♡ I'm Iron Deficient Again! + Blossom Festival (16th-19th.09.19) | Amy's Life ♡
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- Опубликовано: 14 авг 2024
- ♡ I'm Iron Deficient Again! + Blossom Festival (16th-19th.09.19) ♡
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The implant stopped my periods completely. Fingers crossed it works well for you (also have POTS/Dysautonomia, hypermobility and gastrointestinal dysmotility)
Same! I had mine done in the hopes it would ease mine from awfully heavy to lighter... They stopped within 2 months, and have never returned, though it was due out (last) December..... I think my periods may have gone into hiding though 😂 slightly concerned, doctor knows and doesn’t care.. not a problem, what gay what’s her period anyway.. 😂👏🏼💯
I’m finally on the medical journey I need to be, with incredible thanks to you Amy. ❤️
I’ve been waiting 3 weeks for this mornings appointment at the docs.... for nearly 4 years, including the last visit a month ago it’s only ever been anxiety or my conversion disorder, or more recently even though I took it years ago, juice+ causing my gastric symptoms...
But with us sharing so many matching symptoms and history (from what I tell from your videos), and with the information you share, both medical and personal, you’ve helped me make my doctor listen and more importantly learn! As she couldn’t tell me what EDS was... and from there I knew I could be in trouble.
As of today, I’m no longer a hypochondriac as my notes used to say for querying EDS, PoTs, Malabsorbtion, ect... , I now have PoTs, she finally saw me have a gastric event, and even drew an immediate blood test there and then as she now fears she’s let me become so deeply malnourished and has missed something important.. Gotd’darn this extra polar bear hair! 😂 so fuzzy. 🍑😂
Anyway, thank you again, so, so damn much! You may honestly be the only key to help unlock these doors for me, as since 2016 my doctor has only ever managed to prescribe me the wrong things, watch me lose 7 stone, and have me begging for scope tests! However 3 weeks from now my blood results should come in with even more answers.
You’re an incredible light for those in dimmer feeling places! I hope you know how amazing you are, and I hope your recovery only goes upwards from here!
Ps, Sainsbury’s still don’t have Ribena Winter Spice yet! HOW LONG ARE THEY GOING TO MAKE US WAIT 😩😭😂❤️
Amy, every day with you and your vlog is much better ❤️ have a nice day everyone! 🦄
Oh no! So sorry to hear you've been having a bad pots day and possibly very iron deficient, too bad you had a really rough night! I looove your jacket! I'm so glad you got to go to the festival with all your friends and had a lot of fun, you deserve it, glad you could make it! I love your necklace! ❤❤💓💖😊😊😊😊
Hi love. I just was diagnosed with MCAS, and I’m seeing a cardiologist for what could be POTS From issues I have had.
I’ve never been screened for EDS, but I don’t believe I would have it, my joints doing pop out. Just wanted you to know you inspire me. I’m glad the RUclips gods led me to your channel. It was really an emotional moment to find out MCAS was what so many of my issues have been. I’ve been treating about 2 weeks now. Anywho, thinking of you and sending you love.
You looked so happy with your friends at the festival I’m so glad you’re feeling well!
I love watching your videos :) you are an inspiration, even seeing you feeling so crappy then going out and having fun with your friends, I don’t even have any medical condition and my butt would’ve been parked at home until I was better. But that being said I’m sure you’re used to having to power through some things so you can do the things you want and that shows how strong and determined you are to not let your condition define you and I love that 💕
😭😭😭 cant believe ur gone Amy
it makes me so happy to see you laughing and having fun with your friends....could watch it over and over again...glad you had such a great day
Amy, if you’re not planning on having a baby right now then why don’t you just skip your period each month to help with your iron? I had to do this and it’s been amazing. I stopped needing infusions bc I wasn’t losing so much blood every month anymore! I use a NuvaRing worn continuously....which means I put one in on a Sunday and then 3 weeks later, instead of taking the ring out for a week to cycle, I just replace it with a new one! So no periods! I’ve been doing this for 7yrs now and I haven’t needed an iron infusion in 6! I used to need an iron infusion every 3-4 months before that. And what’s nice about the NuvaRing is that you don’t get side effects bc you’re not ingesting a pill. Also, as long as it’s in your vagina then it works, it doesn’t need to be places exactly correct for it to work. It could be sticking halfway out and it will still work lol. I know this bc I have pelvic floor issues and the ring doesn’t stay in the intended spot for long. But it doesn’t matter! And you cannot feel it, even if it’s in “wrong”. I asked my gynecologist specialist about it being in the way during sex bc it’s not up all the way and open all the way and she said you can take it out for sex and as long as you put it back in right away then you’re still protected against pregnancy and breakthrough bleeding! Another great thing is that you’re not committed to it. If you don’t like it then you stop. It’s not like you need it removed by a doctor or if you get the depo shot and you don’t like it then you’re stuck with the side effects for 3 months. It’s truly been amazing. I really hope you see this and I hope you give it a try and I hope it works and I hope you love it as much as I do! ❤️❤️❤️❤️❤️
Oh I wanted to add that I had the nexplanon implant in my arm and my body started to reject it after 4 months and I had to have it removed. It sucked coming out bc scar tissue was already formed all around it. And now I have a weird scar there. I have also tried the mirena and that was the most insane thing I ever did. It was awful.
