The KEY To Recovering From CFS | CHRONIC FATIGUE SYNDROME
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- Опубликовано: 13 сен 2024
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PDF RESOURCES
RECOVERY FREEDOM FRAMEWORK - WHAT AN IDEAL DAY OF RECOVERING LOOKS LIKE ⬇️
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BRAIN RETRAINING GUIDE FOR CHRONIC PAIN ⬇️
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Changing your thinking from micro to macro will be helpful. In other words, instead of focusing on day-to-day and week-to-week progress, start looking at things from a month-to-month perspective, and that will ultimately make a difference in your life. This doesn't mean you should ignore the smaller things, but by framing them in terms of the larger goal, you may find them to be more manageable.
By focusing on the big picture, you can begin to see that there is much more to life than your current situation. it's time to shift your thinking from micro (the small moments of pain) to macro (your big picture).
You Are Just One Mindshift Away From Living Life Without Chronic Pain and Fatigue
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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You are so awesome, thank you for all of your videos. I watch them frequently and I am seeing massive shits in my mindset and health.
Thank you so much! 😊❤️
he is changing lives! I know, as it changed mine! Healthy or not everyone needs these LEARNINGS!!
Amazing 🙌
Thank you so much, that is exactly what I needed to hear today. I think it is so important to watch these videos AGAIN and AGAIN. Recovery is a journey and you learn along the way, even if you think you know everything that you need to recover, you constantly have to adjust, shift focus and just stay on track and tell yourself that you actually ARE on track. Thank you so much for all the work, it is to helpful and I am really grateful!
You'll get there! Take it a bit slower. Cheering for you!
This makes so much sense.. i have been onnthe roller coaster so long it finally makes sense. Thank you
Glad it helped! 🙌
You have helped me so much. Best talks on ME I have listened to. Very honest and realistic. Great encouragement
I'm really glad to hear that I could help you, and I appreciate your kind words! 😊🙌 If you ever have more questions or need further support, feel free to reach out.
Thank you so much, Miguel. I have been watching your videos for the last 5-6 days. You make it so simple for us to understand, I am able to relate with it. Learning a lot from you and will keep learning till I recover fully.
Wow! We appreciate this amazing feedback 😊❤️
OMG, I so needed to hear this today. Also, coincidently I'm almost exactly at 3 weeks in Recovery Academy. I think I just realized that I'm actually making progress.
Awesome!
Knowledge is power but knowledge about yourself is self empowerment.
Miguel is right , now is the time to take and get to really know ourselves.
Absolutely Ljon!
Awesome video brother I have to download it to watch again and again when I feel low 🙏🙏🙏
🙌 Cheers brother
Fantastic video 👍🏼👍🏼 thank you Miguel
Many thanks!
This explanation made the logic of the recovery process even clearer to me. Thanks Miguel.
You're welcome!
Very helpful, I am saving this video to re-watch.
Thanks Miguel for this zoomed-out progress roadmap. I've watched some of your videos so far and they totally make sense and are very vivid and convincing. They're of great value.
This specific was a fresh breeze for me today finding myself in an adjustment period right now. What I'm unsure about sometimes is how much I can do in an adjustment period..on the one hand I don't want to limit myself out of fear on the other hand if I push in the adjustment period it consists longer and can buildup into a full crash..That happened two times after longer periods of slow and steady progress..
In my experience the cognitive brain-retraining (in response to the symptoms) is crucial to stay calm and relaxed during adjustment but it doesn't substitute the feeling for my body - the being in tune with how much I'm capable at the moment (baseline work/graded exposure...whatever you wanna call it)
I feel like both approaches has to go hand in hand 🙂
Thanks again for the great work you're doing and giving to us for free❤🙏
You're most welcome.
Both aspects are important as brain retraining helps make the adjustment period + flare ups smoother and easier.
