Yes! I had debilitating POTS as well as another form of dysautonomia, IST. I was on multiple medications and daily IV fluids through a chest port. 😊 I healed my nervous system and my POTS disappeared along with my HEDS, RLS, MCAS, Hypokalemic Periodic Paralysis, Reynaud's, Neurogenic Bladder, Myoclonus, dystonias, chronic insomnia, severe chronic pain, and more. I went from being tube fed to eating everything. It changed my life. It saved my life. I was on palliative care, already planning to switch to hospice. I had written goodbye letters to my kids, and my husband was preparing for my funeral. Nervous system healing saved my life.
Hi @AngelaHepp Sophia here from Team Lyon. Thank you for your comment and for sharing such a powerful story on nervous system healing. Wishing you the best.
Very good thank you. I believe root of “Long Covid” is an attack to cause complete havoc on the autonomic nervous system. It just makes sense with the symptoms I see, and feel personally. Going to check out your healing videos now!!
I’ve had POTS since childhood and this is so comforting to hear that it can be helped. Regular medical Doctors just view it from their particular disciplines and they never weave it together. Thank you
I got Covid in early 2020 also while teaching high achool. My muscles suddenly weakened and I felt like fainting every time I got up. I improved about 50%, but now have Long Covid and actually did faint in the supermarket a few months ago. Most mornings are very difficult and I have to grab onto the wall or a rail to get to the kitchen or restroom.
My symptoms came from coming down with COVID-19 way back in March 2020, just a few days before the shut down. My son, who was going through his senior year in high school, brought it home from school. We got it from his choir teacher, who’s life was spared because he was able to go to three different hospitals to help him to live. Our household has been suffering off and on ever since March 2020.
You’re not alone. I was a senior in 2020, I never took a vaccine, I’m not overweight, I eat healthy, and I’ve been sick and bedridden about 10-12 times since getting Covid in 2020. My symptoms have developed into worse and worse health conditions with no doctor able to label them. As it has much to do with digestion, pots symptoms, nervous system issues, I’ve started taking B1 as TTFD and a B complex by Seeking Health. On day 4 of taking those along with electrolytes and magnesium glycinate, and I’ve noticed a huge difference. May be worth looking into B1.
I can almost cry - all of what you said, makes sense to me. For the first time, so much has been made clear to me. Love your explanation and thank you for this!!!
@patriciamalekar6531, it's great to hear that Irene's teaching here resonated with you! Since it sounds like you're new around here, you might check out here "New Here?" page. Here's a link: irenelyon.com/new-here/
Lots of shadow work and work on the nervous system. Day in, day out. Loving myself each step of the way. One day I just noticed it was gone. Never felt better. Feeling whole for the first time in my life. Feeling alive. Irenes video's are helping me so much. Don't give up ❤
the fact tis video only has 10k views is so sad. people NEED TO SEE THISSSSS. the western medical system is soooo quick to throw disorder labels on a set of symptoms and just call it chronic if their big pharma companies haven't constructed a synthetic pill that can treat said symptoms. as a neuroscience PhD student you're absolutely right, and i wish people can see that it's not necessarily chronic
I used to have digestive/gut issues for years. I tried probiotics, fiber, diet, etc. Didn't help. Then a cervical chiropractor found that my c2 was rotated and my atlas was out. After he fixed that, my digestive/gut issues have disappeared. I'm not saying that everyone's gut issues are due to atlas/cervical problems, but it is worth it to at least see if that could be the problem.
you are lucky, in my case two chiropractic treatments were what caused severe upper cervical instability and cause all kinds of horrible symptoms that just got worse over the years
I really think this is connected to HSP(highly sensitive person). My daughter and I both have Pots and she has digestive issues and migraines since childhood. Now I see it's related to overly sensitive nervous system. Thanks so much!
It took until my late 40s to get my cluster of symptoms diagnosed, hsp, digestive issues, migraines,...I have Ehelers Danlos Syndrome, and by ignoring me by doctors, I had to have 2 heart attacks, and 3 strokes to get medical investigation, diagnosis. Now on blood thinners and heart beta blockers damage has not continued. But still the doctors don't deal with the POTS, or the digestion issues. I finally got my cardiologist to confirm the dysautonomia or POTS last week, but he chuckled and said but can't do anything. So very frustrating.
Check out "Healing Developmental Trauma", that book goes into deeper trauma healing than SE can reach. Very helpful for those so traumatized they can't even feel their emotions or bodily sensations.
Hi 444, I'll pass your request along to Irene. She does talk about ME/CFS in some of her special topic videos. And if you haven't yet seen her healing trauma video series, that has a lot of relevant info in it. - Jen from Team Lyon free Healing Trauma video series - irenelyon.com/healing-trauma What is I have CFS? - ruclips.net/video/du8t27GrfWA/видео.html
I went to a New Year’s party this year and I was already so sick of myself being stuck in the fight or flight response, i felt like I couldnt move forward in life. At this party I watched everyone and realized wait, everyone here seems free from the issue I have. Not everyone has this. I shut down permanently. 5 grueling months later I was diagnosed with POTS.
Hi Irene. While I don’t have POTS, I was interested to learn about it as I do have MECFS as a result of a car accident, so I’ve just finished your 21-day course and I’m looking forward to your longer course starting in March. While listening, I had a flashback to a stage in my life (early teens) where my system would ‘glitch’ and I wouldn’t be able to move for sometimes up to a few minutes. I remember one time in particular when I was walking and I suddenly stopped and had to wait for my system to reboot. I don’t recall feeling fear but I remember feeling that this happened periodically and I had to wait until I could move again. In your work with Peter Levine, have you ever heard of this happening in others?
HI Akribelasurfacing, Jen here from Team Lyon. Great to hear you finished the 21 Day Course and are joining SBSM this year. As an aside, the 21 Day course is a great one to do repeatedly. Our experience of the practices often changes and deepens as we do them over time, and incorporate them into daily life. To answer your question, I've heard of similar things but not this specifically. I'll ask around to see if I can learn more.
How did the 21 day program help your cfs symptoms? Do you mind i ask how severe you were prior to starting? I’m considering going it too but want to be sure i can.
I had a high stressful event got sick and i have said my nervous system is freaking out. Digest issues ANXIETY and now experiencing pots along with fatigue. I feel if i could get the nervous system to calm down all this might as well
@juanitahyde1265, Jen here from Irene's Team. You're definitely onto something here. Growing more access to settling - which supports rest and regeneration - can be key in healing many symptoms (often including anxiety and digestive issues). This is a key part of what this nervous system work is about. If you haven't yet checked out Irene's free resources, I encourage you to do so. She also has a self-study course where she teaches the basics of how to work with your own nervous system if you decide you want to dive deeper at any point. Here are a few links if you want to learn more: DIY Ancient Anxiety Medicine - ruclips.net/video/0ICsbXUCKmM/видео.html 21 Day Nervous System Tune Up - 21daytuneup.com/
I am seriously dysregulated in the way your talking about. I get adreneline pushes. Are you familiar? I feel there is a connection with the dysregulation of the nervous system and the phenomenon of adreniline pushes, and for some actual cardiac problems like stroke (or panic attacks). I get adreniline pushes from something as simple as a very light massage. Im totally disabled over this and would love to learn more so I can have more of a life. Thank you!! ❤
@evonne - Mara here with Team Lyon. Not specifically familiar with adrenaline pushes, but it sounds like a form of sympathetic nervous system activation. If you're new to Irene's channel and resources, please check out these ways to get started: irenelyon.com/new-here/ Consider her upcoming 12-week program: smartbodysmartmind.com/
My granddaughter faints a lot with just walking or sitting down she gets headaches and her whole body hurts and her head hurts after she faints and her heart palpates and her speech get slurry to where the words don't come out of her mouth her stomachs hurts and she feels like there is something stuck in her throat then she throws up
I’m curious how this relates with autism. My teenager has an evaluation for autism in two weeks. But recently we are also suspecting POTS. The thing to note from what you said is “shut downs”. My teenager can have shutdowns where they stop feeling like they can function or communicate. I wonder if that’s also part of the parasympathetic response. We have been trying to find the cause of so many random symptoms since early childhood. An occupational therapist said that something about the tightness in their legs was related to a fight or flight response. There are so many little details of their overall health issues that are making sense with what you are saying.
