🏥 Leaving the Hospital on Tube Feeds | My Home Set Up 🏡 (6/7/17)

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  • Опубликовано: 17 окт 2024
  • MY PATREON PAGE - / chronicallyjaquie
    NEW TO CHRONICALLY JAQUIE? START HERE!
    All About My Chronic Illnesses - • All About My Chronic I...
    All About Harlow - • All About Harlow! 🐶
    All About My Port - • All About My Port! ♌
    All About My POTS Infusions - • All About My POTS Infu...
    Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
    --- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
    New Here Playlist - • New to Chronically Jaq...
    YESTERDAY’S VLOG - • 🏥 Reaching Three Post-...
    FEEDING TUBE PLAYLIST - • Feeding Tube/Gastropar...
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    --- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
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    Chronic Illness Support Playlist - • Packing For the Hospit...
    --- This playlist contains all relevant videos and vlogs that may be beneficial to my fellow chronic illness warriors! From info/advice about ports and POTS infusions to packing for the hospital, I hope you find this playlist to be helpful.
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    --- This playlist contains all the useful resources I have on my channel for current and aspiring service dog handlers. My Service Dog 101 video (goes over how to get a SD), my service dog gear and any other beneficial videos that pertain to the service dog world. I hope you find it to be helpful!
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Комментарии • 155

  • @alexpovivity1065
    @alexpovivity1065 7 лет назад +102

    Jaquie: "do you want to tell them the news?"
    Judd: "I'm pregnant!"
    omg judd you kill me

  • @superfunlantztime
    @superfunlantztime 7 лет назад +28

    Glad you are home and comfortable now! Judd is hilarious! And yay for Zofran! ALL THE EXCLAMATION POINTS!

  • @craftingemily
    @craftingemily 7 лет назад +3

    I have been having a bad narcolepsy/POTS week but Judds' comment of "I'm pregnant" just made my day!

  • @katiebellismiller3470
    @katiebellismiller3470 7 лет назад +2

    Judd I totally hear you about errands. Who wants to run errands?! But? When you've been stuck in a hospital for 9 days I can understand the excitement. Glad you are home and starting to feel better Jackie and Best Wishes to you and Judd on Monday 6/12 for your wedding.

  • @EmilyCarriker1
    @EmilyCarriker1 7 лет назад +8

    Judd is so funny saying Harlow will be sad not in bed . He looks tired at end , hope he can get some rest how that you're home and doing so much better

  • @annaroseannadanna1
    @annaroseannadanna1 7 лет назад +2

    So glad to see u home but also glad hosp kept u as long as they did. U needed it for healing. Now u can concentrate on getting ur weight up. Singing...Happy day are here again, the skies above are clear again...happy days are here again!

  • @jeanneewaseck3987
    @jeanneewaseck3987 7 лет назад +2

    Ahhh, nothing could be better than going home after 9 days in the hospital! Even with a feeding tube and more medical supplies, it just feels more natural to be in your own space, w/ the beating hearts that you love - and I can see it on your face: you are transformed :)

  • @sublimehonkers
    @sublimehonkers 7 лет назад +107

    congrats on the baby Judd 💗 pregnancy is a wonderful thing, enjoy it

  • @cooldude9760
    @cooldude9760 7 лет назад +29

    Whooooohoooo!!! You got busted out! Now to concentrate on getting better at home and prepare for your wedding! 💕💞💕💞

  • @0cherriesd506
    @0cherriesd506 7 лет назад +16

    Yay I am so happy that you are now home and doing well!! Praying for a good recovery!

  • @13meli55a
    @13meli55a 7 лет назад +3

    I'm so glad that you've got treatment progress with the iv zofran and the feeding tube. I know improvement isn't linear, but even through pitfalls and pain, you have these tools helping you.

  • @lemueldc0104
    @lemueldc0104 7 лет назад +14

    it's like you're opening a grocery shop with the supplies XD, good to know that all are well :D

  • @karenratcliff5706
    @karenratcliff5706 7 лет назад +1

    This is so wonderful to see you home!!! Your voice is so much stronger (and happier!) and you look much more mobile and comfortable. Being in your own bed is always the best relief after a hospital stay. Very glad the pain is decreasing some each day. Congrats again to the happy couple! Give Harlow an extra hug!!!

  • @bryonymason3104
    @bryonymason3104 7 лет назад +14

    That's awesome your seamstress can adapt your backpack for you! I hope everything goes smoothly for you! ❤️❤️❤️

  • @Lilee177
    @Lilee177 7 лет назад +14

    So so so glad zofran was approved! Happy to see you doing better.

