What Do We Know about Long COVID?

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  • Опубликовано: 6 июл 2024
  • Long COVID is a range of symptoms that can last weeks or months after first being infected or can appear weeks after infection. Long COVID can happen to anyone who has had COVID-19, even if the illness was mild, or they had no symptoms. UCSF Pulmonologist Dr. Lekshmi Santhosh explains that a comprehensive multidisciplinary approach is important to address long-term physical, pulmonary, cognitive and mental health symptoms. There is no one "long COVID." Each patient is unique but there are some common symptom clusters. Recorded on 05/25/2021. [7/2021] [Show ID: 37138]
    Please Note: Experts are working quickly to fight and respond to COVID-19. Knowledge about health and medicine is constantly evolving. This information may become out of date.
    More from: What’s Next 2021: COVID-19, Science, and the Public Health
    (www.uctv.tv/whats-next-2021)
    Explore More Health & Medicine on UCTV
    (www.uctv.tv/health)
    UCTV features the latest in health and medicine from University of California medical schools. Find the information you need on cancer, transplantation, obesity, disease and much more.
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Комментарии • 235

  • @diannastdennis4580
    @diannastdennis4580 2 года назад +13

    I am a white person. I had severe hospitalized Covid pneumonia in November last year. I have shortness of breath I’m on oxygen I have scarring in my lungs I have bilateral opacities I have granuloma I have a stressed heart I can’t walk even upstairs any activity I have to increase my oxygen and it’s been over a year. I was totally healthy working as a nurse before I got Covid. It affects all races

    • @juliad8303
      @juliad8303 2 года назад +3

      I can’t really remember what being healthy feels like

    • @bellemislang2262
      @bellemislang2262 2 года назад

      Are you vaccinated at all? You must be referring to having had CoViD in November of 2021, right?

    • @jamberry1135
      @jamberry1135 2 года назад +1

      Please eat whole food plant based

    • @patticakes74
      @patticakes74 Год назад

      Antibiotics ?????

  • @babysisdolls3336
    @babysisdolls3336 3 года назад +11

    4 of my family members passed last year...i spent a week in COVID ICU sats 74% in January....2 month on home resp rehab...still sob...but thankful and grateful..feel like a alien on a planet getting use to the atmosphere and a new world..

  • @1shirleynewman
    @1shirleynewman 3 года назад +18

    Later was so weak. This is months later. Still weak, dizzy, tired all the time. Just want to sleep. I love to cook, but now get so weak, and can't hardly finish a meal.

    • @ritamary72
      @ritamary72 3 года назад +1

      Thank you for sharing your experiences. Hope you recover completely very soon.

    • @kayceekrieg6064
      @kayceekrieg6064 2 года назад

      have you checked ferritin levels? That was a thing for me...

    • @MrDogonjon
      @MrDogonjon 2 года назад

      the classic long covid... I quit eating too... that felt good... fasting with water.... ummmm... for four days..... yeah!

    • @ignaigna2
      @ignaigna2 2 года назад

      @Buffy 1337 Do they had the symptomy week, mont or half a year? This can help the answer to vaccinate or not.

  • @michelletotman6277
    @michelletotman6277 2 года назад +2

    It is so unreal. Yes, ignored, brushed off, confused, help, supported. You said it so plainly. People don't understand. I want to believe they don't understand because it's better than thinking they don't care.

  • @melaniejo5296
    @melaniejo5296 3 года назад +5

    Thank you for mentioning OT in your thank you. I work in home care and have seen many post-covid people back in their homes. OT is such an unsung assistance for people in their recovery! Any recognition for our profession is sorely missed and needed and very appreciated!

    • @bobbieabbott
      @bobbieabbott 2 года назад +1

      Not only Covid patients not being used enough in Hospice as well. I am licensed in both and when I am sent in to do PT I always ask why isn't OT in here they are much better equipped then PT to handle these patients.

  • @nakana149
    @nakana149 2 года назад +11

    This is the best Long Covid webinar I've seen so far. I do have a question however: When you say that overall people ARE getting better, does this include people who have not had access to supportive therapies? So many people have not had access to rehab because of test results that come back negative and this has become a real barrier to care. For many, with neuro, POTS, ME/CFS like etc etc etc the only treatment for over a year has been Vitamin C, D and Tylenol.

  • @RS-ij8id
    @RS-ij8id 2 года назад +12

    Just to add up to your data, I have had nothing but the loss in sense of taste and smell... and yet 1 month after covid I have been experience in wave a very wide range of symptoms from chest pain, fatigue, short of breath, memory loss, confusion to even more strange symptoms like vivid hallucination, vivid nightmares, sleep paralysis (never experience prior the infection or during the infection), sudden falling asleep of a part of my body such of hands, foot, legs, arms, insomnia, unjustifiable depression (never felt into depression before, in fact the opposite), hair loss, temporary hearing loss, temporary vision loss and many others. Today, 9 months later I am still experience time to time in isolated cases but still affecting my productivity and my ability to work.

  • @loutech7209
    @loutech7209 Год назад +1

    9 months I'm still not well. I wake up every day with a numbness all around top of my head, my arms and legs. I get this hot feeling come to my head as my ears start to ring then I lose my train of thought. Right as this happens I start feeling very sick and nauseous followed by very heavy fatigue and my body starts jerking. It last about 10 minute as I start feeling better this happens all over again. I can get this 10 to 50 times a day, I pray to God please 🙏 help me.

