I do pulmonary rehab twice a week under the supervision of respiratory therapists. When I started 15 months ago I could barely walk 1.2 mph for 6 minutes and ride the recumbent bike for 8 minutes. Now, I am consistently walking 2.8-2.9 mph for 30 totaling 1.4 miles and riding the bike at 17 watts for 30 minutes, 70 rpm. Besides my medication therapy, which includes sub q remodulin, pulmonary rehab is one of the best things to happen to me in this nightmare disease.
I have pulmonary hypertension caused by lung fibrosis exercises is the key to staying well ive been bodybuilding all my life and at 59 years of age im still at it if i miss a couple of weeks training due to being unwell my health plummets but i just get back to it and within a week or two im reasonably fit again
I'm hoping this doctor is saying that monitored exercise that increases over time is strongly suggested cuz that's what I'm going to do try to add years to my life
Same here , they keep coming up with different diagnosis, one says you must have had an infection , other told me probably acid reflux , and I never had had an infection or acid reflux. I am out of breath just sitting sometimes . And all started in one day , before that day I could do whatever I want and push my body without feeling like my heart is about to pop
@@supernova1976 yeah same here . It came out of no where , and the ER said I had a panic attack. I got diagnosed with acid reflux too, my mom said I had that as a baby … but I feel it’s more to it . I saw a pulmonologist and they did a breathing test and mine was abnormal. My thyroid is actually enlarged , and that could be the reason. But I would say check with a cardiologist and a pulmonologist to see if they can help.
@@vionnajones4416 Thanks. I have an appointment with a cardiologist next week for ultrasound , and I am treating my acid with vinegar . Let's see what we find , btw all these symptoms can be so many things, if it isn't th heart , it could be Haital hernia.
It's all BULLSHIT. Get sodium LOW. Potassium HIGH. If you can afford bananas. Eat bananas. If not. Eat potatos. Eat large meals until satisfaction. Eat simple. I Like a lot of white rice. Also don't forget to drink water.
My daughter is 3 yrs old and she has pulmonary hypertension, she is on sildenafil, aldactone,& lasix....she has stopped walking on her own for the past year but, she can stand up and sit down on her own, she can also take a few steps on her own before complaining that her knees hurt. I am looking for simple exercises which we can do on her legs/ knees for her to build some strength in her legs again....anyone out there have suggestions/ help.??🙏🙏
Very informative. I had pleural effusion and finished medication 20010. Only physical lund depression evident today. Offlate i have been having 130/99 could this be the root cause? I have been just trying my own research to understand specifically because i don't have money for a research that specialists will do. Is there a treatment OTC medication for pulmonary hypertension that is taken for few days only.
Pulmonary surfectant is excreted in the alveoli. If the alv collapse, that fluid has to go somewhere otherwise its flooding the non-collapsed alveoli. So moving it to the pleural space might be a coping mechanism.
Hi ! I'm waiting months to see a doctor for pulmonary hypertension ! I'm very worried, but I'm trying to educate myself about the condition. I notice you're on Viagra and another drug which I believe are very effective. I understand that the use of these drugs depends on the underlying condition causing PH ? Can you give me any info about them please ?
@@petermartin9335 hi Peter I waited about 9months to see a consultant at Royal hallamshire hospital at Sheffield, wasn't looking forward to going but everything was fine they couldn't find a reason for me having it so they said it was idiopathic pH they have put me on 25mg sildenafil three times daily and ambrisentan 5mg once a day the only thing I've noticed so far is a blocked nose and swelled lower legs and feet, the consultant I saw phoned me last week said he usually puts the ambrisentan to 10mg a day but he's seeing if the swelling on my feet comes down it has been a lot better in last 2 days, I have to go back to sheffield around Oct and there is mention of yet another oral agent called selexipag so I will find out when I go back hope this was of some help
@@paulagreen4791 Hi Paula ! Just read your reply. Thanks ! I read that Viagra is very effective and I'm glad you're feeling better as a result. I believe I got PH while waiting in a doctor's surgery for an ant flu injection ! Sounds mad ! A young patient coughed near me. I got the flu shortly afterwards followed by months of high temperatures. Now my lungs are bad and I'm suspected of having Pulmonary Hypertension. I need further tests ! I'm reading a lot about it so many thanks for taking the time to reply to me. Stay positive !
