4 Cardinal Signs of Lewy Body Dementia
HTML-код
- Опубликовано: 20 сен 2018
- Alzheimer's disease & dementia expert, Dr. William A. Van Horn, explains what is Lewy Body Dementia, the 4 cardinal features of LBD, and what you can do to maximize quality of life for your family and your loved one suffering with LBD .
Don't give up on your family member with Lewy Body Dementia because some doctor says there is nothing else we can do. There are many things you can do to dramatically improve the quality of life for your loved one who has LBD.
With proper medication, your loved one with LBD should sleep all night, wake up fresh in the morning, experience pleasure, and their behavior is under control enough that they can have a wonderful relationship with you.
To learn more about how you and your loved ones can win the war with Lewy Body Dementia, please go to:
www.AlzheimersMD.org
If you would like to connect with other people going through a similar situation, please join our Facebook group at:
/ alzheimersmd
Please understand that there is hope at every stage of the war. If you have questions that you need help with, please reach out to us at:
alzhelp@alzheimersmd.org
3:12 "Can we stop the disease?"
"- No, this isn't the goal."
But this exactly should be the goal in the future.
They said that Robin Williams had this and there was nothing that could be done, he was actually mis diagnosed with Parkinson's disease and Robin Williams said that he thought he had dementia and or alzheimers disease and that's why he died. After the autopsy was released they said it was so bad that he should not have been doing as good as he was and its not reversible and that they couldn't have done much for him, its sad cause he was the funniest man in my opinion if I was down he always made me laugh and still does, he was a great drama actor too he could make u laugh and cry at same time and I was honored that I had the opportunity to be able to watch his great adventures on screen and in comedy improv. RIP Robin Williams funniest man ever
My mom passed from Lewey Body. Its a hard thing to watch. The hallucinations were so real to her. She would tell me one of my sisters came and cleaned her house. They hadnt. But she sounded believable. I believed her til I was talking to my sister and mentioned it. In the beginning, its easy to miss.
Sad to say he did not pass away from LBD.
It’s sad whoever has it. Humor or fame doesn’t make it any more or less sad.
@@terrybonfiglio-lopez9541 Robin Williams apparently did die from the symptoms of LB dementia. He had horrific hallucinations that caused him to end his life.
No drugs or alcohol were found in his toxicology reports.
My mom died from this they kept trying for Parkinson meds always made her worse is it a genetic thing??
My 78-y-o husband has LBD. This was the best description of how're is doing. He is in a great memory care, sleeps all nights, eats very well, is socializing with other residents. I visit him every afternoon. He is the love of my life. I have become an actress as I go along with his hallucinations.
Hope you're doing well and hopefully he is too! My dad just got diagnosed yesterday. I admire your strength
Bless you.
My husband has had Lewy Body going on 8 years now it is very hard on me to take care of him on 74 and have hip problems and other joint problems trying to keep him at home as long as I can it is very hard on everybody with Lewy Body especially the ones that has Lewy Body is very hard because they don't understand my husband talks to people all the time his Imaginary Friends and he smiles and laughs with him very sad but I'm happy that he talks to someone somebody even though they're not there
Last summer my dear cousin and I were camping. I knew something was really wrong. She had very bad tremors and gait problems. A big Dr. Google, self-diagnoser, she chalked it up to dehydration, not eating enough protein etc. She told me that her deceased mother had visited her and vehemently insisted that she was not asleep and dreaming during - that her mother was really there in her room. She also exhibited numerous irrational paranoid episodes. She was convinced a woman at a rest stop was planning to murder her; she was fearful of anyone who walked near our campsite. Six months later she was diagnosed with Parkinson’s. She is taking medication and learning to cope with that. I now realize she also has Lewey Body, but she’s not talking about it.
I worked in a care home with dementia sufferers... God bless the the people who care for them in their own homes.
@@justdoitforgood7170 the worst of alll...????
@@justdoitforgood7170 Thanks for clarification. Your home care is big service, I wish you well.