  • @allblack4777
    @allblack4777 3 года назад +19

    I haven't been the same since covid.
    I've been through so many left over things.
    Mental health, big time. Memory problems, focus problems, breathing problems, weird "viruses" when I don't go around people. Nerve problems, in my hands, legs, arms... I'm a musician and business owner...
    I wish I could be myself again.

    • @fantasypgatour
      @fantasypgatour 3 года назад +2

      I never had covid but I have experienced all of these things this last year, maybe I did have covid but I never had a symptom if I did, I just put this down to lockdown conditions.

    • @_733t
      @_733t 2 года назад

      @@fantasypgatour my memory and word retrieval was already dead before covid thanks to lockdown. Although I'm thinking I possibly got a very minor infection a couple of times before I got the big delta whammy in 2021. I remember having spells of feeling really dizzy and spaced with no other symptoms other than lymph nodes like golf balls.

  • @carolmorris9449
    @carolmorris9449 2 года назад +3

    That SOS call brought tears to my eyes. I got Covid in late fall of 2019. I'm still battling it. That video summed up everything I've been going thru and feeling.

    • @JayTsay
      @JayTsay 2 года назад

      The vaccines have not helped??

  • @vjcarter4657
    @vjcarter4657 Год назад +2

    I had been living with many of those symptoms for a year before the Pandemic was even a thing…

  • @RiaSoul33
    @RiaSoul33 3 года назад +30

    Wow, she did a really good job. I'm in Vegas and really struggling to find help. My father passed from covid in April after having first round of vax and I caught it from him by taking care of him. I keep thinking I caught it through my eye, my eye was swollen shut a day after fever broke then as eye issues persisted... I've now had neurological issue that have only gotten worse but keep getting denied for CT scan and MRI. It's been a tough road, but I wonder if symptoms and long haulers and all these different scenarios can change based on how you caught covid. I have experienced zero respiratory but extreme neurological and taking dad's temp n such had me in direct contact.... but don't get me wrong, I'd risk it all again just to have him here. 🙏
    Thank you for the great info. 💜

    • @atomicstyle7344
      @atomicstyle7344 3 года назад +7

      If you are denied ask the doctor to note why they are refusing to give a referral. They will give you a referral. Trust. You can get a second opinion as well. Doctors work for you not the other way around. If you are unhappy with treatment take your business elsewhere. I have long COVID too. It’s hell.

    • @ralfoxygen1374
      @ralfoxygen1374 2 года назад +3

      The newest therapy from Germany: Vital Air 5+ device !

    • @kayceekrieg6064
      @kayceekrieg6064 2 года назад +3

      i think i got it in my eye too

    • @blueberry-ri7eb
      @blueberry-ri7eb 2 года назад +2

      A lot of complications are being found involving inflammation of blood vessels that can cause many problems from ischemia to neuro. Get second opinion . I was put on prednisone and worked for me.

    • @MrDogonjon
      @MrDogonjon 2 года назад +4

      @@kayceekrieg6064 Me too, super pink eye and through my Vagus nerve too, into my brain and all internal organs. Do lateral eye exercises holding head still look to one side holding it for 30 seconds move eyes to the other side and hold for 30 seconds. at some point you will feel a strong need to sigh and let out breath, that is your goal. return eyes to normal forward vision there should be a feeling around your head and neck of alignment and relief.

  • @carlene2416
    @carlene2416 2 года назад +8

    I seem to have long covid (age 45 Uk based) - I got similar after the Epsom Barr virus age 21. Similar fatigue and aches but more memory loss cognitive issues this time - it’s more depressing this time round too🥺can the M.E/ chronic fatigue and long covid groups club together to shout out loud that we need some bloody help and believed because I’m having serious de ja vue here, although at least everyone knows what c-19 is ! There’s so much we don’t know about these bodies !

  • @geraldoramirez2419
    @geraldoramirez2419 2 года назад +1

    I have fatigue, cannot go upstairs, or walk fast, brain fog,

  • @nissostein
    @nissostein 2 года назад +2

    You did a fantastic job. Wonderful and clear speaker. thanks.

  • @goldencity777
    @goldencity777 2 года назад +2

    I am over a year post covid. The tingling and achiness in my legs is debillitating....I am so frustrated

  • @lisagiles6854
    @lisagiles6854 2 года назад +1

    What an amazing intelligent young women!! Thank you for all your hard research!!! Such a gift to our world!! Keep being so smart for us all!!

  • @msnette518
    @msnette518 3 года назад +3

    I had Covid in January 2021, I lost my taste and smell. About a month after I was diagnosed I started having pain in both lower extremities. I would go back and forth to the emergency room with no avail. I went to different doctors until I was told I needed to see a neurologist. He told me I had no nerve conduction in my legs. I was the told after a battery of test I was told i had GBS/CIDP.

  • @thomasd6674
    @thomasd6674 2 года назад

    I'd like to see an update from her

  • @BrookesLife1992
    @BrookesLife1992 2 года назад +3

    I have terrible terrible insomnia and tremors among the other symptoms mentioned. Also drenching sweats all day that I get dehydrated and no desire to eat months later. It’s doesn’t help that I have type 1 Diabeties. 🥺I had other health issues before and now those are even worse now after covid. I only leave the house for a doctors appointment. I feel for everyone who is experiencing these awful after effects. Hugs and prayers to everyone🙏🏼♥️

    • @JayTsay
      @JayTsay 2 года назад

      Did you take the vaccines? I hear they have helped some long Covid sufferers.