Hello, Sophia from Team Lyon here. Although we cannot consult or diagnose in this comment section, you might find these videos or Irene addressing relevant issues informative: ruclips.net/video/2g4C0LZfA-A/видео.html and ruclips.net/video/Fa7IlB2U8MY/видео.html I hope this helps
I am free from symptoms of POTS as long as I avoid wireless technology. In susceptible people, wireless signals interfere with the autonomic nervous system. The electrical signals (also known as EMF or electromagnetic fields) that are emitted by wireless devices(cell phones, lap tops, wi fi, printers, apple watches, cell towers, smart meters, ect) stimulate the sympathetic nervous system and inhibits the function of the parasympathetic nervous system. I suffered from migraine headaches, dizziness, nausea, brain fog, tachycardia, near fainting episodes, blurred vision, inability to think, anxiety, depression shortness of breath, muscle pain and spasms, digestive and urinary symptoms... all resolved now with radical avoidance and shielding from wireless radiation.
@@JRESHOW My computer is hardwired (ethernet cable). I have a landline phone. My husband keeps his cell on airplane mode at home. We don't have Wifi. We use no wireless devices. I had to quit my job. We built a steel shed (steel attenuates exposure from the local cell tower) on a cement slab about 2 years ago. Sold our home and lived in a camper inside the shed as we build a living space around us. Avoided any public space or gatherings with family and friends. Long, long story (needs a book) but after almost 2 years of very limited exposure, I am almost back to normal. Can go to the store, church, family gatherings with just mild symptoms.
@@savedbygrace338wow, yea it’s a bummer that we have to live like this. People always freak out about possible grid failure, and I know it would be a set back, but in the same way so many sicknesses I believe would go away. Glad you are doing better :)
@darthtraya5992, Jen here from Irene's Team. I'm with you, I was in a similar situation and it was frustrating and scary to be severely compromised and not know what was happening. When we don't know where to start, learning about the nervous system and how to take steps towards regulation can one important step we can take. I'll link to some info on about the link before early adversity and chronic illness, and also to a story from one of Irene's students that may be of interest. The undeniable link between early childhood stress and chronic illness - ruclips.net/video/HwFvheVVLzc/видео.html Healing The Immune System || SmartBody SmartMind - ruclips.net/video/HrrHKVCPSkU/видео.html
Many women have long covid. Many since 2020. Fatigue, heart issues, brain fog, shortness of breath, etc are common. Could the nervous system affects long covid?
Hi Caroline Yunker, Jen here from Team Lyon. The nervous system can relate to long Covid in the sense that the when the nervous system is more regulated the nervous system, immune response is often stronger and generally speaking more resources can go towards healing and regeneration.
I have been diagnosed orthostatic postural tachycardia, an autonomic dysfunction chronic pain migraines (over 25yrs) I’ve had trauma and can’t get a relief from the symptoms my life is so bad. I have wanted to end my life as I’ve tried everything medication that didn’t go well been having therapy and my days are more bad then good I just want to have a better quality of life
HI Poison Palette, Jen here from Team Lyon. These symptoms sound challenging to live with for sure. You might consider giving this nervous system work a chance - it's often helpful where other approaches haven't been. Irene has a number of free resources you might check out, as well as a paid course and program if you want to dive deeper. Doing some 1-1 work with a trained practitioner if that's an option can often be helpful too. Free Resources - irenelyon.com/free-resources-2/
@@judithdesrosiers5415 I have hEDS and Hyper PoTs. But I'm wondering if being in a stressful environment means the body is less able to adapt to the stretchy veins because it's too busy flight or fleeing! When I went on hEDS pain management many of the girls there had had stressful childhoods like myself. It's just a thought but I think it's worth exploring.
Hi, SBSM alumni here. Thank you for putting POTS into the ANS perspective. It’s something I’m experiencing and know to be related to the overall deregulation. Something stood out for me… at a certain point you said something like “our fragile systems”. I see this seeping through in many videos, in the form of subtle words or in warning us for all kinds of ‘dangerous’ or ‘faulty’ treatment. All the emphasis on the complexity of trauma and the difficulty in getting it out of our systems… It weighs heavy and seeps into my belief system that ‘this’ will be near impossible to overcome. I enjoy the actual activities of somatic experiencing, but I’m worried about this. How is believing we are fragile helpful? Your words are powerful. How can you even describe our natural physical and psychological reactions as ‘fragility’? This description is just a perspective. Do you actually believe this? Why not say ‘our adaptive or protective systems’. I would feel more safe, strong and lighter already… After watching much of your content, an overall feeling creeps in… Sometimes I almost feel like you, in a way, scared me into your program. Which isn’t your intention, I’m sure! But a part of your style seems very unhelpful to me, speaking to an anxious community. Even after having actually attended and appreciated SBSM. I would love to understand how you approach this. The importance of bringing a feeling and belief of lightness, strength and resilience in all this… I feel it in the SBSM exercises, but not in the surrounding content.
Hi Inge Stuyckens, Jen here from Team Lyon. Thank you for taking the time to reflect on what you were noticing and to share it here. I will pass along your thoughts to Irene. Hope to see you in SBSM this year!
@@IreneLyon thank you Jen for your kind respons on my critique. Yes I intend to join SBSM again! I’m just struggling a bit with how to keep it lighthearted for me. Last year I also felt this ‘heavy’ effect on me while going through the education part and the Q&A’s. Information and seriousness overload. The exercises luckily have a much welcome, lighter tone. I’m a visual learner, this is also a part of it. Too many words for me without visual integration sometimes :-) I would love to see concise visual learning more integrated in the program. I used to do this visual integration myself when studying, but freezy fatigue and brain fog get in the way now to make my own schemes.
@@lingeske - Seth here with Team Lyon. Thanks for your feedback and for joining us again! One thing that occurred to me is that part of the reason the education portion IS quite serious, is because one thing we are always working against is the tendency of many people to minimize and dumb down the education. We see this all the time with the current trend of 'nervous system hacks' and such. Thanks again for your feedback, we are always working to improve the program, so we certainly think about your suggestions.
@@IreneLyon well, actually I quite enjoy the deep learning in se, I’ve always been that kind of person that wants to fully understand. It’s not really that that creates the heavy feeling for me (except from some overwhelm coming from the lacking of visual integration.”) I guess the heaviness comes a bit from the tone of voice and the choice of words. But mainly, it comes from the warnings. All the don’ts and dangers. And pointing out that this SE approach is the only right way. While different teachers of course say the opposite. Which brings up lots of insecurity in me. I know this is never the case, people heal with all kinds of modalities, as long as it’s a good fit. And this is comforting to me to know. I’m noticing that ‘a good fit’ mainly seems to come from having a feeling of relief, trust, arriving home, finally understanding with deeper integrated insight, a release of worry. I think it’s probable that it’s this very feeling that makes the biggest healing happen. I notice that some videos provoke the opposite in me personally. “I’m doing it wrong and missing the point. I should be careful to not make mistakes. It’s difficult. It’s complicated. I have too much going on, it will take forever.” These thoughts are a red flag to me… But that’s me personally, I know others do have that sense of peace and relaxation in SBSM’s care. And then again, I notice others struggling similarly with that sense of heightened despair.
@@lingeske, Jen here again. It sounds like you have a lot of clarity about what works for you - and your nervous system. As you go through this round of SBSM I encourage you to let this be your guide - if the practices are what speak most of your system, focus there and dip into the learning when and how you have the impulse to do so. One of the most helpful things I learned from my long time gestalt teacher is that we can take things in, chew it up (so to speak), digest and integrate the pieces that work for us and leave the rest.
Hi Joy Webster, Jen here from Team Lyon. Trauma can start in utero and can have a major impact on our experience as we come into the world. When we learn to work with the nervous system and physiology, we are often able to create new experiences for ourselves in time.
I had several dramatic events of loosing my job and then loosing my loved one 1 month later. Then I had gastric sleeve to loose 124lb of weig ht I gained within 6 months of this loss. After gastric sleeve I got POTS. It is really shocking to me as I have always been so strong. I finally fainted because of the pots.I have lost 124lbs but now have pots. I'm thinking it's because of the surgery cutting nerves? I need help.
Hi @vikkster, Seth here with Team Lyon. I'm sorry to hear about all these painful experiences you've been through. Yes, that is a lot for any person to go through! The Pots is likely more due to conflicting unresolved survival states (fight/flight and freeze) at play in the system, rather than cutting of specific nerves, though that will also have an effect on the system to be sure. This kind of complex trauma would not be unusual after the experiences you describe. I'll encourage you to get into this work, as it's been shown to help a lot. You can do this with our online programs and/or by seeking out a practitioner. I'll encourage you to start with the 21 Day Tune Up, as it's the cost of about two sessions with a good practitioner, and getting the education and basic practices available there will make you much more informed about what to look for in a practitioner. Here are some links to explore these options. 21 Day Nervous System Tune Up - 21daytuneup.com/ How to find a good somatic practitioner - ruclips.net/video/04XF7ANnqGk/видео.html SE International directory - directory.traumahealing.org/
With EDS the collagen isn't strong enough to keep NO up,I actually fainted twice in a restuarant,while quite happy,and I was sitting down,blood went to stomach! I am a qualified relaxation therapist,of course stress,will make things worse,so many still not understand ing
What if pots was caused by surgery? I have asked in every group and done research but can't find anything on healing pots that came frm surgery, mine came on after having my c section 2 years ago.
