Life Update - Diagnosed with Non-Hodgkin's Lymphoma (Cancer) - 2016
HTML-код
- Опубликовано: 24 авг 2024
- Hi guys, thanks for watching my video. I was diagnosed with Diffused Large B Cell Non-Hodgkin Lymphoma on July 26, 2016. Lymphoma is a type of cancer that develops in the lymphatic system which are a type of white blood cell that helps the body fight infections. It's been a crazy few months. I wanted to make this video to share my experience. I get emotional in a few parts but that is just part of life right now. I usually try to keep it together but talking about it definitely gets to me.
Daisy
11.16.2016
Hang on, Daisy, and do try to think positive thoughts. That’s so important. Right now things “stink”, but they WILL be better. I will join my heart with all those who support you, Daisy. You are such a sweet young woman. So glad that I got to visit with you, it taught me to appreciate every day of my life as a gift. And it reminded me that we don’t know what life holds for us.
Thanks for this informative and heartfelt video. I was diagnosed with Diffused large B-Cell Lymphoma and just started my R/Chop three days ago. The first infusion lasted 5-1/2 hours. This day four and I have so far had no side effects. I feel great now, but I have five rounds still to come, and I understand that it may get harder. I am 72 years ago and pretty healthy. Your story is inspiring. Thanks Wilfred
I was diagnosed with Hodgkin’s lymphoma about 3 weeks ago and I’m 12. I’m not very scared because I looked everything up and I knew that even if it is a stage 4, which it’s not it’s stage 2, it’s incredibly curable and my first day of chemo my tumor looked like it got chopped in half. I’m so grateful to my family and friends for helping me through this experience. I would be lost without the love and support from my family and friends. Also modern medicine thank you big pharma.
Hi, I'm so glad you have a positive attitude and that you are not scared!! Keep your spirits high and kick cancer out of your life like a champ!
Hi end me please, Sorry to hear that you are going through that, please Turn to Jesus He loves you and is the Great Healer, and God of miracles, If you call out to Jesus He will answer you and help you with what you are going through, God bless you
@@jesussaves1827 I know you are well meaning but we don't all believe in Jesus
You're a sweet warrior mama. Thank you for sharing. It helps others to hear your story. I am praying for you and your daughter.
Thank you for your sweet comment!! I appreciate it.
I was diagnosed B-cell lymphomas which are types of lymphoma affecting B cells. Lymphomas are blood cancers" in the lymph nodes. They develop more frequently in older adults and in compromised individuals.I remember being on my knees praying, “God, I will fight as hard as I can if you just let me get through this chemo stuff.” When I went in, Dr. Noy said, “I have something that’s going to help. I’m going to give you Procrit after you get your chemo.” Once I got the Procrit, I never felt again like I had after that first chemo treatment. I got tired and I didn’t feel 100 percent, but I was really okay. My cancer became very real to me once I lost my hair. But by then the mystery, the uncertainty, was sort of gone. Not gone, but it just wasn’t at the forefront. There were things that I started looking forward to doing, like going out and not just staying in the house. By then, the weather had started getting really nice, and I decided I needed to get out. I would go for a long walk or take the subway into the city and look in the store windows. It’s funny, people I didn’t know would chat with me on the bus, on the train. We would talk about anything. That made me feel a lot better. It come a day when i was told by a lady to try and do some research on the internet for help maybe there will be a cure to my Cancer.I google for treatment for cancer and i saw some testimony about the herbalist called Dr ODIA and the great work of his Herbal Herbs. With the hope i have in God i believe this to be the end of my problem for i have pray for a solution from God. I contact Dr ODIA with the giving email and also click on his website to see his work. I finally believed in him and told him about my problem. He prepare His Herbal medicine and which I was advice to take for three weeks, There are lot to say about Dr Odia, I Thanks God that this man was used to end my sorrow All my pains and sorrows turn to joy and history from the day i came in contact with Dr ODIA, Who really help with his herbal herbs, I WAS TOLD HE IS A HERBALIST AND HE CAN BE OF HELP, I gave him a try and it really work out for me, today here I'm cured of B-cell lymphomas. Contact him via: (drodiaherbalistcenter@gmail.com ) +2348077306724.
