Dating & Cystic Fibrosis | What it Was Like for Us!

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  • Опубликовано: 29 сен 2024

Комментарии • 147

  • @thefreylife
    @thefreylife  3 года назад +25

    You all have the best questions! So we answered some :)

    • @abbykuusisto4641
      @abbykuusisto4641 3 года назад +1

      Loved It!

    • @wt0416
      @wt0416 3 года назад +1

      When do u know its appropriate to vlog or not cuz.. life happens and some inturruptions happan
      Ham and cheese roll up... my go to.... i thought it was just me but i know that im not the only one who like food that people hate

    • @jessnapier4149
      @jessnapier4149 3 года назад

      Are you taking us mini vacation this please let me know

    • @simplycuriosly9263
      @simplycuriosly9263 3 года назад

      When I was on chemo I practically lived on a flour tortilla, a slice of American cheese microwaved for 20 seconds. Still my go to comfort food! I’d wash it down with a glass of half cranberry juice half water.

    • @JeriAnnHenson
      @JeriAnnHenson 3 года назад

      Ok so I’m ALWAYS hungry but comfort food is cream cheese and jelly on a roll like my mom would make is!

  • @davegoodridge8352
    @davegoodridge8352 3 года назад +13

    Fun video thank you. I just brought home my wife’s aches. Sitting here watching this I’m drinking iced tea. Honestly I haven’t eat much past few days. I love you guys relive memories. After 42 years with my wife, I’ve got a few. I don’t see much to the future right now. I know the sun will shine again, just not right now. I know my wife is with the lord and one day I’ll see her again. God will make it all good someday, somehow. Today it’s iced tea in an empty house, but one day a feast in paradise.

    • @karendeakin9628
      @karendeakin9628 3 года назад +3

      I lost my mum not long ago I understand how you feel may I send you good wishes at this time

    • @mjoy4382
      @mjoy4382 3 года назад

      Well said, fellow griever. Thanks for sharing the hope we have!

    • @susiewashburn1821
      @susiewashburn1821 3 года назад +1

      So sorry your wife passed away. Prayers for you and your family at this sad time.

    • @43greengirl
      @43greengirl 3 года назад

      Bless you I am so sorry for your loss god is always there for us when we need him. Prayers
      For you l. I love iced tea take care x

  • @hollyosgerby1901
    @hollyosgerby1901 3 года назад

    Enjoyed your video Mary and Peter. If I am unwell and able to eat....probably tea & toast. If I am well but don’t want to cook (LOL)....probably Chinese takeout or Subway and a can of tomato soup or cream of mushroom soup. Thanks for sharing! 🤗❤️❤️🙏🏼😘🐕🐱

  • @MrHickman34
    @MrHickman34 3 года назад

    💜

  • @SchizophrenicCathy
    @SchizophrenicCathy 3 года назад +11

    My go-to food for no-good days is macaroni and cheese.

  • @rae1957tn
    @rae1957tn 3 года назад +6

    I love seeing your families. Peter’s mom is a very good cook and Mary’s mom is so talented and both are very loving. And Mary’s dad loves his girls.

  • @irishpixierose
    @irishpixierose 3 года назад +2

    Go to food when I'm not up to doing much or not feeling well... watermelon, cherries, saltine crackers, toast or maybe a toasted bagel

  • @stephaniesmith598
    @stephaniesmith598 3 года назад +1

    I'm a new subscriber. I feel blessed to find your channel. I'm disabled I have cerebral palsy I can relate to medical appointments exetera but that doesn't stop me from living . You seem like you have a great attitude

  • @HopeAndSunshine
    @HopeAndSunshine 3 года назад +5

    I love the story of how your relationship started!

  • @JeriAnnHenson
    @JeriAnnHenson 3 года назад +2

    So grateful Peter picked the RUclips WORK side of the day. People sometimes have no idea the work that goes into it. Thank you both!

  • @virginiagrenier8572
    @virginiagrenier8572 3 года назад +2

    One of my "go to" foods is peaches and cottage cheese, Chinese noodles, or oyster/soup crackers

  • @jamieirwin2498
    @jamieirwin2498 3 года назад +3

    I am impressed with all the coughing that Mary used to do that you didn't have big girl accidents like I often do when I had someone to a coughing fit with my stage 4 lung cancer

  • @maddie4712
    @maddie4712 3 года назад +1

    Mary, how do you spend time with Jesus on the daily...especially with Chronic Illness? Would love to see your routine! I may have missed that video if there is one..so sorry if you've done a video on your Jesus Bible time. Thank you! 💜 If not, would love to see it. I love your spirit and both of your hearts for the Lord! Thank you for all you both do!