Does the nervous system relate to eye conditions? I understand myopia is caused by screens and closeup work. But conditions like astigmatism may he related to the nervous system
Hi Aodh, Jen here from Team Lyon. The nervous system does relate to some eye conditions, and there are many eye conditions that are structural or otherwise non-nervous system in origin.
Is High adrenergic pots curable ? I am not even able to fall asleep at all and I am on Ambien and 3mg melatonin since many months, which is aggravating pots but I need to sleep.
Hi Alice fait des carabistouilles, Jen here from Team Lyon. Some people with POTS diagnoses do see their symptoms have dissipate or disappear completely as a result of doing this work to heal trauma and grow nervous system regulation and capacity.
Please be sure to rule out apnea- heart can surge during sleep when oxygen drops from apnea. Sleeping pills make this worse, so I’d rule it out. I just learned this has been happening to me. Good luck!
@@HeatherKirklandHowe Thank you for that warning...could me life saving if the medics listen. As a health professional with Hyper Pots, I've known this and suspect I may have the apnoea... Our medical system here in the UK is now probably the worst in the developed world...😢
My daughter has had this since 2 yrs of age or younger. Bedbound by 6 yrs of age - the stressor is Ehlers Danlos Syndrome which she was born with an will never go away. Can she be helped?!
Hi Stephanie, Seth here with Team Lyon. Yes, I believe it is possible. We view EDS as a extreme representation of what is called in our work, 'undercoupling' in the system - there's not enough tension and cohesion in the system. The fact she was born with it would tell me this is likely an epigenetic expression of unresolved intergenerational trauma. The POTS is likely another symptom resulting from the same thing. I can't say for sure, as being born with this may have a different effect than when it develops later in life, but we have one alumni who who was diagnosed with EDS along with many other things and has recovered completely. You can check out her story here... irenelyon.com/2022/07/31/too-young-to-be-in-so-much-pain-resharing-a-powerful-healing-story/
Can the menstrual cycle also be stressful for the body, by also causing diarrhea and other discomfort? I used to faint almost every month when my period was the heaviest, usually early in the morning. Also I wasn't diagnosed with POTS, but my doctor called my symptoms vasovagal collapse (also faint under extreme stress or pain). Is this the same as POTS?
Hi Sand Tx, Jen here from Team Lyon. A lot can happen during the menstrual cycle and the time around it. It can cause many symptoms, including diarrhea and other discomfort. My understanding is that vasovagal collapse is not the same as POTS, which involves multiple symptoms of the ANS (autonomic nervous system).
My cardiologist just told me he preferred the term dysautonomia unless there is actual testing to show the exact POTS mechanism. For example I have near fainting, but my heart rate and blood pressure both drop in rate and strength, no one can get a pulse on me despite me talking. Then the heart rate picks up rapidly. So by medical definition this doesn't fit POTS exactly, but it's similar, and so dysautonmomia is more accurate.
@@joywebster2678 thank you for sharing. This must be stressful. I faint easily due to too much stress & pain and land on my head causing a concussion. My head probably looks like humpty dumpty. Luckily I don't faint as often as I used to and during my menstrual cycle, but I fainted twice last year. Since I started my healing journey I noticed less stress in the body and my nervous system calming down. Especially the past 6 months. The knots & tense grip all over my body is slowly releasing. It may sound weird but I can feel how my whole pelvic area and especially around the womb was so tense and now slowly relaxing.
@@sandtx4913 thanks. I've been asking my cardiologist to address the off balance, loss of pulse and BP for a few years. Initially he said Vasovagal, and wrote that to my family doctor. I've been a RN forever, and I know THAT term in the ER means near faint or faint due to emotional upset, and or menstrual cycle, and 99% of the doctors would eyeroll, tell the patients to drink more water during menses to keep blood volume up, and the emotional ones should seek therapy. So I was none to pleased with my cardiologist tossing off the quick term. My family doc didn't take it seriously either. So yes to get him to listen this time, and explain its Vagas nerve related or dysautonomia, and that it can be triggered by a scent, a food, a stressor, and that it's a real issue and he has no solution, was much more helpful than tossing it off like I'm a teenager fainting because my bf didn't like me. I know those with a diagnosis of POTS can barely get off laying horizontal without fainting. I've met a couple of patients in hospital. So I'm glad you are finding healing for yourself, and moving forward. I wish Dr's could deal with the facts after ruling out fixable issues and explain what might help and then say, I'm sorry there isn't anything more I can do. Like now when I end up on the ground while shopping, I can safely decline an ambulance and say, oh it's nothing, just help me up.
@@joywebster2678 I know right? It took years before my doctor would tell me my fainting was called vasovagal collaps, but she didn't say more than that. Not what it really was, that it's the vagus nerve causing it or why or how to heal from it. I had to look everything up myself, did the healing part myself (and still doing it every day). The only thing I got out of her was that it is a part of me, of who I am. I don't go to doctors for advice on my health or for healing anymore. I found discovered that modern medicine & big pharma was created by John D. R0ckefeller. The medical industry is not about healing unfortunately but about pr0fits (for big pharma). I came to learn that we are our own healers and that the body can heal itself fully as long as we listen to what it's telling us it needs, do exactly that and trust the process. That's the hard part though because we've been so programmed to look for everything outside ourself, up to the point that we've become (co)dependent. If I was able to become my own healer, I know anybody can. Don't give up or give in. You have everything you need to heal as long as you are ready & willing. Find the answers & solution within. Much love to you. ❤
Hi C Katt - Mara here with Team Lyon. PNES can be distinguished from seizures by a video EEG to see the body movement and make correlations with an EEG (seizures) or no correlation (PNES). From a trauma- and stress-physiology perspective, if the body is in acute stress, physical symptoms may emerge that look like seizures, shaking, posturing, etc. It's important to get a medical work-up to understand what is happening.
@@IreneLyon yes I know what pnes is, I have done all the test. I meant how it relates to nervous system disregulation, and how to work on that with this illness
I have IBS, HIETAL HERNIA,GERD .I DRINK VINEGAR IN WATER. IT HELPS WIT GERD BUT NOT DIARHERA OR 16:27 CONSTIPATION. USED to get migranes but not Amy more Just alot if headachy. Restless legs, n̈euraphy in feet, high heart rate, brain fog, hasahmottos throdytis ect. Worse is the fatigue and no energy.
Can POTS cause an irregular discharge during menstruation- like Day 2 it stops and Day 3 it resumes, given nothing else could be found gynaecologically? Sort of freeze response? And can it also cause complete loss of hunger with no accompanying diarrhoea or constipation? As though your body has forgotten how to send you signals you are hungry. Feeling of fullness too.
Hi Ratanjali, Seth here with Team Lyon. No, POTS is a specific symptom of poor blood pressure regulation when changing posture, that often leads to passing out. However, the root cause of POTS is unresolved trauma, including a stuck freeze response, and that can cause the kinds of symptoms you describe.
I haven't watched video yet but my guess would be could be, anything, especially with nerves can be related ime. Currently I am experiencing Trigeminal Neuralgia and I have CPTSD. Now I'm going to go watch and see what she shares.
My health was completely compromised by Paxil. I had taken it for 10 years and although I slowly weaned off it as instructed, I went into long term withdrawal upon discontinuation and was dreadfully sick for 3 years (had to quite my full time job). After about 3 years, the slow healing started. It's been 15 years now and although I'm 1000 times better, I still have a lot of unexplained symptoms, most of which resemble POTS. I started to take Paxil to manage anxiety, but what I learned from this experience is that sometimes the "cure" is worse than the disease.
POTS is not from emotional trauma. Much of the time POTS is associated with a connective tissue issue and post illness. Your info is bias to the service your offering and convenient for your agenda.
I was thinking something along these lines! To say you can heal POTS just from nervous system regulation is incredible scammy-sounding and completely invalidates the experience of everyone who developed POTS *not* as a response to nervous system dysregulation. Dysautonomia is dysFUNTION not dysREGULATION.
As a Cllinical Pharmacist with Pots and a signigicant knowledge and understanding of Pots, I can tell you that POTS CAN DEFINITELY BE TRIGGERED BY EMOTIONAL TRAUMA...Indeed that is not disputed. Irene is 'spot on' on that and healing can occur with correct diet exercise, and yes..healing techniques. The mind has to be calmed...