Oh and I have POTS too, endometriosis, gastrointestinal problems, Transverse Myelitis, pelvic floor problems, and probably 10 other things I forgot hahaha 🤣
Is having a baby possible with all the diagnoses?? If possible it would be a great strain both pre & postpartum. Just curious....
I had my first NG tube and it only lasted like 4 minutes because I would throw up everything they put in the tube so I had an NJ tube placed and it was better but I was very very nauseous. Girl you are a super hero, I don’t know how you tolerated the tube for so long. They are HELL, hat off to you. You are incredibly strong!❤️
So happy to see a new upload! Love
Your videos, sending love and peace ☮️
Thanks for sharing your life with us. Love your attitude, your humor, your medical knowledge, and your observations.
ive done the implant. im 50/50 happy about it. The first half year I was spotting almost everyday. then it stopped for like 2 months. Afterwards i got my period again, and continued spotting for like 1-2 months again. Now im 3 weeks clean. most of the time ive been spotting instead of having heavy periods, so thats a good thing! Hope it goes better for you! and good luck !😊
Omg you’re singin my song ~ sleep all day & insomnia all night. Also a chronic illness warrior👊
I got excited for a second!!! I’m hoping Tom will put a ring on you soon!! It seems he is so right 4 U!!! I’m so sorry it’s rough right now-u got this Amy!!!...but...building a house together!! SO exciting!!!!
Had such a good day ❤️ thank you for pushing through even though you weren’t feeling well
The Painted Zebra (EDS Awareness) Of course, it was so so worth it!!🙏🏼❤️❤️
Hope you are feeling better. I also am anemic and had my infusion this past Thursday. Same issue with heavy bleeding so I completely understand. I'm not doing the Mirena route since it will exacerbate my IIH so I chose the copper IUD. Enjoying your videos.
as always, feel better soon! xo
It was so cool seeing the blossom festival as saw it on Rachel's blog too. I love the fact you have really great friends that understand EDS challenges. Love U 😘
I'm sorry to hear you didn't get any sleep at all- I know how horrible that can make you feel the next day. You mentioned your iron may be load and you might be anemic again which to me would explain why you get so cold sometimes when others are comfortable. By the way, I really like your tiger sweatshirt!!! It's super cute!!! I have been wondering, how many doctors appointments do you have per week on average? It seems like you are constantly having to go to one or more doctors in each vlog or that you at least speak of upcoming appointments. The blossom festival looked fun and those blooms were simply gorgeous!!! Glad you had fun!!
Had such a good day with you all xx 💙💙 It was so worth all the pain and Sleepyness afterwards
gothfaerie agreed 🙏🏼❤️
I feel you with being sick girl, I just got out of hospital today - was in there for 15 days. It was horrible, hope you get well soon x
Still praying for your health and hopefully things will get better
I don't have ehlers danlos but I had horrible periods and the mirena was a god send! It did get knocked out of place somehow and I had to have it removed but it really was amazing for the 3 years I had it.
Keep doing your best, you are a warrior of life!
Your makeup looks so nice!
The Mirena has been amazing since I had it placed (after having my daughter)! There is a smaller IUD (Skyla) for women who haven’t had children! My periods completely stopped on both! I don’t know if it available where you are but definitely mention it to your gynecologist! Love you, girl!
Meagan Murray IUDs are not good options for EDS patients because of our connective tissue issues. But I’m sure it’s a great option for non- EDS patients! 😊. I’m glad it worked well for you!
I have the implant and it works pretty well for me
I hope they get your iron levels up soon and you feel more like yourself. 💕
Looks like so much fun!! And happy late birthday!! :)
I have the implant and now i only get periods 4 times a year. They do last 2 weeks but are a lot lighter now.
