Family mourns baby born with Anencephaly who lived only 17 hours.
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- Опубликовано: 6 фев 2025
- "We had 17 of the most wonderful hours that I'll never forget."
The Gretna, Louisiana couple said they were advised to end the pregnancy after the Anencephaly diagnosis, and even though Luke lived less than a day, they say he made a big impact on their lives.
I lost my daughter to anenchephaly in September of 1987. I had 1 hour holding her before the doctor confirmed she had passed. I have suppressed many memories along the way, but that hour was precious to me. God bless you and others who have had this heartbreak in their life. X
Peace , love , health and happiness to you xxx
Ol
😢 I’m glad you had that hour. That will be the most precious hour of your life ❤
🫒 🕊️ Some children are so pure, they just come down from Heaven, to collect their bodies. Without having to struggle through all of the trials, of staying on earth. Before they are reunited with their family in the Heavens
I lost my baby boy to anencephaly in 1979. I never got to see or hold him. I have nothing to say he actually ever existed. Parents of to day don’t know how lucky they are being able to spend time with their baby. I would give anything if I could have held him and see his face. All I have are memories of the day I gave birth to my baby boy. He isn’t even berried in a proper grave as it’s just wasn’t done in those days. He is buried in someone else’s casket and I am not allowed to place flowers for him. So if you have or have had a baby born this way and I know how heartbreaking it is be thankful that you had the chance to spend time with them
I'm so very sorry 💔
You should have been given the choice. You brought him into the world and should have had the moments with him to say goodbye. More for you than for him. I’m so sorry for your loss. Isaiah 26:19 ❤
17 hours isn’t enough! Life can be so unfair sometimes. My heart is broken for them. I cannot imagine the pain,
Thank you for the kind words vaginal flatulence
He is beautiful, so sad for everyone loss of a life. I think you honored the little guy in the most beautiful way. Life is precious and a gift. That is love to give him a chance and then to hold him and love him as he moves into the mansion God has built for him. Thank you for sharing his little life with us it was a honor to hear how love was given to him by his Loving parents.
Oh I feel so bad for them. It doesn't matter how long you get to have your child is the loss hurts the same. Prayers for the family.
prayers didnt work before or after the birth
This is the condition that breaks my heart the most. It's so unfair.
Sorry for your loss. Beautiful baby boy
Can you terminate a pregnancy? Yes. But can you terminate your baby? No. That baby will forever be part of you. And it is the mother’s choice.
In many states now, by the time the issue is detected, termination won’t be legal.
I get it hurts but honestly that is cruel for the child to suffer just so the parents can hold him for 17 hours. My daughters heart stopped at 33 weeks and I had to go through the pain of delivering a dead child but at least I knew that she would feel no pain.
He got to feel his mother touch, his fathers, his grandmothers. The physical world and love ❤️ of his earthly family. I’m sure the doctor took care to limit any pain this tiny infant may had been experiencing during his short life. The gift of life is precious no matter how short and this child and his parents deserved their moments together . God blessed them and for that they are grateful.
@@angelblue7779 Without the neocortex (and cerebrum) and literally only 10% of the rest of the brain, the baby would not have a cognition, blind, deaf, unable to feel pain and unaware of its situations later on life. All it would have now is some lower brain functions, which is the ability to move, suckle, and most of a newborn's reflexes. After a few days, the brainstem would cease functioning in the baby and either the heart or lungs fails. The baby either dies a terrible death by organ failure at less than 2 days or lives until they begin to suffer the other symptoms of not having a cerebrum for less than 5 years. They would not be able to feel love due to not having cognition and would not be able to even think, purely running on instinct until their brain fails to control their body and they die. It is not a good life.
Due to his condition, he was completely unaware of everything. He didn't suffer.
@Patti Meyer I would not label it as "discarding" him. That would mean the parent doesn't care for the kid. In this situation, it could be said that termination shows care for the kid and not wanting him to suffer. I agree on the judging thing though.
