So many things really come down to brain retraining, eating properly, meditation, breathing, exercise, living a peaceful life. everyone's journey is different. I am mostly recovered from MCS and mold exposure. . You wont find any help from the traditional path to getting better. Trying to put that the best way i can. The system is so broken. Channels like this didnt exist a couple of years ago. Sharing success stories are 🌻so important. Wishing all much success and healing on their journey. NEVER GIVE UP. My journey 9 years. This channel will grow by leaps and bounds. The information is so important and so appreciated.
Like Jeff, finding Raelan's book and channel was a turning point in my me/cfs recovery journey. My experience of the condition seemed so similar to Raelans that i copied her system of progressive movement,strength and aerobic exercise. In three years I have stopped the relapses and post exertional malaise of the previous 22 years. Probably 90 percent recovered and steadily increasing my fitness and reintegrating into regular life. The really difficult part was getting back in touch with the bodies natural rhythms and cycles and trying to quieten that part of the mind that wanted to override them. I think the fight or flight response had been active for so long that i had become unaware of it in the background! I think the most important thing is to commit totally to the healing path that feels correct for you . After that it is daily consistency in doing the things that will bring you closer to your goal. . So. Thankyou Raelan and also to all the good people who have shared their stories and inspiration.
@jimnevin2255, I wish you'd contact Raelan and do an interview with her. You'd give a LOT of hope to people who have been sick for longer than 20 years or so. So many of her interview subjects are quite young, and have only been sick for 5-7 years, if that. Congrats on your recovery. I hope you'll consider this...
So happy for you! I can totally relate to your comment. Lived in survival mode for so long before I had developed CFS 11 years ago that I thighs it was the norm. Much better lately, but post exertion malaise always knocks me down for days. I’m an ex competitive athlete, so it sucks even more. I’m determined to get better and heal my nervous system.
About 6 months ago I shared one of your videos to a FB CFS group. I was attracted by several members and told you were a fake just selling things and you knew it. They said healing wasn't possible. I was so upset I immediately left the group. I've been watching you for quite a while, while I can't afford anything to help myself I meditate, do tapping, and eat well. I feel better knowing it's possible to heal from CFS.
I need to really put an effort into tapping - don’t know why I resist it so. I think mostly because I don’t know what to say and also with the fibro it’s actually a bit difficult to do the physical tapping after awhile. Guess I could just do until shoulders start to hurt. Bought the app one year and rarely used it. How much percentage do you think it helps you?
yes. I went to a couple of "support" groups many years ago when i was first unwell and diagnosed, they were awful. Like swarms of self perpetuating illness. I knew that getting support to be ill wasnt the way out. Focus on whats good has always served me...even when its hell there is something small and good. Good grows when you focus on it.
yes Raelan, you can: transcribe the interviews and get ChatGPT paid version, feed your own custom GPT with the transcripts. You can then retrieve information, such as "how many interviewees mentioned marathons?", no coding skills required.
I’m an ex competitive athlete and would never run a marathon. Chronic cardio isn’t healthy and is highly inflammatory. I think a lot of people with CFS are highly sensitive individuals. I can totally see how and why I came down with it.
RAELAN THANK YOU ❤ MAYBE SO MANY RECOVERY STORIES HERE ARE WITH MARATHON RUNNERS BECOUSE MARATHON RUNNERS DONT GIVE UP AND ARE NOT SCARED BY LONG DISTANCE JOURNYES ... THEY KEEP EFFORTING UNTIL THE FINISH LINE OF RECOVERY...
I’m from the Uk, and had CFS since 2006, the amount of forms I’ve filled out that ask ‘on a scale of 1 to 10 how is …..?’ I’m definitely buying your book.
Thank you for taking the time to comment, it means so much to me to have connected in some way. I hope you enjoy the book. Very best wishes for a speedy recovery.
Very interesting thank you. I will look at all the very useful links and hopefully find help. Suffering intermittently for 3 years and now seems quite constant. I'm uk so happy to see Jeff.
Thank you for taking the time to comment, it means so much to me to have connected in some way. I hope you enjoy the book. Very best wishes for a speedy recovery.