I'm not sure if your comment is spam or if it's an honest comment. I appreciate your point of view though and I wish that the herbal way was more affordable. I have a close friend that is very into the natural path and she did a lot of research for me and called and talked to places near me but it was very very expensive. I could not afford it and I don't know how other people can.
So glad that doctor took it seriously and admitted you to the hospital. Nobody discovered anything serious until I went to the hospital. Dealing with the same cancer. I had fluid around my lung. And also my heart! They have drained the lung fluid 3 times now. Thankfully first chemo round slowed it down. Thank you for sharing, as we shared some of the same symptoms and experiences. Hope you are living your best life now!
You are a very brave young woman. Thank you for sharing your story.
You are a beautiful and strong warrior. Wishing you nothing but healthy days for your future. I'm fighting cancer too and watching your video makes me feel stronger.
Thank you! I'm sorry you are having to go through this. I hope that you are doing well. What type of treatments are you getting right now? I'm glad that my video could help a little. There is so many emotions that fill your mind while going through this type of situation. I hope you are staying positive! Wish you the very best!
Thank you for your bravery in sharing your story. I also have non-hodgkin lymphoma and it's so comforting to hear others' stories who are going through the same thing!
Hi Elle, glad you enjoyed my video. Sorry that you're having to go through this. Sending you a huge hug! F cancer!
Hi Elle Elle C, I hope you are doing well, Please turn to Jesus if you haven't already, He loves you and can get you through every hard time in your life, Romans 10:13 God bless you Elle
How are u
We have the same experience. Im 21 and it all started with a cough and then back pain until all my body was in pain. And whats worst is that it will start to flare up during the night so i cant get the sleep that my body needs. Cancer sucks. But listening to your experience and your enthusiasm, gave me so much hope. Im from the Philippines so treatment and diagnosis is so hard to achieve. You have a great medical team. I have not yet started my treatment. I'll also have R-CHOP according to my oncologist. And its so expensive. And my medical insurance is a pain in the ass! But anyway, you really look great!
Hi! Sorry to hear that you are going through that right now. It's so sad that even when you're going through something like cancer, you have to worry about medical costs and insurance. Medical bills suck. Glad that my video gave you hope! I hope that R-CHOP will go smoothly for you and that you will be cancer free soon!! Sending positive vibes to you! I wish one day I can visit the Philippines.
Hi there. How are you doing now?
Thanks for sharing! Hoping the best for you! My hubby is starting chemo next Friday.
Thank you!!! I'm doing well. 2 years in remission this December!! Did your hubby also get diagnosed with Non-Hodgkins Lymphoma?? Tell him to be strong and that to have hope. Hugs!!!
I really appreciate your video, thank you soooooo much! God bless you and your family!!! You will come through this and be STRONG AND HEALTHY very soon. Joannie
hi I was diagnosed with Hodgkin Lymphoma a few months back you look great honestly even though you are going through chemo and staying positive can really go a long way and it's shocking what it can do and you will always have those bad days along with good I know your doctor probably always told you this but drink lots of water and my tip is to keep some water bottles beside your bed incase you don't feel well and don't wanna get out of bed they will always be there and when I go to my next chemo treatment this Thursday I will think of you because it makes me smile to see someone smile to see someone going through something with such determination I wish you luck with chemo and I know you will kick it's butt and continue to live to tell the tale :D
Hi Chrissy, thank you for your comment. Hopefully your chemo went well on Thursday. How many chemo treatments do you have left? Yes, I've been drinking lots of water, I used to hate water before I was diagnosed and now I would rather drink water with lemon over soda or iced tea. All the luck to you as well. We have to fight with passion! It's the only life we have. Lots of love!!
Daisyflower28 The chemo went pretty good Thursday. I napped through most of it. :D I just finished my second round of chemo so I just finished my fourth treatment. I am going to have another scan to see how much of it went away and that will tell the doctor how many rounds I will have to go. :D and thank you so much for replying.
Hi Chrissy, did you get your scan results? How did that go? Hopefully you got good news. I had my scan this week and I will see the Dr on Thursday. I'm super nervous but definitely want to know the results.
