**be sure to talk to your doctor about your individual limitations because EVERYONE is different! :) I am 20 years old with HLHS just trying to live life with everything that I've got!
Thanks Meg for posting this video. My daughter will be born in 2 months and she has HLHS. My biggest questions (and worry) to the doctors has been "What will her life look like as she gets older" and your videos have offered a very encouraging and hopeful perspective and calmed a lot of my fears. God Bless you!
You are amazing! THANK YOU and BLESS YOU FOR SHARING A DAY IN YOUR LIFE WITH US! My son has HLHS and also just turned 1 in December. Your video gives me so much hope for the future!
Thanks for sharing Meg! My son has HLHS and just turned 1 in December. Seeing your video is very inspiring & gives us hope :) Looking forward to your website. Best of luck to you as you continue on your heart journey!!
Like so many others who've commented my son has HLHS. Today is his 5th birthday. Like you, he lives a pretty normal life! I always worry his health will decline as he gets older (I'm talking teen years), so seeing you living a very typical college life is so inspiring! Please keep making videos, it really does give us all hope for our little ones! And Mike sounds like a keeper:)
Great video!!! Very, very inspirational. A fellow martial artist, Mark Cummings, showed me this video on Facebook. He also has Congenital Heart Disease and is also a very inspirational young man! Keep doing your thing!! :)
Thank you Meg, our Son Nicholas also has HLHS he is 9 now and doing great, your video is an inspiration to us all. I do have a question about upper body strenght training, we were told that this puts stress on the Fontain, no push ups! I want my boy to do push ups !! LOL God bless you, stay great
Dear Meg, Great video and as an 32 year old HLHS patient I ask that you do take care of your liver and your sodium intake. Trust me when I say that it will help you in the long run. You don't have to do any special liver cleansing...all you have to do is eat healthy, cut out the processed foods, nix the extra salty stuff and keep your alcohol intake to a minumum. Being diagnosed with cardiac cirrhosis is not fun...trust me.
@CHDWarrior14 My arrhythmias vary, some days I will have a lot if I am lacking sleep (seems to trigger it) but other days I will have none. I go to my cardiologist once a year.
Thanks Meg for posting this video. My daughter will be born in 2 months and she has HLHS. My biggest questions (and worry) to the doctors has been "What will her life look like as she gets older" and your videos have offered a very encouraging and hopeful perspective and calmed a lot of my fears. God Bless you!
You are amazing! THANK YOU and BLESS YOU FOR SHARING A DAY IN YOUR LIFE WITH US! My son has HLHS and also just turned 1 in December. Your video gives me so much hope for the future!
Thanks for sharing Meg! My son has HLHS and just turned 1 in December. Seeing your video is very inspiring & gives us hope :) Looking forward to your website. Best of luck to you as you continue on your heart journey!!
Like so many others who've commented my son has HLHS. Today is his 5th birthday. Like you, he lives a pretty normal life! I always worry his health will decline as he gets older (I'm talking teen years), so seeing you living a very typical college life is so inspiring! Please keep making videos, it really does give us all hope for our little ones!
And Mike sounds like a keeper:)
Meg, thank you for posting! My son is 2.5 and has HLHS. We are awaiting the Fontan. Thank you for giving us hope what the future holds!
Great video!!! Very, very inspirational. A fellow martial artist, Mark Cummings, showed me this video on Facebook. He also has Congenital Heart Disease and is also a very inspirational young man! Keep doing your thing!! :)
Thank you Meg, our Son Nicholas also has HLHS he is 9 now and doing great, your video is an inspiration to us all. I do have a question about upper body strenght training, we were told that this puts stress on the Fontain, no push ups! I want my boy to do push ups !! LOL
God bless you, stay great
Dear Meg,
Great video and as an 32 year old HLHS patient I ask that you do take care of your liver and your sodium intake. Trust me when I say that it will help you in the long run. You don't have to do any special liver cleansing...all you have to do is eat healthy, cut out the processed foods, nix the extra salty stuff and keep your alcohol intake to a minumum. Being diagnosed with cardiac cirrhosis is not fun...trust me.
@CHDWarrior14 My arrhythmias vary, some days I will have a lot if I am lacking sleep (seems to trigger it) but other days I will have none. I go to my cardiologist once a year.