  • @cameleoncom
    @cameleoncom 3 года назад +1

    I would definitely also take the bean burritos :-) sounds amazing!

  • @sarahlynn9816
    @sarahlynn9816 3 года назад +1

    You’re amazing Mary. Taking and doing all of your medications. I’m 33 with Cystic Fibrosis. Never hospitalized for lung involvement. Stayed 3 days for a small bowel obstruction. I don’t do any of my treatments and I haven’t been to see my Pulmonologist at the U of I. I was so sick of taking 25 meds a day and going to clinic every 3/6 months.

  • @disneyfunatic3179
    @disneyfunatic3179 3 года назад +2

    Mary, i know a mask is a big part of your life....what I want to know is if the mask become an every day part of your life when you go out and about? our mask mandate was just lifted in our state but I am a person who is immune compromised medically and was just curious about your thought on this!

  • @susanharris1285
    @susanharris1285 3 года назад +3

    I really enjoy being a part of your journey 💕

  • @kimberleytramper8966
    @kimberleytramper8966 3 года назад +1

    Mashed potatoes or pudding, or popsicle or ice cream when I’m not feeling good. Something easy to slide down.

  • @constancecashmorris1927
    @constancecashmorris1927 3 года назад +1

    Kate and the queen

  • @jonki1980
    @jonki1980 3 года назад +2

    Fantastic Q+A
    Recap ❓➕🅰️

  • @Missyfoo81
    @Missyfoo81 3 года назад +2

    If I'm not feeling well or get overwhelmed with chosing food I make oatmeal. It a comfort food to me.

    • @43greengirl
      @43greengirl 3 года назад

      I,m the same it’s so filling and I really enjoy it

  • @jonki1980
    @jonki1980 3 года назад +2

    Everyone really should follow Mary and Peter on Instagram. Fabulous updates

  • @mytealdippedlife9702
    @mytealdippedlife9702 3 года назад +1

    HARRY is the surprise blessing 😂😂😂😂 and PETER’S love of cats 😜😜

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 3 года назад +1

    Your friendship is a real blessing to us xxxxxxxxxxxxxx

  • @PinkHawk191
    @PinkHawk191 3 года назад

    When I am not feeling well. My Bubby’s matzah ball soup. It’s my favorite comfort food. I miss my Bubby. She passed away in February. I still have days where I am sad and I miss her.

  • @carolbonnell6675
    @carolbonnell6675 3 года назад

    Sandwich or some combos. Today I had a bologna jalapeno mustard sweet pickle sandwich.

  • @danatillack9178
    @danatillack9178 3 года назад

    Grilled cheese sandwich and tomato soup. Or chicken noodle soup.

  • @ellen6646
    @ellen6646 3 года назад +1

    My go to food when I don’t feel great is ALWAYS Toast with peanut butter.

  • @jaimebh30
    @jaimebh30 3 года назад

    I love pasta with butter and cheese, mac and cheese, oatmeal with fruit and peanut butter, or fried rice. I love rice with cream of mushroom soup and ground beef with extra pepper a side of brocolli. Comforting and tasty.

  • @smwbball50
    @smwbball50 3 года назад

    My go-to foods when I'm not feeling great are pasta, toast, grilled cheese, or gatorade (which seems to cure all ills for me, including headaches, nausea, body aches, it works miracles!)

  • @lisanorton7749
    @lisanorton7749 3 года назад

    My go to is peanut butter with honey and crushed bbq potato chips on the softest white bread, not artisan bread, just good old fashioned Butternut or Wonder Bread! That or a good old fashioned McDonald’s hamburger.

  • @sharongasparaitis3392
    @sharongasparaitis3392 3 года назад

    My go to is ritz crackers with peanut butter and sometimes grape jelly

  • @hopeleanna6292
    @hopeleanna6292 3 года назад

    My go to food is mashed potatoes and ground turkey browned with onion and topped with some cheese! My version of a mashed potato bowl!