3:11 Yes!! Raelan, I was thinking this exact same thing when he said he was running marathons. Sooo many CFS stories are about people who used to run marathons, and I’ve heard so many times how long distance running is very hard on the body. It’s a big stressor and does seem to be a factor for some. And then of course, there are people like me who weren’t active at all when they got sick (I was a straight-A student though, so I did have that drive). 😆 But I was “floxed,” as a teenager, so my mild CFS was created by man made drugs. Physics Girl has had long COVID for 1.5-2 years, and she was a marathon runner too. I wish she’d find your channel. 🙏🏻 She recently did a long live stream on her illness.
Could he share what he was eating as his diet?It would be lovely to know because he said that he was eating healthy or thought he was , could he share more
Been with CFS for 30 years. Haven't found anything that helps. Believe me....tried everything. The worst part is that people think that this is the "real" you and have family members that chastise you for everything you do or don't do.
Haha, great spot regards my author name, even I missed that! Pleased you like the Venn diagram comment - but genuinely I absorb and use information and advice that way - feel more assured that I am avoiding the charlatans and snake oil sellers that way 😉
Thus was so good to watch. When I contracted CFS I was in the process of falling in love with a wonderful colleague (at work). Sadly, he realising that I was wanting to sleep during the day, I became ’lazy’ in his mind and I needed help instead but didn’t understand what was happening. I’ve recently reconnected online with him and am in 2 minds as to whether I should tell him about it. Interestingly, he married a doctor!
@@margaretwhittaker2291 Thank you, you're absolutely right. I need peace now. I hated being told I was lazy - which was far from the truth. ps. Don't get me wrong, we are both nearly 60 years old so romance is far from the mind :) My pic is a bit old!
@@Jamiejamjar60 year olds don’t care about romance? I think that is a misnomer that older people aren’t interested in intimacy and companionship. It’s okay to feel attractive and post an updated picture at 60. Accepting and embracing who you are at every age is healthy!🌻
@@Jamiejamjar I’m so very sorry you got sick while falling in love. 💔 But you never know who else may be out there for you. I clicked on your profile, and you are just lovely! I’m sure you still are and always will be! 💕 My parents are in their late 70s, and they are almost literally joined at the hip. I love how much they still love each other. It’s never too late for love. 🥰
Great interview..I'm in the UK and I can relate to what he was talking about..my trigger was COVID vaccine.I also diagnosed myself and told the GP what it was...they just aren't interested
You would probabaly get more validation if you said the trigger was covid. Drs just don't want to hear that a vaccine can do anything but good. Having said that, I'm not sure there is much help from long covid clinics either, but may be you wouldn't be out right dismissed? I feel like, of all the triggers, covid is the one that's taken more seriously. Although if dr's really understood, then they would realise that the trigger is almost irrelevant.
@@leaperrins8373It doesn't really matter what the trigger was. If it wasn't the vaccine it would have been the next time they got sick. The trigger doesn't effect the recovery for CFS.
Great video 📹 Ricky Gervais fellow cast minds in one of shows gas got ME/cfs so that's why he understands it. I think the actor is called David Earl. I'm in the UK myself. I agree that the nhs system here isn't great with people with me/cfs and fibromyalgia. I got told once by a health professional that fibromyalgia is a mental health thing and it is an illness. I was really mad after meeting this person. I understand the mind cause trigger physical health issues maybe. But fibromyalgia and me/cfs are real issues in the body. I agree that the mind and bodies are connected but I feel alot of medical professionals gas light us, sadly.
Your health professional is right! Fibromyalgia and me/cfs is a mind body issue caused by the signals send from the brain. The signals are 100% real, but luckily they can be turned down and go away 👌
Glad you picked up on the Gervais reference - I didn't know his awareness was based on a close acquaintance. Agreed, NHS could do far better in this area, but feel it will be down to communities like Raelan's to help each other, sadly - 'self-health'.
The Ricky Gervais quip actually just mocked the illness stating that no one in the third world has ME/CFS. Sarcastically implying the illness is not real. You can see this on RUclips. Not sure how this became misunderstood that he sympathises
@@MyFriendPeter I believe the point Gervais was making is that the illness is a 'modern' condition that affects those in the developed world more often because of our intense lifestyles and diet. He certainly brought the condition to the fore.
