Absolutely brilliant precesentation, and you lates update on the new treatments, which seem to be very exciting to yourselves, and more importantly, you patients! Thank you Nigel for your great input. Best regards from Aldo in Bradford, West Yorkshire, a Patient at the Macula Centre, in Bradord 5.
I'm sorry to hear this. Please know that we are here to support you and your mother. If you would like to speak with someone, please do get in touch with our helpline on help@macularsociety.org
Why is there no other way of delivering the medication without using needles? If not, why not? Every four months. Four months is a very short period of time.
I'm not an expert on this subject. I just had my first shot yesterday. My doctor told me delivery to the eyeball directly helps reduce any side effects. If given intravenously, some of these drugs can have more side effects because the dosages have to be more significant. With a direct injection into the eye, the dosage is only for the eye - thus less, side effects.
Hi Sarah. We completely understand, having injections is incredibly uncomfortable and not a nice experience. I'm sure you are not the only person to feel this way. The medication is delivered through injection for a number of reasons, including targeted delivery, This means that an injection allows the medication to be placed in the right place without risk of damaging the macula. Another reason injections are used is that they minimise side effects. There is currently research being carried out on the exploration of other treatment options that are less invasive, however, at this point in time, injections are the most effective way to manage wet AMD. We are currently funding research into eye drops as an alternative - please see our website for more information: www.macularsociety.org/research/explore/projects/phds/developing-eye-drops-can-reach-back-eye/
Expat here ...much appreciate your work with these problems and possible results...i don,t fully understand my problem as i have wet weepy degeneration and dry in my other eye...however my dry mucular is now weeping same as the wet and i start injections in both eyes this week...has the dry turned to wet?? is it good or !!!! Going to replay your most helpful and hopefull presentation i hope to speak to the professor this coming week at akdeniz university hospital Turkiye. again much appreciated Nancy
I don’t understand why my ophthalmologist prescribed Ketorolac and prednisone eyedrops for one month and if that doesn’t work the eye injections. I don’t understand how those drops would make a difference.
This is most clear explanation that I have followed. Thank you so much. Why does the waste products start to collect in the eyes as we age? And why it is not a problem for the young people? Lack of Hydration? Too much cholesterol? I have dry AMD - one intermediate and one early. Both are relatively stable. Should I still see my doctor every 6 month instead of every year?
One of the main risk factors for developing AMD is age. As we age the retina doesn’t work as well as it used to and one of the ways this shows itself can be the accumulation of waste within the macula, as the cells haven’t been able to clear this away into the bloodstream. We recommend that you continue taking the advice of your doctor on the right frequency of monitoring for your eyes
@@MacularSociety sunt din Romania am un băiat în vârstă de 25 ani cu probleme de vedere o boală rară cum aș putea să iau legătura cu dv este vreun tratament
I live in southern Africa and am being treated with Avastin. Your presentation has me worried that I am not getting the right treatment. Why is it not a licenced treatment.?
Thank you .i am having maculardegeneration , myvision is bad having-13 in 55year, can Any supplement present mangler degeneration .I got først time Wien i Washington 50
Thank you for the excellent presentation. This is encouraging as I was recently diagnosed with WMD. Interesting that there is no family history. Is there a genetic relationship?
Where are you located? I have very poor vision in my right eye since I was a kid. When testing vision, it’s hand signals. Now I am rapidly losing vision on my left side. I use to be an artist, so vision loss is devastating. I have tried 3-4 medications to help in the last 2 years but my vision is rapidly being lost. I know my specialist is 1 of the best in the state but I don’t have time for him to figure it out. Blind in 1 eye and can’t drive in the other. I just turned 50. I need help!
My dad went through 2 yrs of painful injections to supposedly help his macular degeneration - Avastin only left him with permanent scarring.. which the scareing from reaction to Avastin ledt my dad blind …. What can we do now?