Yeah...it's a lot of work....
I am dying each day so that my dementia relative stay alive each day.
We care for my< Mum since five years. We go through all ups and downs. And like the doctor on the video says LBD is very inpredictable from day to day. But after five years it is doing down the hill now. And it is very sad and heartbreaking. I do hope, that research will accelerate to alleviate this suffering.
My dad was diagnosed with Lewy Body Dementia in 2017. We did the best we could helping to make his life as normal as possible.
What a hopeful optimistic kind attitude you have given to patients and their loved ones.
My mother passed from LBD with Parkinson's in January 2018. She started exhibiting signs in the Fall of 2015. She would call and tell me that she cooked dinner for my grandma and father, both passed years prior. She wouldn't sleep in her bed because there was a man there and she wouldn't eat because there was a man laying behind the pillows on her couch and she didn't want to cook with him there. I tried staying with her so she could live at home but it was becoming too difficult to handle her so I had her put in a memory care unit of a local rehab center in January 2016. Saddest thing to watch her mind and body deteriorate like that
My mom has this. Completely out of her mind. Hope she passes soon. She's hateful.
I’m so sorry you have had to go through this.
When a doctor says ‘there’s nothing else we can do’ that’s my cue to get another opinion and even a third. My sister was misdiagnosed and the medication almost killed her. Excellent talk- thank you.
My mom almost died with the wrong meds too. It hurt so bad. Doctors these days suck.
Some people are strange. I mean, who would put a thumbs down on any hope for someone and their family caregivers to have some sort of normalcy.
I put a thumbs down on the woman who said the Dr. Was making up things.
We all hope for hope. We need it to keep going. His dementia was a terrible time but there are moments that are precious.
Thank you for your understanding as I feel my husband got another hole in his boat last evening. Still sleeping this Glorious beautiful morning. Praying he wakes up in a better mood this day. Everyday is a new day for us...
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
Everyday...you don't know what mood...or what personality you going to have to deal with.
I have been diagnosed with the opening stages of both Lewy body and Parkinsons. Thank you for this video.
Wishing you all the best. Get the best doctors you can. I have read that LBD is also combined (or can) with an irritable colon. The proteins are not broken down and migrate to the brain. Please have that checked. My mom has LBD. I wish I had known a lot earlier. Love from Germany!
Said a prayer for you and will continue. I hope you are doing okay @@redbarberry
My mom just passed away 2 days ago from what I believe is Lewy Body Dementia for the past 5 years (had all the markers - docs kept saying it was delirium from a UTI and polymyalgia but the medication didn't do anything after a month). She also had colon cancer and although she did have a successful surgery 6 weeks ago, her health declined even more rapidly immediately following. Her doc's refused to test her for anything else. She was the most incredible woman and matriarch of our huge family. 💔
I’m sorry.
My aunt was diagnosed with Lewy body Dementia and she completely cannot walk, talk, eat, literally cannot do anything. It was a rapid decline within just one month of the diagnosis! She went from completely normal to a vegetable. It’s incredibly terrible to have to witness everyday, especially knowing there is nothing you can do to help.
Wow. 😥
Lewy Body Dementia is actually a parkinsonism disease and that means a fast moving disease. Lewy Body Dementia causes Lewy Bodies in the brain not Amyloid plaque. Amyloid plaque builds up in Alzheimer's disease. The man in a white coat is not a doctor but a fraud. My husband's brain autopsy was done by the Mayo Clinic in South Florida, through CurePSP foundation on neurodegenerative brain diseases. Lewy Body Dementia is a completely separate illness from Alzheimer's disease and a totally different kind of dementia.
My wife has started to show signs. She didn’t know she was married to me. She has no appetite, losing balance but not falling, lots of body pain that she never had before; is this part of it too? Gets worse at night and talks about people in the bedroom or in the yard that are not there.
@@225rip
My husband is at the same point. The all-over body pain is bad for him so tomorrow they are trying Gabapentin.
I work in memory care and everyone with this and parkinson's go very fast..
