 💝❤🥰 Geri
I nearly always consider the price. I might do it anyway but most times not. Too hard to get on top of the pain 😢
The constant mental math of weighing the price of doing something is exhausting on its own, let alone the pain that follows. Even when you decide to push through, sometimes the aftermath just feels too overwhelming to make it worth it. It’s such a tough cycle.
I’m sorry you had to pay such a high price for having a nice time.
I feel like my life just keeps getting smaller because of health issues.
I know I’m blessed and that a lot of people have it so much worse than me.
Nevertheless, it’s still frustrating.
Your new puppy is precious!!
It’s so hard when health issues shrink your world like that. It’s frustrating, even when you try to stay grateful for the blessings you do have. I feel the same way sometimes, and it’s okay to acknowledge that both things can be true.
Hi Daniela. 🙂I'm posting again because I really care that you finally find relevant answers that explain everything. I see you as a very nice person ♥and I wish you to stop being stuck in the eternal carousel of limitations. That's why I last mentioned the starch solution, or a lifestyle where you keep fat in your diet to almost zero. As presumptuous as it may sound, I am deeply convinced that you have a condition called Very Long Chain Acyl CoA Dehydrogenase Deficiency (VLCADD). You cant break down very long chain fatty acids into energy and you end up with mitochondrial dysfunction.
Trust me Daniela and get it checked. Also, trust me that if I write to you that it might take a few months for you to heal, just hang in there and continue like this forever. It may be hard to believe, but yes, you can be healthy like never before and forever.
🙂
First, thank you so much for caring enough to write again and share your thoughts with such kindness and heart.
I’ll definitely keep your suggestion in mind and look into it.
I’m always paying the price later……😉✌️
Oh, I hear you loud and clear, it’s like there’s no such thing as “free” energy. No matter how careful we try to be, the price tag always shows up later.
Speaking of pills. Why can't they make a pill that will keep a puppy forever Pill?
Right???
Maybe that puppy's kind of a ham? She shouldn't turn her back to you and plop down giving her mom the butt.
Haha, you know, I think you might be onto something! Luna does have a bit of a dramatic streak. She has us wrapped up on her fingers though, or should I say her paws? 🐾😂
Luna? Like the famous black panther on RUclips? At least for cats black seems to be a species unto itself. Nobody can look at you like a black cat. It'll be a journey to see what black puppies are like.
That sure sounds like cat behavior to me!
@@tt_looking_glass dramatic or subversive?
@@lumberlikwidator8863 getting the butt? I think that's more of a dog fake insult. No I wouldn't put it past Kitty's borrowing that from their dog brethren
Congratulations on having something decent to take. Why not try this. Only push it during the flare? Why do thst I mean who does that? Obviously nobody nobody's tried that ever. Might seem a little worse than you could have predicted except maybe a little less duration. Please disregard if the pain pill were talking about is tramadol
Honestly, the whole “try this during a flare” thing hits home because, wow, it’s such a gamble, right? Like, you're sitting there wondering if it'll help or if you just signed yourself up for a harder time. I feel you on the unpredictability of it all, every flare feels like rolling the dice. Sometimes even the “decent” options feel like a trade-off, but it’s all about figuring out what might get us through the storm.
@@tt_looking_glass only the most giant gamble ever. Where you know who owns all the cards. The 3-week flare of September which begins on August 29th is bad enough. August 29th as a starting point the next flare r is 32 days after that which is September 30th thus September is a two-flare month. 32 days after September 30th is November 1st. 32 days after November 1st is December 3rd what do you know my very first flair date. That was 2012 December 3rd . 32 days after December 3rd is January 4th. January is the next 3 week flair month. If I recall? You went camping at the end of September during a flare. How could you know? You just survived the hell that which is the primary flare of September. Knowing the 32 day between flare dates. When you posted your camping video? I didn't know there was two fiares s in September until I did the math. I didn't have the heart to tell you. Sometimes I feel like the devil himself a deliverer of bad news. Please mark these dates on your calendar they are regulars rain. Just remember the flare r becomes the weather not the other way around.
Do you think it has anything to do with the moon, sun or Earth rotation?
@@tt_looking_glass St John The Gambler Townes Van zandt
@@tt_looking_glass sometimes I can only Wonder. not much a project the Sun the moon the molten earth core.
Hi, het is een jaar gelden dat ik nog eens langs jou youtube kanaal langs kom. Hier in belgie is het weer te koud om lang buiten te blijven. Het kost me veel energie om mijn lichaams temperatuur op peil te houden. Dus ben nu meer huis gebonden. Weet je dat er op youtube goede videos zijn waar er goede sport oefeningen zijn om je conditie op peil te houden?Nog steeds gefrustreerd in het vinden in de balans van inspanning en rust te vinden zie ik in de laaste videos. Jammer is een herhaling ben percies een jaar niet weg geweest had gehoopt op andere soort videos. Tip maak minder videos veel te veel druk voor je. Sociale media zijn energie vreters.
Groetjes stijn
Hi Stijn, it’s so nice to see you back on my channel! It sounds like things have been really tough for you, especially now that it’s getting colder. I completely understand how much energy it takes just to keep your body temperature regulated, and how that can leave you stuck at home. Finding that balance between activity and rest is such a challenge, and I struggle with it all the time too.
Videos with good exercises to maintain fitness can definitely help, but I know how hard it can be to even find the energy to do them. And you’re so right, social media can be such a drain on energy. I’m really trying to be mindful of how much I take on so I don’t overdo it.
Hang in there in Belgium, and I hope you can find some warmth and rest during these colder months. Sending you lots of good vibes and strength, and thank you so much for your kind message! ❤️
Dank u, wintertijd en verandering van het uur vraagt veel van mijn lichaam. Het missen van een ritje op mijn ebike bij goede dagen in de natuur werkjes in de groenten tuin valt weg. Het vinden van een nieuwe dagelijkse routine is een hele uitdaging steeds opnieuw. Het is zeer verleidelijk deze op te vullen met schermtijd. Slow living is de sleutel en de dingen mindfull te doen. Het enige aan de winter tijd wat leuk is het genot van de woodstoof de warmte en de flammen te kijken beter dan televisie. Een goede dagelijkse routine voor mensen die huis gebonden zijn in de winter zou mss een goed idee zijn om een nieuwe video te maken? Eten binnhuis huis oefeningen, hoeveel en kwaliteit schermtijd, avond routine om een zo goed mogelijk slaap te hebben enzo.. grtj