Hey Chris great video I know it is hard to talk about this kind of thing. We are the same age and I had no luck with pills or the pump but the injections have worked for me so far. Me and the wife talked about the implant if the injections did not work and it’s a hard choice just because of the surgery. I wish you the best of luck on the rest of your journey please keep us posted.
This is the best vlog ever. Wow, I have this issue from prostate cancer. Why doesn’t the doctor ask these questions. Omg. Actually even more questions the doc should ask.
Chris, thanks for sharing. I’m a prostate survivor, I know your story has had a positive effect on so many people. Please keep us updated on your recovery
I am on Play episode 28 this one. I have listened in to everyone!! Boy I hope there's more information on Chris. Right now it's June 2024. I am 70 years old and in researching debating on what treatment I am going to do. I'm leaning towards proton therapy but these stories really frightened me. Like maybe I shouldn't do anything. Just wait and see. Cuz it sure doesn't look like it's any cure for this and only you get side effects. Terrible side effects.
Chris, these videos have made a HUGE difference in accepting prostate cancer diagnosis and moving forward with treatment plan. Have listened to lots of medical lectures…..all given by Drs who have not gone thru it firsthand. Your straightforward honesty has been so helpful. Thank you so much for sharing. You are a light in this world.
Wow. Tough topic. Just found your channel. Thank you for sharing your story. We started down different paths. Mine was already metastatic when I was diagnosed and had already attacked the nerves providing sexual function. By the time treatment started, all sexual function was lost. I've come to terms with it - sort of. But, it has such a crazy emotional impact on my outlook. I recently shared that I understood the line from a miniseries where a man who had lost his libido due to cancer drugs stated "...it was like being untethered from a lunatic." I cried. That hit so hard. Anyway, I'm watching your videos and wanted to say how much I appreciate that you provided a source of information for those on the surgery path. Thank you.
Chris, thanks so much for sharing this very personal information. I’m sure that there are many people who will benefit from your openness and experience. Sending lots of positive, strong healing energy your way! 🙏💫💗
Hi Chris. I am 5 weeks post prostatectomy, PSA 0.05 4 weeks after surgery. About the same experience as you had WRT continence so far. My robotic RP was negative margins, bi-lateral nerve sparing, and bladder neck sparing. ePLND on the side with the lesion yielded one tiny 3mm lymph node with 1 mm of cancer in it, which makes me metastatic from my Gleason 4+5 lesion. I want to do a PSMA PET scan to try and identify any other nodes, similar to what you experienced, for treatment, but don't know if they would show up yet with this low a PSA. Meeting with the resident to decide what to do in 3 weeks, after second PSA test. Don't be embarrassed about your implant; you are among friends here who understand. Thanks for giving me a preview about the possible roads ahead; feel kind of lost right now, with all the different possible outcomes and treatment choices. PS. My latest testosterone level was 29.6 ng/dl without Lupron, so maybe any remaining cancer is anorexic.
Thanks for your videos. I've been following you over a year now. My own one year prostatectomy anniversary is next month. Took PSA test today. I'm left with very occasional drip from very minor stress incontinance and what had been 100% ED. However, there are signs of some life for the first time since surgery. Will see what happens. Thanks again for your videos.
Chris I really appreciate your videos. Had my prostate removed 3 months ago. A very rocky road. 100% ED and diapers. I will require a 2nd surgery because of scar tissue in the bladder neck. Your continued fight has given me inspiration. Thank you for your videos.
Thanks Chris ! Great To Hear Your Good News .. Yesterday had my 2 year check in Nashville and PSA is undetectable !!! My doctor talked to me briefly about a prosthetic 👀 probably need to call him back now ..
Hey Chris, thank you. Im going on my own journey, and your voice has been part of my support group. I really want to know how everything is going right now for you. Im a couple of days from my surgery, and walking the process with you has provided me with a level of comfort that I definetly needed. Hope to hear soon from you.
Very informative video Chris. I have been jumping around watching your videos. I have been diagnosed with prostate cancer and I’ve been going all over the Internet looking at my options before I have my meeting with my doctor next week. Scary stuff. Your partner must be an extraordinary man. You are really blessed do you have such a love and caring partner. I’m 74 years old and I don’t know how I lasted this long without discovering prostate cancer, when younger in the early 40s must’ve been terrifying. I’m way older than you and I would be lying if I said it didn’t terrify the hell out of me right now. I’m still fairly active in the bedroom in the idea of not being able to get an erection on my own or to have some type of normal sex activity it’s just beyond comprehension! It’s going to be a long weekend thinking about all this crap. All my best to you and your partner.