It's beyond sad
I do as well yet have had the opposite experience of seeing those w/this form of dementia thrive more & have better quality of lives. I seem to work best with memory care residents that have this form of dementia for some reason & be able to reach them the best.
I need someone this hopeful and positive.
Thanks for offering me some hope of a semi-normal life!
I had some great times with him during his illness.
My wife was diagnosed with what they said was Alzheimer's in late 2018 at the age of 54. After caring for her 24/7 for the last 5 1/2 years, she had deteriorated to the point of not sleeping (sundowning) for up to 46 hours at a time ( hallucinating, poor gate and balance, agitation, in and out of reality). She was behaviorally getting more agitated and resistant to me helping her. I had her admitted to a psychiatric hospital two weeks ago. They said she was misdiagnosed and that she has Lewy Body dementia, not Alzheimer's . The medication they gave my wife before the hospital to help with agitation and aggression was causing her great harm. She went in the hospital walking and somewhat talking. Within 4 days, she couldn't walk, barely talk and when she did, it was incoherent. I was told she has less than 6 months to live and that she needed a memory care facility to meet her needs. She has declined so fast that it is difficult to watch. My poor honey. Not to mention how my heart breaks for our 4 children. I find myself praying for God to take her home quickly to be with Him in paradise. What a heart breaking disease. I'm overwhelmed with grief. 😓
My goodness Papa. This is heartbreaking. I cannot imagine your pain. I will be praying for a peaceful transition and that GOD walks you and your family by the hand every single step of the way. I just went to the living room and gave my wife the biggest hug. May the LORD fill you with peace, understanding, acceptance and patience abundantly. GOD bless you brother.
@@peter-peter5929 Thank you for your kind and loving response. How I wish I wouldn't have taken one moment for granted of being with her. She is such a blessing to me. God bless you too Peter. 🙏
ABSOLUTE BEST explanation on RUclips !!! Thank you thank you
My mother had Lewey Body dementia, and she passed away in what appeared to be terror. I don't know what I woud do if I got it; I surely could not live in that condition. Thank you for the informative video.
My mom is in a nursing home with Lewy Body. I’m trying to get her into another facility because all they were doing is sedating her to not have to deal with her. I’ve since contacted an Ombudsman to investigate and contacted an attorney. This is truly the worst experience I’ve ever had in life.
I'm sorry you're having such a difficult time and hope the people you've contacted are helpful to you. Best wishes.
@@traceya9615 thank you and yes things have gotten much better!
Thank you, Dr. Van Horn. My father is 84 and has been diagnosed with this. He lives far away from me and on my last visit he was having hallucinations. The following day he seemed much better; however, I know his condition will worsen over time.
Optimistic reply.Thanx.
Thanks so much for your compassion and caring self! Wish there were more doctors like yourself!😇💕👍🏼 Lots of Love Bobbi 😇🙏🏼
The intermittent lucid days confuse people. My 60yo husband is In Hospital right now. Was being treated for depressive bi-polar,but two psychiatrists say his reaction to anti-psychotic meds (which elevated CK blood levels) along with essential tremor, gait issues, delirium, paranoia, lower cognitive functioning all are indicating LBD. He has declined last 5 years. I hope a firm dx can be made so I can know what resources are available to aid him. The lucid days led our kids to believe I was making up how bad Dad really was getting.
Ty for sharing this information so well
Thank you Dr. Van Horn.
God bless you Dr for helping these families.
I learned something tonight. Thank you.
Thank you. What a wonderful MD you seem to be!
Absolutely the best video I’ve watched on this subject and many others for that matter
You’re an awesome positive and kind doctor! Thank u
Yes,thank u for youre optimissam ,it means a lot for me right now.My mom was diagnosed a month ago,she is ok,so far.
Thank you for the info! Hard to find anything on Lewy body anywhere. Its like no one wants to talk about it.