@Patti Meyer This was their child, but do you really think this is morally right to force a child to suffer the fate of not being able to think or act? All so your parents can hold you for 17 hours as your heart slowly stops? This death is the same death as an abortion, just delayed for a couple of months where the baby has to suffer the fate of being cognitively impaired and a vegetable without being able to think.
letting a kid survive like that is a form of torture. the baby is suffering like that. no matter what, it won't thrive at all and will likely be blind and deaf. this is awful letting something live like that
this
You will never understand the pain of us parents with babies with this condition. I hope you'll never get through this . But better speak no words because God is all ears !
@@dr.diorcardiologist why would you let the child be born with no brain
@@dr.diorcardiologist You could of just aborted the child you animal.
@dr.diorcardiologist I mean it's much worse for the child than it is for the parents. They won't get any quality of life. Assuming they're one of the rare cases that live over a year, they essentially live life as a vegitable, requiring around the clock care. It's best for everyone to abort and try again.
It’s very difficult and hearbreaking to lose a child - no matter the age. Sorry for your loss. 🙏
So sorry I had one his name was Michael. He lived 13 days. Its sad he is so cute
I am 20 weeks today and just found out that I had anencephaly again for the 2nd time, its a boy.😢 My doctor was indeed in shock knowing that I caught it twice. Pray for me.
@@nisya2643 I am so sorry
Hey I'm 35 week pregnant and from the beginning my dr say this baby not survive. She is girl😥😥 .anencephaly baby
Sorry sister
This is all the ani christs work, he has no compassion when dealing out this curse
God Bless you and your family. My Daughter now also is carrying a baby boy due in February with Anencephaly. Only God knows the plan so we have left it in his hands.
wish you all the best
this is extremely selfish of the parents. doctors should have pressed harder to end the pregnancy before birth. this is why abortion must be an option... and must remain so. this was clearly known at or before 20 weeks that the fetus was deformed and would not survive.
I had an anencephalic child as well. A boy. He died in utero.
People are so dumb. Anencephaly is not compatible with life. Period. That’s why doctors recommend terminating the pregnancy. Most are stillborn and the others die within hours. They think they are giving the baby a chance at life. There is no chance at life with this condition. There was one case where a girl lived to about 2.5 years old but she had no brain just laid around rooting and sleeping had many seizures many illnesses. It’s torture for these babies with this condition. But hey as long as YOU get to hold your baby I mean that’s all that matters right? People are so damn selfish.
You are not a good human being. So judgmental.
Yes it’s just more suffering to the baby because of ignorant parents, they don’t take their preconceptional frolic acid
it's also religion. sad. people should only follow the science. this type of birth defect will never allow life. yes 2, 3 17 hours. 16 days. for what? they have zero sensory ability. it's definitely cruel. is it torture? no. because the fetus feels nothing with this condition. even at term. it's crazy for a family to opt for birth.
Agreed.
May God fill that void in your heart!! He’s up there with the angels
Fly high sweet boy. Sending comfort and live to your family
I too had my girl baby I lost her too she is my dream angel 😭😭😭
On the bright side, he wasn't aware of enough to suffer.
@ᏩззᏩзз ᎡззvзᎦ so not true my.son I found out at 18.5 weeks he had anencephalie. We carried him. He could see us ,hear us and even smiled. So what ur stating isn't true. He would.move his head if we moved. My son was loved and did alot of what ur stating they can't do. Research is the key. These babies are still precious mine lived 13 days I took him home.
That’s strange - most newborns can’t see that well or smile.
@@gwenverde7970 well my son did he could hear us and look our way and he smiled maybe God new he wasn't gonna be here long so we got to see those things.sadly born 10-13-06 to 10-26-06 and babies born with anencephalie do t always assume they basicly brain dead. They can hear and see and their not suffering. They are babies and loved very much ❤
@@gwenverde7970 You are definitely correct, perfectly healthy babies are effectively blind at that age. But She lost her baby. People grieve differently. She won't accept anything we say because she saw what she saw. Her baby laughed, and looked at her. Nothing anyone can say or do will convince her that he didnt see her or that his laughter was something firing in what was left of his brain. And thats ok. If it makes her feel better about his death, fine. Nothing wrong with that. She isn't hurting anyone.