Thank you for your vlogs, I look forward to them 💜 xx
The Implanon made my periods entirely stop and I'm on my second one. I have pEDS, and they had to use like 4 syringes of local anaesthetic instead of 1-2 but that's it. Healed well too, because it was small.
Lol @ your “All American” shirt. Girl you don’t wanna be American 😂 I freaking love you & videos! Ps I’m a spoonie too🖤
After a few months, the implant took away my period (I would get a 3-4 day light period every 3 months or so) and I used to have them be horrible/heavy 7+day. At first, I did have more migraines and a bit more dizziness(NCS), so definitely be aware of that. My sister had the mirena for a very short period of time, but had it removed. She has NCS/Dys and has seizures frequently and mirena made it even worse.
Hope all is well! Love your videos so much! ♥️
My dads going to Perth (from Brisbane) at the beginning of October which happens to still be on my school holidays. I’ve been trying to convince him to tag me along but sadly I couldn’t😭. Love you Amy and hope you’re feeling better soon.
I hope the implant works for you! I got mine (nexplanon) after my second was born last year. He was born 9/15, I got the implant on 10/31, had my only postpartum cycle mid Nov and nearly a year later that is the only cycle I've had! Ive only had 2 breif episodes of spotting and that was stress related.
Some reason your video showed up a little bit late for me but I absolutely love that camo jacket you had on
Do you think the beta blockers could be causing fatigue?
Hey amy what about the nuva ring. Can you try that. Not sure if tget have it there. But it just sit inside you area for 2 weeks and it slows your period and it is ment to target the area specify. I am on it for endo as all hormones dont agree with me. I have stage 4 endometriosis as well as a connective tissue disease. Just thought I would let you know.
I just got my nexplanon implant removed today because i had extremely bad side effects so please be careful
Ash Millette I also had a terrible experience... had AVNRT episodes in hospital every other day until I had it removed.
Mindhunter fan here 🙋❤
Hi Amy. I watch your vlogs everyday. You are such an inspiration. I love your feed bag. Does it hold 2 -1000ml bags?? One is feed and the other is water flush...... Did you have to do adaptations to it to also hold a Joey Pump...
Hey Amy, just a question, can you not stay on TPN long term? Is TPN not better for you with all the added vitamins and stuff in it other than feed, I only ask because since you have been on TPN you look and seem so much better in yourself ❤️
Nikki’s Nimble Nails I can stay on it long term but the longer i stay on it the worse my liver will get 😫 If I do stay on it long term I will most likely need a liver transplant 😔 I also have a much higher risk of developing an infection with having a Hickman line whereas feeding into the digestive tract is much less dangerous and it wouldn’t harm my liver, which I why I’m trying to get my rate up and back on feeds even if I can get down to TPN 6 nights a week instead of 7, I would be so chuffed with that! 💪🏼 Hope this all make sense ❤️❤️❤️
Amy's Life it does, thank you for explaining it, you have been looking and doing so much better on it. Hope you manage to achieve what you want ❤️
Ummm RUclips, why have I not been getting notifications I have all notifications turned on for this Channel🙄
I can't wait for Tom,give u the ring
I had bad periods as well but I found out that I had endometriosis last year and I also have thalassemia as well.
Love love love your videos and positive attitude despite all the BS you have to deal with ❤️ Also- where did you get that oversized brown cardigan? I must have one!
Brittney Ballesteros from boo hoo I brought a few sizes too big 😂😅
Amy's Life well either way, super cute! And it looks so comfy!
Stay away from the coil of any type, because I got mines put in im February this year after the Gyno ignoring me when I was warning them about issues with EDS patients. I've had constant pain since I had it put in and I've been trying to get them to take it out since. Getting it in also caused me to have dysautonomia issues and I couldn't sit up without fainting for 45 minutes.
The implant also made me bleed for 9 months straight.
At this point, I'm ready for a Salpingectomy which I'm having to fight for.
Good luck gorgeous 💜
Lawren Haggerty thank you! And for your sake I really hope they figure out a way to help you! Sending all my love! ❤️❤️
@@amyslife4457 Fangirling so hard right now omg. 😅
Lawren Haggerty - what is a salpingectomy?? I’ve been bleeding since Jan 2018.... going for surgery for polyps but I also have iron issues so hematology had me on birth control straight thru - but that does nothing when you have polyps!! I only found out recently that was the issue! But, gyno wanting to put Mirena In to stop periods Instead of the pill.....i don’t really like the idea of the Mirena because I only hear bad things!!!!