  • @beingmomca2083
    @beingmomca2083 7 лет назад +38

    I had a feeding tube for years due to gastroparesis. Can your pump be increased by 1ml at a time? It may be easier on you than increasing 5mls at a time. I use to have 1hr a day where I had a break to shower etc. I'm glad you finally get to go home!
    I also have a guide/service dog (I'm a blind and have a spinal cord injury). Doggie cuddles, once you are free from the hospital are great! I'd usually send my guide/service dog to my parent's house because as you said in another vlog, although he's legally allowed the nurses don't have to take care of him. I also thought he'd enjoy the 'vacation' away from the city for awhile!

    • @analarson2920
      @analarson2920 7 лет назад +4

      Yeah a slow increase could be a great topic of discussion with docs for good pain management, great idea.

  • @95Amelia10
    @95Amelia10 7 лет назад +5

    Yay-congrats going home yesterday! You finally get to be with Judd and Harlow a lot more! You look so much better! I hope you all are having a great day so far! Thinking about you!

  • @sweetp1015
    @sweetp1015 7 лет назад +1

    I'm so proud of myself today. Dr. appointment didn't go well today and I spoke up for myself letting them know it wasn't ok. Thanks for what you do. Even on your bad days.

  • @bryonymason3104
    @bryonymason3104 7 лет назад +1

    You and Harlow are so cute together! You can really see how much you two love each other! You and Judd are adorable together too!

  • @robinclinansmith2430
    @robinclinansmith2430 7 лет назад +12

    Judd's pregnant. 😂 You 2 are wonderful.

  • @karacarta3545
    @karacarta3545 7 лет назад +4

    There's a sparkle in your eyes again!

  • @darren892
    @darren892 7 лет назад +3

    Yaaaay so glad you're home with Judd nd Harlow! Lol at Judd "I'm Pregnant" xD You guys are my faves ahah

  • @savannahballard5786
    @savannahballard5786 7 лет назад +9

    After my surgeries I was constipated for almost a week (TMI) but take 2 dulcolax a day and it will help so much! so happy you are home!!

    • @analarson2920
      @analarson2920 7 лет назад

      Good discussions with a doc, some folks do good with flaxseed meal, it is a little gentler.

  • @BeverleyButterfly
    @BeverleyButterfly 7 лет назад

    So happy things are falling back into place for you both, I love seeing the worry out of Judds eyes and both of you being funny and silly together again xxx

  • @crpplcreek
    @crpplcreek 7 лет назад +1

    I have osteogenesis imperfecta and I understand what a pain delayed healing is, and I only ever needed to stay long at the hospital twice but when you were finally released I felt so happy for you!

  • @MissaLVT
    @MissaLVT 7 лет назад

    YAY for Zofran finally being approved!!! That's great news! And I'm so glad you're finally home from the hospital and on the road to recovery. Continued prayers for you both.

  • @disrael5199
    @disrael5199 7 лет назад +1

    You seem soooo much better! Things are going in the right direction. Now you get to plan for your wedding. So happy for you! Still sending prayers. I can't wait to see your next vlog. Nice to see you smiling.

  • @cashira55
    @cashira55 7 лет назад

    Hi Jaquie! You are looking so much healthier since you've gotten your feeding tube! I'm so happy to see that you have more energy now. I know this is a few days late but, congrats to on your engagement!! It's so great that you will have someone as understanding and patient as Judd by your side for the rest of your lives!
    I think Judd is hilarious! My boyfriend is in the Army as well and he also has a similar sense of humor.
    So incredibly happy for you both :)!!

  • @ForFunXD
    @ForFunXD 7 лет назад +138

    "I'm pregnant"
    *is shook*

    • @sublimedoll4066
      @sublimedoll4066 7 лет назад +14

      For Fun XD I read this before watching and was like wat

    • @ForFunXD
      @ForFunXD 7 лет назад +3

      Nicole N that's hilarious

  • @F33NQW33N
    @F33NQW33N 7 лет назад

    The troubles you are having make a lot of sense to me, considering this is the most food your body has had to digest in a long, long time. I'm sure you will adapt. Much love to you and your family 💗

  • @claireelizabethblake8911
    @claireelizabethblake8911 7 лет назад +1

    Yayyyy!! You're home!! I'm so excited you're home after another crazy adventure! Best of luck with home care, Jaq-Jaq. 💜❤️💖

  • @madeleinegassin1121
    @madeleinegassin1121 7 лет назад

    I'm so glad you're out of the hospital! I hope your recovery keeps going well!