Thank you! for giving hope...God bless you!
thank you for this explanation it helps realize what my mother had
Thank you great information. I pray that more research can go into these horrible diseases and soon they can have a cure. it’s heartbreaking watching a loved one slowing die it’s to painful God Bless
I think my coworker has this currently. If you don’t understand , it appears as if the person is lazy. He steals my work/clients (or tries to), gets my orders wrong, and then needs help with his own. I thought he was being lazy trying to do as little actual work as possible but from watching this, it appears he’s desperately trying to manage the disease and his dignity; understandable if he feels anxiety over explaining what he’s suffering from. He gets anxiety in the middle of helping a customer and I have to help him, and at other times as well. He walks with shuffled feet and forward-ish with his body also.
Very informative but still simple for the lay person.
This video has me understand this disease so much better. Thank you.
Helped me understand.
You raced thru the 4 steps so quickly. Why do that if the purpose of your videos is to educate us? Luckily i can watch this over and over. And you gave the clearest and most precise explanations and examples. I have been diagnosed with LBD and believe that the meds prescribed by my team of doctors has brought me back to near normal. Thanks!
He did an excellent presentation imo. Thank you Doctor 👍🏼🧠
My mother had Lewy Body dementia and he’s described the symptoms to a tee. She had all of these things and it’s horrible.
It sure is!
My father had it. He always haucinated pleasant things.
Interesting that you mention medication‘s. My mother had this and the ONLY time she did have hallucinations was when she was on Ativan. I had to fight like the devil to keep her off that stuff.
This is what my mum has recently been diagnosed with. I'm her only support and nok.
My dad was on Tramadol for 5 years and we suspect this caused his LBD. His hallucinations and delusions are awful. He sees people (alive and dead) all day, everyday. He got violent with my mom and he is now in a nursing home. He sleeps about 14 hours a day and just wants to come home.
These jabs for elderly such for pneumonia, shingles, the current one, etc are also problems that need investigation. Say no.
@@rosyc9250There's recent research that shows adult vaccines are neuroprotective. I'll post a link
This describes my husband completely. Thank you for this video. He was diagnosed with Lewy Body Dementia three years ago. In the last couple of weeks he has really gone downhill, sleeps most of the time. I'm looking for a doctor where we moved to do I can replace his previous doctor. Much respect.
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
Look up Geoff Karchner. There could be a link on this page somewhere. I know it's about 10 years old but he doesn't seem to be one of these quacks that like to write out prescriptions all day. Sometimes less is more. I know this to be true because I took my mother off Ativan and the night visitors stopped coming. If your husband is sleeping a lot, check his meds. Like I said, sometimes less is more. Good luck chelle.
The man is a fraud. My husband died of Lewy Body Dementia. Find a movement disorder neurologist who is honest with you----and that takes good care of your husband by making time to advise and help your care of him. Don't fall for this man who puts a white coat on and lies to you.
Excellent video. Very poignant and informative. Also provides encouraging advice for those suffering from DLB and for caregivers. Medication does help. There are also alternative treatments that can ease symptoms.
While recognizing reality, it is important to remain optimistic. There is always hope. You can still have a happy and full life with DLB. The only way you fail at this is by giving up.
Helpful information. Please make a video mentioning the various medications that can be used to help someone with LBD. This is almost impossible to find online and most doctors don't seem to know either.
I agree my husband died of it and was not properly diagnosed til the end. So sad
Yes! Regular medical staff have so little knowledge or understanding of how to support patients with LBD.
Things must have progressed quite a bit since 2015 when my daddy suffered so very much and died from this horrific disease.
So sorry to hear that Sandra
I was just diagnosed with LBD. Have had memory problems for many years that were chalked up to my Hashimoto's thyroid. Been constipated for many years. My wife and I just moved into a different house (different state). When I first got here I could here people talking between the walls. Then I started having these fantastic hallucinations of spiders on my bedroom ceiling when I would wake up at night. They were black and gray but very detailed and really beautiful. Sometimes they would start coming down a thread of web at me. I would just pass my arm thru them and they would go away. I knew they weren't real. I'm currently in the process of looking for a neuro psychiatrist in my area but there aren't many.