There are different types of pots. She's not wrong and there are studies to back it up. I think going forward a certain type will be more linked to Ehlers Danlos Syndrome and another type to trauma. I think hyperandrenergic pots is more linked to trauma.
@iheartflying you can Google the studies but it has to do with the desensitization of the hypothalamic-pituitary-adrenal (HPA) axis. It is a part of the neuroendocrine system that's a vital part of the body's stress response. It's a communication system between the hypothalamus, pituitary gland, and adrenal glands that's connected to the central and endocrine nervous systems. When the body perceives stress, the HPA axis releases hormones into the blood to regulate the body's stress reaction. This reaction can include increased heart rate and sweating. A drop in blood pressure therefore is less common in hyperandrenergic POTS. When the HPA axis is dysfunctional, the body overreacts to any stress, even minor stress and the brain perceives even standing as stress. Some cases of hyperandrenergic POTS have been linked in studies to a genetic disorder that causes HPA axis dysfunction but not all people with hyperandrenergic POTS have that genetic disorder in studies. Trauma, especially prolonged trauma including in the past such as childhood or in the present is known to cause the dysfunction of the HPA axis as well and it was first discovered during Civil War in soldiers coming home from the battlefield. Look up "sick soldier syndrome" which is what it was referred to in those days.
I'm in a bad POTS flare up due to being badly startled by cannonfire 3 weeks ago at a Remembrance day event. I don't know how to heal this or snap out of it! Anyone help, please?
Hello, Sophia from Team Lyon here. We cannot consult on this comments section, but we can recomment Irene's free resources: irenelyon.com/free-resources-2/ Also in these videos, you will find more information about your question: ruclips.net/video/VNWYIlPfk4Q/видео.html and ruclips.net/video/AwdVYaHbWyc/видео.html
@@macikj, by learning about your nervous system and how to support it to grow nervous system. regulation and capacity and to heal trauma. This is what Irene teaches people how to do in her free content and paid courses. I'll link to her New Here page, to a Field Guide to Your Nervous System, and to her 21 Day Nervous System Tune Up course. The "Nervous System Tune Up" is a self-study course that you can do on your own time. It can be a great way to learn the basics related to nervous system education and practice. New Here - irenelyon.com/new-here/ Field Guide to Your Nervous System - irenelyon.com/field-guide-to-your-nervous-system 21 Day Nervous System Tune Up - 21daytuneup.com/ - Jen from Team Lyon.
It sounds like you are describing PTSD as causation of POTS. There are folks that have PTSD and do not have POTS. I would place your information here in the category of opinion with no peer reviewed scientific studies. Have you researched vaccine injury r/t POTS?
POTS is not just one system being on too much. The part of the malfunction stops veins and arteries from constricting which has a minimal amount of blood going to the heart and brain. The body responds by increasing the heart rate and then the fight or flight system to get blood to the head and heart and avoid fainting.
Yes you are right, but to fix your symptoms you need to focus on just the one system, the nervous system. Your goal should not be to fix areteries and veins constriction, how in the world would you help that? Those are controlled by your AUTONOMIC nervous system, meaning your concious thinking doesn't take care of it, your subconscious takes care of it, thats why you can go to sleep every night without worrying that your heart is going to stop beating just because your not concious of it. Thus, we need to heal the nervous system.
Also could be one gets autoimmunity due to original damage to the autonomics .... leading to gut slow down... Sibo and then autoimmune reactions... if the autonomics aren’t healed your gut will never be normal and then u can’t get rid of autoimmune reactions. Heal the autonomics and I think true healing is possible.
@@monkeybearmax You need multipronged approach. Gut health leads to better nervous system, better nervous system leads to gut health, it will be an upward spiral. Downward spiral is what we are familiar with, bad gut health, bad nervous system and eventually auto immunity is guaranteed.
Hi Elizabeth Reed, Jen here from Team Lyon. See if you can find it here: irenelyon.com/2021/07/18/healing-from-fibromyalgia-eds-pots-more-mental-clarity-too/ and/or here: irenelyon.com/2021/11/21/my-baseline-pain-scale-is-now-zero-the-power-of-starting-learning-healing/
@@juanitahyde1265 Presently Magnesium Citrate 150 mg capsules, one with lunch and another with supper. I've tried all the popular formulations in several brands and find that even the cheapest (the above from Costco on sale) yield good results vs taking nothing. I also take cold or cool water showers. It took me months to adjust to cold showers but nothing improved my Renaud's syndrome as much. My pots improved as well ( before I started Mg and B1). Seems that most things complement each other. Mg may be very beneficial but it's not a silver bullet by itself.
That word choice (syndrome vs disease) just reflects what we know about it at this point, not anything special about the condition. We absolutely do not know everything about how POTS works yet and are discovering new aspects of it very rapidly now due to the pandemic.
Tom Eats Gaming, Jen here from Team Lyon. In short, it's a process that involves learning to listen to and support your nervous system. This is what Irene teaches people to do. I'll link to Irene's free Healing Trauma video training and also to a video or hers where she talks about growing capacity. Irene does offer a self-study course called the 21 Day Nervous System Tune Up and a comprehensive program called SmartBody Smartmind. I'll link to the "Tune Up" too in case you want to dive right in. Free Healing Trauma video training - irenelyon.com/healing-trauma How to Build Somatic and Nervous System Capacity - irenelyon.com/2022/01/16/how-to-build-somatic-and-nervous-system-capacity/ 21 Day Nervous System Tune Up - 21daytuneup.com/
I was so excited to see a video from neurological experts, only to find that there isn’t a single neurologist and only some new age “therapy” that heals everything. This was so beyond disappointing - a huge letdown. If you are not actual experts… neurologists, you should say that up front.
Just a note that you don't have to faint in order to have POTS. Many with POTS don't faint, but have all the same symptoms.
I get dizzy for sure
Yes - usually I'm horizontal before I get close to faint
Yes that's true.
Yes, I have POTS and some faint and some don't.
Please help my I haaaaaate my pots
Yes! I had debilitating POTS as well as another form of dysautonomia, IST. I was on multiple medications and daily IV fluids through a chest port. 😊 I healed my nervous system and my POTS disappeared along with my HEDS, RLS, MCAS, Hypokalemic Periodic Paralysis, Reynaud's, Neurogenic Bladder, Myoclonus, dystonias, chronic insomnia, severe chronic pain, and more. I went from being tube fed to eating everything. It changed my life. It saved my life. I was on palliative care, already planning to switch to hospice. I had written goodbye letters to my kids, and my husband was preparing for my funeral. Nervous system healing saved my life.
Hi @AngelaHepp Sophia here from Team Lyon. Thank you for your comment and for sharing such a powerful story on nervous system healing. Wishing you the best.
Hi, can you please say what you did to heal your nervous system. Which therapy or doctor helped. Thank you 🙏💜
Thx for your comment. But…Why not share what helped??
How did you do it?
Hey how did you heal it?!!
Very good thank you. I believe root of “Long Covid” is an attack to cause complete havoc on the autonomic nervous system. It just makes sense with the symptoms I see, and feel personally. Going to check out your healing videos now!!
I’ve had POTS since childhood and this is so comforting to hear that it can be helped. Regular medical Doctors just view it from their particular disciplines and they never weave it together. Thank you
I got Covid in early 2020 also while teaching high achool. My muscles suddenly weakened and I felt like fainting every time I got up. I improved about 50%, but now have Long Covid and actually did faint in the supermarket a few months ago. Most mornings are very difficult and I have to grab onto the wall or a rail to get to the kitchen or restroom.
My symptoms came from coming down with COVID-19 way back in March 2020, just a few days before the shut down. My son, who was going through his senior year in high school, brought it home from school. We got it from his choir teacher, who’s life was spared because he was able to go to three different hospitals to help him to live. Our household has been suffering off and on ever since March 2020.
You’re not alone. I was a senior in 2020, I never took a vaccine, I’m not overweight, I eat healthy, and I’ve been sick and bedridden about 10-12 times since getting Covid in 2020. My symptoms have developed into worse and worse health conditions with no doctor able to label them. As it has much to do with digestion, pots symptoms, nervous system issues, I’ve started taking B1 as TTFD and a B complex by Seeking Health. On day 4 of taking those along with electrolytes and magnesium glycinate, and I’ve noticed a huge difference. May be worth looking into B1.
I can almost cry - all of what you said, makes sense to me. For the first time, so much has been made clear to me. Love your explanation and thank you for this!!!
@patriciamalekar6531, it's great to hear that Irene's teaching here resonated with you! Since it sounds like you're new around here, you might check out here "New Here?" page. Here's a link: irenelyon.com/new-here/
I recovered from POTS! Totally possible ❤
This gives me hope! I have POTS for 8 years now. What did you do to get better?
