Monthly Video Update: January 2025
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- Опубликовано: 7 фев 2025
- sidefxhub.com/...
In this months update, Robb discusses some breakthroughs with the ongoing MP initiative started back in 2024. He also gives further information on the conclusion of three clinical studies by Professor Melcangi & talks about the importance of donating to the research to continue the progress.
sidefxhub.com/...
Great work guys, looking forward to those new melcangi studies.
Thankyou, we are too!
Amazing work friends
Thanks so much :)
Why can't we just find famous people to chip in donations for us @@mortenskov7482
Thank you immensely for the work you are doing. I hope one day soon we will be able to beat this nightmare of a disease.
You are welcome. We are working as hard as we possibly can. Its a huge mountain to climb but we are making real progress. Wishing you all the best for 2025.
Wasn't the PSSD neteork supposed to give about 100k to Melcangi? That's what they blantently said and exposed on their website.
It's just nerve racking that there's no sign of this happening......... How about the PSSD network's fundraising???
If you’re able to get an update on this, we would love to hear about it! I can include it in my next monthly update video.
Email me at:
robb@sidefxhub.com
I think you're confusing PSSD Network with RxIsk. RxIsk has a prize fund of 100k that is reserved for whoever finds a way to treat PSSD, which they were debating donating to Melcangi's research instead. There are issues with this though so it hasn't happened yet at least. And no promises were made that it would.
As far as I know, PSSD Network has never stated they will send 100k in one go to Melcangi either. However, they have sent well above 100k altogether to Melcangi over the past two years, and the receipts are on their website as proof of this.
They are giving the money to Melcangi. There’s proof on their website.
"Proof" on their website? Can you elaborate? There's CLAIMS on their website. Not proof. I think that's a matter for the PFS Foundation to handlle directly with them as patients are paying them for Melcangi (100k +). That's serious matter. The pb is I din'tvtrust the PSSD network in terms of mere maturity and reslonsability. They're kids. We sure will get that one straight.
@ I replied to your first comment already but my comment seems to have disappeared. I'll try responding to this second comment know, hopefully that won't be removed aswell.
I can't post a link on RUclips but you can find receipts as proof of payment here: go to PSSD Network website -> Donate to research -> Donation updates can be found here (press "here") -> Press the underlined dates. So far they have donated 104k euro in total to Melcangi, the latest donation being from 08/10/2024.
PSSD Network consists of adults, not children. PFS Foundation is a completely separate organisation. Get your facts straight and stop spreading misinformation.
Your voice is so annoying no offence 👍