Rare Patient Voice Celebrates Rare Disease Day 2024

Rare Patient Voice stands with the rare community to spread awareness of the issues facing the millions of people living with rare diseases worldwide. In this video, RPV President and Founder Wes Michael delivers a heartfelt message of support, and staffer Jessica Bolden reflects on life with Sickle Cell disease, one of the thousands of rare diseases that are currently identified.
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[@JinxedAF]

Ehlers-Danlos syndrome sucks lol

[@RarePatientVoice]

It does indeed, @JinxedAF. We stand with you, today and everyday!