I’ve had POTS for 11 years, could you please share what helped you? Thank you ❤️
I have been trying for 6 years. Would love to hear more 🙏🏻
Lots of shadow work and work on the nervous system. Day in, day out. Loving myself each step of the way. One day I just noticed it was gone. Never felt better. Feeling whole for the first time in my life. Feeling alive. Irenes video's are helping me so much. Don't give up ❤
@@Gwen828 pls more specific???
the fact tis video only has 10k views is so sad. people NEED TO SEE THISSSSS. the western medical system is soooo quick to throw disorder labels on a set of symptoms and just call it chronic if their big pharma companies haven't constructed a synthetic pill that can treat said symptoms.
as a neuroscience PhD student you're absolutely right, and i wish people can see that it's not necessarily chronic
Absolutely 💯 CORRECT!!! Dr’s and Big Pharma just want to slap another pill on it like a bandaid! Why I don’t see reg “Dr’s” anymore! 🤬
👍As a Clinical Pharmacist with Pots....I absolutely agree with you...
I used to have digestive/gut issues for years. I tried probiotics, fiber, diet, etc. Didn't help. Then a cervical chiropractor found that my c2 was rotated and my atlas was out. After he fixed that, my digestive/gut issues have disappeared.
I'm not saying that everyone's gut issues are due to atlas/cervical problems, but it is worth it to at least see if that could be the problem.
I know my neck was killing me and suddenly POTS became worse i think cervical instability is highly related
But getting a Dr to look at your neck...impossible.
I tried cervical chiro 😢I tried the atlas reset etc and nothing 😢
@@Stephthegreatlionyes it is!!!
you are lucky, in my case two chiropractic treatments were what caused severe upper cervical instability and cause all kinds of horrible symptoms that just got worse over the years
I really think this is connected to HSP(highly sensitive person). My daughter and I both have Pots and she has digestive issues and migraines since childhood. Now I see it's related to overly sensitive nervous system. Thanks so much!
It took until my late 40s to get my cluster of symptoms diagnosed, hsp, digestive issues, migraines,...I have Ehelers Danlos Syndrome, and by ignoring me by doctors, I had to have 2 heart attacks, and 3 strokes to get medical investigation, diagnosis. Now on blood thinners and heart beta blockers damage has not continued. But still the doctors don't deal with the POTS, or the digestion issues. I finally got my cardiologist to confirm the dysautonomia or POTS last week, but he chuckled and said but can't do anything. So very frustrating.
Absolutely, my daughter n I both have severe anxiety and a heightened sensory system
Check out "Healing Developmental Trauma", that book goes into deeper trauma healing than SE can reach. Very helpful for those so traumatized they can't even feel their emotions or bodily sensations.
Please also look into COMT slow genetic variance. Separately, POTS is sometimes related to Ehlers-Danlos syndrome.
I absolutely believe that.
Pots and disautonomia are part of elhers danlos but can be helped with electrolytes
Could you please do a video like this for ME/CFS? Would greatly appreciate it 🙏
Yes I second this! Also fibromyalgia
And MCAS
And CIRS/mold/MCAS/MCS!
Hi 444, I'll pass your request along to Irene. She does talk about ME/CFS in some of her special topic videos. And if you haven't yet seen her healing trauma video series, that has a lot of relevant info in it. - Jen from Team Lyon
free Healing Trauma video series - irenelyon.com/healing-trauma
What is I have CFS? - ruclips.net/video/du8t27GrfWA/видео.html
I went to a New Year’s party this year and I was already so sick of myself being stuck in the fight or flight response, i felt like I couldnt move forward in life. At this party I watched everyone and realized wait, everyone here seems free from the issue I have. Not everyone has this. I shut down permanently. 5 grueling months later I was diagnosed with POTS.
Hang in there ❤
@@vastjayk6976 I hope you have found healing
I miss watching your videos, Irene! =) Thanks for all the content you make for us!
Hi Irene. While I don’t have POTS, I was interested to learn about it as I do have MECFS as a result of a car accident, so I’ve just finished your 21-day course and I’m looking forward to your longer course starting in March. While listening, I had a flashback to a stage in my life (early teens) where my system would ‘glitch’ and I wouldn’t be able to move for sometimes up to a few minutes. I remember one time in particular when I was walking and I suddenly stopped and had to wait for my system to reboot. I don’t recall feeling fear but I remember feeling that this happened periodically and I had to wait until I could move again. In your work with Peter Levine, have you ever heard of this happening in others?
HI Akribelasurfacing, Jen here from Team Lyon. Great to hear you finished the 21 Day Course and are joining SBSM this year. As an aside, the 21 Day course is a great one to do repeatedly. Our experience of the practices often changes and deepens as we do them over time, and incorporate them into daily life. To answer your question, I've heard of similar things but not this specifically. I'll ask around to see if I can learn more.
How did the 21 day program help your cfs symptoms? Do you mind i ask how severe you were prior to starting? I’m considering going it too but want to be sure i can.
If you’ve had a concussion or a whiplash in that car accident, it would be worth to vheck if you have craniocervical/atlantoaxial instability.
Will you make a video about healing fibromyalgia? I know it’s related to trauma.
I had a high stressful event got sick and i have said my nervous system is freaking out. Digest issues ANXIETY and now experiencing pots along with fatigue. I feel if i could get the nervous system to calm down all this might as well
@juanitahyde1265, Jen here from Irene's Team. You're definitely onto something here. Growing more access to settling - which supports rest and regeneration - can be key in healing many symptoms (often including anxiety and digestive issues). This is a key part of what this nervous system work is about. If you haven't yet checked out Irene's free resources, I encourage you to do so. She also has a self-study course where she teaches the basics of how to work with your own nervous system if you decide you want to dive deeper at any point. Here are a few links if you want to learn more:
DIY Ancient Anxiety Medicine - ruclips.net/video/0ICsbXUCKmM/видео.html
21 Day Nervous System Tune Up - 21daytuneup.com/
Only about 20-30% of POTS patients faint. You are mixing POTS with the orthostatic hypotension.
I am seriously dysregulated in the way your talking about. I get adreneline pushes. Are you familiar? I feel there is a connection with the dysregulation of the nervous system and the phenomenon of adreniline pushes, and for some actual cardiac problems like stroke (or panic attacks). I get adreniline pushes from something as simple as a very light massage. Im totally disabled over this and would love to learn more so I can have more of a life. Thank you!! ❤
@evonne - Mara here with Team Lyon. Not specifically familiar with adrenaline pushes, but it sounds like a form of sympathetic nervous system activation. If you're new to Irene's channel and resources, please check out these ways to get started: irenelyon.com/new-here/
Consider her upcoming 12-week program: smartbodysmartmind.com/
My granddaughter faints a lot with just walking or sitting down she gets headaches and her whole body hurts and her head hurts after she faints and her heart palpates and her speech get slurry to where the words don't come out of her mouth her stomachs hurts and she feels like there is something stuck in her throat then she throws up
Thanks Irene. You have a great way of explaining things.
I’m curious how this relates with autism. My teenager has an evaluation for autism in two weeks. But recently we are also suspecting POTS. The thing to note from what you said is “shut downs”. My teenager can have shutdowns where they stop feeling like they can function or communicate. I wonder if that’s also part of the parasympathetic response. We have been trying to find the cause of so many random symptoms since early childhood. An occupational therapist said that something about the tightness in their legs was related to a fight or flight response. There are so many little details of their overall health issues that are making sense with what you are saying.
Hello, Sophia from Team Lyon here. Although we cannot consult or diagnose in this comment section, you might find these videos or Irene addressing relevant issues informative: ruclips.net/video/2g4C0LZfA-A/видео.html and ruclips.net/video/Fa7IlB2U8MY/видео.html I hope this helps
I am free from symptoms of POTS as long as I avoid wireless technology. In susceptible people, wireless signals interfere with the autonomic nervous system. The electrical signals (also known as EMF or electromagnetic fields) that are emitted by wireless devices(cell phones, lap tops, wi fi, printers, apple watches, cell towers, smart meters, ect) stimulate the sympathetic nervous system and inhibits the function of the parasympathetic nervous system. I suffered from migraine headaches, dizziness, nausea, brain fog, tachycardia, near fainting episodes, blurred vision, inability to think, anxiety, depression shortness of breath, muscle pain and spasms, digestive and urinary symptoms... all resolved now with radical avoidance and shielding from wireless radiation.
I agree with you but obviously you have some exposure hence the comment. How do you avoid it when it’s everywhere? Do you live off grid?
