✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
I just want to add that I have long COVID and many findings (EBV reactivation, T cell dysfunction, MCAS, POTS, small fiber neuropathy, and on and on), and yet I think the neuroplasticity programs still have a place here. They can help you calm the body and mind so that they can get back to their job of healing you physically. We are all operating in danger mode, emotionally but also on a cellular level (see Dr. Robert Naviaux’s work on the cell danger response). Neuroplasticity programs can definitely help, even if they don’t get you to 100%.
Exactly! Learning about Dr. N’s cell danger response opened the door for me to understand the principals of the mind body. My favorite rescourses that have helped me get out of almost all my symptoms now are Nicole Sach’s podcast the cure for chronic pain. I listened to so many recovery stories and it helped me believe and then start to try to help my body feel safe thru out the day. Also Dan Buglio who was interviewed here a few months back. His RUclips page Pain Free you is so great. But also a huge thing that got me to the next step was luring about exposure therapy and getting comfortable being uncomfortable. When I had a symptom, I would say ok I don’t like this but I have done all the tests and I’m not dying. This will go away when it goes away and I’ll be fine. Then you engage in an activity. You don’t try to ignore the pain/symptom, u address it, acknowledge it, and tell your body there is nothing to fix, you’ll be ok and you are safe. That’s what got me to turn off the big alarms and symptoms. The DARE app and book is really helpful with this! I also like Alon Gordon’s book The Way Out. He also did a podcast a few years ago where he walked people thru how a pain reprocessing therapy session would look, that was helpful. The big take away I got from him is many of us with chronic symptoms we have a preoccupation problem not a pain/ lay motor problem. The more we focus on things we love to do an we’re passionate about ( instead of fear of our pain and what new gadget, program, pill we can try) that will help our nervous system feel safe. Might take 1-2 years but eventually our body will come out of the cell danger response and back to homeostasis. It’s so exciting! We can do this! Just listen to all the recovery stores of so many autoimmune conditions, even a woman recovered from ALS in Europe. It’s beautiful!
Ive been wanting to join the Gupta program since I found out about it and although its only a few hundred I can not afford it so ive exhausted all the free stuff they have to offer which is really great and I'm going at this brain retraining alone with the help of Raelan and other videos. 🙏 Honestly I truly believe this is the start of getting my life back. Thank you !
You are truly an Angel, Raelyn! I've dealt with so many of these issues most of my life into my 50's and just recently discovered all the programs available via youtube! Not much help all these years and then suddenly I'm overwhelmed! Looking forward to going through your resources - thank you so much!!!
Love your channel...life saver! Ralelan could you please slow down your delivery a bit...so fast and I guess having brain fog etc. is what makes it hard to stay till the end...all the content just spewed out so quickly...thank you for your consideration.
Hi Raelan, I’ve followed your own recovery story since about a year now. I’m a 17 month long hauler and was wondering what your stages of increasing work or being able to handle workload was? I remember you working in Malaysia part-time for 2-3 hrs a day where I recall you were at 50% functioning capacity. The reason I’m asking is because I sometimes think I’m at 45-50% but I don’t think I can go through more than 1 hr of at home work. I guess I’m over-estimating my recovery rate. 😞😞 What I wanna know I guess is - what should a 50% -er be able to do with physical exertion as opposed to a 70%er. Should a 50% be able to walk a kilometre atleast? Thank you again for continuing to inspire us 🙏🙏
Re tests in ME/CFS, you can test for autoantibodies associated with the condition (anti Beta 1, anti Beta 2, anti muscarinic 3 and 4). These can be done via cell trend lab in Germany. Some dialysis centres in Germany like Dr. Jaegers or Pretorius' lab in South Africa can test for microclotting.
I am at the stage of deciding which Recovery Programme to go with. There are so many choices. I have Fibromyalgia too, so want something that includes chronic pain, not just energy.
You seem to draw a thick line between what you call "structural" and "functional" issues. I'm assuming that what you mean by "structural" are things like mold toxicity or infection? In Primal Trust, Dr. King doesn't seem to distinguish. She says that the body can heal itself when you stop the undesirable feedback loop between the brain and the body and allow it to go into healing mode. Am I misunderstanding what you're saying?