Daisyflower28 I just had my scan yesterday so I don't know my results yet. I have my next chemo treatment thursday so I'm not sure if he will tell me then or not. I'm crossing my fingers that I might be halfway done or close. I hope your results turn out good and I hope you tell me how it goes . :D
Daisyflower28 I got my results back today and I am so happy. It is gone from my stomach area, 30% gone from my chest, and 50% gone from my neck
I'm so sorry that you are going through this. I will keep you in my thoughts and prayers. Thank you for sharing your story. Glad you have support and love from family and friends. God bless you and your family. Stay strong and positive. 💜
Thank you! I was super emotional making the video but definitely wanted to share. Yes, my family has been amazing. I will be staying strong and positive. I get my petscan in two weeks and hopefully it's good news.
I was diagnosed with swollen lymph nodes and lymphadenopathy couple years ago and other related illnesses but I'm sure doctors negligence may cause me more complication down the road. You are so brave and strong. Thank you for sharing your story with us. just note, You are always in my prayers.
hi daisy, i think you are really brave. and thank you for sharing your story.
Thank you! Lots of love your way!
You’ll get through it :) I’ve been getting these terrible itches all over my body recently with a slight ache in the abdomen and a slight fever. I’ve been to my docs countless times where they usually keep saying the same thing “nothing to worry about it’s to do with your panic attacks” cause I have terrible panic attacks.
It’s just frustrating cause I’ve read numerous cases of misdiagnosed patients who in the end got to the root cause but found out it was too late.
Hope it turned out to be nothing?
Thank you for uploading this heartfelt experience. I was diagnosed with the same illness In August 2020
Never been so scared my whole life, I’m now 9 weeks post treatment and waiting my pet scan. I thought when the treatment was over I’d start to feel better which i do for the most part
But the tiredness and the effect it has had on my mental health I completely underestimated
Long way to go but your story definitely helped me today
Ty stay strong
Wow I wish I had your ER. I've been to many ER's and they just tell me to go home after doing labs.
The Dude Hi! It's scary, I feel like sometimes ER's just play the guess ING game. If the labs don't show anything they don't try to help in figuring out what's wrong. They just say you're probably good and send you home. Luckily in my situation there was a lot of things obviously wrong so they couldn't just send me home. Hopefully you don't have to go to the ER soon.
@@Daisyflower28 Are u fine now what stage was your God bls u ameeen
Hello! My name is Daphne and I went through the same exact thing! Same symptoms, but I had extreme chest pain, rashes, swollen face, kept getting misdiagnosed by doctors and the same type of surgery/procedures. I started noticing my symptoms in June 2016 and finally got emitted to the hospital in August 2016 and that's when I got diagnosed with "Primary mediastinal diffused large b-cell Lymphoma. Had six treatments (in-patient) and was done in December 2016. I've been in remission for 3 months and loving it. I was at stage 4 too. It's so refreshing to hear someone who went through the same thing in almost the same way. I just have a couple of questions if you don't mind me asking, what stage were you in when you got diagnosed? What type of work did you do? I ask because I was a compounding pharmacy technician and was around chemicals for 4 years and I think that played a role in the Lymphoma developing. I hope you are doing well!! I also have a youtube channel "freecapri" and I talked about my story as well.
Hi Daphne, I was diagnosed as stage 3. I do administrative work and so I sit at a desk all day and it's in an office building so there is no known chemicals that I'm exposed to. I've worked there for the past 8 years and even before that job it's been office work and retail work. Based on my history it's kind of hard to guess what caused it.Only thing I can think of is lack of sleep and lack of nutrients. I will have to check out your channel and look into your story. I hope that you stay in remission forever! Lots of love!
hey if either of you see this comment i was wondering if i can ask you guys questions? ive been having the same symptoms and wondering if it could be lymphoma and my doctor keeps saying i have the flu or cold and i wanted to talk to someone about it
You are a hero kid. God bless you sweetheart
Thank you for your comment. I appreciate it!
Hope you're well! I am thinking of you!
Thank you for your comment.
