Brilliance in simplicity. Thank you for taking the time to develop the new standard by which patients will get individualised dialysis treatment. Both my dad and his twin carried the gene for PKD and I inherited it. I'm 52 and no dialysis so far so I remain hopeful that I will never progress to that point.
My husband's kidneys were destroyed by Henoch Schonlein Purpura. He went on hemodialysis for 7 month. On a Monday he had surgery for a fistula which did not work the following day. On Friday of the same week the surgeon made a total of 5 more incisions until he installed a bovoine graft under the left arm. Terrible suffeing in dialysis, took much fluid removed, clotting and not being able to put the blood back etc. He then went to peritoneal dialysis. 100% better, normal stats and a much better life at age 81.
Well Done! I found TED talk really interesting because of my co-workers son has to rely on dialysis at a very young age. Any forward progress towards positive solutions to improve quality of health is always welcomed. And should always be championed.
I am also a dialysis-dependant patient and have a graft in my left arm for a fistula. I'll like to share my observation here, whether right or wrong, that I suspect the external plastic tubing that connects the patient to the machine has two major drawbacks that needs to be examined by the researchers : 1. Effect of loss of body heat in the external transition of blood between body and machine and vice versa. 2. The material of the tubing seems to have affinity to protein molecules and therefore the patient always suffer low albumin level inspite of eatinh a healthy balanced diet. May the researchers look also into these two areas.
I'm studying to become a technician so I may be wrong by here is my shot. The effect loss of body heat could be generated by the loss of blood volume maybe? It doesn't occur to me another option. The temperature of the dialystate is usually controlled by the machine, maybe increasing its temperature would get the blood hotter? But you risk the rupture of the red blood cells. I think if really controlled it would work. Then it seems like it's really hard to find a material that can act as a semi permeable membrane and be biocompatible enough. These materials are usually polymers, and depending of the type it can have differents properties, for example some are less reactive, some have bigger surface area. Luckily in California they have the kidney project, in wich they basically digitalized more the dialyzer and are creating a really good artificial kidney, but still, the GFR that it gives its functioning at the level of 15% of kidney function. I hope the information I'm giving is useful to someone.
Thank you to all the researchers and Brilliant Minds coming together to look for help for this situation. I love the guy that gave the speech. Definitely someone who cares.
My son has ESRD and just had a dialysis graft in his right femoral artery (upper leg) which keeps the artery from collapsing. The first fistula catheter he received was in his left upper forearm which developed a clot, so they switched to the femoral artery graft instead. I hope this helps as not too many people know about this procedure. It’s also easier for my son to do self hemodialysis at home since he can use both hands.
I was end stage an had treatment for 2 1/2 years. Then it's been a year I've had the transplant. I got on dialysis the next day I went into the hospital. An I didn't know I had kidney failure.
This guy is a fraud. He doesn't know much. Just done some dodgy research and tried to make a name for himself. If he was on to something or understood what he was doing , rather than show a nice picture then he would be able to explain who was taking on his research and any preliminary results. He is either underselling himself or a con artist.
Good talk, Bad ending (kind of flat). He was describing that they were testing their "optimal structure for blood flow (for dialysis) predictive model". So you think his going to say the results of the experiment... but he then stops talking about it and makes a joke... so you're suppose to conclude "oh it still a test they made with a computer modeling software and the results will come later... interesting..."
can someone please tell me, what was this video about..? please, no harsh comment. i just dont understand.. i am a dialysis patient as well. and im trying to stay positive about my situation..
Hey buddy if you still had questions you can find me on Instagram @chito_grande and DM me or go to my youtube channel. I will be creating videos addressing dialysis and the process. I have been on dialysis for 9 years now, hope you are doing well. See ya....
@Donna Mae Cruz the only thickning of the arteries happens when your phosphorus is too high, then you develop cement like stuff that kills dialysis patients, do to the fact that the machine can not filter this mineral, I have been in dialysis for seven years.
After I watched this, I understand that they developed a new method to help the dialysis patients. They can calculate the parameters for different individual to connect the dialysis machine, which will greatly increase the patency of the AVF.
I don't think this is the best talk. seems rushed but he describes an important issue with long term dialysis however as far as the solution goes I am not sure I understood it. The hypothesis makes sense but what is it? how has it been implemented?
why do people get kidney problem. only coz of 1. high pressure 2. diabetes so we have to find the cause if diabetes n high pressure. why do some get diabetes or high bp n some do not. what must be the cause. if the treatment is found no more kidney problem. is carb really bad for human. would god great such food. n how much carbs are required for the body. can we measure this. coz less sugar which gives power to cell n body can cause hypoglycemia. n more too can cause heart attack. blindness. amputation..kidney etc. can we use stem cell therapy to heal the pancreas. this can revive the dead beta cells??
@@thilakasekaramvarjith4648 I'm a dialysis patient and the artificial kidney still feels like a unattainable dream. It's been pushed back so many times. I've also heard that it's only going to provide up to 30% function of what a actual kidney does.