@@poonamjadhav7688 Hi ! I was in Cardiac Rehabilitation once, which was a group of patients in a hospital using various gym equipment under the supervision of a cardiac nurse who kept an eye on every patient. If I put too much effort into any exercise she told me to slow down. My take on this is similar. If you don't overdo anything, take a short walk. Rest for a while. Then, that should be ok.
@@tessytess1846 my wife got it 3 months after she gave birth to our youngest daughter and currently waiting for a lung transplant. Shes been thru a lot just walking is really hard for her.
My wife diagnosed with pulmonary arteries hypertension and doctor prescribed her sildenafil 20mg 3 times a day,torsemide 10 mg 1 a day and macitent 10 mg 1 a day. Please does anyone know a specialise doctor in india who treats a pulmonary arteries hypertension or any suggestions please help me out for this
Hi. Kokilaben Hospital in Mumbai has a PH specialized department. Check their site and book any appointment. Registration fees is 100 rs and 1st consultation charges are 1500 rs.
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I do pulmonary rehab twice a week under the supervision of respiratory therapists. When I started 15 months ago I could barely walk 1.2 mph for 6 minutes and ride the recumbent bike for 8 minutes. Now, I am consistently walking 2.8-2.9 mph for 30 totaling 1.4 miles and riding the bike at 17 watts for 30 minutes, 70 rpm. Besides my medication therapy, which includes sub q remodulin, pulmonary rehab is one of the best things to happen to me in this nightmare disease.
I have vascularitis AS OF 1 16 23. Now I'm getting a PH CL CARDIAC CATH RIGHT. MY life has changed without my permission.
I have pulmonary hypertension caused by lung fibrosis exercises is the key to staying well ive been bodybuilding all my life and at 59 years of age im still at it if i miss a couple of weeks training due to being unwell my health plummets but i just get back to it and within a week or two im reasonably fit again
well,ive just found i have it and ive been walking up steep hills last 18months thinking i was doing myself good.anyway,it didnt kill me.
I'm hoping this doctor is saying that monitored exercise that increases over time is strongly suggested cuz that's what I'm going to do try to add years to my life
It’s hard for me to walk around the grocery stores and doctors are acting like I don’t know what I’m talking about
Same here , they keep coming up with different diagnosis, one says you must have had an infection , other told me probably acid reflux , and I never had had an infection or acid reflux. I am out of breath just sitting sometimes . And all started in one day , before that day I could do whatever I want and push my body without feeling like my heart is about to pop
@@supernova1976 yeah same here . It came out of no where , and the ER said I had a panic attack. I got diagnosed with acid reflux too, my mom said I had that as a baby … but I feel it’s more to it . I saw a pulmonologist and they did a breathing test and mine was abnormal. My thyroid is actually enlarged , and that could be the reason. But I would say check with a cardiologist and a pulmonologist to see if they can help.
@@vionnajones4416 Thanks. I have an appointment with a cardiologist next week for ultrasound , and I am treating my acid with vinegar . Let's see what we find , btw all these symptoms can be so many things, if it isn't th heart , it could be Haital hernia.
It's all BULLSHIT. Get sodium LOW. Potassium HIGH. If you can afford bananas. Eat bananas. If not. Eat potatos. Eat large meals until satisfaction. Eat simple. I Like a lot of white rice. Also don't forget to drink water.
radiation poisoning? Just popped into my head. Of course sulfur protects against that.
For ph there is a best hospital in banglore narayana harudyala dr. George cherian available on video consultation
My daughter is 3 yrs old and she has pulmonary hypertension, she is on sildenafil, aldactone,& lasix....she has stopped walking on her own for the past year but, she can stand up and sit down on her own, she can also take a few steps on her own before complaining that her knees hurt.