I am getting a biopsy on Thursday to test for Lymphoma. My supraclavicular nodes are swollen (most notorious for cancer). I'm only 21, and I'm terrified.
Hi Kelsey!!! I'm sorry you have to get a biopsy. I hope it's not lymphoma! Sending lots of love and positive thoughts your way!! Think positive!
Thank you! I am home recovering from the biopsy. I am trying to stay postive; my doctor said they should probably have the results on Monday.
Hi so what are the results from the lab report?
What did they say?
Kelsey Lowe what were your results?
Cancer is not a death sentence, be positive as you have been
Hey! I'm in a very similar situation, I have stage 3 DLBCL as well, I was diagnosed in decent and started DA-R-EPOCH chemo on xmas eve, wooo..
Your video makes me feel a lot better seeing other people in this situation who are pushing through and living their lives, hope you have a permanent remission!!
Thank you! 2 years in remission and definitely hoping it stays that way. Sorry to hear you are having to go through this. Definitely know that you are not alone and keep a positive attitude even though it's a shitty situation. Sending good vibes your way that you will be in remission soon!
Hey there.... Are you well now??? Let me know please
@@studytoexcel8366 yup, over a year and a half in remission!
@@RaiRai7331 how are u
@@jaydenstorace3218 very good. I happy for you. I ve started new. B cell non hodkin. I have 10 cm mediasten mass. Did u have? How u win, any surgery? Radiotherapy? How did u food, can u give me some advice and tell me ur story plesse
I coughed for at least 5 years before they figured it out
Wow! That's crazy that it took that long. It's sad how often people get misdiagnosed before they actually figure it out. Hope you are doing well.
No one is immune to disease and illnesses, It can happen to anybody, early diagnosis and prevention is the key to combating it before the progression of the disease. These days, I'm so sad and discourage that I can hardly get through my day. I've been seeing tons of doctors and surgeons and been to many ER and they just send me home or send me for diagnostic imaging just so that I get an impression that they are trying to help me out, to show that I'm receiving care but in fact they just doing it for their own publicity. I go through a lot of physical pain and then if I complain about any reason, they accuse me of being dishonest with them. My health is declining, can't tolerate any more discrimination that I already have. I'm so done. xx
An amazing story from an amazing person!
Alex Ricks Thanks love! 💕
Anyone out there had non hopkyn’s lymphoma and is now completely gone? Anyone living with NHL for 10 years + and general health is still fine? My mum got diagnosed with NHL and its devastating. She is currently on the ‘watch and wait’ treatment. Im just worried, don’t mind me.
Hang in there please. I was just recently diagnosed with Follicular lymphoma and i start chemo this coming week. Be strong friend head high we will get thru this together.
Hope u get through it
great spirit hundred percent will u live longest i am ver confidednt that u will be normal and live agreat life wth ur daughter
Thank you so much for your beautiful comment!!
I got disgmosed a month ago but my tumor grew in my back I couldn’t walk for a month and now gonna start my first chemo in 2 hours I had surgery to take out my tumor that’s is the only weird thing
Hopefully all goes well with your chemo!! Sending lots of love your way!!
I only want to wish you the best on your way to fight cancer!!!
To everyone reading this please turn to Jesus He loves you and wants to save you from what you are going through Only Jesus can truly heal you, He is the God of miracles, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the lifes of people i know, God saved someone I love from illness leading to death, There is nothing impossible to God, Its as simple as asking Him to show you He is there and if you really want to know Jesus will answer you, I know this because it happened to me when I called out to God
I was diagnosed with this last March at 21 whilst pregnant.
Hi Leah, oh no! What stage? How are you doing now? Are you in remission??
How are y now
sweetie, you are so cute..When you were pregnant, they did not find anything wrong? Be strong
Thank you! No, they never found anything when I was pregnant or said anything was wrong. I did have multiple ultrasounds when I was pregnant but maybe I didn't have the cancer then. Staying strong for sure.
How are you today?
Did you lose hair with your type of chemo?if you don’t mind me asking
Yes I did. It happened pretty quickly after my first chemo session.
You are so beautiful.
Thank you! ❤️
How are you doing, honey?