people living with ACC

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  • Опубликовано: 6 сен 2024
  • This video is for kids and others to see they are not alone with ACC and I wan to spread awareness

Комментарии • 68

  • @queenvsblog
    @queenvsblog 5 лет назад +24

    This may sound crazy to some but my 4 month old has ACC and I promise he says Mom! Others didn’t believe me until they witness him saying it... we work with him every day. Talking to him, reading and playing with him! So far the Dr. say he’s on track for his age. This video was great to watch, thank you

    • @nandyp2639
      @nandyp2639 4 года назад +1

      I believe you, congratulation ^_^

    • @castmaster84
      @castmaster84 3 года назад

      What about when it comes to motor function milestones. My daughter has ACC

  • @Zolwena
    @Zolwena 5 лет назад +9

    Such a wonderous video of people who are LIVING with disorders of the corpus callosum! I wish there had been more information back in the day when our beloved daughter was born with C-ACC. God bless all the individuals and familes who shared their stories here. You will be helping those who come behind you, down this road in life!

  • @notatallimsorry2356
    @notatallimsorry2356 3 года назад +4

    In China the doctor let me abortion because the kid in my womb has ACC. But I believe God’s power can make the baby develop well in his will rather than doctor’s will. Now I pregnant 26 months. This video is really helpful!

  • @TheBoydCrew
    @TheBoydCrew 6 лет назад +5

    I have a 9 year old son and a 4 year old daughter with acc. This video is very helpful. I no longer feel alone in this. There are such little research and support groups for acc.

  • @shannongodsey7074
    @shannongodsey7074 6 лет назад +7

    My son has CACC, he's 3 1/2 and is a genius!! Love this video....Thank you so much...

  • @aleksanderjamio2231
    @aleksanderjamio2231 7 лет назад +5

    My son living whit ACC. He is six mount years. And very smile boy. Thans that video i need that!!!

    • @celestesalak2091
      @celestesalak2091  7 лет назад

      aivokurkiaisen puutos ACC your so very welcome glad I could help!

  • @micksmom2293
    @micksmom2293 5 лет назад +4

    My son has complete ACC. His biggest obstacle is social skills. He does better with kids who are a couple of years younger than he. He doesn't always understand subtle jokes and is a bit gullible. He struggles academically but he is fun and full of life.

  • @michaelortega25
    @michaelortega25 3 года назад +2

    Thank you for the video. It would be better without the background music though, it would make it easier to understand the nuances of speech. All the best!

  • @xthe_moonx
    @xthe_moonx 5 лет назад +2

    that little girl at the end is adorable.

  • @angelicataylor4875
    @angelicataylor4875 5 лет назад +1

    Neurology doc just told me that during my 5mnt gold's eeg testing for seizure's that the left side of his brain didn't respond like it was supposed to so now he has to get an mri done. Although this makes so much sense with him and with myself I am deeply sad. This condition can be hereditary.

  • @hannahmcglinn2567
    @hannahmcglinn2567 5 лет назад +4

    Thanks for making this video Celeste, I’m studying Neurophysiology at the moment and it was so interesting for me to see and understand how much of a normal life one can live with ACC. I hope you are enjoying your job and best of luck in life. Hannah 😊

  • @JonathanHernandez-mm3nd
    @JonathanHernandez-mm3nd Год назад +1

    May god be with those with ACC.

  • @aaaraaaraaar
    @aaaraaaraaar 4 года назад +1

    Thank you so much for that very interesting video!!!

  • @angelicataylor4875
    @angelicataylor4875 5 лет назад +6

    This video😭😭😭 my god! Everything these sweet people are talking about...sounds just like me...32 f'n year's of not knowing Wth is wrong with me I'm just now barely getting any answer's. I'm angry and...and...uhg!😭

    • @Amy-ms6wj
      @Amy-ms6wj 5 лет назад

      I'm so sorry it took so long for you...but also glad you're getting the answers you've wanted and needed for so long. I hope life is going well for you.

    • @igor-yp1xv
      @igor-yp1xv 3 года назад

      Hope it has improved your life and you're doing better!

  • @user-xl9wn1hb2x
    @user-xl9wn1hb2x 5 лет назад +1

    God bless you all!

  • @ameursebaa1069
    @ameursebaa1069 5 лет назад +6

    بدي ترجمة بلييييز

  • @austinerolle5184
    @austinerolle5184 4 года назад +2

    Hi my son is developmental delay his corpus callosum is thin so they are about to remove it my question is he is non verbal do you think it will restore his speech

    • @vandipettai
      @vandipettai 3 года назад

      Hi my baby also same problem

    • @Mythreads
      @Mythreads 3 года назад

      Hi, did you son started speaking? What’s the update . Because my daughter condition also same

  • @daslolo
    @daslolo 6 лет назад

    So lovely

  • @gesa1139
    @gesa1139 7 лет назад

    beautiful.