@@JRESHOW My computer is hardwired (ethernet cable). I have a landline phone. My husband keeps his cell on airplane mode at home. We don't have Wifi. We use no wireless devices. I had to quit my job. We built a steel shed (steel attenuates exposure from the local cell tower) on a cement slab about 2 years ago. Sold our home and lived in a camper inside the shed as we build a living space around us. Avoided any public space or gatherings with family and friends. Long, long story (needs a book) but after almost 2 years of very limited exposure, I am almost back to normal. Can go to the store, church, family gatherings with just mild symptoms.
@@savedbygrace338wow, yea it’s a bummer that we have to live like this. People always freak out about possible grid failure, and I know it would be a set back, but in the same way so many sicknesses I believe would go away. Glad you are doing better :)
I noticed this too. Especially with bluetooths. I always get a headache depending on how strong it is.
I have debilitating SOMETHING but I’ve researched so many different disorders I don’t know where to begin
@darthtraya5992, Jen here from Irene's Team. I'm with you, I was in a similar situation and it was frustrating and scary to be severely compromised and not know what was happening.
When we don't know where to start, learning about the nervous system and how to take steps towards regulation can one important step we can take.
I'll link to some info on about the link before early adversity and chronic illness, and also to a story from one of Irene's students that may be of interest.
The undeniable link between early childhood stress and chronic illness - ruclips.net/video/HwFvheVVLzc/видео.html
Healing The Immune System || SmartBody SmartMind - ruclips.net/video/HrrHKVCPSkU/видео.html
Many women have long covid. Many since 2020. Fatigue, heart issues, brain fog, shortness of breath, etc are common. Could the nervous system affects long covid?
Hi Caroline Yunker, Jen here from Team Lyon. The nervous system can relate to long Covid in the sense that the when the nervous system is more regulated the nervous system, immune response is often stronger and generally speaking more resources can go towards healing and regeneration.
Yes, I started having POTS symptoms after CV
High aldosterone can this cause panic drpression dizziness etc
I have been diagnosed orthostatic postural tachycardia, an autonomic dysfunction chronic pain migraines (over 25yrs) I’ve had trauma and can’t get a relief from the symptoms my life is so bad. I have wanted to end my life as I’ve tried everything medication that didn’t go well been having therapy and my days are more bad then good I just want to have a better quality of life
HI Poison Palette, Jen here from Team Lyon. These symptoms sound challenging to live with for sure. You might consider giving this nervous system work a chance - it's often helpful where other approaches haven't been. Irene has a number of free resources you might check out, as well as a paid course and program if you want to dive deeper. Doing some 1-1 work with a trained practitioner if that's an option can often be helpful too.
Free Resources - irenelyon.com/free-resources-2/
What about the blood pooling that happens with pots? Or a narrow blood pressure?
Yes with other stuff like EDS we cannot control the strength of the veins!
@@judithdesrosiers5415 I have hEDS and Hyper PoTs. But I'm wondering if being in a stressful environment means the body is less able to adapt to the stretchy veins because it's too busy flight or fleeing! When I went on hEDS pain management many of the girls there had had stressful childhoods like myself. It's just a thought but I think it's worth exploring.
There’s lots of other videos which discuss these issues. Check out Dr. Blair Grubb . And a girl named Aimee , and her compression socks .
Hi, SBSM alumni here.
Thank you for putting POTS into the ANS perspective. It’s something I’m experiencing and know to be related to the overall deregulation.
Something stood out for me… at a certain point you said something like “our fragile systems”. I see this seeping through in many videos, in the form of subtle words or in warning us for all kinds of ‘dangerous’ or ‘faulty’ treatment. All the emphasis on the complexity of trauma and the difficulty in getting it out of our systems… It weighs heavy and seeps into my belief system that ‘this’ will be near impossible to overcome.
I enjoy the actual activities of somatic experiencing, but I’m worried about this.
How is believing we are fragile helpful? Your words are powerful.
How can you even describe our natural physical and psychological reactions as ‘fragility’? This description is just a perspective. Do you actually believe this?
Why not say ‘our adaptive or protective systems’.
I would feel more safe, strong and lighter already…
After watching much of your content, an overall feeling creeps in…
Sometimes I almost feel like you, in a way, scared me into your program. Which isn’t your intention, I’m sure! But a part of your style seems very unhelpful to me, speaking to an anxious community. Even after having actually attended and appreciated SBSM.
I would love to understand how you approach this. The importance of bringing a feeling and belief of lightness, strength and resilience in all this…
I feel it in the SBSM exercises, but not in the surrounding content.
Hi Inge Stuyckens, Jen here from Team Lyon. Thank you for taking the time to reflect on what you were noticing and to share it here. I will pass along your thoughts to Irene. Hope to see you in SBSM this year!
@@IreneLyon thank you Jen for your kind respons on my critique. Yes I intend to join SBSM again!
I’m just struggling a bit with how to keep it lighthearted for me. Last year I also felt this ‘heavy’ effect on me while going through the education part and the Q&A’s. Information and seriousness overload. The exercises luckily have a much welcome, lighter tone.
I’m a visual learner, this is also a part of it. Too many words for me without visual integration sometimes :-)
I would love to see concise visual learning more integrated in the program. I used to do this visual integration myself when studying, but freezy fatigue and brain fog get in the way now to make my own schemes.
@@lingeske - Seth here with Team Lyon. Thanks for your feedback and for joining us again! One thing that occurred to me is that part of the reason the education portion IS quite serious, is because one thing we are always working against is the tendency of many people to minimize and dumb down the education. We see this all the time with the current trend of 'nervous system hacks' and such.
Thanks again for your feedback, we are always working to improve the program, so we certainly think about your suggestions.
@@IreneLyon well, actually I quite enjoy the deep learning in se, I’ve always been that kind of person that wants to fully understand. It’s not really that that creates the heavy feeling for me (except from some overwhelm coming from the lacking of visual integration.”)
I guess the heaviness comes a bit from the tone of voice and the choice of words. But mainly, it comes from the warnings. All the don’ts and dangers. And pointing out that this SE approach is the only right way. While different teachers of course say the opposite. Which brings up lots of insecurity in me.
I know this is never the case, people heal with all kinds of modalities, as long as it’s a good fit. And this is comforting to me to know.
I’m noticing that ‘a good fit’ mainly seems to come from having a feeling of relief, trust, arriving home, finally understanding with deeper integrated insight, a release of worry.
I think it’s probable that it’s this very feeling that makes the biggest healing happen.
I notice that some videos provoke the opposite in me personally. “I’m doing it wrong and missing the point. I should be careful to not make mistakes. It’s difficult. It’s complicated. I have too much going on, it will take forever.”
These thoughts are a red flag to me…
But that’s me personally, I know others do have that sense of peace and relaxation in SBSM’s care. And then again, I notice others struggling similarly with that sense of heightened despair.
@@lingeske, Jen here again. It sounds like you have a lot of clarity about what works for you - and your nervous system. As you go through this round of SBSM I encourage you to let this be your guide - if the practices are what speak most of your system, focus there and dip into the learning when and how you have the impulse to do so. One of the most helpful things I learned from my long time gestalt teacher is that we can take things in, chew it up (so to speak), digest and integrate the pieces that work for us and leave the rest.
I was born with colick, turned into IBS., so no I didn't grow into it. It came with me into the world and has never left.
Hi Joy Webster, Jen here from Team Lyon. Trauma can start in utero and can have a major impact on our experience as we come into the world. When we learn to work with the nervous system and physiology, we are often able to create new experiences for ourselves in time.
I had several dramatic events of loosing my job and then loosing my loved one 1 month later. Then I had gastric sleeve to loose 124lb of weig ht I gained within 6 months of this loss. After gastric sleeve I got POTS. It is really shocking to me as I have always been so strong. I finally fainted because of the pots.I have lost 124lbs but now have pots. I'm thinking it's because of the surgery cutting nerves? I need help.
Hi @vikkster, Seth here with Team Lyon. I'm sorry to hear about all these painful experiences you've been through. Yes, that is a lot for any person to go through! The Pots is likely more due to conflicting unresolved survival states (fight/flight and freeze) at play in the system, rather than cutting of specific nerves, though that will also have an effect on the system to be sure. This kind of complex trauma would not be unusual after the experiences you describe. I'll encourage you to get into this work, as it's been shown to help a lot. You can do this with our online programs and/or by seeking out a practitioner. I'll encourage you to start with the 21 Day Tune Up, as it's the cost of about two sessions with a good practitioner, and getting the education and basic practices available there will make you much more informed about what to look for in a practitioner. Here are some links to explore these options.
21 Day Nervous System Tune Up - 21daytuneup.com/
How to find a good somatic practitioner - ruclips.net/video/04XF7ANnqGk/видео.html
SE International directory - directory.traumahealing.org/
Absolutely possible ! I recovered from POTS and many many other "diagnoses " of chronic illness. Healing is possible.
