ALK 101 Part 1: I've Just Been Diagnosed With ALK Positive Lung Cancer

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  • Опубликовано: 4 окт 2024
  • ALK 101, a five part series, joins ALKtALK
    (A PDF of each presentation is available at: drive.google.c...)
    Navigating the uncharted waters of a cancer diagnosis can be an overwhelming and daunting task for patients and care partners alike. ALK 101 is a five part series that seeks to provide the information necessary to make you an informed partner in your cancer care. The ALK 101 series was created to serve as a guide to educate and empower patients and care partners through all phases of cancer.
    Part 1: I’ve Just Been Diagnosed with ALK Positive Lung Cancer discusses receiving an ALK Positive diagnosis- what that means and what critical steps are necessary to ensure best possible outcomes.
    Part 2: Assembling and Managing Your Health Care Team will explore the key players required to have a well rounded care team during all phases of your cancer journey.
    Part 3: Cancer Lingo: What Does It All Mean?! will serve as a guide for learning and understanding the terminology necessary to communicate effectively with your health care team and make informed decisions in your care.
    Part 4: I've Progressed, Now What?! will review types of progression and key steps necessary to make informed decisions during this frightening phase of cancer.
    Part 5: Life After Lorlatinib will examine treatment options available after all FDA approved TKI’s are exhausted, where to find these options and what this care might look like.
    Sunday, February 26, 2023 ALKtALK launched Part 1 of the ALK 101 series. View to watch caregiver and ALK Positive, Inc. multi-medical committee member Dr. Ellee Urban as she walks patients and care partners through critical information needed to be an informed and empowered patient. This talk is everything ALK positive patients wished they knew upon diagnosis and everything newly diagnosed patients need to know now. Following the talk there is a Question and Answer session led by ALK Positive, Inc. Director of Research and Clinical Affairs, Dr. Ken Culver and medical committee members Dr. Colin Barton and Jeffrey Sturm.

Комментарии • 12

  • @marysolriv
    @marysolriv 6 месяцев назад

    thank you to our amazing ALK positive advocates for making an easier path for us

  • @vwood751
    @vwood751 Год назад +2

    Great presentation. I learned valuable info after being on first TKI for 2 years. Thank you.

  • @cclehr
    @cclehr Год назад +1

    Thank you for this valuable information! Very grateful to all who put the time into this presentation.

  • @amandaamandar8973
    @amandaamandar8973 Год назад +2

    Wonderful information that was very helpful. Thank you!!

  • @ellepant
    @ellepant Год назад +2

    This was very good information,thank you.

  • @imperfectvegan5724
    @imperfectvegan5724 Год назад

    Thank you to everyone who had a part in putting together this outstanding presentation!

  • @KathleenG-c8q
    @KathleenG-c8q Год назад

    Thank you for this, so so valuable and helpful!

  • @jeanettehofmann1204
    @jeanettehofmann1204 Год назад +1

    Very informative!

  • @ahjohng
    @ahjohng Год назад +1

    In the summer of 2017 at age 55, I was diagnosed with ALK+, stage 4, NSCLC. I went through Alecensa for a year and a half. I should be dead 4 years ago, but a month before my heart stopped due to excess fluid in the cardio window, my oncologist put me on Keytruda. It was a miracle. However, half a year ago, I went back to take Alecensa. The second time around is effective so far in shrinking a few persistent nodes. Unbelievably, the cancer came up 3 times and shank 3 times so far in my life.

    • @rajasaw3251
      @rajasaw3251 Год назад

      My father has been diagnosed with the same.....what is alecensa.....reply plz

    • @ahjohng
      @ahjohng Год назад

      Alecensa is another name for Alectinib.

  • @pskunkle
    @pskunkle 5 месяцев назад

    Sorry, too much time spent on introductions!! Get to the answers….