  • @suzykauffman1831
    @suzykauffman1831 3 года назад

    Ginger Ale is my go to when I don't feel well...whether it is a stomach bug or cold or flu or after surgery, etc.

  • @43greengirl
    @43greengirl 3 года назад

    Go to food if I am not feeling well
    Is scrambled eggs and go to food if I’m
    Feeling uninspired or lazy is a large pizza from my local takeaway

  • @sallymay24
    @sallymay24 3 года назад

    There’s a ravioli soup in a can that I like to make but instead of having the large raviolis I blitz it so it makes a meat and ravioli soup add cheese and it’s so yummy

  • @annacooper1299
    @annacooper1299 3 года назад

    My go to food is cheaters pho broth it’s beef broth with fish sauce, Chinese five spice and Sriracha

  • @Fighting.Butterflies
    @Fighting.Butterflies 3 года назад +1

    My go to foods when I don’t feel good are ramen, chips and cheese, or McDonalds Chicken McNuggets. Lol.

  • @Rtoeres25
    @Rtoeres25 3 года назад

    ramen noodles or spaghetti noodles with butter ;)

  • @celtic_cait_littlerose_802
    @celtic_cait_littlerose_802 3 года назад

    Garlic bread grilled cheese with muenster or cheddar cheese

  • @contrapasso
    @contrapasso 3 года назад

    My go to food is a cheeseburger (I recommend BurgerFi where y’all live!) or pb&j

  • @melissakoon2097
    @melissakoon2097 3 года назад

    Soft shell heat over burner put peanut butter on it and roll it up so good for something quick

  • @DemonxHunterxFan
    @DemonxHunterxFan 3 года назад +1

    my go-to food is ramen with some frozen veggies or rice and beans usually. Or just a whole bag of chips and salsa LOL

  • @shannonrosewiley
    @shannonrosewiley 3 года назад

    Pepper jack and five blend mexico cheesey corn

  • @jessnapier4149
    @jessnapier4149 3 года назад

    Are you taking us this week on Mini vacation please let me know please asap

  • @anjavanderschelling-deman5501
    @anjavanderschelling-deman5501 3 года назад

    tomato soup with cheese tortellini and minced chicken

  • @carolkelly1136
    @carolkelly1136 3 года назад

    Peanut butter & jelly, preferably strawberry preserves

  • @jademccardle9074
    @jademccardle9074 3 года назад +1

    Hi how are yous xx

  • @ashleysimmons6325
    @ashleysimmons6325 2 года назад

    My go to sick food is watermelon, I can eat it no matter how sick I am 🍉🥰

  • @carolynk.9856
    @carolynk.9856 3 года назад

    My food would be sharp cheddar cheese and crackers.

  • @dianefitzpatrick4250
    @dianefitzpatrick4250 3 года назад

    My go to food when not wanting to eat Is usually toast and a hot soup like chicken noodle or potato.

  • @nathantatosian280
    @nathantatosian280 3 года назад +1

    Hi Mary and peter ❤️😎

  • @hannahkeller2721
    @hannahkeller2721 3 года назад

    I eat peanut butter on whole grain toast when I'm not feeling well

  • @stephaniesmith598
    @stephaniesmith598 3 года назад

    I go to is a quick nutrition drink and I'm not feeling well or don't feel like eating

  • @carolfink3991
    @carolfink3991 3 года назад

    MY GO TO FOOD WHEN I AM SICK IS ICE CREAM OR LIME JELLO OR WATERMELON WITH SALT

  • @faithandautism-myjourney264
    @faithandautism-myjourney264 3 года назад

    My go to is 2 minute noodles or macaroni and cheese.

  • @sasham6486
    @sasham6486 3 года назад

    Omg i had a bean burrito for lunch today

  • @shannone1471
    @shannone1471 3 года назад

    My go to when I dont feel well is Pho with extra veggies

  • @dawnrandazzo9790
    @dawnrandazzo9790 3 года назад

    My go to not feeling good for is cheese and crackers

  • @jtrujillo1985
    @jtrujillo1985 3 года назад

    Toast occasionally and/or ice cold water

  • @eej1983able
    @eej1983able 3 года назад

    Pbj or yes bean beef and rice burritos 🌯

  • @troopertaylor498
    @troopertaylor498 3 года назад +1

    Ensure is my go to recently simply because I have ZERO appetite, have hyperadrenergic POTS so it’s hard for me to stand and make food and the ensure has protein and vitamins and minerals which I desperately need. Sad but true.