Prayers for your recovery
When I turned 40 I noticed all these symptoms come on over the space of a year. Still waiting to hear from a neurologist.
Is someone helping you with your appts?
I wish youtube would have sent your video my way a year ago while doing intensive searches on LBD. It's so sad my Mom's quality of life wasn't what could have been. We NEVER gave up, but had a neurologist that should have referred. She died a week before we could get a second opinion, mainly due to covid delays in medical buildings. We did the best we could but just like my Dad, so much was revealed after the fact despite my incessant research. Dr's who don't know should always refer. We wasted a lot of time on a ding bat... Small community didn't help. Im sure something could have been done. Well, we loved her and she felt it and acknowledged it, what else in our drastic measures could we have taken? Now I will refer others to your channel.
My situation was very similar to yours-- however in my case it was too late for my husband and for very same reasons as you mention
Could you tell us some of the medication that would be useful. Thank you for the information. Xx
Well shit. I just did not expect to be so young when it hit.
REM Sleep Disorder is also a key feature
All very well but how the hell do I get the patient to the doctor in the first place when they think there is nothing wrong with them, that is my current stumbling block!
In my opinion I believe the very first thing to change is personality, not necessarily on a day to day basis. There can be months even years within these changes in personality and changes that may last a min, a day or even a week or longer they can then revert back to the old person you knew. This is not noticed by the medical staff, doctors or professionals this is noticed by love ones but it’s not until later on in the disease they realise what they were noticing.
It is so hard to get the disease diagnosed as it’s never in one place, it’s intelligent and masks itself. Look for the small changes, changes you don’t understand or recognise in the person, changes that make you think and doubt what you see.
Looking back i saw these changes way before I spoke out.
Greetings to all ,
Take care
My husband with Parkinson's was diagnosed with LBD this last January. He's bed ridden. He cannot walk anymore. I have him at home and will care for him as best as I can. Is true what you say. Everyday is different or even the day can be different. Some days he's very calm. Some days he sleeps and some days he's very agitated. It depends on his hallucinations. The good thing is that (with meds) he sleeps all night and eats well. I just wish I can help him more when his hallucinations make him anxious and agitated.
Mydad passed away at:abge87.he use to tell me he could see me standing over his s bed....iwas in college and not in his home at all.he have t nasty said things.....beer helped as stupid as that seemed..he use to wake up just fone but by evening it got differenicult.my family said he was gone but I didn't see that daily
..he kept falling.passed away super bowl Sunday at home in his sleep.im sorry I just hadto share.he went peacefully I'm grateful
I am a caregiver 48 hrs a week to a lady who fluctuates dramatically regarding moods and cognitive ability. It changes one hour to another and she has hallucinations. YET she has great balance and walks fine. I guess that will change? Been with her for 5-6 months and her balance and walking has been fine.
I take L-tyrosine and benfatomine to improve dopamine production and choline to aid acetylcholine .
As we age and our digestion declines we don't absorb nutrients as well as we used to and can become deficient.
Thank you 🙏🏻❤️. I have LBD and Amnesia spells (yes true legit amnesia). No Doctor, Specialist, online groups, have heard of this 💔. Have you seen or heard of anything such as this,?
My mom had Alzheimer’s and she got it very young in her 60s it was not pretty had to be with her till the day she died the day she took her last breath
My mother suffered with memory loss, falls, shaking, depression anxiety apathy and hallucinations. We got the GP to take her off Pregabalin, now no more shaking , no recent falls. Still hallucinating and memory of a goldfish but much happier. Check the medication peeps xxx
Too late for trying this treatment with my mom. She passed two years ago 😢
HOW SAD😢
And exactly why didn’t he mention not even 1 type of wonderful medication?
He does in another video - ruclips.net/video/Gy6EDFWoo8Q/видео.html
"there are many things you can do" where? how? I can't even get someone to give me scans. I'm too young...
Fascinanting?