  • @kelhurc12
    @kelhurc12 7 лет назад

    I have had such a tough day with my chronic illness , immunodeficiency and bronchiectasis flare up , been in bed all day hooked up to feed so I get maximum​ nutrition still but I just wanna say Judd's "I'm pregnant" comment had wiped the sad day away and made me lol. I can go to sleep smiling. x

  • @purpleologist
    @purpleologist 7 лет назад

    I spent a month in the hospital when I had my J-tube surgically placed. I ended up in ICU directly from recovery due to the issues my body has with anesthesia as a result of Mitochondrial Disease. When I woke up I could barely whisper. It was a very difficult surgery for me & my body. One thing that helped at the hospital was a very special type of heating pad (that can also do cold). It's nothing like a typical heating pad. This uses water and it circulates through the pad area and really made a difference in the pain I had in my abdomen, the bloating, bowel issues etc. You can leave it on day and night without worry about bring your skin, and there's a low and high heat setting. Because it was so helpful I purchased one for myself. The brand is Gaymar and it's the T-Pump Classic (650 model). Certain conditions insurance will pay for it, such a types of diabetes...but not anything I had diagnosed at that time, so it runs at least $400. But with my chest wall neuopathy...this is the ONLY thing that soothes the pain. And despite pain medication I scream (like a woman in labor),...according to my family. And I am a person that's dealt with a ton of pain...and just get through it. Not thus pain!

  • @auntdave180
    @auntdave180 7 лет назад

    So glad you got your Zofran! They gave it to me in the hospital on Tuesday for the first time. It was wonderful and worked great. Now I understand why it is so important to you.

  • @anacatalina3981
    @anacatalina3981 7 лет назад +1

    Glad you're home with Judd and Harlow! ❤️

  • @wt0416
    @wt0416 7 лет назад +21

    your back with ur pup and Judd. congrats!! Haha. Judd is pregnant. he's such a character!!

  • @emmaweir9307
    @emmaweir9307 7 лет назад +1

    Yay! I'm so happy to see you home and smiling! That's awesome about the IV Zofran too! Good news all around! Love you guys ❤

  • @amyburgholzer7370
    @amyburgholzer7370 7 лет назад +1

    I can't get over how casually Judd said "I'm pregnant" 😂 I'm so happy you're doing better and are home from the hospital, Jaquie!

  • @Pretendkid
    @Pretendkid 7 лет назад

    Yay for being home! And we're almost at 20K subscribers and 100 patrons!

  • @annamarie6422
    @annamarie6422 7 лет назад

    So glad that you're home 😄. You look a lot better now that you're getting the proper nutrients that you need. It's amazing how gp can be helped with a tube sugery. Wishing you the best of luck as always.

  • @nellagroen2039
    @nellagroen2039 7 лет назад

    You both are such a awesome couple. So glad you are home Jacquie. Rest up and hope everything goes well for your wedding on Monday. Lots of love!

  • @CatalinaEnSa
    @CatalinaEnSa 7 лет назад

    I'm so glad and happy everything is going better for you and your family. You are such an inspiration Jacquie. I wish you the best and keep the good spirit going.

  • @saratara101
    @saratara101 7 лет назад

    So happy to see things have started to look up!! Congrats for getting home and getting Zofran approved!! It's so great to see things start to look up for you in your battle again ❤️❤️

  • @shawnaytaylor198
    @shawnaytaylor198 7 лет назад

    So incredibly happy for you! Lots of amazing things in this vlog. I was thrilled for you when you said IV Zofran got approved!! Can't wait to see you improve and get back to your personal normal with the help of the new tool you have ❤️

  • @xcherrypiee
    @xcherrypiee 7 лет назад +8

    *"Probably dead in a ditch somewhere"*
    Sweetest comment ever 💕 lmao

  • @flossieshelley1838
    @flossieshelley1838 7 лет назад

    What a beautiful ending to my evening watching this vlog

  • @ThatDutchGurl
    @ThatDutchGurl 7 лет назад +5

    Notification Squad 😜💪🏼 So happy to see you home!!

  • @Melimm69
    @Melimm69 7 лет назад

    So glad you're doing well and you're home! You look healthier already!

  • @laniewisniewski1812
    @laniewisniewski1812 7 лет назад

    Congrats on the amazing victories!!! Not only going home but getting zofran approved! YAY

  • @jayvanderbilt1459
    @jayvanderbilt1459 7 лет назад +1

    Oh my goodness you seem so much better! That is so great.