    • @ThePollydoodles
      @ThePollydoodles 3 года назад +1

      hugs to you .. and well done for being adaptable with what you need to do 😊

    • @troopertaylor498
      @troopertaylor498 3 года назад

      @@ThePollydoodles It’s basically survival mode at this point. 🤷🏼‍♀️

    • @ThePollydoodles
      @ThePollydoodles 3 года назад +1

      @@troopertaylor498 I have cystic fibrosis like Mary and know the hard times too ! I'm doing well on Kaftrio and reading the comments around not being able to cook and eat definitely remind me of myself at times.. keep pushing through 😊

    • @troopertaylor498
      @troopertaylor498 3 года назад +1

      @@ThePollydoodles That’s all I can do is push through. I’m so happy that you guys (CF’ers) finally have some viable treatment options. A beautiful young lady from my small hometown had a lung transplant in 2017 but unfortunately died a year later due to rejection. She was doing so well, until she wasn’t. She actually had her transplant at Duke.

    • @ThePollydoodles
      @ThePollydoodles 3 года назад +1

      @@troopertaylor498 Thankyou, its been great for alot of us 😊 aw bless her, it can take over very quickly when it decides to..! Have a good rest of your day!
      Polly
      x

  • @tracythomas343
    @tracythomas343 3 года назад

    For me it’s Nachos or hummus.

  • @karendeakin9628
    @karendeakin9628 3 года назад

    Cheese cheese and more cheese

  • @chadbivona3572
    @chadbivona3572 3 года назад

    Cheese pizza is my go to food

  • @joycechivis6317
    @joycechivis6317 3 года назад

    My go to foods are potato chips

  • @1tennismama
    @1tennismama 3 года назад

    Grilled cheese sandwich

  • @lindsay1408
    @lindsay1408 3 года назад

    My go to food is Tv Dinners.

  • @constancecashmorris1927
    @constancecashmorris1927 3 года назад

    Do you two live together

  • @310tammie
    @310tammie 3 года назад

    Bologna sandwich 🥪😋

  • @sasham6486
    @sasham6486 3 года назад

    I love your videos

  • @heatherruble3177
    @heatherruble3177 3 года назад

    cheese and crackers!

  • @elliethompson7934
    @elliethompson7934 3 года назад

    My go to food is teriyaki rice

  • @patsymullins7338
    @patsymullins7338 3 года назад

    Boiled eggs

  • @memeboyer5380
    @memeboyer5380 3 года назад

    Oatmeal!

  • @donnaengel850
    @donnaengel850 3 года назад

    Ice cream

  • @maryanpollard2557
    @maryanpollard2557 3 года назад

    Avocado

  • @brandiprice3538
    @brandiprice3538 3 года назад

    X.

  • @debbiewilliams8727
    @debbiewilliams8727 3 года назад

    Love you guys so much! Love your honesty and compassion! My go to foods when I feel sick or JUST DON’T WANT TO EAT...mashed, diced and fried, diced and just eat with butter and salt potatoes. Baked potatoes too! Cucumbers. Cutie oranges. Tomatoes.
    Flat bread. More stuff but I have to go.
    Grandma D. xoxo

  • @maryreynolds5310
    @maryreynolds5310 3 года назад

    My go to food..guacamole on toast. You need to do more Q&A’S!
    Omgoodness...PETER, seriously?? I feel like the lowest of low at this moment when you spoke of your podcast! I didn’t think you were still doing it. In the beginning I watched then suddenly I heard nothing more of it, didn’t pop up. I thought maybe you ..I didn’t know what to think. I just kinda forgot about it. I feel horrible! Well I’m rejoining your podcast as of right now! Please forgive me. I was one of your first viewers I think, well me and many more. I feel bad.
    I love ya both and your always in my thoughts and prayers xo

  • @PinkHawk191
    @PinkHawk191 3 года назад

    I have been so grateful for Zoom. I have been able to do classes with my Rabbinical staff. We have been able to maintain our close relationships with everyone at my synagogue. I have been able to meet new neighbors on Zoom since we moved during the pandemic. My day program for adults with Autism is on Zoom. We moved closer to my hospital since my health has worsened. My medical team during the pandemic have been amazing! I am so grateful for my support team from my day program for adults with Autism and my medical team who have both been amazing during the pandemic.