@@blueturtle3623 no she’s not lmao
Anencephaly is unforgiving from the earliest days after conception. The strength of Luke Michael's parents to go forward, knowing what the outcome would be, is remarkable. They, at least had 17 hours with their little boy, time that will always be precious. ---Back in the days of medical stupidity, my little boy was taken away immediately. Never saw him, let alone held him, or caressed his face, nothing. He was shut away in a room for the 27 hours he lived. His spirit then flew free, and returned so briefly in another little boy (no bio connection). Re folic acid, of course take it before pregnancy, but I strongly believe there is also a genetic component. I chose to never attempt another baby. I consider my first born son a miracle, 55 years ago.
sher phair I’m sorry for your sad experience. Fifty-five years ago neural tube defects couldn’t be diagnosed prenatally, so it must have been more tragic.
This far, regarding primary spinal bifida, microcephaly, and anencephaly, (primary,) there has not been any inherited genetic marker or predisposition identified.
There are other genetic conditions that exhibit microcephaly as a symptom of some genetic syndrome, and that’s called secondary microcephaly, and it occurs.
There is no known genetic flaw or marker when the DNA of anencephalics have been completely mapped and studied.
Neural tube defects happen very, very early in embryonic development, and no one knows why, other than the folic acid hypothesis.
It is always, always recommended to terminate these tragic and IWL fetuses.
To continue a pregnancy with all inherent risks for a non-viable shell-of-a-neonate is a matter than many obstetricians refuse to support.
Telive Qwenton are you addressing me?
@Telive Qwenton I think maybe you were asking me is my son alive. He was my 2nd born & died at 27 hours- on my birthday. I chose never to risk another pregnancy. What we did do, was the adoption of a 5 week old girl. Fast forward 30+ years. Adopted daughter (who had found her birth family 10 years previously--NO biological connection) had a baby boy. Picking him up one day at a profile view of his head and face, I SAW it. The unmistakable resemblance to my first born at that age= 8 months. This resemblance lasted on and off for 2 years. The same hair coloring, same blue eyes, facial similarity. I knew from my husband, who had demanded to see our little one, that he looked very much like his older brother. So, the spirit of my lost son came back for a short while, showing me in my adopted daughter's baby boy, that it was to "play out" just as it was supposed to. He would stay on this earth only briefly, so that his "sister" who needed a home, could come to us. What a generous spirit/soul he possessed to do this. I wear a heart shaped necklace, on one side is my first born as a little boy, on the other, my daughter's boy. Those who have asked about it, will say "they look like brothers" and women often will say they just felt a chill. Brothers....this I believe.
@@JaimeMesChiens Check out Dasah's story, and her sister, Sophia, two full sisters (NOT twins) who were born anencephalic. The parents then chose to adopt a little boy. A couple of years later, they decided to try again, this time a HEALTHY baby girl! Tell me that genetics doesn't play a role. Science isn't smart enough to have the reason why, maybe some day.
sher phair I did not say that genetics doesn’t play a role.
I indicated that, thus far, no specific genetic marker has been identified.
I'm sorry to say this but u have the be the CRUELEST parent ever to even THINK of bringing a child into the world with these types of deformities...so freaking SELFISH!!!
I hope you don’t have kids if you’re gonna be this judgmental.