I'm so sorry to hear this. The first point of call is to contact your dad's ophthalmologist and discuss next steps or potential treatments, they will be the experts on your dad's condition. If you ever need any additional advice or support, you can always talk to our friendly team. Our number is 0300 3030 111 or email us on help@macularsociety.org
I have a wet AMD in my right eye.. though for whatever reason it is not because of my age.. I am 34 now. I had laser surgery twice by now and multiple injections to reduce the swelling (Lucentis). Still have a blurr basically at my focus point of my right eye. The peripheral vision is pretty good. The swelling has reduced dramatically already, but well i am curious if my vision in teh eye will improve eventually again.
Hi waswelich... I watched another ophthalmologist regarding this matter and she mentioned there is an alarming increase in younger persons developing AMD. She said its caused by the increase of saturated and trans fats added to most of the food products we consume. This trend started roughly 30-40 years ago.
@@sjc3426 Makes sense... I mean we are literally eating crap nowadays... and no one really knows what it is doing with us biochemically. We are all basically little more than lab rats when it comes to these things.
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Brilliant explanation, clear and easy to understand for someone new to this condition. Thank you.
Very informative and well presented for lay people such as myself
Thank You for all the Great information.
As one who is being treated for age related macular degeneration (Eyela), I thank you for your excellent presentation.
Me to
Absolutely brilliant, thank you for an explanation clearly understood by the lay person.
Absolutely brilliant precesentation, and you lates update on the new treatments, which seem to be very exciting to yourselves, and more importantly, you patients! Thank you Nigel for your great input. Best regards from Aldo in Bradford, West Yorkshire, a Patient at the Macula Centre, in Bradord 5.
Wonderful video! Thank you.
So clear, brilliant
Gene Therapy for wAMD is under clinical trial and it looks quite promising!. One time treatment for many years!
Ty for this
Thank you, now I know what this is.
Very comprehensive presentation for layman like me
Many thanks to Doctor. I am a one one of a patient. I like to new treatment.
My mum has wet AMD. Doc had given up hope on 1 of her eyes (with 80% damaged). I feel so helpless seeing her struggled.
I'm sorry to hear this. Please know that we are here to support you and your mother. If you would like to speak with someone, please do get in touch with our helpline on help@macularsociety.org
Why is there no other way of delivering the medication without using needles? If not, why not?
Every four months. Four months is a very short period of time.
I'm not an expert on this subject. I just had my first shot yesterday. My doctor told me delivery to the eyeball directly helps reduce any side effects. If given intravenously, some of these drugs can have more side effects because the dosages have to be more significant. With a direct injection into the eye, the dosage is only for the eye - thus less, side effects.
Hi Sarah. We completely understand, having injections is incredibly uncomfortable and not a nice experience. I'm sure you are not the only person to feel this way.
The medication is delivered through injection for a number of reasons, including targeted delivery, This means that an injection allows the medication to be placed in the right place without risk of damaging the macula. Another reason injections are used is that they minimise side effects. There is currently research being carried out on the exploration of other treatment options that are less invasive, however, at this point in time, injections are the most effective way to manage wet AMD.
We are currently funding research into eye drops as an alternative - please see our website for more information: www.macularsociety.org/research/explore/projects/phds/developing-eye-drops-can-reach-back-eye/
My wife developed AMD in her early 70's. She has Von Willebrand Disease. I would like the information you have on this. Thanks! I subscribed.
Expat here ...much appreciate your work with these problems and possible results...i don,t fully understand my problem as i have wet weepy degeneration and dry in my other eye...however my dry mucular is now weeping same as the wet and i start injections in both eyes this week...has the dry turned to wet?? is it good or !!!! Going to replay your most helpful and hopefull presentation i hope to speak to the professor this coming week at akdeniz university hospital Turkiye. again much appreciated Nancy
So yes. It appears that now both of your eyes are now wet macular degeneration.