I wouldn't have too much faith in that urologist of yours Chris. He didn't get to all the cancer out number one. You're incontinence lasted a very long time and now this!?!? I wouldn't go to that guy I feel so sorry for you Chris. I have listened to all of your videos so far. Following your story. I am learning a lot too. To me listen to your stories and others I don't believe there's a cure for this cancer. Seems like it's only benefitingthe doctors and chemical companies. And the radiologists and their big expensive machines which they have to pay for. Ha!
Chris, thank you very much for sharing your journey. I found it very honest and informative as I prepare for my own surgery coming up in less than two weeks. I wish you all the best in your continued recovery.
Hi Chris, great Video and gutsy effort to present such intermit details on the decisions you have made throughout your recovery. I wish you had a higher subscription and viewing rate as what you have presented is so informative and helpful to those of us dealing with the after effects of surgery. I do have a question, how do you find the tube implant in normal day to day activities, sitting down, walking , running etc. Is it noticeable and do you need to adjust position at times to gain comfort? Very happy to hear that you have been able to have the cancer targeted with the radiation therapy and hopefully that will be the end of it and you can move on to some normality in life. Cam
Hi, day to day is too early to tell right now. I still have so much swelling that I have to adjust actives to address that. However I don't feel the implant only the pump. I will let you know more as the swelling goes away and get back to normal routines.
@@chrishartley6966 any updates in 2023 … hope you are doing well … waiting to hear from you … I had RP oct 21 and recurrence to 0.14 jun 22 from 0.04 post op and got two shots of ADT … and fell back to 0.02 feb 23 …. Last two tests its doubles again to 0.3 and 0.7 … Dictor still waiting another qtr ti restart hormone ( I react badly to that)😊
❤thank you for sharing this amazing information. It's marvellous, modern medicine, yet an aweful lot to deal with, in every way. My heart aches for you, for all of us. Where are you now?🤔💛
Chris. Sorry you went through so much. I too have prostate cancer and will have treatment of some kind in the coming months. Any updates for those of use who share your misery. How did the incontenance work out? Certainly hope you are well.
Sorry to hear that. My only advice is to find the best medical team that you can and ask a lot of questions. I had great care throughout but can't say enough about MD Anderson, who I have been with for a while now. Keep fighting and stay strong.
Chris, what did you do to reduce/ prevent loss of muscle mass during ADT? Weight training? How bad was your fatigue? I'll start ADT within two weeks. I am concerned about the side effects. Please advise. Thank you for your post, very informative as always!
I lost a bit a weight and hit the gym hard before my last round of ADT. There was a point in the radiation when I stopped working out due to fatigue. I gained a little weight and lost muscle for sure. Once radiation finished, I went back to the gym and did the best I could. Slowing getting some muscle back.
hi thanks for the videos. I am very interested in knowing about your current condition with cancer. I too am a long distance runner and have a similar history of rising PSA that remains undetectable on PSMA PET scan and high quality MRI scans of prostrate bed. Will be doing radiation soon after beginning androgen deprivation with Relugolix (similar to Lupron) As another committed and active long distance runner, I wonder if the training and running of half marathons or full marathons might have anything to do with the accelerated rise of PSA. I have not seen any research about runners and prostrate cancer. Was shocked to hear that Ed Whitlock, a Canadian elite runner, died from prostrate cancer just a few months after setting a world record. At age 85, he became the oldest person to run a marathon in less than four hours at 3 hours, 56 minutes. I know several other younger runners whose prostrate cancer also got worse after running aggressive races. Any thoughts on that? Thanks for sharing and hope things good with you.
Hey Chris great video I know it is hard to talk about this kind of thing. We are the same age and I had no luck with pills or the pump but the injections have worked for me so far. Me and the wife talked about the implant if the injections did not work and it’s a hard choice just because of the surgery. I wish you the best of luck on the rest of your journey please keep us posted.
This is the best vlog ever. Wow, I have this issue from prostate cancer. Why doesn’t the doctor ask these questions. Omg. Actually even more questions the doc should ask.
Chris, thanks for sharing. I’m a prostate survivor, I know your story has had a positive effect on so many people.
Please keep us updated on your recovery
Is Chris OK. Hasn’t posted in 2 years. Does anyone know?
I am on Play episode 28 this one. I have listened in to everyone!! Boy I hope there's more information on Chris. Right now it's June 2024. I am 70 years old and in researching debating on what treatment I am going to do. I'm leaning towards proton therapy but these stories really frightened me. Like maybe I shouldn't do anything. Just wait and see. Cuz it sure doesn't look like it's any cure for this and only you get side effects. Terrible side effects.
Chris, these videos have made a HUGE difference in accepting prostate cancer diagnosis and moving forward with treatment plan. Have listened to lots of medical lectures…..all given by Drs who have not gone thru it firsthand. Your straightforward honesty has been so helpful. Thank you so much for sharing. You are a light in this world.
