Alport Syndrome: What You Need to Know - Anjay Rastogi, MD, PhD | UCLA CORE Kidney Program

[@joao65br]

Hello, I'm from Brazil, I also have this syndrome, in my country there are very few studies on the disease and treatments, I would like to know if there is any type of modern treatment in the USA?

[@andreawindell8508]

thank you so much this was the best explanation I've ever come across for this disease.

[@sobiatariq2317]

very informative and explained in a vwry easy manner..thanku

[@gassanr1]

Got it been transplant now 19 years doing well but yes I’ve got it all hearing loss and eye sight problems as well

[@MahavirBafna01]

I got this problem too
But my hearing loss is improving now from 62% to 53%

[@MahavirBafna01]

Did you wear lens or specs

[@MahavirBafna01]

Sir i am suffering by alport syndrome since childhood
I am 19 now
I had by kidney transplant 1.6 years ago
Is there any medicine available for alports syndrome😢😢

[@katsgood1189]

Thank you

[@HZV1911.]

I have alport i am 41, having 3 biopsy. This is interesting video. My gfr is now 19, can i little bit delay dialysis?

[@jessli369]

@2:06 says things become leaky and unstructured...does that mean things everywhere or just in the kidneys?

[@naglastuden39]

Wherever there is collagen. The inner ear and the retina.

[@harshitatalkad1716]

For more information, please join us for the Virtual UCLA CORE Kidney Health Conference on March 21st, 2021 from 11am-12pm PST! This event is free, virtual, global, and open to the public.
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[@sivasankarnallapati]

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