The last part is a very erroneous presumption! I ate healthy all my life and did no smoking, no drugs and no alcohol and I was reasonably active. Yet, I have had kidney disease for 16 years. And the surprise is that I got kidney disease because of medically prescribed NSAID’s that nobody is talking about!!
simply because the talk is all lies and he is a fraud playing on the patients emotions just to get attention , 1- Dialysis is not 2 hours twice per week as he claims , it is 4 hours 3-4 times per week , so if he tries to reduce the blood flow , do the math , means we have to dialyze the patient 6-7 times for 5 hours each session to compensate for the lower blood flow 2- The major cause of mortality is not at all what he is talking about , it is due to other reasons like heart problems , atherosclerosis , fluid overload , high potassium levels but it has nothing at all to do with what he is claiming 3- The enlargement in the blood vessels is something called aneurysms, mostly due to narrowing of a part of the vein , and there are a lots of advanced methods to identify it early and to treat. We don't reduce the flow , we open up that narrowed part, or we even keep stents to ensure the patency, or even remove that dilated part surgically , and reconnect the blood vessels , in a simple surgical procedure with the patient awake and using a local block anaesthesia, But Never Reduce the flow as he is claiming , this will only accumulate the toxins in the body and that will be fatal.
Brilliance in simplicity. Thank you for taking the time to develop the new standard by which patients will get individualised dialysis treatment. Both my dad and his twin carried the gene for PKD and I inherited it. I'm 52 and no dialysis so far so I remain hopeful that I will never progress to that point.
if your are 52 and the ultrasound showed no large number of cysts on the kidneys , you are less likely to need dialysis
My husband's kidneys were destroyed by Henoch Schonlein Purpura. He went on hemodialysis for 7 month. On a Monday he had surgery for a fistula which did not work the following day. On Friday of the same week the surgeon made a total of 5 more incisions until he installed a bovoine graft under the left arm. Terrible suffeing in dialysis, took much fluid removed, clotting and not being able to put the blood back etc. He then went to peritoneal dialysis. 100% better, normal stats and a much better life at age 81.
Well Done! I found TED talk really interesting because of my co-workers son has to rely on dialysis at a very young age. Any forward progress towards positive solutions to improve quality of health is always welcomed. And should always be championed.
wow, this is great. thank you!
thank you for trying to get this information out they don't focus enough.
I am also a dialysis-dependant patient and have a graft in my left arm for a fistula. I'll like to share my observation here, whether right or wrong, that I suspect the external plastic tubing that connects the patient to the machine has two major drawbacks that needs to be examined by the researchers :
1. Effect of loss of body heat in the external transition of blood between body and machine and vice versa.
2. The material of the tubing seems to have affinity to protein molecules and therefore the patient always suffer low albumin level inspite of eatinh a healthy balanced diet.
May the researchers look also into these two areas.
Saeed Al-Jabri is graft operation is pain full? my 3 festulas fail..doctor said you can operate grafting
I'm studying to become a technician so I may be wrong by here is my shot.
The effect loss of body heat could be generated by the loss of blood volume maybe? It doesn't occur to me another option. The temperature of the dialystate is usually controlled by the machine, maybe increasing its temperature would get the blood hotter? But you risk the rupture of the red blood cells. I think if really controlled it would work.
Then it seems like it's really hard to find a material that can act as a semi permeable membrane and be biocompatible enough. These materials are usually polymers, and depending of the type it can have differents properties, for example some are less reactive, some have bigger surface area.
Luckily in California they have the kidney project, in wich they basically digitalized more the dialyzer and are creating a really good artificial kidney, but still, the GFR that it gives its functioning at the level of 15% of kidney function. I hope the information I'm giving is useful to someone.
Thank you to all the researchers and Brilliant Minds coming together to look for help for this situation. I love the guy that gave the speech. Definitely someone who cares.
Wow, I came here optimistic and leave feeling pretty depressed.
Great Concept. Hope this will come use at grass-root level for millions of patients.
Plenty of avid gym goers with lifelong good diets with failing kidneys . Get Tested folks
This is great! And you did pass the message across beautifully, thank you for sharing.
Appreciate the video man
My son has ESRD and just had a dialysis graft in his right femoral artery (upper leg) which keeps the artery from collapsing. The first fistula catheter he received was in his left upper forearm which developed a clot, so they switched to the femoral artery graft instead. I hope this helps as not too many people know about this procedure. It’s also easier for my son to do self hemodialysis at home since he can use both hands.
Hi! How old is your son? How is he now? Is he still using the dialysis graft in his right femoral artery?
best is to try n revive the damaged kidneys. this way we will need no one to donate the kidney
I was end stage an had treatment for 2 1/2 years. Then it's been a year I've had the transplant. I got on dialysis the next day I went into the hospital. An I didn't know I had kidney failure.
very informative!