Wow. Tough topic. Just found your channel. Thank you for sharing your story. We started down different paths. Mine was already metastatic when I was diagnosed and had already attacked the nerves providing sexual function. By the time treatment started, all sexual function was lost. I've come to terms with it - sort of. But, it has such a crazy emotional impact on my outlook. I recently shared that I understood the line from a miniseries where a man who had lost his libido due to cancer drugs stated "...it was like being untethered from a lunatic." I cried. That hit so hard. Anyway, I'm watching your videos and wanted to say how much I appreciate that you provided a source of information for those on the surgery path. Thank you.
thank you for the transparency on a sensitive subject... .. greatly appreciated
I’ve had a titan implant for 7 years . I’m 68 years of age . Prostate removed at age48 ! Amazing results. No significant problems.
Thanks for sharing!! You have no idea how much this helps people.
Chris, thanks so much for sharing this very personal information. I’m sure that there are many people who will benefit from your openness and experience. Sending lots of positive, strong healing energy your way! 🙏💫💗
Hi Chris. I am 5 weeks post prostatectomy, PSA 0.05 4 weeks after surgery. About the same experience as you had WRT continence so far. My robotic RP was negative margins, bi-lateral nerve sparing, and bladder neck sparing. ePLND on the side with the lesion yielded one tiny 3mm lymph node with 1 mm of cancer in it, which makes me metastatic from my Gleason 4+5 lesion. I want to do a PSMA PET scan to try and identify any other nodes, similar to what you experienced, for treatment, but don't know if they would show up yet with this low a PSA. Meeting with the resident to decide what to do in 3 weeks, after second PSA test. Don't be embarrassed about your implant; you are among friends here who understand. Thanks for giving me a preview about the possible roads ahead; feel kind of lost right now, with all the different possible outcomes and treatment choices. PS. My latest testosterone level was 29.6 ng/dl without Lupron, so maybe any remaining cancer is anorexic.
Hey Chris
How are you doing ?
You are in my thoughts and prayers
Hope your doing well
I hope you have turned the corner on the misery you have experienced. I look forward to any update you care to post.
Thanks for your videos. I've been following you over a year now. My own one year prostatectomy anniversary is next month. Took PSA test today. I'm left with very occasional drip from very minor stress incontinance and what had been 100% ED. However, there are signs of some life for the first time since surgery. Will see what happens. Thanks again for your videos.
Chris I really appreciate your videos. Had my prostate removed 3 months ago. A very rocky road. 100% ED and diapers.
I will require a 2nd surgery because of scar tissue in the bladder neck. Your continued fight has given me inspiration.
Thank you for your videos.
I’m 2 weeks after surgery and wanted to thank you for sharing your journey
Thanks Chris ! Great To Hear Your Good News .. Yesterday had my 2 year check in Nashville and PSA is undetectable !!! My doctor talked to me briefly about a prosthetic 👀 probably need to call him back now ..
Hey Chris, thank you. Im going on my own journey, and your voice has been part of my support group. I really want to know how everything is going right now for you. Im a couple of days from my surgery, and walking the process with you has provided me with a level of comfort that I definetly needed. Hope to hear soon from you.
Very informative video Chris. I have been jumping around watching your videos. I have been diagnosed with prostate cancer and I’ve been going all over the Internet looking at my options before I have my meeting with my doctor next week. Scary stuff. Your partner must be an extraordinary man. You are really blessed do you have such a love and caring partner. I’m 74 years old and I don’t know how I lasted this long without discovering prostate cancer, when younger in the early 40s must’ve been terrifying. I’m way older than you and I would be lying if I said it didn’t terrify the hell out of me right now. I’m still fairly active in the bedroom in the idea of not being able to get an erection on my own or to have some type of normal sex activity it’s just beyond comprehension! It’s going to be a long weekend thinking about all this crap. All my best to you and your partner.
Thank you for sharing your journey Chris, God Bless and a speedy and healthy recovery
Thanks Chris, very brave of you to share this. I wish you good health going forward :)
Very educational.
Thanks so much for sharing your experiences and insights. I always find your videos to be genuine and heartfelt. Much appreciated.
🌈💙🌈🙏🏾
I wouldn't have too much faith in that urologist of yours Chris. He didn't get to all the cancer out number one. You're incontinence lasted a very long time and now this!?!? I wouldn't go to that guy I feel so sorry for you Chris. I have listened to all of your videos so far. Following your story. I am learning a lot too. To me listen to your stories and others I don't believe there's a cure for this cancer. Seems like it's only benefitingthe doctors and chemical companies. And the radiologists and their big expensive machines which they have to pay for. Ha!
