Great presentation (and excellent questions) but I'm not so sure about the statement "the heart rate never lies". If pwME have dysautonomia (ie POTS, anxiety etc) and/or take meds like beta blockers then wouldn't HR being 'lying' frequently? She does partially qualify this at 46:00 but it begs the question: Is HR really the best indicator we can use for managing energy envelope/avoiding PEM?
Interesting information on the energy cycles of the body. Is there any evidence to back up the claim that operating in the aerobic zone triggers PEM? Doesn't everyone operate in this zone all the time (i.e. breathing)? Is there any evidence to suggest what level of aerobic exertion triggers PEM? Thanks
The evidence is every CFSer who does a 2 day CPET does worse on the second day. No other disease does that (they've compared to those who are sedentary, have depression, have MS ...all those groups do the same if not better on the second day) Definition of Aerobic exercise requires an elevated HR. Only the very very severe CFSer finds just breathing an aerobic activity (eg see Whitney Dafoe as an example)
+cb brooks In the gym world, the word anaeorbic can refer to short bursts of activity, like lifting weights or sprinting, as opposed to aerobic activity that is sustained over a period of time, like walking, swimming, cycling. Unlike aerobic activity which burns fat for energy, anaerobic activity uses glycogen stored in the muscle. One of the by-products of burning this glycogen is lactic acid. There is a point at which the body can no longer remove the lactic acid from the working muscles quickly enough. This is your anaerobic threshold (AT) That AT level depends on the person, including your age. People with some disorders (like postural orthostatic tachycardia which many people who have CFS unknowingly have) need a heart rate monitor to make sure they stay below their anaerobic zone for daily activities because it is not sustainable. Sometimes just brushing your hair or taking a shower puts those people;s heart rate above the aerobic level, but they can still talk, and don;t notice their heart beating fast during the activity, but do get tired very quickly after such activity and need extended rest to recover.
+cb brooks , you might be interested in attending this upcoming talk by Mark VanNess, hosted by the MEFM Society of BC: us3.campaign-archive2.com/?u=8a7b6df08acee94a7db5ce6a6&id=e4c2b5266d&e=[UNIQID] He's supposed to be talking about practical applications based on Staci Stevens' findings--exactly the kind of question you're asking. If that link doesn't work, try this one: mefm.bc.ca/2016-international-me-fm-awareness-day-event/
@@mefmsocietyofbc5255 Thanks for posting Mark VanNess talk here ruclips.net/video/FXN6f53ba6k/видео.html (as those links you mentioned are now outdated)
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Great presentation (and excellent questions) but I'm not so sure about the statement "the heart rate never lies". If pwME have dysautonomia (ie POTS, anxiety etc) and/or take meds like beta blockers then wouldn't HR being 'lying' frequently? She does partially qualify this at 46:00 but it begs the question: Is HR really the best indicator we can use for managing energy envelope/avoiding PEM?
I've heard her say that her target audience is NOT people who take meds for POTS, so you have to be even more careful to not overdo it!
@@sunshinenOJ that seems like a tiny audience because most people I know with ME also have POTS and or anxiety
Interesting information on the energy cycles of the body. Is there any evidence to back up the claim that operating in the aerobic zone triggers PEM? Doesn't everyone operate in this zone all the time (i.e. breathing)? Is there any evidence to suggest what level of aerobic exertion triggers PEM? Thanks
The evidence is every CFSer who does a 2 day CPET does worse on the second day. No other disease does that (they've compared to those who are sedentary, have depression, have MS ...all those groups do the same if not better on the second day)
Definition of Aerobic exercise requires an elevated HR. Only the very very severe CFSer finds just breathing an aerobic activity (eg see Whitney Dafoe as an example)
what do you mean when you say do anaerobic exercise instead of walking? can you please give examples of types and lengths of time? thank you
+cb brooks In the gym world, the word anaeorbic can refer to short bursts of activity, like lifting weights or sprinting, as opposed to aerobic activity that is sustained over a period of time, like walking, swimming, cycling.
Unlike aerobic activity which burns fat for energy, anaerobic activity uses glycogen stored in the muscle. One of the by-products of burning this glycogen is lactic acid. There is a point at which the body can no longer remove the lactic acid from the working muscles quickly enough. This is your anaerobic threshold (AT)
That AT level depends on the person, including your age. People with some disorders (like postural orthostatic tachycardia which many people who have CFS unknowingly have) need a heart rate monitor to make sure they stay below their anaerobic zone for daily activities because it is not sustainable. Sometimes just brushing your hair or taking a shower puts those people;s heart rate above the aerobic level, but they can still talk, and don;t notice their heart beating fast during the activity, but do get tired very quickly after such activity and need extended rest to recover.
+cb brooks , you might be interested in attending this upcoming talk by Mark VanNess, hosted by the MEFM Society of BC:
us3.campaign-archive2.com/?u=8a7b6df08acee94a7db5ce6a6&id=e4c2b5266d&e=[UNIQID]
He's supposed to be talking about practical applications based on Staci Stevens' findings--exactly the kind of question you're asking.
If that link doesn't work, try this one:
mefm.bc.ca/2016-international-me-fm-awareness-day-event/
@@mefmsocietyofbc5255 Thanks for posting Mark VanNess talk here ruclips.net/video/FXN6f53ba6k/видео.html (as those links you mentioned are now outdated)