    • @shaanlusinclair2395
      @shaanlusinclair2395 Год назад

      You should try colloidal silver, and if you read anything that makes you blue , those are fake reports from mainstream medicine.
      I am 9 years on colloidal silver, and l am not blue .
      I drink a full cup of colloidal silver everyday and l cured my Cancer . All my friends in Asia drink it all the time

  • @ZMacZ
    @ZMacZ 3 года назад +1

    Ellos pretty doctor, I have another question for you.
    When the cell sheds new SC2's, how can they not adhere to the cell they initially attached to ?
    I mean if the cell has hACE2 on it's surface, the shedding should also allow for attachment
    to the hACE2, when just released from that cell ?
    Does that mean there's something that prevents this attachment ? Or does the the cell
    simply get all it's hACE2 receptor spots filled first before that can happen ?
    If the shedding itself can have a mechanism that prevents this from happening,
    then using that, copied, instead of attaching an SC2 to a non-hijacked cell,
    can we make the SC2 trick into believin it's a just shedded form ? And thus allow
    for dislodging from the human cell, to which it just wanted to attach and hijack ?

    • @ZMacZ
      @ZMacZ 3 года назад

      I think it would be best if we would create a way to un-hijack human cells.
      Also, for mild cases, might it be possible to downregulate hACE2, temporarily, to avoid
      SC2 cell attachment, in non-overinflameted people, to prevent SC2 of doing more damage,
      just before the immune system can do more hijackings ?
      Inflammation much like most other states in the human body has a treshold,
      and when there's room, downregulation of hACE2 may prevent fast spread and infection
      by SC2 on those cells that are not infected yet, thus reducing the final cell count
      that is expected to be removed, up to the amount of inflammation
      that the body can withstand downregulating the hACE2.

    • @ZMacZ
      @ZMacZ 3 года назад

      This can be augmented, by introducing hACE2 excess in colloidal form,
      for short times, which can placate SC2's, much like CTC-445,
      but said short introduction of excess, will then downregulate inflammatory effects,
      followed by downregulating hACE2 again, once the excess wears off.
      Repeat, until patient clear, after fitting antibody release ? Can It ?

    • @markkelly8120
      @markkelly8120 2 года назад

      I have covid and my lung hurt bad and my doctor told me to come in im 50 years old

  • @marjorier3458
    @marjorier3458 2 года назад +3

    Excellent and accessible content. Especially appreciated the words and experiences of people who have experienced long COVID.

    • @pennyoflaherty1345
      @pennyoflaherty1345 2 года назад

      One of the ongoing problems is not just the mutation of this virus, similar to meningitis once damage has occurred internally ( ie Scar tissue of brain ) is basically irreversible & epilepsy starts up , theses ongoing symptoms have long term affects to the Guinea pig / host . These mutations can affect many in different ways !
      Lack of research/ Not enough by governments - it would be good for people Worldwide outside to give account of their outcomes for more enlightenment All Round.!

  • @ellapadilla3585
    @ellapadilla3585 2 года назад

    I got COVID positive the 7 I have all the bad symptoms and they went away but the cough and a weird pressure in my head. I was call to comeback to work but how I will be back to work with this nasty cough that make so week.

  • @sphinx631
    @sphinx631 2 года назад

    How about long "omicron"? Any difference?

  • @auggie1790
    @auggie1790 2 года назад +2

    16 month long hauler here. Organicell tested investigational drug ZOFIN on 11 people. All Fully recovered. One of them, Robert Skelly, from pittsburg. Please look up. Why isn't this headlines or supported. Im tired of being sick.

  • @plantpoweredventures5240
    @plantpoweredventures5240 2 года назад +2

    Could you do a video specifically on Long Covid and mental illness, especially in young people.

  • @stanleysteamer3212
    @stanleysteamer3212 2 года назад

    What is the deal with the xenon gas mri study at Oxford? You guys have to know about this..wtf does it mean?

    • @sarafarid8952
      @sarafarid8952 2 года назад

      It detects lung issues that can't be picked up by CT scans or lung function tests.

  • @1shirleynewman
    @1shirleynewman 3 года назад +5

    Had no symptoms, and tested positive. Advised to self quarantine and be tested 10 days later and tested negative

    • @jac1161
      @jac1161 3 года назад +2

      Because it swabs for any/all viral presence...even common cold

    • @MrDogonjon
      @MrDogonjon 2 года назад

      testing is meaningless since virus is fat loving it cloaks in fat your body ignores. Anti bodies come and go some immune agents get infected them selves, Infected Mast Cells and Auto Antibodies attack any sites where previous infection, injury, surgery has scar tissue or trauma. a special flavor of pain is present. You learn to recognize it as strictly covid making all other pain seem pleasant.

    • @bfnew4440
      @bfnew4440 Год назад

      Good for u

  • @amolongweno598
    @amolongweno598 3 года назад +22

    This is a great update, thank you..Speaking as a patient, I don't think it's helpful to treat every symptom as its own illness. This leads to a dispiriting overload of fruitless medical visits and tests. It's helpful when someone can pull them all together and say "you have long covid"

    • @smoupnhoize
      @smoupnhoize 2 года назад +4

      YES!! So many specialists, no one communicates with each other, and no one looking at the big picture. It's frustrating!