  • @planetattybat1291
    @planetattybat1291 7 лет назад +29

    If you end up increasing your rate again, would it help to go up 1-2ml at a time rather than 5ml?

    • @planetattybat1291
      @planetattybat1291 7 лет назад +3

      Ive worked with chiildren that had feeding pumps and just googled to make sure but between 10-600ml per hour, the rate on the enteralite infinity pump can be adjusted by increments of 1ml.

    • @analarson2920
      @analarson2920 7 лет назад +2

      worth a discussion

  • @EmilyCarriker1
    @EmilyCarriker1 7 лет назад

    So glad you're home . Enjoy your time with friends leading up to your wedding :)

  • @lydiakies9053
    @lydiakies9053 7 лет назад

    Dang, girl. You're a tough cookie!! You two are adorable!! Scratch Hippo behind the ears for all of us. “Who's a good dog!!" from Washington state.

  • @facemonkey13
    @facemonkey13 7 лет назад

    You look so happy in this vlog. Hurray for being home and finally getting zofran!

  • @carolinesmith9196
    @carolinesmith9196 7 лет назад +1

    I'm glad that you are out!🎉

  • @allergiesrusdb
    @allergiesrusdb 7 лет назад +1

    Whoop whoop!! It's great to see ya at home!! 😊

  • @elizabethkavulak6207
    @elizabethkavulak6207 7 лет назад +1

    Yayyayayay glad to hear your recovery is going pretty smooth!

  • @nancimedina
    @nancimedina 7 лет назад

    So happy for you guys. Congrats on the engagement. You guys make such a cute couple 😊

  • @nadiah4315
    @nadiah4315 7 лет назад

    I have EDS III, Dysautonomia (likely POTS) and suspected IBS. I just want to say, it was a real encouragement to discover someone with some conditions in common with me! Keep walking x

  • @mikegrl1
    @mikegrl1 7 лет назад

    You look amazing and Harlow and Judd are so happy you are home. Awesome you have a seamstress that can help your backpack accommodations and additions.

  • @AbandonTheFort
    @AbandonTheFort 7 лет назад

    Yayyy!!!!! I'm so happy for you that your insurance approved zofran!!

  • @Holly0808
    @Holly0808 7 лет назад

    So happy that you got to go home!

  • @elizabethricketts7795
    @elizabethricketts7795 7 лет назад

    I so glad things are getting better for you. Hope it's a long time before you have to see the inside of that hospital. God Bless

  • @chloeolsen9058
    @chloeolsen9058 7 лет назад +9

    When Judd said he was pregnant I thought you were going to say that you were or you were adopting a child. I love your videos. Keep moving forward

    • @ecologist_to_be
      @ecologist_to_be 7 лет назад +3

      Chloe Olsen I doubt very much they'd be adopting yet lol I imagine they'd want more stable health

  • @katherinedenemark3013
    @katherinedenemark3013 7 лет назад

    So happy for you! Nothing like getting back home :)

  • @luzmari510
    @luzmari510 7 лет назад +1

    I'm so happy to hear you are doing good Jaquie. And thank God, your zofran was approved. I can't wait to see you all better, and happy with you husband to be. Oh and congratulations to Judd for his pregnancy 😂

  • @donnamari3722
    @donnamari3722 7 лет назад

    I'm so happy you're meds got approved that is awesome

  • @melissacaudell1622
    @melissacaudell1622 7 лет назад +2

    i am happy you are going home today. that is great. I will pray for you .

  • @horseshorseing7175
    @horseshorseing7175 7 лет назад

    There should be backpacks specifically made for infusing, tube feeding, etc! Also, yay for Zofran! 😱💖💖💖

  • @alyyankee3651
    @alyyankee3651 7 лет назад

    you look so much healthier im so happy for you

  • @barbarastorrey9270
    @barbarastorrey9270 7 лет назад

    Glad you are home and on the mend.

  • @karynahern970
    @karynahern970 7 лет назад +2

    Happy that you are home, rest up for your wedding.

  • @miadaly2852
    @miadaly2852 7 лет назад +2

    Yay I'm so happy you can go home ❤️❤️

  • @Saturndazed74
    @Saturndazed74 7 лет назад +7

    Congrats to Judd on being pregnant lol. Yay for the Zofran approval, and yay for being home!!!! You did it girl!!! 💜💜💜💜

  • @suziephillips2320
    @suziephillips2320 7 лет назад

    Yeah Jaquie! I'm so happy for you! !