  • @ChronicallyMichelle1995
    @ChronicallyMichelle1995 3 года назад

    Do you guys have a hello fresh or some sort of meal kit commercial happening? I was watching TLC last night, I’m in Canada so that’s the only channel we get American commercials. But I swear I saw a commercial starting then it got skipped over but it was Peter clear as day Peter in your kitchen saying “Mary is” then it got skipped over. I live with my mom she doesn’t watch you guys with me but sees me watching and I go “mom was that Peter?” And she though so too

  • @carolynlong9148
    @carolynlong9148 3 года назад

    Peter I think you're great about going CF with Mary. Love and support is the best thing. My go to foods are snack foods such as crackers or trail mix or cereal. Sometimes when I'm really not feeling well peanut butter and jelly. Thanks for sharing your day god bless.

  • @moonmaiden1973
    @moonmaiden1973 3 года назад

    Gingerale and Lipton’s chicken noodle soup for the last 45+ years

  • @Judymontel
    @Judymontel 3 года назад

    Thank you! What a sweet, Q&A! About the other 23 hours and 45 minutes - well, I know a lot MORE than 15 minutes goes into putting up a 15 minute video!! Thank you for your faithful work getting them to us viewers!

  • @AdrienneZazulak
    @AdrienneZazulak 3 года назад

    my go to when I'm not feeling great but also when I'm in a rush- yogurt, apple, walnuts, and honeybars!

  • @amandaanderson8254
    @amandaanderson8254 3 года назад

    Some of my go to foods for low appetite days are turkey avocado blt on a toasted tortilla, avocado toast, pretzels, California sushi bowl, and carrots and broccoli with ranch. For sick days usually soup broccoli and cheese soup or veggie soup so good and warm and like a hug.

  • @chrisswinerton9603
    @chrisswinerton9603 3 года назад

    No no no the INTENSE business discussions especially if there is some yelling on Peter or Mary's part. Thats made for RUclips gold. Lol you guys are amazing. ❤️😀🙏

  • @marinakiell1069
    @marinakiell1069 3 года назад

    With the move ... Peter started making his own Kombucha

  • @emilyboller7588
    @emilyboller7588 3 года назад

    I eat vegetable beef soup when I'm not feeling great. We either buy it from a local restaurant or I make and can big batches to keep on hand for lunches or whenever I'm not feeling great.

  • @petaks01
    @petaks01 3 года назад

    Safe food for me is instant noodles with a handful of frozen mixed veggies and reduced amount of water while cooking. Fast, easy and doesn't really hurt my stomach on those days.

  • @sarahseedtostem
    @sarahseedtostem 3 года назад

    Baked potato is my comfort food and eggs with corned beef hash. Basically potatoes are my comfort food 🤣

  • @sheilablackwell6785
    @sheilablackwell6785 3 года назад

    If tummy upset...saltine crackers and sip on coke

  • @tjae6462
    @tjae6462 3 года назад

    Go to food when I'm not feeling well... Grilled Cheese (swiss cheese and honey wheat bread grilled with real dairy butter).

  • @elainehardy3502
    @elainehardy3502 3 года назад

    Mary, what is your facial routine ? When you ever wear makeup, what do you use ? You have pretty skin.

  • @kellyfruin4418
    @kellyfruin4418 3 года назад

    When will your parents ( Mary) come visit? I love your blogs with them in it! I loved meeting Peter’s mom last week!

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 3 года назад

    My go to food is always my Oma’s boiled fowl in a white chicken sauce , served with floury potatoes to mash into the sauce. So yummy!

  • @lynnkihara2323
    @lynnkihara2323 3 года назад

    Miso soup is the Asian chicken soup for colds and my family's go to for all ailments.

  • @janetmarceau2821
    @janetmarceau2821 3 года назад

    Grilled cheese sandwich with tomato soup! That has been my go to whenever I am sick with anything. I loved it the first time you guys were having that for a meal!! Love from Florida!

  • @robinblack7501
    @robinblack7501 3 года назад

    how many times a week is the trucks there with med supplies , i so dread unloading most of the time but yet so very thankful but it is a job and a half and then all the trash lol i know my garabage men cuss me hahaha