    • @ralfoxygen1374
      @ralfoxygen1374 2 года назад +1

      The newest therapy from Germany: Vital Air 5+ device !

    • @justthe2ofusindempines
      @justthe2ofusindempines 2 года назад +3

      I'm in Wisconsin. I've been diagnosed with Long haulers post covid but I'm still not getting to far with the medical. All I'm being told is to be patient. There's not to much they can do for me. I've been told I've got inflammation in my heart that has triggered high blood pressure but again I'm on medication trying to get it under control but it's not so far.... there are so many symptoms... I told my PCP I need a covid Dr. ! Someone who can look at everything I'm going thru and I was told thru the UW system there really isn't anyone. I will be looking further into that to make sure. I have to be my own advocate and lookout for myself because they won't. Having this long haulers has literally turned my life upside down and has changed me from a active always on the go doing something to couch ridden. It has ruined my life for now. I hope for better treatment for all of us soon so we can get the help we so desperately need. Thanks for the program.

    • @ralfoxygen1374
      @ralfoxygen1374 2 года назад +1

      The newest therapy from Germany: Vital Air 5+ device !

    • @y2kriz06
      @y2kriz06 2 года назад +1

      I had covid last sept 20 even though i am fully vaccinated. I did Home quarantine for 19 days. Symptoms were mild fever, loss of smell, loss of appetite , insomnia and constant nasal congestion plus occassional blurring of my vision. No cough, no phlegm, no fatigue, no sneezing, no body aches no brain fog. Its now december 15, 2021and my smell is partially back at 60 to maybe 70% , i can sleep better at night and my appetite is almost back, i can do Long walks again. My current complaint is the chronic nasal sinus congestion i have had since i got the virus in Sept of this year. Since i got out of quarantinre i have spoken with different types of doctors, ENTs, pulmo, cardio, allergist, internal medicine, opthal and took prescribed medications for asthma, allergy, colds, tried diff nasal sprays like sodium chloride, oxymetazoline, mometasone sprays but my nose still gets clogged. Tried Nasal rinse and it didnt do anything, also tried steam inhalation, same issue.. Had lung xray, results are normal. Had sinus xray and that saw a slightly deviated septum , some haziness on my left maxillary and both ethmoids are congested but e verything else is aerated well per xray. I have yet to have a CT scan. I have history of hypertension, high cholesterol and i have meds for that. My sugar levels Between 105 to 120. My nostrils looked moist per endoscopy check. Im not sure why inhaling is still very hard for me. This could very well be long covid. I hope God will provide healing to us suffering from this so we could all live normally again. Thats my only early Christmas wish

  • @carlene2416
    @carlene2416 2 года назад +2

    You make the Uk literature sound really good - I can’t even get to see a gp ( general
    Practitioner- doctor) in the UK ( England) ! They phone patients rather than see them - prescribe antibiotics and that’s it - and I’m not alone. I’m toooo tired to push for a gp face to face appointments and help !

  • @Sandy-dd5jz
    @Sandy-dd5jz 2 года назад

    Thank youuu so much 💖

  • @Magnocalabro
    @Magnocalabro 2 года назад +1

    I have very heavy, tired and fatigued legs. It's almost like my legs are two tie-beams. They heaviness is unbearable...

  • @itsjudystube7439
    @itsjudystube7439 2 года назад +6

    I am now at 18 months and still have symptoms. Currently breathlessness, fatigue, muscle and joint pain, and difficulty regulating body temperature.

    • @patriciababy64
      @patriciababy64 2 года назад +1

      We’re you vaccinated?

    • @manindermanku8667
      @manindermanku8667 2 года назад

      Hi your breathing problem got better over the time and your other symptoms too

    • @carlene2416
      @carlene2416 2 года назад

      Me too 😥

    • @carlene2416
      @carlene2416 2 года назад +1

      @@patriciababy64 there was no vaccines 18 months ago !

    • @manindermanku8667
      @manindermanku8667 2 года назад

      Itsjudystube how are feeling now have your symptoms improved now and how is your breathing problem i am also suffering with long Covid like breathing problem and some other issues please advise 🙏

  • @callumbush1
    @callumbush1 3 года назад +3

    Why was my previous comment removed?

    • @patticakes74
      @patticakes74 2 года назад

      Because God did not like what you said young man. 😇

  • @ZMacZ
    @ZMacZ 3 года назад

    Do you happen to know people within the University of California that happen to also
    have some tech skills ?
    I want someone to run an experiment on a single SC2 infected cell, concerning
    a magnetic resonance of uracil signature, in order for comparison with a non-infected
    cell, of the same type, or rather the magnetic response signature over a very short time,
    with many frames.
    The magnetic resonance on the uracil of the infected cell should be significantly
    different from the non-infected cell, or not.
    If it is, that would be very useful information.

  • @joubsmith4541
    @joubsmith4541 2 года назад

    Does that mean I will take a stroke since I had covid . I’m so so scared now

  • @ZMacZ
    @ZMacZ 3 года назад

    I hope CTC-445 gets out of the testing soon, since it can be mass produced,
    but has a better way of placating the S-spikes of SC2.
    Then the upregulation of hACE2 in intravascular form, will be more effective,
    since it won't be countered as fast by the SC2 particles.
    Each particle used on SC2's s-spikes, beit CTC-445 or hACE2 intravascular form,
    can only be used once, while SC2 keeps growing anew.