Chris, thank you very much for sharing your journey. I found it very honest and informative as I prepare for my own surgery coming up in less than two weeks. I wish you all the best in your continued recovery.
Thank you so much I have a family member going through all this as well I’m so glad you have spoken about this it helps me understand.
Would love to hear how you are doing now!
Hi Chris, great Video and gutsy effort to present such intermit details on the decisions you have made throughout your recovery. I wish you had a higher subscription and viewing rate as what you have presented is so informative and helpful to those of us dealing with the after effects of surgery. I do have a question, how do you find the tube implant in normal day to day activities, sitting down, walking , running etc. Is it noticeable and do you need to adjust position at times to gain comfort?
Very happy to hear that you have been able to have the cancer targeted with the radiation therapy and hopefully that will be the end of it and you can move on to some normality in life.
Cam
Hi, day to day is too early to tell right now. I still have so much swelling that I have to adjust actives to address that. However I don't feel the implant only the pump. I will let you know more as the swelling goes away and get back to normal routines.
hey man could you please let us know how your implant is going so far?@@chrishartley6966
@@chrishartley6966 any updates in 2023 … hope you are doing well … waiting to hear from you … I had RP oct 21 and recurrence to 0.14 jun 22 from 0.04 post op and got two shots of ADT … and fell back to 0.02 feb 23 …. Last two tests its doubles again to 0.3 and 0.7 … Dictor still waiting another qtr ti restart hormone ( I react badly to that)😊
❤thank you for sharing this amazing information. It's marvellous, modern medicine, yet an aweful lot to deal with, in every way. My heart aches for you, for all of us.
Where are you now?🤔💛
When are you going to do a update on this video
Chris you are amazing and inspiring. Thank you for your bravery & information.
Chris. Sorry you went through so much. I too have prostate cancer and will have treatment of some kind in the coming months. Any updates for those of use who share your misery. How did the incontenance work out? Certainly hope you are well.
take care, and recover soon
Thank you for sharing this very helpful
Hi Chris - I know it's been about 9 months now - how has the implant been treating you?
How are you doing. No more videos.?
Chris hope you are doing well... i have been recently diagnosis with stage four prostate cancer and would like to hear your toughs on how to beat it?
Sorry to hear that. My only advice is to find the best medical team that you can and ask a lot of questions. I had great care throughout but can't say enough about MD Anderson, who I have been with for a while now. Keep fighting and stay strong.
You look great comp to last video .poor man used abused his junk in younger years and bent it glad to see bent pipe the the cancer .
Chris, what did you do to reduce/ prevent loss of muscle mass during ADT? Weight training? How bad was your fatigue? I'll start ADT within two weeks. I am concerned about the side effects. Please advise. Thank you for your post, very informative as always!
I lost a bit a weight and hit the gym hard before my last round of ADT. There was a point in the radiation when I stopped working out due to fatigue. I gained a little weight and lost muscle for sure. Once radiation finished, I went back to the gym and did the best I could. Slowing getting some muscle back.
@@chrishartley6966 Thank you Chris. I'll hit the local gym today.
How are you doing Chris?? You haven’t updated in a long time. I hope you are okay. 🙏❤️.x
how are you Cris? haven't heard from you since..
Looking forward to an update and your status…
At your younger age, how did this happen? Was it from an injury or trauma to the prostate?
I hope you are doing well. We would love to know how you are doing.
hi thanks for the videos. I am very interested in knowing about your current condition with cancer. I too am a long distance runner and have a similar history of rising PSA that remains undetectable on PSMA PET scan and high quality MRI scans of prostrate bed. Will be doing radiation soon after beginning androgen deprivation with Relugolix (similar to Lupron)
As another committed and active long distance runner, I wonder if the training and running of half marathons or full marathons might have anything to do with the accelerated rise of PSA. I have not seen any research about runners and prostrate cancer.
Was shocked to hear that Ed Whitlock, a Canadian elite runner, died from prostrate cancer just a few months after setting a world record. At age 85, he became the oldest person to run a marathon in less than four hours at 3 hours, 56 minutes. I know several other younger runners whose prostrate cancer also got worse after running aggressive races. Any thoughts on that?
Thanks for sharing and hope things good with you.
Thanks for sharing. Stay strong!
Chris, I've started my journey during your initial posts. How are you these days? Can you give me an update? Thanks.
Hi Chris. I have just had my Prostrate removed 2 weeks ago. What was the exercises called you did after you had the catheter removed. ?
Hi Chris, I haven't heard from you lately, how are you doing?
Any more updates?
Do you have any updates?
Is Chris still alive?
So sorry that I have not posted or been monitoring comments. I am doing well and just posted a quick update. Stay strong and hope you are doing well.
Do it’s gets hard like strong normal erection and did you gain size?