@@cfsrecovery Thanks Miguel for you answer. Nice to have a feedback from someone like you.🙏
awesome content! Also it makes perfect sense for me. I have a question: Why isn't this the treatment we are all recieving? Why are we being told that we have this for the rest of our lives? Thanks and keep up the great work
Could you be a little more specific? Being told by who? If you mean by doctors, I've come to believe that most of them just don't know what the heck is going on because there's so many issues to "fix". I recently made a video about this actually, here it is - ruclips.net/video/1e0dwjlDfRw/видео.html
@@cfsrecovery yeah, exactly by the doctors. If theres a way to recovery which i believe there is, then why isn't it an official treatment. Instead doctors tell us we have to live with it.
Thank you so much Miquel! ☺️🙏
You're welcome Janna!
beautifully conveyed !
Thanks Sonu!
Great content. Question: how do you know the difference between an adjustment period and a crash? There were times I tought i just had to push trough because it was an adjustment period but i was doing too much and creating a crash. Thank you in advance!
Great question, I dive deep into this in Recovery Jumpstart as it's not that simple. There's a lot of factors included - time, intensity, quantity of symptoms, etc. Never push through!
Beautiful insight 💥 Ty
Glad you enjoyed it!
Off topic, but your barber is killing it. So clean!
Haha thank you! I try to get a clean fade before filming these videos 🔥
This is great, thank you
You're very welcome!
So true, thankyou so much 😢
You're welcome Jill
This is amazing!!! Thank you Miguel!!! You are a leader in the field and we are lucky to have you helping people with CFS 🙃I am having a hard time getting a diagnosis, does the diagnosis matter? I think I’d feel more validated if I had it, then I can “recover” from it. Any thoughts on this ? I was bedridden for months after my shingles vaccine but had symptoms before that for 30 years (never bad enough to treat just tired lall the time}😞 would love to get your thoughts on this. During my adjustment period I binge on your videos and they are so helpful ❤❤❤
My blood test are “normal”😊
For those 30 years I spent lots of time in bed but thought I was just a super low energy person 😞
Thank you again!!😊😊😊
Thank you so much for your kind words Stacey! I'm glad you find my videos helpful during your adjustment period. Regarding the diagnosis, while it can provide validation and a sense of understanding, it's not the most important factor in your recovery journey. What matters most is focusing on your symptoms, understanding your body's needs, and implementing strategies for improvement. Even without an official diagnosis, you can still work towards healing and finding ways to manage your symptoms. Keep educating yourself, listening to your body, and exploring different approaches. You're on the right track!
@@cfsrecovery thank you!! Keep up the amazing work!! There is no one else like you! 😃
So so helpful!!!!!
Glad you found it helpful!
I’m interested in what you have learned from the 1st group of participants that you didn’t know before.
I think the biggest thing is how people can experience completely different kinds and levels of symptoms. Some people can have really bad brain fog and burning sensations while someone else can have severe physical fatigue but be able to read a book and think clear as day. And both require a very similar approach when trying to make progress
I can’t wait to play drums for a long amount of time, like I used too, I still have that fear that I can’t play for a certain amount of time,
Fear will keep you stuck, you need to get out of that fear mentality in order to heal. With ongoing fear and anxiety, full recovery is impossible.
@@cfsrecovery Hi, been watching your videos. Any video i missed on how you reworked your fear and anxiety? Those panic attacks earlier on left their mark, working on neutralizing those memories of having them to aide in recovery.
Me to in playing guitar and gigging again
I wear an Oura ring and my overall health corresponds really well with HRV. I´m 6 months into this, and my monthly average values dropped from 55 to 40. But since then is oscilating 40-44-40-44... and I when I finally see some progress, comes some infection/crash and then it takes weeks to go back. I would be satisfied if I could see at least a minor monthly progress...
Make a video how to recovery from visual snow? Syndrome
Please
Here's one video I made about this topic: ruclips.net/video/SA2xAzI_E3U/видео.htmlsi=qmPPWu-eE8ddqMvr
You can also check some other of my free videos. I hope this helps. 😊
So helpful 😊
Glad you think so!
Glad you think so!
Thank you for the many informative videos!
I have another question if you don’t mind….
Like it was for you, insomnia is one of my main problems.
Every adjustment period, I almost completely lose my sleep. (I’m the girl who can’t take medication for it. And my sleep hygiene is already at that good level of not too perfect 🙃. )
I can mentally deal with having higher symptoms, but not sleeping easily puts my body in a downward spiral.