This sucks for the parents but every one of these babies look like frogs......and i personally think its insane to actually think you are doing a service by choosing to carry a fetus that you know will have no skull and virtually no brain, only a brain stem and basically half a head with the top of it heads insides exposed......it basically has a face, ears, but the rest of the head is missing.....then its eyes are unnaturally are much larger than usual....also knowing that it will never be conscious so it is clueless as to whats going on and then knowing it will go into cardiac arrest cuz it cant breathe properly cuz it has no brain to carry out that function.....it has no chance period so i dont get why you would want to have a baby that physically deformed and will seize cuz it can't breathe and then watch it die.....whats best for a fetus like that is to be terminated not to let it grow into a grotesque deformed fetus and watch it struggle to breathe ,seize, and die anyways. Its crazy
Omg u need to educate ur self babies have heart bests and don't look like frogs. I had an anencephalie babie he didn't look like a frog and had skull and was conscious. These babies are precious from God. Bible ssys thou shall not kill they have life and a reason educate before being mean and hateful
taking on blue world bad pools I’m sorry but there’s no way your baby has any feelings at all. They’re literally born without a brain, you’re putting them through unneeded suffering because you want to feel like a parent
@@Dampzombieslayer Babies with anencephaly typically Do have a brain. The brain above the brainstem is less developed and damaged by exposure to amniotic fluid after the skull fails to close completely. Some babies have a partial skull opening; some have a higher percent of closed skulls than others. There are different degrees and variations. While many of their senses will certainly be affected, they are not 100% obliterated. If you did some research you would see that some babies can actually eat and drink, move, cry and more. Yes, of course, no matter what, these babies are severely disabled. However, many have survived for varying lengths of time. A baby in Brazil had skull-closing surgery and lived to be over two years old. She was clearly conscious. She was deeply loved by parents and family.
@@gigi4713 eating, drinking, moving and crying are basic functions.
@@rebornnursery7668 He was running on instinct. Without a neocortex or cerebrum, later on life he would not have cognition and could not think, will be blind, deaf, and his previous ability to interact, move, suckle, and react to stimuli would have been taken away from him at about a couple of weeks. If he survived for a month he would not be able to think, feel emotions, or even sense outside stimuli. He would no longer be able to move or form a conscious thought.
Your are very lucky. I had a baby born in 1973 she had this. Her death helped researchers to find out about folic acid. I never got to see her or hold her.
Her life had meaning and saved many other lives. May God bless you.
OMG so so sorry for your loss a beautiful child beautiful life sleep forever with the angels may God be with you both💔🙏🙏
She wanted to give him a chance but there was no chance. This condition is incompatible with life and *all* affected babies die in utero or infancy.
I dont understand how anyone can go through a full pregnancy, just to give birth and watch it die right away??? Why put yourself through this pain, and put the baby through this pain? I know this sounds so harsh, but keeping this baby and allowing it to be born to know it will just die is cruel.
You get a dead baby either way. Why dismember him/her in the womb, instead of letting him/her have what little life and love come naturally?
We all die. The few hours or years we have to love and be loved are certainly NOT wasted. Why on Earth would you want hasten it for anyone??
YOU are the cruel, heartless, cold one here.
A brave and unselfish decision. You will hold him in Heaven again someday
So sorry for the loss of your beautiful baby boy.
I can't even handle this
This is my story too , my daughter Marija Dolores was born on the 8 march 1999 , she passed away after 3 hours , 25 years has passed but I still remember her in my womb .
Love you till my last breath Marija xxx
I lost my baby KAYLANÍZ to Anencephaly also, and like you guys, I was told to get rid of her. I chose to go full term bcuz I always wanted a baby, but unfortunately I suffered a stroke and aneurysm that put my life at risk a long with the pregnancy being highly life threatening, and birthed her at 6 mos. She was born sleeping. So my heart goes out you both. You are not alone. I'm now an angel mommy 💛
yeah ur delusional for not aborting him or her gross foid
Thats what happens when you decide its a good idea to go against doctors advice, you asked for it
How incredibly selfish to make that poor baby suffer.
i strongly feel that the aborting of an anencephalic fetus may be an absolute necessity.
It is the parent’s choice and nobody else’s.
@@lisabaltzer4190 Ditto.