I’ve been trying to heal from pots for 6 years. I feel hopeless at times. krystal would you share more about your healing journey?
Would love to hear more about your healing journey!
Then pls share as we are waiting ;)
How???
@@autumnonpurpose by regulating nervous system
With EDS the collagen isn't strong enough to keep NO up,I actually fainted twice in a restuarant,while quite happy,and I was sitting down,blood went to stomach! I am a qualified relaxation therapist,of course stress,will make things worse,so many still not understand ing
My POTS and MECFS came after Covid Vaccine. There are so many people, mostly women, who suffer from several diseases after the vaccine.
@@Josy-w5j Yep. Poison causes problems.
Mine came 12months after so hard to prove it
Does this apply to hyperadrenergic POTS as well?
What if pots was caused by surgery? I have asked in every group and done research but can't find anything on healing pots that came frm surgery, mine came on after having my c section 2 years ago.
If it was caused by surgery it's still the same condition and some form of nervous dysfunction, which can be healed under the right conditions.
Does the nervous system relate to eye conditions? I understand myopia is caused by screens and closeup work. But conditions like astigmatism may he related to the nervous system
Hi Aodh, Jen here from Team Lyon. The nervous system does relate to some eye conditions, and there are many eye conditions that are structural or otherwise non-nervous system in origin.
I just learned today i have pots which explains all my symptoms.
Is High adrenergic pots curable ? I am not even able to fall asleep at all and I am on Ambien and 3mg melatonin since many months, which is aggravating pots but I need to sleep.
Hi Alice fait des carabistouilles, Jen here from Team Lyon. Some people with POTS diagnoses do see their symptoms have dissipate or disappear completely as a result of doing this work to heal trauma and grow nervous system regulation and capacity.
Hi Alice, I have hyper pots and its actually the most healable. Good luck to you!
Please be sure to rule out apnea- heart can surge during sleep when oxygen drops from apnea. Sleeping pills make this worse, so I’d rule it out. I just learned this has been happening to me. Good luck!
@@candicehinds719Hi there dear can u tell me more about this please
It would really help
@@HeatherKirklandHowe
Thank you for that warning...could me life saving if the medics listen.
As a health professional with Hyper Pots, I've known this and suspect I may have the apnoea...
Our medical system here in the UK is now probably the worst in the developed world...😢
My daughter has had this since 2 yrs of age or younger. Bedbound by 6 yrs of age - the stressor is Ehlers Danlos Syndrome which she was born with an will never go away. Can she be helped?!
Hi Stephanie, Seth here with Team Lyon. Yes, I believe it is possible. We view EDS as a extreme representation of what is called in our work, 'undercoupling' in the system - there's not enough tension and cohesion in the system. The fact she was born with it would tell me this is likely an epigenetic expression of unresolved intergenerational trauma. The POTS is likely another symptom resulting from the same thing. I can't say for sure, as being born with this may have a different effect than when it develops later in life, but we have one alumni who who was diagnosed with EDS along with many other things and has recovered completely. You can check out her story here... irenelyon.com/2022/07/31/too-young-to-be-in-so-much-pain-resharing-a-powerful-healing-story/
Can the menstrual cycle also be stressful for the body, by also causing diarrhea and other discomfort? I used to faint almost every month when my period was the heaviest, usually early in the morning.
Also I wasn't diagnosed with POTS, but my doctor called my symptoms vasovagal collapse (also faint under extreme stress or pain). Is this the same as POTS?
Hi Sand Tx, Jen here from Team Lyon. A lot can happen during the menstrual cycle and the time around it. It can cause many symptoms, including diarrhea and other discomfort. My understanding is that vasovagal collapse is not the same as POTS, which involves multiple symptoms of the ANS (autonomic nervous system).
My cardiologist just told me he preferred the term dysautonomia unless there is actual testing to show the exact POTS mechanism. For example I have near fainting, but my heart rate and blood pressure both drop in rate and strength, no one can get a pulse on me despite me talking. Then the heart rate picks up rapidly. So by medical definition this doesn't fit POTS exactly, but it's similar, and so dysautonmomia is more accurate.
@@joywebster2678 thank you for sharing. This must be stressful. I faint easily due to too much stress & pain and land on my head causing a concussion. My head probably looks like humpty dumpty. Luckily I don't faint as often as I used to and during my menstrual cycle, but I fainted twice last year. Since I started my healing journey I noticed less stress in the body and my nervous system calming down. Especially the past 6 months. The knots & tense grip all over my body is slowly releasing. It may sound weird but I can feel how my whole pelvic area and especially around the womb was so tense and now slowly relaxing.
@@sandtx4913 thanks. I've been asking my cardiologist to address the off balance, loss of pulse and BP for a few years. Initially he said Vasovagal, and wrote that to my family doctor. I've been a RN forever, and I know THAT term in the ER means near faint or faint due to emotional upset, and or menstrual cycle, and 99% of the doctors would eyeroll, tell the patients to drink more water during menses to keep blood volume up, and the emotional ones should seek therapy. So I was none to pleased with my cardiologist tossing off the quick term. My family doc didn't take it seriously either. So yes to get him to listen this time, and explain its Vagas nerve related or dysautonomia, and that it can be triggered by a scent, a food, a stressor, and that it's a real issue and he has no solution, was much more helpful than tossing it off like I'm a teenager fainting because my bf didn't like me. I know those with a diagnosis of POTS can barely get off laying horizontal without fainting. I've met a couple of patients in hospital. So I'm glad you are finding healing for yourself, and moving forward. I wish Dr's could deal with the facts after ruling out fixable issues and explain what might help and then say, I'm sorry there isn't anything more I can do. Like now when I end up on the ground while shopping, I can safely decline an ambulance and say, oh it's nothing, just help me up.
@@joywebster2678 I know right? It took years before my doctor would tell me my fainting was called vasovagal collaps, but she didn't say more than that. Not what it really was, that it's the vagus nerve causing it or why or how to heal from it. I had to look everything up myself, did the healing part myself (and still doing it every day). The only thing I got out of her was that it is a part of me, of who I am. I don't go to doctors for advice on my health or for healing anymore. I found discovered that modern medicine & big pharma was created by John D. R0ckefeller. The medical industry is not about healing unfortunately but about pr0fits (for big pharma). I came to learn that we are our own healers and that the body can heal itself fully as long as we listen to what it's telling us it needs, do exactly that and trust the process. That's the hard part though because we've been so programmed to look for everything outside ourself, up to the point that we've become (co)dependent. If I was able to become my own healer, I know anybody can. Don't give up or give in. You have everything you need to heal as long as you are ready & willing. Find the answers & solution within. Much love to you. ❤
I've Pots after Covid. I don't think, I have a trauma. The only thing that helps me is taking a cold shower several times a day.
Thank you for this! If you could do for cfs also.. full shut down and panic.. that would be awesome
Any thoughts on pnes ( psychogenic non-epileptic seizures)
Hi C Katt - Mara here with Team Lyon. PNES can be distinguished from seizures by a video EEG to see the body movement and make correlations with an EEG (seizures) or no correlation (PNES). From a trauma- and stress-physiology perspective, if the body is in acute stress, physical symptoms may emerge that look like seizures, shaking, posturing, etc. It's important to get a medical work-up to understand what is happening.
@@IreneLyon yes I know what pnes is, I have done all the test.
I meant how it relates to nervous system disregulation, and how to work on that with this illness
Thank you💫💫
This is informative video.
How can we enroll for the program. We’re in San Francisco, California.
I have IBS, HIETAL HERNIA,GERD .I DRINK VINEGAR IN WATER. IT HELPS WIT GERD BUT NOT DIARHERA OR 16:27 CONSTIPATION. USED to get migranes but not Amy more
Just alot if headachy. Restless legs, n̈euraphy in feet, high heart rate, brain fog, hasahmottos throdytis ect. Worse is the fatigue and no energy.
Can POTS cause an irregular discharge during menstruation- like Day 2 it stops and Day 3 it resumes, given nothing else could be found gynaecologically? Sort of freeze response?
And can it also cause complete loss of hunger with no accompanying diarrhoea or constipation? As though your body has forgotten how to send you signals you are hungry. Feeling of fullness too.
Hi Ratanjali, Seth here with Team Lyon. No, POTS is a specific symptom of poor blood pressure regulation when changing posture, that often leads to passing out. However, the root cause of POTS is unresolved trauma, including a stuck freeze response, and that can cause the kinds of symptoms you describe.
@@IreneLyon Thank you.
Is Trigeminal Neuralgia related to CPTSD? @Irene Lyon
I haven't watched video yet but my guess would be could be, anything, especially with nerves can be related ime. Currently I am experiencing Trigeminal Neuralgia and I have CPTSD. Now I'm going to go watch and see what she shares.