Holy sh*t ive wondered about this in me
What are the medications?
In a severely blind person, can the person have audio hallucinations (specifically hearing voices)?
❤❤❤❤❤
My mother has so much meds already...whats one more
Please slow down
What medications are currently being used? My husband has been diagnosed and anti psychotic medications made the situation worse. Can you please let me know? Thanks
My loved one has 3 of the 4 symptoms you describe. She doesn't have hallucinations.
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
What are the medications for stage 2 in LBD stage 2 for an 86 year old sedentary male.
How do I prevent it red wine perhaps
My mother always did say, I had a head full of Cotton.
My Dad always said, I have a head of concrete. I am so hardheaded. LOL!
My dad has is the doctors have gave up on him please please tell me how I can get my father into your program please please
How common is it to be misdiagnosed with Parkinson’s disease? I think doctors need to be more education between the differences. I’ve had a handful of patients who were diagnosed Parkinsons and ended up at the end stages of LBD. Is it possible to have both, or is it rare?
My husband had lewy body and became like a zombie. Couldn't do anything.
I never want to go through that as a patient, I'd rather take euthanasia. Life is hard enough for those suffering, no need to make it hard for those around you who have to deal effectively with an entirely different person.
What happens when they refuse to take medication?? My mum has this and she has just stopped taking her meds, point blank she refuses to take them and she is going down hill so rapidly in just 2 weeks!!😭😭
The hallucinations with animals seems to be very common in the early days.
Sadly my mom takes rivastigmine, olanzipine and seroquel, carbidopa levodopa and trazodone for sleep. We removed the olanzipine but she regressed terribly (sleepless nights, horrid hallucinations). I don’t know what else we can do. She is a far cry from being in a position to be taken out for dinner. She can hardly stand up straight or get off the couch and was only diagnosed in July 2020.
All doctors do is prescribe medications. Try getting her off them and see how it goes. I took my mother off Ativan and guess what. No more night hallucinations. Look at the side effects of those pills. Don't give up and don't let the doctor just write out a script. She's your mother. Not his. No pill is going to cure Dementia. Try some other things like Melatonin at night. Good luck. Oh and I used to be on Seroquel. Best thing I did was throw then down the toilet.
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
@@barearmz2794 I gave mom several capsules of Ashawaghanda that you can get at a health food store, melatonin and Institol which is a b vitamin before bed. It worked! In a bit of sugar free ice cream... finally she slept!
@@barearmz2794
You were lucky. My mother was so out of control that at times I had to lock myself in a room to be safe. The med they prescribed (not Ativan, but I can’t remember what) was the only way I could be safe.
So sad. With my Mum it's the same. It's a very cruel disease. It's like aging in a time lapse and suddenly becoming completely helpless mentally and physically. Blessings to your family.
Says a lot for your health system if your doctors aren't doing everything they can. They're all great at writing out prescriptions though. And most of those prescriptions have side effects like delusions and hallucinations to name a few. Don't make your loved ones worse. Check the side effects of these "medications".
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
Is sleep disturbance also a hallmark of Lewy body?
If I have 3 of the 4 what does that mean?
I've got everything but the hallucinations and I'm only 33. Wth
Dr. William A. Van Horn differentiates LBD as in between Alzheimer & Parkinson's, whereas another doctor on youtube classifies these differently. This doctor says that Alzheimer forms one group, while Parkinson's + LBD form another. And then he goes on to differentiate the later two. Which one of these classifications is correct ?
Those visual hallucinations sound lovely. My mother has paranoid auditory hallucinations. She thinks there are some people who live in some condos somewhere and have 4 helicopters that fly over her house and torture her and my dad with noise and pressure and shaking. They constantly make fun of her and call her names. She regularly calls the police, the FBI and the FAA. It's a barrel of fun.