  • @itsaustraliadayeveryday7234
    @itsaustraliadayeveryday7234 2 года назад +1

    Its like you have aged years inside.The body is over stressed.

  • @chrissymoss514
    @chrissymoss514 2 года назад +1

    This is incredibly interesting and informative, if not really scary. Long term covid is frightening.
    Whilst I can appreciate the wonderful content .... the use of such an extreme filter was so distracting. Please, there's no need. Be you.

  • @oibal60
    @oibal60 2 года назад +2

    THUMBS DOWN because of 45:45 onwards. "Can't hurt". Really?

  • @blueberry-ri7eb
    @blueberry-ri7eb 2 года назад +1

    Microthrombosis can restrict blood flow to small nerves that may be causing some neuro issues

  • @terminator7384
    @terminator7384 2 года назад

    It has been almost 1 year for me.

  • @trinaerswell7962
    @trinaerswell7962 2 года назад +1

    I ment I no Longer have CPAP or BIPAP breathing machine I've never smoked no Lung damage

  • @earlwright1437
    @earlwright1437 Год назад +1

    You can add marrow alteration. My husband's CBC has changed pre and post, low WBC, RBC, H&H (anemia), platelets. Neutrophils and lymphocytes are normal; but monocytes are very high (17%) with 2 myelocytes. Hopefully, you can help many people by giving attention to it. Thanks

    • @earlwright1437
      @earlwright1437 Год назад

      It's been over 1 yr!

    • @annebooyse1112
      @annebooyse1112 Год назад

      My husband is affected. Going for bone marrow biopsy, God willing tomorrow.

    • @kapra5643
      @kapra5643 Год назад

      Yes low WBC post COVID.

  • @azahaziz3039
    @azahaziz3039 2 года назад

    Can long covid patients can transfer covid illness to healthy people????

  • @5000NATE
    @5000NATE Год назад

    I'm improving a lot now I do a lot of meditation daily so that's what's help me

  • @missmodern
    @missmodern 2 года назад +1

    Shout out from Madison!! Trying to heal from Omicron. It's up and down.

  • @ZMacZ
    @ZMacZ 3 года назад

    Besides the SC2 concentrations in patients, correlating against long COVID,
    did anyone did an immune strength response study vs long haul COVID ?
    With that I mean the release of various antibodies and what concentration they had,
    during the immune response ?
    I feel that people are overlooking some factors when it comes to long COVID,
    and it's causes, and that they search to hard into one direction.
    Either long-COVID means that the SC2's didn't leave the system or not, or
    the damage done by the SC2's and subsequent immune reaction yields long-COVID,
    or both.
    This then has 4 basic states in which then respectively yes/yes, yes/no, no/yes or no/no,
    with then subsequent symptoms, or in the latter, lack thereoff.
    What I want to know is whether or not the SC2's are actually gone from the human body,
    my main concern, because if it somehow hides or is being hidden, well that's much worse
    than the symptoms themselves currently are, because it would mean that this phenomenon,
    if it happens, that SC2 wil never go away completely, unless it can be uncovered when hiding.
    Then I'd focus on detection of these 'pockets' within the body..
    We can't make SC2 go away, if we don't have the capability to make the virus go away permanent,
    from each person's body.

    • @ZMacZ
      @ZMacZ 3 года назад +1

      The stronger the reaction, the greater the initial fibrin release, thus allowing for
      a more prevalent 'cladding' of hijacked cells.

    • @pennyoflaherty1345
      @pennyoflaherty1345 2 года назад

      Your concerns are very valid , only most people are kept behind the 8 ball with no aide of mains( repeated cont. )
      Prevention is better than cure , however westerners are left to fend for themselves in any informing. Your surfing of the net your likely to come across a fuller view as I have internationally. I DON’t RELY ON MAINS AS IT ALL ABOUT $$$$$$$$$$$$$$$$$$$$$$$ & selected. People only want to be informed to fullness - making a sound choice

  • @clintdaniel9260
    @clintdaniel9260 5 месяцев назад

    simply put u are done for

  • @briannamchairez2244
    @briannamchairez2244 3 года назад +1

    🙏🏻

  • @erinwickware8066
    @erinwickware8066 2 года назад

    My condition flares up any time my immune system is triggered. Just had a ear infection. tested negative for covid twice. Same long covid symptoms all over again.