  • @zubiyafiroz2228
    @zubiyafiroz2228 6 лет назад +1

    my baby is also acc he is of 2yrs but can't sit talk nothing plz help me

  • @sra7rah720
    @sra7rah720 2 года назад

    I have a bebe 9 months year she has the same probleme is there some association wiche help peoples

  • @Orsolm
    @Orsolm 7 лет назад +6

    I have ACC and I'm smart and I've never gotten a siezure

    • @celestesalak2091
      @celestesalak2091  7 лет назад +1

      TheGaming King45 some don't have seizures that have ACC I do though

    • @fahd2030
      @fahd2030 7 лет назад

      How old are you , how do you feel with CACC my boy just born with CACC -I need your advices

    • @celestesalak2091
      @celestesalak2091  7 лет назад

      FAHD M email me at accthebridgeisout@gmail.com

    • @zulfiyequliyeva1938
      @zulfiyequliyeva1938 Год назад

      how old are you? I have a daughter with acc. please answer . how did you heal

  • @sihamsoso6604
    @sihamsoso6604 3 года назад

    My son is 5 months old. He was born with Acc. Will he live a normal life or are there difficulties that he will face ... Please reply

  • @tototorobrick3783
    @tototorobrick3783 4 года назад +3

    Legit just found out I was pregnant and the doctor is detecting a lack of a Corpus Collosum in my baby's brain.

    • @WhitebeltDG
      @WhitebeltDG 3 года назад

      Just found today . How did it turn out for you?

    • @tototorobrick3783
      @tototorobrick3783 3 года назад

      @@WhitebeltDG It went really well! Baby met all his milestones ON TIME! He is doing phenomenal! He is SO special!

    • @WhitebeltDG
      @WhitebeltDG 3 года назад +1

      @@tototorobrick3783 that amazing so happy for you and your family

    • @mariselaosorio9362
      @mariselaosorio9362 3 года назад

      This is so reassuring. I just found out my baby girl (who I’m still pregnant with) has ACC and I’m just looking into it to see what we may have to deal with

    • @WhitebeltDG
      @WhitebeltDG 3 года назад +1

      @@mariselaosorio9362 yes same with my baby, we did a genetics test as well hoping to not find another complications very scary time. Stay positive

  • @EpicPoptart854
    @EpicPoptart854 7 лет назад

    what's the music?

    • @celestesalak2091
      @celestesalak2091  7 лет назад

      Handsome Boy I made this a few years ago I'd have to look on the computer I made this off of I can let you know soon

    • @EpicPoptart854
      @EpicPoptart854 7 лет назад

      thank you!

    • @DEATHCHICKEN1337
      @DEATHCHICKEN1337 5 лет назад

      Sleep away by Bob Acri.

  • @lakshmijagadish2592
    @lakshmijagadish2592 6 лет назад +1

    Hi my son has acc...Now he i s 13 years old...His iq is 64.... Repeated classes now he is in 6th Std.... Which school is better normal or special? Please reply me

    • @jadac4761
      @jadac4761 6 лет назад +1

      Lakshmi Jagadhish Special classes/ school would be very beneficial for him my son has it as well

    • @TheAccidendalEngineer
      @TheAccidendalEngineer 3 года назад

      Namaste Mam ...My son is 2 month old it has ACC. Pls mujhe bataye aapka baby kaisa behavior karta hai...wo apna routine work to krlega ?...aap kaha treatment karvaye the. Pls any information share chouhanlakhan09@gmail.com .....thanks

  • @cocolisa
    @cocolisa 7 лет назад

    I have a son with acc make a normal life?

    • @celestesalak2091
      @celestesalak2091  7 лет назад

      Naty Rendon I am 19 and have a full time job, feel free to ask me any questions on my email accthebridgeisout@gmail.com

    • @fahd2030
      @fahd2030 7 лет назад

      How is your son and how old is he? I have CACC just born

    • @gourisankarsuin6001
      @gourisankarsuin6001 6 лет назад

      I have a girl of 3 years with acc

    • @novemberthe18
      @novemberthe18 5 лет назад

      @@celestesalak2091 is that the fort worth water garden?

  • @lakshmilakshmi-bn8bp
    @lakshmilakshmi-bn8bp 7 лет назад

    mam till what age can acc affect ?

    • @celestesalak2091
      @celestesalak2091  7 лет назад +1

      lakshmi lakshmi any age it really depends, if you want email me at accthebridgeisout@gmail.com I can answer any questions there and we can talk I'm happy too

    • @lakshmijagadish2592
      @lakshmijagadish2592 6 лет назад

      Hi can I have your number please...My son has acc

    • @lakshmijagadish2592
      @lakshmijagadish2592 6 лет назад

      Celeste Salak can i send my son to regular school?

    • @nicolefitzsimmons2726
      @nicolefitzsimmons2726 5 лет назад

      Lakshmi Jagadhish absolutely! Just make sure that you have an aide to check in with him at least daily or weekly.

    • @joshp9248
      @joshp9248 4 года назад

      @@celestesalak2091 can I send you an email?

  • @freddiewickens1073
    @freddiewickens1073 5 лет назад

    i am living with acc

    • @Amy-ms6wj
      @Amy-ms6wj 5 лет назад

      @Matthew Farrell how is life going for you? How do you feel? What would you want people to know about you?

    • @OTOPORTMUSTAFABADEM
      @OTOPORTMUSTAFABADEM 2 года назад

      Nasıl bir hayat yaşıyorsunuz oğlumda da var ve geleceğini öerak ediyorum