I don’t understand why my ophthalmologist prescribed Ketorolac and prednisone eyedrops for one month and if that doesn’t work the eye injections. I don’t understand how those drops would make a difference.
This is most clear explanation that I have followed. Thank you so much. Why does the waste products start to collect in the eyes as we age? And why it is not a problem for the young people? Lack of Hydration? Too much cholesterol?
I have dry AMD - one intermediate and one early. Both are relatively stable. Should I still see my doctor every 6 month instead of every year?
One of the main risk factors for developing AMD is age. As we age the retina doesn’t work as well as it used to and one of the ways this shows itself can be the accumulation of waste within the macula, as the cells haven’t been able to clear this away into the bloodstream.
We recommend that you continue taking the advice of your doctor on the right frequency of monitoring for your eyes
@@MacularSociety sunt din Romania am un băiat în vârstă de 25 ani cu probleme de vedere o boală rară cum aș putea să iau legătura cu dv este vreun tratament
I live in southern Africa and am being treated with Avastin. Your presentation has me worried that I am not getting the right treatment. Why is it not a licenced treatment.?
it licensed in the US - i just had a shot yesterday
Thank you .i am having maculardegeneration , myvision is bad having-13 in 55year, can Any supplement present mangler degeneration .I got først time Wien i Washington 50
Thank you for the excellent presentation. This is encouraging as I was recently diagnosed with WMD. Interesting that there is no family history. Is there a genetic relationship?
💥 I have Chronic central serous retinopathy in both eyes, and I'm almost blind. Are these injections very good for this illness too ? 😮
Where are you located? I have very poor vision in my right eye since I was a kid. When testing vision, it’s hand signals. Now I am rapidly losing vision on my left side. I use to be an artist, so vision loss is devastating. I have tried 3-4 medications to help in the last 2 years but my vision is rapidly being lost. I know my specialist is 1 of the best in the state but I don’t have time for him to figure it out. Blind in 1 eye and can’t drive in the other. I just turned 50. I need help!
My dad went through 2 yrs of painful injections to supposedly help his macular degeneration - Avastin only left him with permanent scarring.. which the scareing from reaction to Avastin ledt my dad blind ….
What can we do now?
I'm so sorry to hear this. The first point of call is to contact your dad's ophthalmologist and discuss next steps or potential treatments, they will be the experts on your dad's condition. If you ever need any additional advice or support, you can always talk to our friendly team. Our number is 0300 3030 111 or email us on help@macularsociety.org
@@MacularSociety THANK YOU!
@@MacularSociety Thank you🙏🏽
I am algerian i have this treatment for macula in oeil left nchllh will be available on the internationnl market
Where does one go to get the treatment? My mother in law has the wet and lives in Wyoming.
Hi, you will need to speak with your mother's opthalmologist for further details on treatments local to you.
Where can i find a doctor to do this treatment?
Hi - you will need to speak to your ophthalmologist about your treatment plan and possibility of changing over to a new treatment.
I have a wet AMD in my right eye.. though for whatever reason it is not because of my age.. I am 34 now. I had laser surgery twice by now and multiple injections to reduce the swelling (Lucentis).
Still have a blurr basically at my focus point of my right eye. The peripheral vision is pretty good. The swelling has reduced dramatically already, but well i am curious if my vision in teh eye will improve eventually again.
Hi waswelich... I watched another ophthalmologist regarding this matter and she mentioned there is an alarming increase in younger persons developing AMD. She said its caused by the increase of saturated and trans fats added to most of the food products we consume. This trend started roughly 30-40 years ago.
@@sjc3426 Makes sense... I mean we are literally eating crap nowadays... and no one really knows what it is doing with us biochemically. We are all basically little more than lab rats when it comes to these things.
Seed oils especially are toxic☠️
Hi... Any improvement in your blurry eye
@@MDGA2010 Hey. No not in terms of vision.. but at least it is getting under control swelling wise.