This guy is a fraud. He doesn't know much. Just done some dodgy research and tried to make a name for himself. If he was on to something or understood what he was doing , rather than show a nice picture then he would be able to explain who was taking on his research and any preliminary results. He is either underselling himself or a con artist.
Chia seeds it good for pp height phosphorus 7.1?
why dialysis can not remove phosphorus and potassium well?
it would be very helpful if he said the sweet spot pressure in specific number and unit.
nice information bro
nice talk Javid
Does the windkessel (fire-hose) effect play a part in boosting blood flow in a collapsing artery?
I don't think windkessel effect work in cephalic vein.
It works well in the aorta and other vessels which have elasticity
Good talk, Bad ending (kind of flat). He was describing that they were testing their "optimal structure for blood flow (for dialysis) predictive model". So you think his going to say the results of the experiment... but he then stops talking about it and makes a joke... so you're suppose to conclude "oh it still a test they made with a computer modeling software and the results will come later... interesting..."
can someone please tell me, what was this video about..? please, no harsh comment. i just dont understand.. i am a dialysis patient as well. and im trying to stay positive about my situation..
Hey buddy if you still had questions you can find me on Instagram @chito_grande and DM me or go to my youtube channel. I will be creating videos addressing dialysis and the process. I have been on dialysis for 9 years now, hope you are doing well. See ya....
I did not understand it either, and I have been on dialysis for seven years, did not understood his point lol.
@Donna Mae Cruz the only thickning of the arteries happens when your phosphorus is too high, then you develop cement like stuff that kills dialysis patients, do to the fact that the machine can not filter this mineral, I have been in dialysis for seven years.
After I watched this, I understand that they developed a new method to help the dialysis patients. They can calculate the parameters for different individual to connect the dialysis machine, which will greatly increase the patency of the AVF.
Read my recent comment on Femoral Artery Graft instead of the Fistula forearm catheter for hemodialysis.
I don't think this is the best talk. seems rushed but he describes an important issue with long term dialysis however as far as the solution goes I am not sure I understood it. The hypothesis makes sense but what is it? how has it been implemented?
why do people get kidney problem. only coz of
1. high pressure
2. diabetes
so we have to find the cause if diabetes n high pressure.
why do some get diabetes or high bp n some do not. what must be the cause. if the treatment is found no more kidney problem. is carb really bad for human. would god great such food. n how much carbs are required for the body. can we measure this. coz less sugar which gives power to cell n body can cause hypoglycemia. n more too can cause heart attack. blindness. amputation..kidney etc.
can we use stem cell therapy to heal the pancreas. this can revive the dead beta cells??
well done Javid! I enjoyed a lot.
it would have been nice if they could developed an artificial kidney and transplant it to human that way they don't have to wait for kidney donor.
Too much money in dialysis to find something better
the artificial kidney is already on its human trial
@@thilakasekaramvarjith4648 I'm a dialysis patient and the artificial kidney still feels like a unattainable dream. It's been pushed back so many times. I've also heard that it's only going to provide up to 30% function of what a actual kidney does.
@@darcyemorawski4751 This is so true, dialysis patients bring in the big bucks to doctors and pharmaceutical companies.
Why not just start to develop our own artificial kidney? Then we can’t be forced to sell out.
330 million/3 = 26 million?
The last part is a very erroneous presumption! I ate healthy all my life and did no smoking, no drugs and no alcohol and I was reasonably active. Yet, I have had kidney disease for 16 years. And the surprise is that I got kidney disease because of medically prescribed NSAID’s that nobody is talking about!!
Get a gym membership? Why didn't I think of that? Oh right because I was two!
All phram comany is stop any kind of treatment
He’s handsome
9 minutes wasted
Willie Brits ...please explain why ?
simply because the talk is all lies and he is a fraud playing on the patients emotions just to get attention ,
1- Dialysis is not 2 hours twice per week as he claims , it is 4 hours 3-4 times per week , so if he tries to reduce the blood flow , do the math , means we have to dialyze the patient 6-7 times for 5 hours each session to compensate for the lower blood flow
2- The major cause of mortality is not at all what he is talking about , it is due to other reasons like heart problems , atherosclerosis , fluid overload , high potassium levels but it has nothing at all to do with what he is claiming
3- The enlargement in the blood vessels is something called aneurysms, mostly due to narrowing of a part of the vein , and there are a lots of advanced methods to identify it early and to treat.
We don't reduce the flow , we open up that narrowed part, or we even keep stents to ensure the patency, or even remove that dilated part surgically , and reconnect the blood vessels , in a simple surgical procedure with the patient awake and using a local block anaesthesia,
But Never Reduce the flow as he is claiming , this will only accumulate the toxins in the body and that will be fatal.
@@ahmedabdul-rahmansoilman7391
Well said Ahmed.....
Appreciate your analysis...
Peace....
Terry.