@@kecrn4132 Definitely stay away from it! A Salpingectomy is a removal of the falopian tubes so there's no connection between the ovaries and the womb.
Good luck! I hope they find something, it's been a nightmare for me!
💚💚💚
I love your videos I have hEDS. You give me inspiration
Hey! I get really heavy periods as well and I’m anemic because of it 😔. I take tranexamic acid to stop them.. Maybe this could help?? ☺️
I have the implant and haven’t had a period since I had it put in
Hiya I dont have any medical conditions tg so I dont know if this would be the same for u but I had the implant in for 2 years and it completely stopped my periods I didnt get them at all. The problem is I'm off it like 5-6 years and I still rarely get my periods so it has gone from getting them regularly to maybe once every 5 months. Anyway just to let u know it can go from one extreme to another 😉👍💜💜
I am actually going in for a D&C tomorrow because I have been bleeding heavily for 2 full months. I'm only 26 and my obgyn wants me to have a hysterectomy because of my period issues and he says it's too dangerous for me to get pregnant being on oxygen and having blood clot issues. I don't have any kids and this is a huge decision to make. Especially not knowing exactly what's wrong with me. Thankfully I'm finally seeing a geneticist in October so I'm hoping the D&C will give me some time to figure some stuff out. I wish you the best of luck with the birth control change it can be rough dealing with hormones. Sending my love ❤️
I was born with eyesight and joint problems, that eventually got diagnosed as EDS and I have a blood clotting faulty gene called Liden factor V, so I was told that being pregnant was really dangerous, and any children I had would have a 1 in 4, to 4 out of 4 chance of inheriting my faulty genes.
But then I was told that I couldn’t have any hormonal birth control (or hormone replacement therapy for the menopause!) either.
So eventually, after lots of horrible period problems, I had a total hysterectomy, and have not had any period problems since.
Ohh, and I was lucky to foster a child instead, which was fun but really hard work :)
So don’t worry about what might or might not happen in the future, just enjoy today because things have a habit of working themselves out. (...and all the best for your op tomorrow)
@@billiebluesheepie2907 I'm so sorry you've had to go through all of that. I really appreciate the kind words and the feeling that I'm not alone. Thank you ❤️
Kerri McVinney - I was really scared to have the operation (...and the instant menopause) but it was the best decision I made.
I didn’t realise how much my periods were taking from my life, and then I got so much of my life back instantly afterwards.
(((❤️)))
I have the bar in my arm but just letting you know if you have that implant you can't have any soy in your system, some doctors don't think its a thing but i don't have my period at all unless i eat soy then i bleed so just some advice, to be safe make sure everything you have is soy free(idk much about tpn but a lot of things have soy in them so i thought you should know to avoid disaster)
Also some people don't have an issue with soy with the implant i think ot depends how sensative you are but I would eliminate it if i were you just so you don't have the hassle because i bleed for 8 months before i figured out it was soy making that happen
Ahhh! Thanks so much for letting me know! I will definitely make sure there’s none in my feed! I don’t think there’s any in TPN, but I will double check 🤔 ❤️
Oh sorry scrap that you’ve tried it 😔 I don’t want a Mirena either... My next step is an ablation 😬
Just want to let you know the Depo shot for birth control can stop periods but at the same time it could do the opposite and cause you to continuously bleed/spot that was my problem with the Depo
Mary Frazier - there is also some research that it is not good for bone density.....
Just wondering,vthe way your talking about it seems like it takes forever for when you get labs/blood work done for your Dr to get results... How long does it take? I'm in the United States and we usually get results same day or next... I would think that being you are known for having low iron and stuff they would have your labs set to stat... Anyhow much love ..💚🙏
Laura Z I think the bloods are usually processed on the same day but it takes a few days for the report to actually get sent to the doctor! If your in the hospital you get them within hours and if my GP does them with a “rush” on then she usually gets them the next day if not 48 hours tops xx
The hospital say I'm on the verge on needing a blood transfusion and they have no idea why my red blood count is so low 🙄
Hope things get better soon
Thank u
Just want them to find out what it is that's making me aneimic again 🙄
Hey Amy xo
I know, right!! I hate it when I know something is wrong with my body, then if I myself say something to the Dr., they are like...Now Mary, you have just had surgery, your going to fill all of sorts of yuck..etc etc. Well, listen here to all my Drs and surgeon’s...I know my body better then ANYONE, will you please not make me fill like your giving up on me and just following what the book says!!!