  • @esmilner3
    @esmilner3 2 года назад +1

    Hey folks. I just saw this piece, I haven't watched yet, but immediately three systemic things of this pandemic come to mind.
    1. I've known of the vicious nature of COVID pneumonia since April of 2020 because of a piece in the NY Times by a physician from Harvard who came to NYC to help on ER front lines at the invitation of his colleague. I've seen almost nothing about this in the msm, why? who? what? I've periodically sputtered like that in asking why not? I've seen it referred to in PBS programs and news as well as imaging. I've seen it in informative videos on RUclips. But we have experts who KNOW this who appear on these shows, why haven't they brought it up explicitly or pushed the shows to allow them to do so? Perhaps the shows pushed back? And they acquiesced bcuz they wanted to get SOMETHING to the viewers? To the doctors and Healthcare communicators, sometimes saying something is definitely worse than saying nothing. I was able to scare the crap out of some people early on by describing CovPneumia as slowly suffocating to death. Patients who initially refused to mask or vaccinate often expressed surprise at the brutality of that, or their family, said the same. If any TV guests see this, push hard, even now, to get the panel shows and morning news to get with it and allow presentations, with images, of how it progresses and kills. That being solely the pneumonia route.
    2. The horrific experience that some under sedation experience of vivid, violent dreams or hallucinations. I imagine sharing that, making people think of themselves, their kids, their older loved ones. Think of that being the last thing they experience as they die, never recovering from sedation.
    3. The chronic nature of long COVID reminds me of my own experience as a long term H&N cancer survivor, who then had a severe case of ophthalmic shingles and the neuralgia to go with it. I kind of feel a kinship with long-COVID sufferers. Is there anything to this? Has there been any cross-syndrome support organized, or discussed, or occurring spontaneously? You'll find there are commonalities between all chronic, complex diseases or long-effects conditions. Of course, the Healthcare system itself is a problem. The focus on single disease critical care is a massive barrier. Disciplines are useless outside of their own expertise, and worse, possibly harmful in being actively dubious and questioning of patients. They should have some kind of cross-discipline referral system setup, a well designed database alone would be a great start, let alone something like a cross-discipline diagnostic team, with experienced staff, from attendings through to nurses. (In fact, it occurs to one that this might be a way for med staff, like these great nurses here, to serve during long recovery or if never able to do physical work again.) as for cost, I guess if the govt emplaced codes for such needs and approved for Medicare/Medicaid and VA coverage, the diagnostic systems would follow. It would be an interesting test for long term outcomes and long-term costs. Given I'd have been back working at least three years ago without my sequelae I think that the overall cost picture would be vastly improved.
    So that's alot. But still, any thoughts, wisdom, or hopes per the above?

  • @micheleclark59
    @micheleclark59 2 года назад +2

    My sister was just diagnosed with Fibromyalgia…she had Long Haulers symptoms which can be Very Similar! I highly recommend seeing a Rheumatologist whom diagnoses things like this.

    • @_733t
      @_733t 2 года назад

      that's a made up catch all term non-diagnosis

  • @francisconeto9414
    @francisconeto9414 3 года назад

    Every nice forever for all people

  • @cranecams6784
    @cranecams6784 2 года назад +1

    Pardon my French but just the term Long Covid scares the shit out me

  • @MrDogonjon
    @MrDogonjon 2 года назад

    My headache/ eye ache began in July. It was bad and got worse and worse like no headache I ever felt before but still reminiscent of the pain I felt the very first day I was ever ill. In August I managed to convert most of the pain into a permanent DMT delusion which leaves me throbbing with numbness in my brain. All the pain is still there I just don't believe in it. I banged my head the other day real hard on an over head garage door lowered to head height. didn't see it with my ball cap on crushed my forehead on my hair line right where the hole in my head is from the drones scalar weapon attack. It felt kind of good compared to covid pain head trauma produces a nice release of endorphins. Now it's September and the memory of the pain from July still scars my brain and scares me wondering what if I forget how to repurpose the covid pain into hallucinations I have less pain but a raging unending acid trip. If that is "getting better" let's pretend it is.

    • @juliad8303
      @juliad8303 2 года назад

      You’re weird and I like you. 🙂

  • @petehuda7457
    @petehuda7457 2 года назад +1

    It’s EBV

  • @trinaerswell7962
    @trinaerswell7962 2 года назад

    its very possible that if the doctors don't treat first infection it may go into secondary bacterial infections which then cause mutants in different strains MRSA staphylococcus PSEUDOMONAS are dangerous if it goes to organs or blood infections

  • @roxycakes1981
    @roxycakes1981 2 года назад

    Can’t get the vaccine until 90 days after the first positive test.

  • @NickCADA
    @NickCADA 2 года назад

    I just had omicron variant of Covid. People out there who might read this, be safe!

  • @katesmiles4208
    @katesmiles4208 3 года назад +4

    Im surprised intestinal inflammation and damage seen in UC isn't also seen in long covid.

    • @jac1161
      @jac1161 3 года назад +2

      It is for me!

    • @MrDogonjon
      @MrDogonjon 2 года назад

      It is a gut infection from covid that damages the immune system triggering MCAS and auto antibody attacks in other body parts.

  • @carolmorris9449
    @carolmorris9449 2 года назад

    My hairless just now started slowing down.

  • @ralfoxygen1374
    @ralfoxygen1374 2 года назад +1

    The newest therapy from Germany: Vital Air 5+ device !

    • @brandongiarusso2664
      @brandongiarusso2664 2 года назад +1

      how do you have videos from 3 years ago talking about long covid?

  • @traiandanciu8139
    @traiandanciu8139 Год назад

    If a dropp of fresh blood, from some patients after SARS COV2 infection, are put on a cold glass surface lamela, apparently agglutinate before coagulate.
    At microscope erytrocyte aggregation like coin rolls can be seen at room temperature ,but not at normal body temperature.

    • @traiandanciu8139
      @traiandanciu8139 Год назад

      This tendency of erytrocyte to agregate at relative low blood temperature,can be corelated with some cross reacting antybody against virus envelope and some cells membrane receptors.