I am looking for simple exercises which we can do on her legs/ knees for her to build some strength in her legs again....anyone out there have suggestions/ help.??🙏🙏
Very informative. I had pleural effusion and finished medication 20010. Only physical lund depression evident today. Offlate i have been having 130/99 could this be the root cause? I have been just trying my own research to understand specifically because i don't have money for a research that specialists will do. Is there a treatment OTC medication for pulmonary hypertension that is taken for few days only.
Pulmonary surfectant is excreted in the alveoli. If the alv collapse, that fluid has to go somewhere otherwise its flooding the non-collapsed alveoli. So moving it to the pleural space might be a coping mechanism.
I've just been diagnosed with hp ,on viragra ,and ambrisentan
Hi ! I'm waiting months to see a doctor for pulmonary hypertension ! I'm very worried, but I'm trying to educate myself about the condition. I notice you're on Viagra and another drug which I believe are very effective. I understand that the use of these drugs depends on the underlying condition causing PH ? Can you give me any info about them please ?
@@petermartin9335 hi Peter I waited about 9months to see a consultant at Royal hallamshire hospital at Sheffield, wasn't looking forward to going but everything was fine they couldn't find a reason for me having it so they said it was idiopathic pH they have put me on 25mg sildenafil three times daily and ambrisentan 5mg once a day the only thing I've noticed so far is a blocked nose and swelled lower legs and feet, the consultant I saw phoned me last week said he usually puts the ambrisentan to 10mg a day but he's seeing if the swelling on my feet comes down it has been a lot better in last 2 days, I have to go back to sheffield around Oct and there is mention of yet another oral agent called selexipag so I will find out when I go back hope this was of some help
@@petermartin9335 Did you get my reply sorry if u didn't a bit shit with technology
@@paulagreen4791 Hi Paula ! Just read your reply. Thanks ! I read that Viagra is very effective and I'm glad you're feeling better as a result. I believe I got PH while waiting in a doctor's surgery for an ant flu injection ! Sounds mad ! A young patient coughed near me. I got the flu shortly afterwards followed by months of high temperatures. Now my lungs are bad and I'm suspected of having Pulmonary Hypertension. I need further tests ! I'm reading a lot about it so many thanks for taking the time to reply to me. Stay positive !
Hi Paula . I too have ph and I am on sildenafil and ambrisentan. I have been diagnosed 4 yrs ago
Hi Dr. Is it ok to do exercises and walk 20 to 30 min if its mild pulmonary hypertension?
What caused urs, pls I was told.I have the same thing, pls reply
Saleha Tabassum am also diagnosed with mild pulmonary hipertension can uh tell what to ..... Exercise or not
@@poonamjadhav7688 Hi ! I was in Cardiac Rehabilitation once, which was a group of patients in a hospital using various gym equipment under the supervision of a cardiac nurse who kept an eye on every patient. If I put too much effort into any exercise she told me to slow down. My take on this is similar. If you don't overdo anything, take a short walk. Rest for a while. Then, that should be ok.
@@tessytess1846 my wife got it 3 months after she gave birth to our youngest daughter and currently waiting for a lung transplant. Shes been thru a lot just walking is really hard for her.
@@martinaraujo8146 it's well hope she gets better soon🙏🙏
WHY IS THE MEDICATIONS SO EXPENSIVE
I ride a stationary recumbant bike
My wife diagnosed with pulmonary arteries hypertension and doctor prescribed her sildenafil 20mg 3 times a day,torsemide 10 mg 1 a day and macitent 10 mg 1 a day.
Please does anyone know a specialise doctor in india who treats a pulmonary arteries hypertension or any suggestions please help me out for this
Pressure kitna hai unka
@@Sanvi20225 hi sir thnx for the reply 115 pressure hai
Hi. Kokilaben Hospital in Mumbai has a PH specialized department. Check their site and book any appointment. Registration fees is 100 rs and 1st consultation charges are 1500 rs.
Hi Saurabh can u contact me becoz i m taking treatment for my brother
Uasa mulaapudi cardic center ts best hospital pph
Spin, spin, spin. That's a cyclists slogan indicating that you should ride your bike.
Pah patient