  • @chihuahuagirl6171
    @chihuahuagirl6171 7 лет назад +1

    I'm glad you're home 🙂

  • @WackyLisa
    @WackyLisa 7 лет назад

    Congrats on being home. You probably already answered this somewhere but - what size backpack did you get from vibedration?

  • @jaydamclaren7257
    @jaydamclaren7257 7 лет назад +1

    yay for going home!

  • @jj4christ
    @jj4christ 7 лет назад

    Yeah! Celebrating with you. Boy doesn't sleeping in your own bed wonderful. Not to mention many Harlow kisses!

  • @ilovemycrushable
    @ilovemycrushable 7 лет назад +2

    Congratulations Judd! :D

  • @maybaby2013
    @maybaby2013 7 лет назад

    "I'm pregnant" hahaha you two always make my day 😂

  • @TheAngelaoddone
    @TheAngelaoddone 7 лет назад

    Chelated magnesium could help the GI bloating cramping and dysmotility. Unfortunately, Zofran and dicyclomine can contribute to dysmotility. Of course, ask your doctor first. Glad you're home!

  • @nicholewilliams8682
    @nicholewilliams8682 7 лет назад

    So glad you went home and that everything fit into your infusion bag! I know you didn't want to carry 2 so now your a mobil medication station.

  • @ProfSlime
    @ProfSlime 7 лет назад

    What's the size of your vibedration backpack? I recently started saline infusions and hopefully I will be able to get a port to continue them at home but I'm not sure what size bag is best. I'm so happy you're moving in the right direction with you're care ❤

  • @TeddyCrochet
    @TeddyCrochet 7 лет назад

    Lol Judd is hilarious. love you guys so happy you are home now and yay for iv zofran!

  • @Hiraeth8
    @Hiraeth8 7 лет назад

    I'm so happy I hope everything goes well I love you guys!

  • @soof9727
    @soof9727 7 лет назад +5

    I'm so happy that the Zofran got apporved!!! So happy for you!!♡♡

  • @imfreetobeme8
    @imfreetobeme8 7 лет назад

    Glad you're home

  • @Dastiel4ever
    @Dastiel4ever 7 лет назад

    I don't know why but the whole bowel thing made me chuckle. I totally get it though, hopefully I will find out what's going on with my appetite and dizziness. Thanks to you and your finding answers with chronic illness video I will be able to get more answers

  • @VulcanOnWheels
    @VulcanOnWheels 6 лет назад

    10:46 Yay Metric! :)
    12:29 Judd had me going for a tick. :)

  • @gabbiesmeemee
    @gabbiesmeemee 7 лет назад

    that's so awesome. I'm so glad your home. poor Harlow, high as a kite lol. your in my prayers. God Bless. Deb

  • @AnnaThe54
    @AnnaThe54 7 лет назад

    I know you're probably acclimated to tramedol. But when I was on it for GI probs in the hospital I was so drunk, and I had to continue taking them throughout the week.
    I don't remember much except for getting motion sickness in class from looking at the board then looking at my paper.
    A week of being drunk.
    Love your channel.
    Ps. Harlow is a cutie😍😍

  • @kathleenmorgan1215
    @kathleenmorgan1215 7 лет назад +1

    WOW! You look so healthy and happy! Everything is looking up! god is good. Next time we see Judd, I want to see him doing the happy dance....Congratulations guys!

  • @conniestockill6102
    @conniestockill6102 7 лет назад

    poor Judd looks so tired, bet its so good to be home, nothing better than sleeping in you own bed!

  • @kattieanderson5809
    @kattieanderson5809 7 лет назад

    So happy you are home :)

  • @aliciajytee3430
    @aliciajytee3430 7 лет назад +1

    So happy for you🎊🎉

  • @gillyana
    @gillyana 7 лет назад

    are you gonna use the small infinity bag? I am looking for a infinity bag I'm willing to pay? x

  • @TransWolfNZ
    @TransWolfNZ 7 лет назад +1

    Yay so happy to see you home, Lilly my SDiT and I send love from New Zealand ❤

  • @sarahstuart3245
    @sarahstuart3245 7 лет назад

    Hope you don't mind me asking but just wondered if Harlow can still alert with nose bumps to your stomach or if you're having to change that alert? I know she nose bumps elsewhere but you mentioned it in a video.
    Anyway, thank you for your videos they are really inspiring and informational :)