Yes. Look up Nicole Sachs, John Sarno, or TMS.
i have also trigeminal nueralgia. i was diagnose with chronic fatigue and anxiety last year and now im having pains in my face
My doctor caused all this. It's called diazepam. It ruined what was left of my life
My health was completely compromised by Paxil. I had taken it for 10 years and although I slowly weaned off it as instructed, I went into long term withdrawal upon discontinuation and was dreadfully sick for 3 years (had to quite my full time job). After about 3 years, the slow healing started. It's been 15 years now and although I'm 1000 times better, I still have a lot of unexplained symptoms, most of which resemble POTS. I started to take Paxil to manage anxiety, but what I learned from this experience is that sometimes the "cure" is worse than the disease.
POTS is not from emotional trauma. Much of the time POTS is associated with a connective tissue issue and post illness. Your info is bias to the service your offering and convenient for your agenda.
I was thinking something along these lines! To say you can heal POTS just from nervous system regulation is incredible scammy-sounding and completely invalidates the experience of everyone who developed POTS *not* as a response to nervous system dysregulation.
Dysautonomia is dysFUNTION not dysREGULATION.
As a Cllinical Pharmacist with Pots and a signigicant knowledge and understanding of Pots, I can tell you that POTS CAN DEFINITELY BE TRIGGERED BY EMOTIONAL TRAUMA...Indeed that is not disputed.
Irene is 'spot on' on that and healing can occur with correct diet exercise, and yes..healing techniques. The mind has to be calmed...
There are different types of pots. She's not wrong and there are studies to back it up. I think going forward a certain type will be more linked to Ehlers Danlos Syndrome and another type to trauma. I think hyperandrenergic pots is more linked to trauma.
@@missbee980 what studies? And why do you think hyper POTS will be linked to trauma?
@iheartflying you can Google the studies but it has to do with the desensitization of the hypothalamic-pituitary-adrenal (HPA) axis. It is a part of the neuroendocrine system that's a vital part of the body's stress response. It's a communication system between the hypothalamus, pituitary gland, and adrenal glands that's connected to the central and endocrine nervous systems. When the body perceives stress, the HPA axis releases hormones into the blood to regulate the body's stress reaction. This reaction can include increased heart rate and sweating. A drop in blood pressure therefore is less common in hyperandrenergic POTS. When the HPA axis is dysfunctional, the body overreacts to any stress, even minor stress and the brain perceives even standing as stress. Some cases of hyperandrenergic POTS have been linked in studies to a genetic disorder that causes HPA axis dysfunction but not all people with hyperandrenergic POTS have that genetic disorder in studies. Trauma, especially prolonged trauma including in the past such as childhood or in the present is known to cause the dysfunction of the HPA axis as well and it was first discovered during Civil War in soldiers coming home from the battlefield. Look up "sick soldier syndrome" which is what it was referred to in those days.
I'm in a bad POTS flare up due to being badly startled by cannonfire 3 weeks ago at a Remembrance day event.
I don't know how to heal this or snap out of it! Anyone help, please?
Hello, Sophia from Team Lyon here. We cannot consult on this comments section, but we can recomment Irene's free resources: irenelyon.com/free-resources-2/ Also in these videos, you will find more information about your question: ruclips.net/video/VNWYIlPfk4Q/видео.html and ruclips.net/video/AwdVYaHbWyc/видео.html
Is POTS who is in connection with EDS curable?
Patris Lumumba, Jen here from Team Lyon. My understanding that yes, POTS may be curable including when it occurs in conjunction with EDS.
@@IreneLyon How?
@@macikj, by learning about your nervous system and how to support it to grow nervous system. regulation and capacity and to heal trauma. This is what Irene teaches people how to do in her free content and paid courses.
I'll link to her New Here page, to a Field Guide to Your Nervous System, and to her 21 Day Nervous System Tune Up course. The "Nervous System Tune Up" is a self-study course that you can do on your own time. It can be a great way to learn the basics related to nervous system education and practice.
New Here - irenelyon.com/new-here/
Field Guide to Your Nervous System - irenelyon.com/field-guide-to-your-nervous-system
21 Day Nervous System Tune Up - 21daytuneup.com/
- Jen from Team Lyon.
Absolute BS! Dysautonomia, especially from EDS, is dysFUNTION not dysREGULATION.
@@iheartflying is it curable?
It sounds like you are describing PTSD as causation of POTS. There are folks that have PTSD and do not have POTS. I would place your information here in the category of opinion with no peer reviewed scientific studies. Have you researched vaccine injury r/t POTS?
Yes, I feel this happened with my daughter after a Vax. Also Lyme doesn't help.
Before Covid shots i was good since jabs horrible mess took months though afterwards
The title does not do the video any justice. You only have the basic information we all know about pots.
POTS is not just one system being on too much. The part of the malfunction stops veins and arteries from constricting which has a minimal amount of blood going to the heart and brain. The body responds by increasing the heart rate and then the fight or flight system to get blood to the head and heart and avoid fainting.
Yes you are right, but to fix your symptoms you need to focus on just the one system, the nervous system. Your goal should not be to fix areteries and veins constriction, how in the world would you help that? Those are controlled by your AUTONOMIC nervous system, meaning your concious thinking doesn't take care of it, your subconscious takes care of it, thats why you can go to sleep every night without worrying that your heart is going to stop beating just because your not concious of it. Thus, we need to heal the nervous system.
i would like to attend an online course with you. Please update your contact here so that I can get rid of my POTS.
Hi there. Seth here with Team Lyon. Just head on over to irenelyon.com/ - all the details about her programs are over there :)
not if POTS is caused from autoimmune small fiber polineuropathy , MS, or other underlying conditions.
Also could be one gets autoimmunity due to original damage to the autonomics .... leading to gut slow down... Sibo and then autoimmune reactions... if the autonomics aren’t healed your gut will never be normal and then u can’t get rid of autoimmune reactions. Heal the autonomics and I think true healing is possible.
@@monkeybearmax You need multipronged approach. Gut health leads to better nervous system, better nervous system leads to gut health, it will be an upward spiral. Downward spiral is what we are familiar with, bad gut health, bad nervous system and eventually auto immunity is guaranteed.
Also where is Elizabeth’s story of healing Fromm pots, cfs etc?
Hi Elizabeth Reed, Jen here from Team Lyon. See if you can find it here: irenelyon.com/2021/07/18/healing-from-fibromyalgia-eds-pots-more-mental-clarity-too/
and/or
here: irenelyon.com/2021/11/21/my-baseline-pain-scale-is-now-zero-the-power-of-starting-learning-healing/
Thank you!
At least 200 mg per day of...
THiAMiNE and MAGNESiUM
Yielded significant improvements for me.
@@vasthefox which kind of mag fid you use? Still going well
@@juanitahyde1265
Presently Magnesium Citrate 150 mg capsules, one with lunch and another with supper. I've tried all the popular formulations in several brands and find that even the cheapest (the above from Costco on sale) yield good results vs taking nothing. I also take cold or cool water showers. It took me months to adjust to cold showers but nothing improved my Renaud's syndrome as much. My pots improved as well ( before I started Mg and B1). Seems that most things complement each other. Mg may be very beneficial but it's not a silver bullet by itself.
@vasthefox thanks for responding I appreciate it
Yup
POTS is a syndrome NOT a disease
That word choice (syndrome vs disease) just reflects what we know about it at this point, not anything special about the condition. We absolutely do not know everything about how POTS works yet and are discovering new aspects of it very rapidly now due to the pandemic.
1:25
So how do you heal?
Tom Eats Gaming, Jen here from Team Lyon. In short, it's a process that involves learning to listen to and support your nervous system. This is what Irene teaches people to do. I'll link to Irene's free Healing Trauma video training and also to a video or hers where she talks about growing capacity. Irene does offer a self-study course called the 21 Day Nervous System Tune Up and a comprehensive program called SmartBody Smartmind. I'll link to the "Tune Up" too in case you want to dive right in.
Free Healing Trauma video training - irenelyon.com/healing-trauma
How to Build Somatic and Nervous System Capacity - irenelyon.com/2022/01/16/how-to-build-somatic-and-nervous-system-capacity/
21 Day Nervous System Tune Up - 21daytuneup.com/
I was so excited to see a video from neurological experts, only to find that there isn’t a single neurologist and only some new age “therapy” that heals everything. This was so beyond disappointing - a huge letdown. If you are not actual experts… neurologists, you should say that up front.
You need to listen to her more carefully . Between 11:00 and 15:00 minutes she clearly describes what the underlying problems are.
The covid vaccines