    • @traiandanciu8139
      @traiandanciu8139 Год назад

      After any vaccination body temperature are higher.
      High body temperature protect against,,low temperature agglutinine,, and even SARS COV2 infection (at TWiV 659 at min29 virologist Christian Drosten indicate low tissue temperature better to replicate SARS COV2)

    • @traiandanciu8139
      @traiandanciu8139 Год назад

      If ,,low temperature agglutinine,, can theoreticaly increase blood viscousity at low blood temperature, especially at perifereal circulation, where blood temperature are lower,.may be acetilcysteine (ACC,NAC) can decrease even blood viscousity.?

    • @traiandanciu8139
      @traiandanciu8139 Год назад

      When coronaviruses are released from infected cells they catch a lypidic part of hyjaked infected cell membrane to built viral envelope.,even, sometimes, some glicoproteic compounds from cell membrane.
      Antibody against this viral compounds can cross react with some cells membrane receptors.

  • @ZMacZ
    @ZMacZ 3 года назад +5

    When the lung tissue is damaged, and also partially covered by fibrin, the lung
    will experence less function and less oxygenisation, until that fibrin has been
    removed, much like after pneumonia.

    • @blueberry-ri7eb
      @blueberry-ri7eb 2 года назад +1

      I am 74 and still have lung fibrosis from double pneumonia I got in High school. Not all lung damage heals.

    • @ZMacZ
      @ZMacZ 2 года назад +1

      @@blueberry-ri7eb Fibrin is what causes you to stop bleeding, it pluds wounds or holes.
      Fibrosis is what happens when scar tissue is formed, instead of the orginal cells.
      These two are not the same. During pneumonia, there's a lot o fibrin release
      in the lungs, which makes the moisture stick and unwilling to leave the alveoli.
      It clogs the alveoli, and then prevents air from going into them, which leads to
      the oxygen deprivation.
      After a pneumonia, all that clogging material only goes away slowly, and allows for reuse
      of these alveoli, far different is fibrosis, in which there's scartissue that is formed
      instead of the origina cells.
      Both types of obstruction can occur, where fibrin goes away over time and scartissue may
      never go away completely.

    • @blueberry-ri7eb
      @blueberry-ri7eb 2 года назад

      @@ZMacZ I know I have fibrin and scar tissue in my lungs from having severe double pneumonia in high school. Still there. What is your point? Fibrin fibrinogen call it perm damage. That is least of my problems now. As I stated I am on extreme immune suppression for temporal arteritis and am planning what to do for my fever and sore throat now..testing tomorrow. If positive I am 74 and immune compromised for the next few months. Monoclonal antibodies? Enough with the medical school lessons.

    • @ZMacZ
      @ZMacZ 2 года назад

      @@blueberry-ri7eb Ok then, but monoclonal antibodies aren't as effective against SC2-Delta.
      I'm trying to learn about this virus since Jan 2020, and everything that entails.

    • @blueberry-ri7eb
      @blueberry-ri7eb 2 года назад

      @@ZMacZ yes thank you but for all practical purpose for now my dr does not order any nor does my local hospital have information. I also am learning as going but none of it is any good if it does not get to the patient. There are several monoclonal and poly antibody treatments but not readily available to the patients that need them. Good luck with your knowledge quest and always stay curious and question. I am off to my covid test.

  • @trinaerswell7962
    @trinaerswell7962 2 года назад

    PSEUDOMONAS as 147 different strains

  • @ZMacZ
    @ZMacZ 3 года назад

    There's a mechanism, that tells the RNA to move back into the newly created SC2 capsids.
    If this mechanism can be used to remove the SC2 RNA from human cells,
    I think it's worth investigating, and if possible trigger that mechanism prematurely.

    • @ZMacZ
      @ZMacZ 3 года назад

      Unless that mechanism involves overcrowding, but even so, when that is the mechanism,
      the mechanism for the shedding itself may still also be prematurely activated.
      That would then basically mean the shedding of the equivalent of lipid
      based vaccine particles.

    • @ZMacZ
      @ZMacZ 3 года назад

      A cell that has an artificial nucleus could generate a vaccine that way.
      Insert the RNA, seal the nucleus for anything larger than 50% of RNA size,
      and the shedding of empty capsids begins, with all the external
      signs of being the virus you want to vaccinate against.

  • @RaphaWasHere
    @RaphaWasHere 2 года назад

    I wonder if all this when meds don't find any damage or anything could be just stress. Many people anger epxeriece abuse or trauma suffer from stress illnesses as Ibs and other stuff. My doc is user that my symptoms from long COVID are totally psicosomatic and I'm sure of it. All of then gone every time that I'm having fun and come back in stressfull time. Organ damaged virus, infection or other do not act like this. Also symptoms that replace one in top of the other. Like on day you have a headache and the other moment is gone but the u got stomach pain. How can no authority talks about this correlation? Is not just me but many many others. If people gets better with time is because is stress related nothing more.

  • @jamberry1135
    @jamberry1135 2 года назад

    Please eat whole food plant based

  • @ZMacZ
    @ZMacZ 3 года назад

    Also, ur a very pretty doctor and good speaker.