Yes, the hallucinations he described sound lovely, but they all aren’t. My daddy had all different kinds of visual hallucinations and some scared him to death. Nothing is quite as pitiful and saddening as seeing someone you love so very much see things that terrify them and knowing that you can’t calm their fears, no matter what you do. 💔
@@sandibaker5298 Yes, I was being a bit facetious, which is not wholly appropriate. It's all very sad and frustrating to not be able to help or convince them it's not real.
@@aksez2u If your mother is on any medications check the side effects. My mother was on Ativan at night before bed and it was horrible. I took her off and the people stopped coming out of the walls. No more animals or children in her room. Yes. She still has dementia but she's not terrified in her own home anymore.
@@barearmz2794 Thank you for the suggestion. My sister is a doctor so she closely monitors her medications. In fact, mom refuses to take some meds recommended by her neurologist because she is furious that anyone thinks this is a mental issue. Hence, all the phone calls to law enforcement and FAA 😬.
@@aksez2u My mums the same. Why am I taking all these pills? There's nothing wrong with me. My sisters and I do a monthly shift looking after her in her own home and all the doctors do is prescribe sleeping pills and antidepressants. She slept all day and missed meals and medications. She seemed better when she didn't have Ativan at night so I stopped them and the visitors stopped coming out of the walls. I wish people would realise that no pill is going to cure it. It is us that have to adjust to their way of thinking now. Good luck.
Dr can you share with us the types/names of medications we could pass on to our doctors, so they can do their research and hopefully provide something that will help. My friend has been advised that his wife has no medication to assist her But does not feel he is getting knowledgeable information. Thank you
Whatever he suggests look up the side effects. Doctors only get told what the pharmaceutical companies tell them. Test each one short term. My mother was on Ativan till I looked up the side effects (delusions and hallucinations) among others. I took her off them. No more night terrors. Good luck.
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
Do you know if this medication is available in the UK, dear relative is bedbound for over a year with LBD,in a care home, he has days of sleeping and cannot be woken ,is this usual with LBD ,thank you
If he's in a nursing home they will have him doped up so he doesn't keep them awake at night. Sad but true I'm afraid. Thought about putting our mum in one till we found out that is what they do. Keep them drugged up so they don't have to deal with them. I'm sorry if this sounds blunt and it is but it's how aged care and doctors work in these situations. They just don't have the staff for 24/7 care. They should....but they don't.
does red light therapy help them??? not a cure just improve there effects from off periods??
Please help me with my dad.
What is the life expectancy for someone with this disease?
5-7 years, on average, after diagnosis.
That is correct. My mother was diagnosed w/Alzheimers, by a neurologist, back in 2018. But. Because of my own research, and the fact that extreme hallucinations, were not a common symptom of Alzheimers, her gait issues, extreme change in personality, ie, anger, profanity, hitting, spitting, kicking, moments of clarity, I knew it was more likely LBD that she suffered from. She passed almost 2 months ago, exactly 5 years after.
It gets real when they loose their ability to control their bladder and bowels. 😞🥺😢
I have a dear uncle who passed a few years ago and I've always suspected he had LBD. He developed Parkinson's and then dementia and went downhill fast in his early 70s. What I'd like to know is: does the Parkinson's show up before the dementia or the reverse? Do they always occur together?
As Kenneth pointed out:
• Clinically, dementia with Lewy bodies is distinguished from Parkinson disease dementia through the “1-year rule” according to the latest consensus criteria (McKeith et al 2017), where dementia with Lewy bodies has onset of dementia within, or prior to, 1 year from the onset of Parkinson disease, and Parkinson disease dementia is characterized by dementia occurring greater than 1 year after a diagnosis of established Parkinson disease.
This may patients with dementia ruclips.net/video/akuAUvYpZ6U/видео.html
@@alzheimersmd5092 My uncle developed PD and then literally a year afterward developed dementia. He got worse and worse within the next year and passed. His sister (my aunt) also has PD but is seemingly fine otherwise, no dementia. My aunt has had PD for several years now and it seems to be mild at this point so we're all hopeful she will live comfortably for a long time yet. She's 77. Thank you for replying, Doc...I think you answered my question well.