Hi again Raelan, just thought I'd let you know that I still can't access the facebook group. If there isn't a problem your end, then it's looking like I've been removed and blocked as your group doesn't show on a search. I have ZERO idea why this would be. It was also my only space where I felt understood as I live alone and I'm housebound. I don't partake in the other groups because they are so negative. Would you mind looking into this please? Being blocked seems like a serious breach of the rules, and I'm not aware that I've broken any. My posts have all been respectful and positive, as have my comments. I really don't get it. Thank you, I'd really appreciate it.
So sorry about this, Lea 🙏 I don't get it either; it seems like you were automatically blocked because of some keyword settings. So weird! It should be all sorted out by now. Thanks so much for bringing this issue to my attention 🙏 I wouldn't have known about it if you hadn't reached out.
Raelen thanks so much! I have just asked to re join the group and I am awaiting approval. Talk about a sensitive nervous system because I have been awake all night (I'm in the UK if that doesn't make sense to you time wise) wondering what I could have possibly done lol! Silly I realise, but I really enjoy your group, and it's been so helpful to me. I read somewhere that if you have admin assist or auto admin (something like that) turned on, that it can be quite brutal with banning people. Not sure if that was the culprit. Thanks again!@@RaelanAgle
Raelan, I suddenly can't access your facebook group? I don't believe I could have done anything to have been thrown out of it! Is there a problem please? Is anyone else having this issue, or is it just me please? :(
Raelan - "So Oxford university are in the process of making a blood test to diagnose ME/CFS" Me - "😂😂😂 bet you £20 that comes back 'normal' like everything else! " 😢
✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
I just want to add that I have long COVID and many findings (EBV reactivation, T cell dysfunction, MCAS, POTS, small fiber neuropathy, and on and on), and yet I think the neuroplasticity programs still have a place here. They can help you calm the body and mind so that they can get back to their job of healing you physically. We are all operating in danger mode, emotionally but also on a cellular level (see Dr. Robert Naviaux’s work on the cell danger response). Neuroplasticity programs can definitely help, even if they don’t get you to 100%.
Exactly! Learning about Dr. N’s cell danger response opened the door for me to understand the principals of the mind body. My favorite rescourses that have helped me get out of almost all my symptoms now are Nicole Sach’s podcast the cure for chronic pain. I listened to so many recovery stories and it helped me believe and then start to try to help my body feel safe thru out the day. Also Dan Buglio who was interviewed here a few months back. His RUclips page Pain Free you is so great. But also a huge thing that got me to the next step was luring about exposure therapy and getting comfortable being uncomfortable. When I had a symptom, I would say ok I don’t like this but I have done all the tests and I’m not dying. This will go away when it goes away and I’ll be fine. Then you engage in an activity. You don’t try to ignore the pain/symptom, u address it, acknowledge it, and tell your body there is nothing to fix, you’ll be ok and you are safe. That’s what got me to turn off the big alarms and symptoms. The DARE app and book is really helpful with this!
I also like Alon Gordon’s book The Way Out. He also did a podcast a few years ago where he walked people thru how a pain reprocessing therapy session would look, that was helpful. The big take away I got from him is many of us with chronic symptoms we have a preoccupation problem not a pain/ lay motor problem. The more we focus on things we love to do an we’re passionate about ( instead of fear of our pain and what new gadget, program, pill we can try) that will help our nervous system feel safe. Might take 1-2 years but eventually our body will come out of the cell danger response and back to homeostasis. It’s so exciting! We can do this! Just listen to all the recovery stores of so many autoimmune conditions, even a woman recovered from ALS in Europe. It’s beautiful!
You do so much for people. I will recover.
Yes, you will. Never give up, keep your head up!
“What does that mean? You ask very good questions!” 😂😂 you’re so funny, Raelan. This video is awesome too. Really whittles it down to the basics.
Can’t wait to see you brain training program Raelan 🥳with many thanks as always 🥰
Bless you Raelan 🙏🏻 ♥️. Love the pink lights. 💗
Ive been wanting to join the Gupta program since I found out about it and although its only a few hundred I can not afford it so ive exhausted all the free stuff they have to offer which is really great and I'm going at this brain retraining alone with the help of Raelan and other videos. 🙏 Honestly I truly believe this is the start of getting my life back. Thank you !
So much suffering it is hard not to lose all hope in life.
I appreciate this video so much. And your generosity ❤
You are truly an Angel, Raelyn! I've dealt with so many of these issues most of my life into my 50's and just recently discovered all the programs available via youtube! Not much help all these years and then suddenly I'm overwhelmed! Looking forward to going through your resources - thank you so much!!!