This seems to me to be the main reason why I can’t climb up much on the macro level (4years working at it in the brain retraining way).
So… is this as much a hindrance for recovery as I suspect? Or is it an acceptable part of an adjustment period? I try to view it as acceptable when it’s happening, it’s the sensible thing to do. But well, there are still realities at play, whatever I tell myself…
It's an acceptable part of an adjustment period, especially if you can't use medication. I would try using an accupressure mat before bed as well as take a cool shower before bed. Also get one of those eye masks that heats up and has a built in massager. Those 3 will help you with sleep during adjustment periods
Love that!!! Does that also Work/count for Lyme??my CFS and Symptoms are from lyme but i cant pay and handle Treatment s .my Hope and chance is brain retraining
It could work, I've seen many stories where people can heal from something like Lymes. Raelen and Phil (chronic comeback) have a lot of success stories on her channel of people who recovered from Lymes!
@@cfsrecovery That gives Hope!! Thank youuu!!!! Also for your great Work!!! Greetings from Germany 💫⭐🙌
Can you go thru long covid 2 times?when you get Well?
So how often would you recommend increasing activity? Like, for example I've visited friends for about 3 hours (30 mins driving, 2 hours visiting, 30 mins driving back) on Saturday. Saturday evening i started getting some symptoms, now it's monday and they are still here albeit diminishing, so probably tomorrow I will have gone through the adjustment period and be symptom free again. Do I immediately try again or give myself some days or even weeks extra before visiting friends again?
Please check this playlist. I hope this helps!
ruclips.net/video/I6HE8WtI2Z4/видео.html&pp=iAQB
@@cfsrecovery Thanks, I'll check it out!
Thanks for the clear explanation! When I am experiencing a dip, I find it hard to notice if my current dip is less deep than the previous dips or deeper. Therefore I cannot see if I, on macro level, am going on a climb upwards or if I am on a rather horizontal road. I do write my symptoms and activities in my diary on a daily basis, but still I cannot see if I make progress or if I stay on the same level. During my last dip I had more symptoms and they lasted longer than during the previous dips whereas I hadnt done noticeable more activities and hadn't had more stress either. Do you have any advice about this?
Yes, I have the same experience - for over a year I stay more or less the same, with long 'dip phases' and a few high phases. But all in all I can't see a trend.
We dive into this in Recovery Jumpstart - tell tale signs that you're getting better. I'd say look at amount and intensity of activities you're able to do this month vs. 2 or 3 months ago. If you're able to do more but your symptoms are still the same, you're getting better.
This goes back to the spiral staircase analogy in my video "The science behind my recovery". One of the first videos on this channel. Make sure to watch this. I also break that concept down in the recovery science blueprint!
My downsides are worse and longer each time. What should I do
Please check this link. I hope it helps! ruclips.net/video/zYiuEwwyCHQ/видео.htmlsi=HnOtqHr9Kmp2VcXa
How long can a health crash take? Is iz normal to last for weeks? I have my first one due to Long Covid. I have been bedbound for 6 says since increasing physical activity a bit
My personal opinion is: don't push yourself during a crash phase, if you try to get back to how much you did before the crash, while you're still in it, it'll probably cause another worse crash.
It's better to rest during a crash and then afterwards guage where you're at energy wise. Then slowly, slowly start to do a little, see if it causes any problems. Then if not, maybe the next week or so, add another tiny step.
Most importantly listen to your body, it's energy levels. At some points it's about just avoiding crashes in the boom/ bust cycle. Once you're out of that then building up is possible.
That's just what's helped in my own experience, you may be different. I'm not a medical professional, just a person with ME/ CFS.
Hi Sailor Moon (lol), a crash can take several weeks to several months. You'd have to figure out if it's a adjustment period or a crash, those two can feel the same but play a very different role in recovery.
Looks like the bitcoin all-time chart.... “He sold???!!!! Pummmmmp eeeeiiiiit!”
Definitely! And I can make a whole different video on how recovery can be like stock market charts. You can predict where you're at and where you're going based on trends (lifestyle, stress levels, etc.). You can be on a down trend or up trend, you can predict when you will get better or worse based on what actions are being taken.