This was so helpful Lenny. Recently my FND was just getting worse and I was stuck in bed 17 hours a day, fitting a lot and passing out. Every time I tried to walk more than a block or two I would pay for it for days. Today I thought, I want to get out of bed and go and sit in the sunshine. So I got dressed and took my scooter and rode that instead. I got a chai and sat in the sunshine. ☀️ I’m still good tonight and been listening to music in bed, feeling joyful. I even cooked a roast for dinner! Such a change when I don’t flog myself walking for two hours because “I should”!
Hi Lennie, thank you for sharing. I still struggle massively with this. Just when I think I'm coming to terms with my FND the old me in my head is tricked into thinking yeah go ahead you can do this and I always get carried away in the moment or don't want to let people down so push myself and then bam!! It hits me like a ton of bricks. I pushed myself and had a fab weekend meeting up with friends and family and now I'm facing the consequences 😢. But I really need to try hard to do less and be more as I'm returning to work next week after nearly 2 years off. This is a part of my life I've wanted to regain so much as I feel FND has taken so much. ❤️
Wow, returning work, that is huge! Have you got a plan to return gradually or have extra rest? Oh yes it's so hard! I went out yesterday AND the day before and now I'm paying for it. I'm a bit more comfortable saying no to other people, but I hate saying no to myself when it's something I want to do!
Hi, I have just subscribed to your videos. It is really helpful to hear your experiences so thank you. I am finding necks spasms challenging. Trying to stick to walking routine but exhausting so maybe I need to take step back for a little while and stop bereating myself for not reaching current goal. Take care x
Ooh neck spasms, ouch! With my walking I started at 1minute a day and gradually built up. Even though I can walk well now I give myself 'designated sick days' once a week and say 'no walking or working, today is enforced rest day!' Please keep being on that journey of kindness to yourself x
Thank you Lenny, find your blog really useful and helpful. I now know I am not alone. Trying to cope with FND on top of PTSD and depression. I crash because I push myself to hard.
@@Lentilboots yes, it is, I am a veteran and had a truck roll over 12 years ago, resulting in spinal damage and head injury, so all rolle up makes it kind of hard to roll out of bed some days. Thanks Lenny.
Hi Lennie, I love your videos. I had FND 20 years ago. Didn't know what it was back then. Stuttering, wonky walking, muscle spasms. Diagnosed with CFS/ Fibro. Anyway in March back came the neuro symptoms and researched as thought it was more than just CFS. Found you and others. Approached my Dr and got taken seriously for once. Awaiting bed in inpatient facility in Bristol UK. 3 weeks intensive therapies. Been doing exactly what you said. Realising I don't have to perform daily. So hard to let go of that go go go attitude. Using meditation and yoga for fatigue. Listening in to my body. Housebound so have the opportunity to do this. Kids grown up and gone. Time for me to let go!!! I appreciate your sharing and look forward to more. Take care. You're doing great ♥️
Hi Marlene I'm so glad you found an understanding doctor and you will have access to intensive therapy! Yes now is your time to take care of you, and do what brings you life and joy and rest.
This was so helpful Lenny. Recently my FND was just getting worse and I was stuck in bed 17 hours a day, fitting a lot and passing out. Every time I tried to walk more than a block or two I would pay for it for days. Today I thought, I want to get out of bed and go and sit in the sunshine. So I got dressed and took my scooter and rode that instead. I got a chai and sat in the sunshine. ☀️ I’m still good tonight and been listening to music in bed, feeling joyful. I even cooked a roast for dinner! Such a change when I don’t flog myself walking for two hours because “I should”!
I agree with you completely!
I'm enjoying reading it makes me rest
Hi Lennie, thank you for sharing. I still struggle massively with this. Just when I think I'm coming to terms with my FND the old me in my head is tricked into thinking yeah go ahead you can do this and I always get carried away in the moment or don't want to let people down so push myself and then bam!! It hits me like a ton of bricks. I pushed myself and had a fab weekend meeting up with friends and family and now I'm facing the consequences 😢. But I really need to try hard to do less and be more as I'm returning to work next week after nearly 2 years off. This is a part of my life I've wanted to regain so much as I feel FND has taken so much. ❤️
Wow, returning work, that is huge! Have you got a plan to return gradually or have extra rest?
Oh yes it's so hard! I went out yesterday AND the day before and now I'm paying for it. I'm a bit more comfortable saying no to other people, but I hate saying no to myself when it's something I want to do!
Hi, I have just subscribed to your videos. It is really helpful to hear your experiences so thank you. I am finding necks spasms challenging. Trying to stick to walking routine but exhausting so maybe I need to take step back for a little while and stop bereating myself for not reaching current goal. Take care x
Ooh neck spasms, ouch! With my walking I started at 1minute a day and gradually built up. Even though I can walk well now I give myself 'designated sick days' once a week and say 'no walking or working, today is enforced rest day!'
Please keep being on that journey of kindness to yourself x
Thank you Lenny, find your blog really useful and helpful. I now know I am not alone. Trying to cope with FND on top of PTSD and depression. I crash because I push myself to hard.
Thanks for your comment, I'm glad you find it helpful. It's really tough, especially when you have multiple things going on!
@@Lentilboots yes, it is, I am a veteran and had a truck roll over 12 years ago, resulting in spinal damage and head injury, so all rolle up makes it kind of hard to roll out of bed some days. Thanks Lenny.
Hi Lennie, I love your videos. I had FND 20 years ago. Didn't know what it was back then. Stuttering, wonky walking, muscle spasms. Diagnosed with CFS/ Fibro. Anyway in March back came the neuro symptoms and researched as thought it was more than just CFS.
Found you and others. Approached my Dr and got taken seriously for once. Awaiting bed in inpatient facility in Bristol UK. 3 weeks intensive therapies.
Been doing exactly what you said. Realising I don't have to perform daily. So hard to let go of that go go go attitude.
Using meditation and yoga for fatigue. Listening in to my body. Housebound so have the opportunity to do this. Kids grown up and gone. Time for me to let go!!!
I appreciate your sharing and look forward to more. Take care. You're doing great ♥️
Hi Marlene I'm so glad you found an understanding doctor and you will have access to intensive therapy!
Yes now is your time to take care of you, and do what brings you life and joy and rest.
I have this and waiting for a Ndis change of circumstances.
You’re inspirational Lennie, I appreciate everything you do. Thank you
It's so hard
We are the messangers
I can only do 1 thing a day
I am struggling to rest even though I’m not able to move as normal anymore.
Rest is really hard! We each have to find things like naps or meditation or listening to music or drinking tea that help us and don't drain us.