Wish all this info was available 20 years ago. Thank you for putting this out there ❤
Glad it was helpful, Sue! ❤️
I can't get a diagnosis... I have been to the hospital soooo many times. I am miserable.
Are you in the UK? If so get advice from action for M.E. they told me how to go about it.
Great summary. Succinct and helpful ❤😊
have not committed on a program and i am really looking forward to yours!
Love your channel...life saver! Ralelan could you please slow down your delivery a bit...so fast and I guess having brain fog etc. is what makes it hard to stay till the end...all the content just spewed out so quickly...thank you for your consideration.
(Maybe slow down the playback speed?)
Hi Raelan, I’ve followed your own recovery story since about a year now. I’m a 17 month long hauler and was wondering what your stages of increasing work or being able to handle workload was? I remember you working in Malaysia part-time for 2-3 hrs a day where I recall you were at 50% functioning capacity. The reason I’m asking is because I sometimes think I’m at 45-50% but I don’t think I can go through more than 1 hr of at home work. I guess I’m over-estimating my recovery rate. 😞😞
What I wanna know I guess is - what should a 50% -er be able to do with physical exertion as opposed to a 70%er. Should a 50% be able to walk a kilometre atleast?
Thank you again for continuing to inspire us 🙏🙏
I'm confused by what you mean when you refer to structural causes and the sort of testing kits you're referring to? Can you elaborate?
Needed that reminder about just doing our best ❤
What do you think about Curable. I like it, but it is focused on pain and not ME/CFS
What if all the medical tests come back normal and I don’t have a neuroplastic component? What are the options then?
Dos facial mucels be effect this
Re tests in ME/CFS, you can test for autoantibodies associated with the condition (anti Beta 1, anti Beta 2, anti muscarinic 3 and 4). These can be done via cell trend lab in Germany. Some dialysis centres in Germany like Dr. Jaegers or Pretorius' lab in South Africa can test for microclotting.
I am at the stage of deciding which Recovery Programme to go with. There are so many choices. I have Fibromyalgia too, so want something that includes chronic pain, not just energy.
Follow "Pain free you" with Dan Bruglio and his daily videos.
You seem to draw a thick line between what you call "structural" and "functional" issues. I'm assuming that what you mean by "structural" are things like mold toxicity or infection? In Primal Trust, Dr. King doesn't seem to distinguish. She says that the body can heal itself when you stop the undesirable feedback loop between the brain and the body and allow it to go into healing mode.
Am I misunderstanding what you're saying?
Hi again Raelan, just thought I'd let you know that I still can't access the facebook group. If there isn't a problem your end, then it's looking like I've been removed and blocked as your group doesn't show on a search. I have ZERO idea why this would be. It was also my only space where I felt understood as I live alone and I'm housebound.
I don't partake in the other groups because they are so negative. Would you mind looking into this please? Being blocked seems like a serious breach of the rules, and I'm not aware that I've broken any. My posts have all been respectful and positive, as have my comments. I really don't get it. Thank you, I'd really appreciate it.
For sure, thanks so much for letting me know!
So sorry about this, Lea 🙏 I don't get it either; it seems like you were automatically blocked because of some keyword settings. So weird!
It should be all sorted out by now. Thanks so much for bringing this issue to my attention 🙏 I wouldn't have known about it if you hadn't reached out.
Raelen thanks so much! I have just asked to re join the group and I am awaiting approval. Talk about a sensitive nervous system because I have been awake all night (I'm in the UK if that doesn't make sense to you time wise) wondering what I could have possibly done lol! Silly I realise, but I really enjoy your group, and it's been so helpful to me.
I read somewhere that if you have admin assist or auto admin (something like that) turned on, that it can be quite brutal with banning people. Not sure if that was the culprit. Thanks again!@@RaelanAgle
Raelan, I suddenly can't access your facebook group? I don't believe I could have done anything to have been thrown out of it! Is there a problem please? Is anyone else having this issue, or is it just me please? :(
Sometimes Facebook acts funny, please give it an hour or so!
OK thanks. If I have issues still in a couple of days, I will let you know@@RaelanAgle
❤
Not a recovery plan
Raelan - "So Oxford university are in the process of making a blood test to diagnose ME/CFS"
Me - "😂😂😂 bet you £20 that comes back 'normal' like everything else! " 😢
Haha, I totally hear you! ❤️