  • @californiaswater5571
    @californiaswater5571 3 года назад +6

    Unfortunately I don’t think this study is accurate in the follow up of long COVID patients. It’s been almost a year and not only do I still have severe symptoms, but they have gotten worse. I am going through major testing to rule out any other causes. What I do agree with is that the symptoms come and go. After my second Pfizer vaccine I got better for two weeks. Then slowly the headaches and fatigue started returning. Now I have some serious liver issues and I’m going through testing to eliminate all the other causes. This disease is so new and there are so few accurate studies with long Covid suffers that I don’t think the true story has come out yet. I was at KaiserEvery day this week getting tests and I was amazed at how many of the health professionals I countered had never even heard of long Covid. So we have some serious issues to deal with and I think for many people these symptoms last much much longer than six months. I know this for a fact as my own body tells me so.

    • @patticakes74
      @patticakes74 2 года назад

      The pharmacist should have told you , while giving the script ?

    • @californiaswater5571
      @californiaswater5571 2 года назад +1

      @@patticakes74 I had to tell THEM what PACS is. They are learning new things every day.

    • @jhonybraavo
      @jhonybraavo Год назад

      @@californiaswater5571 any better?

  • @grateful7839
    @grateful7839 2 года назад +1

    Mention my name in Sheboygan.
    Cheeseheads unite.

  • @dalenelson7161
    @dalenelson7161 2 года назад

    I had covid symptoms for two months and was feeling better and had dental surgery and the symptoms came back with a vegance.

    • @kkc1931
      @kkc1931 2 года назад

      Are you 100 percents recovery now

    • @patticakes74
      @patticakes74 2 года назад

      You took more antibiotics or steroids for inflammation @ infection . Try some garlic 😋 yum

  • @mabelheinzle2275
    @mabelheinzle2275 2 года назад +1

    Interesting

  • @jakepapadopoulos8654
    @jakepapadopoulos8654 2 года назад

    Is this a real person or CGI?

  • @MrDogonjon
    @MrDogonjon 2 года назад

    It's not life or death with covid it is life then near death then near death again and again. Each episode is equally potent to induce death and not dying becomes a technique. My first treatment to not dying is drink water, rest, stop eating.. feel the gravity of your condition and permit it to crush you into the earth where hellish heat warms you beyond any fever unevenly. As pain increases beyond thresholds of any normal pain tell your self "I have felt pain before and this is different from that pain, out of it's own range to define I like it, it feels good, give me more please." Convert the pain into some kind of sensual pleasure or permanent acid trip. It's still there in a numbness that throbs' but it is an improvement I can live with in spite of the present discomfort.

    • @patticakes74
      @patticakes74 2 года назад

      You were born in the 60 ,,no doubt man 🤷‍♂️ 👨 😒

  • @jakepapadopoulos8654
    @jakepapadopoulos8654 2 года назад +1

    I’ll take my chances without the jab.

  • @Northdallasguy00
    @Northdallasguy00 2 года назад

    Smart and sexy doctor.

  • @abilsingh4955
    @abilsingh4955 2 года назад +1

    It will be interesting to study in coming years exactly how many people died of covid in the pandemic and how many people died due to lockdowns and shutdowns of economy.
    This is probably an issue in only poor third world countries not in US, UK or EU but a lot of people live in poor countries. In India for example, we know that millions of people walked (yes walked, because buses and trains were shut) hundreds of kilometers to go back to their ancestral villages from cities, in the initial stages of lockdowns, it's not clear how they survived in the villages since then.

  • @jakepapadopoulos8654
    @jakepapadopoulos8654 2 года назад +1

    Trust in god, not the vaccine.

  • @501promo
    @501promo 3 года назад +3

    The jig is up...

    • @patticakes74
      @patticakes74 2 года назад +1

      Your right brother,,, ✅ 👌 GO ON F.D.A website type in F.Q.A.D this is where covid starts ,,, then like icing on the cake ,,, just add a little prednisone to the quinolone and SHAKE IT ALL UP .......

  • @dalenelson7161
    @dalenelson7161 2 года назад +1

    Friends- no wonder your sick get up and move, go back to work you will feel better.

    • @RaphaWasHere
      @RaphaWasHere 2 года назад +2

      Thank you I'm not the only one that think like all this si stress and fear related. Almost all my symptoms are gone now and the gut ones are also stress related nothing more. I was having fun with some friends yesterday and I was symptom free all that time. No disease act like this. Symptom that comes and goes or replace between then are neuroplastic (stress related and nothing more) having COVID ismajor truama. Also how can be many people that their test came negative but are experiencing long covid symptoms. What pissime me off is that docs are delivery ignoring nthis information

  • @sylvaindekoning644
    @sylvaindekoning644 2 года назад +3

    It’s the jab...

  • @monicabeaty2964
    @monicabeaty2964 3 года назад +4

    you lost me that George Floyd was murdered. He was a well-known drug addict who put a gun to a woman's pregnant belly during a home invasion as just one example of his criminal life Behavior. So do not assume u are all knowing. You need to stay in your lane. For long haulers you have just dismissed their issues with your bias

    • @Beherenoww
      @Beherenoww 2 года назад +2

      Who cares if he was a drug addict or did terrible things? He was murdered by a cop in cold blood on the street. That cop didn't know about Floyd's history and even if he did, it's not his job to be the judge and executioner. George Floyd was unnecessarily slowly murdered in front of a horrified crowd and that officer was rightly found guilty. Floyd's morality and illegal behavior is irrelevant to his murder being an outrageous crime.

  • @cesareborgia3557
    @cesareborgia3557 2 года назад

    Lying.