I'm very sorry for your loss of your baby U are in my prayers
Anencephaly isn't an abnormal brain... it's no brain at all. Still my heart breaks for every baby who has to pass way too early 😢
Beautiful baby!
Just heartbreaking.. There is no reason in USA to be folic acid deficient.. it is of vital important to the development of a fetus
What causes anencephaly?
anencephaly is caused by neural tube defects. Basically when you're a developing embryo, you will form whats called a neural tube by week 3 of embryogenesis. So if you think about a neural tube like a straw, with two openings one at the top (cranial end) and one at the bottom (caudal end), failure of those two openings to close will cause birth defects. In the case of anencephaly, the cranial opening (top part) fails to close. In the case of the bottom opening failing to close, you'd have an infant born with spina bifida. Usually neural tube defects can be reduced/prevented dramatically by consuming roughly 400 mcg of folate if you're attempting to conceive.
It happened to me and I was consuming daily 400mg of folic acid ! And I have two healthy children , so I don't believe it's something genetic . Just bad luck :(
Lost my son 50 years ago to this and I feel so sad that this is still happening.
I think letting him suffer so you can spend time with him is sick. We put down our animals when they suffer, yet are inhumane to humans. Makes no sense.
I just lost my son two weeks ago to encephalocele it hurts so much 💔 I'm happy they got to spend time with him
My anencephalic baby lived 47 minutes. I didn't even get to hold her until she after she had died.
Wow I’m so sorry I have a friend who’s baby sister past away of this they had her for 2 hours
are these beautiful children able to be organ doners
Yes! As long as the parents agree. A baby with this condition became the youngest organ donor in Wisconsin. That’s really the only reason I could understand for not terminating
Life is precious.
There is no excuse to say otherwise
We wanted to give him a life??? Hmmmmm???
My son Michael had this also lived 13 days
😢my baby 24 hours live but she pass away last 2018
I hope they moved on to have a healthy baby
So sad.
😢😢😢😢😢😢😢😢😢😢😢😢😢😢
🙏
Yet you induce early ..... making the journey so much harder for him.
Dont have to induce early at all i didnt we made it to 38.5 days my son michael looked pretty normal cried and all he was 6.2 pounds lived 13 wonder days
How absolutely selfish, gross, cruel and pointless to bring this child to term and be born just to suffer horrifically. Religious beliefs really do enable normally decent humans to do truly evil things and feel fine about it.
They say they don't suffer can't feel. I don't know. But now wasn't the time for your selfish opinion
You’re the one who is cruel
❤️💐
I have my first baby with anencephaly but died right when he's born💔
Hey please pray for me .i have 15 month old boy. And now 35bweek pregnant with anencephaly baby .first I'm worried about my baby but now I'm worried about myself. Because i have too much fluid in my womb. 2week ago doctor remove some fluid but now again comming.
How you give birth your baby?csection or normal?
@@rubaiyashahnama6160 I delivered him normal delivery in just 30 minutes because his head is not fully developed
@@maryfayealanisauxiliogurne5671 oh .thanks
@@rubaiyashahnama6160 God Bless You🙏🌻💖
This is so sad but does it make you think Will you go to Heaven when you die? Here’s a quick test: Have you ever lied, stolen, or used God’s name in vain? Jesus said, “Whoever looks at a woman to lust for her has already committed adultery with her in his heart.” If you have done these things, God sees you as a lying, thieving, blasphemous, adulterer at heart, and the Bible warns that one day God will punish you in a terrible place called Hell. But God is not willing that any should perish. Sinners broke God’s Law and Jesus paid their fine. This means that God can legally dismiss their case: “For God so loved the world that He gave His only begotten Son, that whoever believes in Him should not perish but have everlasting life.” Then Jesus rose from the dead, defeating death. Today, repent and trust Jesus, and God will give you eternal life as a free gift. Then read the Bible daily and obey it. God will never fail you.
So literally every human being is an adulterer or a liar. Noted.
Taco baby 🍼 🌮