Yep, that’s how I fill Amy, I fill sometimes because I’ve had so many surgeries over the past 2 years, and the Drs and surgeon’s have done about everything, I fill they are pushing me away :( I’m so scared !! Oh well, my fingers are crossed!
Peace~
xo
When you said at the beginning of the video you're taking beta-blockers to take down your heart rate all of a sudden my confusion as to why my heart rate has dropped on average just clicked - I recently switched to a type of beta-blocker for my migraines and no one mentioned to me it would drop my heart rate. The more you know.
Yes, I take a beta blocker for tachycardia, it definitely slows your heart rate.
Please be careful with the implant. I've had it a few times and I've bled heavy on it also the mirena works the same way so you eat bleed loads with either. Please do your own research. Maybe the patch would work for you
I hate when I had my monthly it makes the body go bonkers I’ve been so angry that no doctors listen when I said do you think it’s my period that is making my sickness worse no I don’t think they say bull, bull,bull I say!!!! We have to fight to do more studies on this!!!!!
I'm glad you were able to end your blog on a positive. You may have been iron deficient but you were friend enriched and jubilant in camaraderie. P. S. My 2 XL Amy's Life hoodie arrived today. Can't wear it yet because it's still very warm hear in L. A. But looking forward to representing! Take care! Be happy!
Thank you for the heart!!!
Seriously stupid question. But why not more Iron in your TPN?? I'm sure there's a reason. Because it just seems like such a simple answer to the continual low iron issues
Christeen Verdriess you can’t infuse iron too quickly and it shouldn’t be mixed with other vitamins and electrolytes in high doses hence why there’s only a very small amount in the TPN to start with. Hope that makes sense 💓
There’s an odd symptom of iron deficiency anemia-it makes a lot of people want to chew ice. Seriously. research proven. And I’ve had it twice. Both times, I was chewing the ice in my drinks. iI don’t know if you drink fluids, but if so, watch for that symptom.
Life Is a Backroad yeah I’ve had that in the past when I was super anemic I craved ice over everything else 😂
Hey Amy
👸🏼👸🏼👸🏼👍😍
Love you❤️
I by accident skipped the one advert. I always feel so terrible when I do. It was like I was waiting for it to finish then somehow I forgot and habitually pressed skip🙈. It like becomes a habit to skip adverts. Sorry Amy.
Michelle - it’s okay, I just watched all seven, all the way through!
I don’t understand why there’s so many advertisements all of a sudden, I remember when it just used to be one at the beginning!
The ones that are over 4 minutes are the worst.
@@billiebluesheepie2907 I don't mind at all if it helps her Channel. Its part of someone's livelyhood. And I enjoy Amy's videos as it makes you realize there is so much more one can do in life. That your limitations are sometimes in your mind and she's doing so much with all she's going through and it keeps me going when I want to complain about my life or give up. Sometimes all of us just need to push through. I don't have a chronic illness. But I have a lot of respect for Amy so I normally push through the ads if my brain would only cooperate sometimes haha
💜
❤️❤️❤️
Amy did you get my box at your PO Box?
Jo Raston i haven’t checked it in a while but I plan on going tomorrow, I’ll have a look. Thank you!! ❤️❤️❤️
Hope you like it all handmade.
My beloved Amy it hurts me to know you feel rubbish I pray and know God is testing us with these test but at the end of the day God will help us to take the pain away I love ❤️ you my doll forever 💋❤️🌹
So if you are iron deficient....isn't there Iron injections or iron tablets?
holiday 2406 not sure about injections not sure my doctors does them, but I can’t absorb the iron tablets anymore so they don’t work for me x
Have you seen hematology?
Chelle Belle yes I was under them for years 😅
Could they offer you anything in addition to transemic acid?
Amy I don’t get it but I was unscubribed from you! Not okay. Went slack on yt because I’ve been super sick while having a LOT going on in my personal life. Hope you’re as well as possible today.
Yeah if you wanna know how many times a day you ,say I am or or stay off and do nothing this start vlogging.
Editing teaches you how many times you say I ummm or aaa
Early squad
thank god your gyno has a brain and didnt push mirena! One of the worst options for EDS people, seen a lot of people getting them recently and so many horror stories. its like people dont do research these days... Hopefully you dont have issues with the implant, it can move around due to unstable connective tissue but shouldnt cause damage like the mirena would and should still work unlike the mirena if it moves. Im on a high dose oral contraceptive, the normal "pill" wasnt absorbing but now that im on a stronger dose im getting a lot more absorbed before it passes through me.
I have the implant and now i only get periods 4 times a year. They do last 2 weeks but are a lot lighter now.