@@domsa_ tests can confirm it. Dr do have to know how to run the test though and know what to look for. I had a reactivated EBV ran by a nurse practitioner she said it was reactivated and gave me a book to reference it by. I took that test to 2 different naturopaths. The 1st said-oh that just means you had it in the past (she actually ran the initial ebv test but didn't test the right thing that I had the nurse practitioner verify). The 2nd said-that means nothing everyone has it. I just saw another naturopath recently that said you definitely have it reactivated and that's a problem. Sooooo- be careful who you go to/make sure they know what they're doing. The real issue is both the Nurse practitioners and the 3rd naturopath said it's not your root problem. We have to figure out why your immune system hasn't put it in check. So my best conclusion is my limbic system from past stress has not calmed down. I'm doing Primal Trust and it has helped a variety of symptoms caused by ebv to go Hope this info helps anyone..
Such a shame that Jeff didn't find out what it was for so long and had to work it out himself. ME/CFS is well know in the UK, I've certainly known about it for years. Sadly was called 'yuppy flu' in the 1980s. Certainly his GP should have been to diagnose it! However, tbh it probably wouldn't have lead to any better care, because after the label there's very little here. I got referred to my local ME/CFS clinic which was 2 cities away and by the time I got in, I'd learnt about pacing which was all they really had for me 🤦🏻♀️
Hi I have felt unwell since 2021 I tested positive for cmv but my doctor won't prescribe anti viral as he said most adults woukd test positive it frustrates me that he long even try has any one experienced this
I think most people with ME/CFS have higher CMV, EBV, or HHV-6 IgG titers, and some have acute IgM reactivations (I had acute EBV IgM titers, showing reactivations, and high IgG titers). However 11 months of antivirals did not make it go back into dormancy. What did was quitting my job, getting into nature, doing brain retraining, communicating and acting on what was best for my health even if it was awkward, and all the stuff others often talk about on this channel like Jeff here.
Yes, sadly this is the case. n my view, only communities like this can help, sharing experiences and how we overcome the many facets of this condition.
The core message I picked up was that in his experience nervous system dysregulation needs to be addressed in order to influence the downstream issues that accumulate quite quickly with illness duration. You don't necessarily need more books. :)
STRUGGLING THROUGH LONG VIDEOS?
Subscribe now for a bullet-point summary from our latest interview! - mailchi.mp/3bd95045319b/raelan-agle
Honestly I kinda like the long videos. I'm sure you hear this all the time but you're so pretty and upbeat, keep it up!
So many things really come down to brain retraining, eating properly, meditation, breathing, exercise, living a peaceful life. everyone's journey is different. I am mostly recovered from MCS and mold exposure. . You wont find any help from the traditional path to getting better. Trying to put that the best way i can. The system is so broken. Channels like this didnt exist a couple of years ago. Sharing success stories are 🌻so important. Wishing all much success and healing on their journey. NEVER GIVE UP. My journey 9 years. This channel will grow by leaps and bounds. The information is so important and so appreciated.
Much appreciated Cindy! ❤️ ❤️
❤
Like Jeff, finding Raelan's book and channel was a turning point in my me/cfs recovery journey. My experience of the condition seemed so
similar to Raelans that i copied her system of progressive movement,strength and aerobic exercise. In three years I have stopped the relapses and post exertional malaise of the previous 22 years. Probably 90 percent recovered and steadily increasing my fitness and reintegrating into regular life. The really difficult part was getting back in touch with the bodies natural rhythms and cycles and trying to quieten that part of the mind that wanted to override them. I think the fight or flight response had been active for so long that i had become unaware of it in the background! I think the most important thing is to commit totally to the healing path that feels correct for you . After that it is daily consistency in doing the things that will bring you closer to your goal. . So. Thankyou Raelan and also to all the good people who have shared their stories and inspiration.
@jimnevin2255, I wish you'd contact Raelan and do an interview with her. You'd give a LOT of hope to people who have been sick for longer than 20 years or so. So many of her interview subjects are quite young, and have only been sick for 5-7 years, if that. Congrats on your recovery. I hope you'll consider this...
❤
So happy for you! I can totally relate to your comment. Lived in survival mode for so long before I had developed CFS 11 years ago that I thighs it was the norm. Much better lately, but post exertion malaise always knocks me down for days. I’m an ex competitive athlete, so it sucks even more. I’m determined to get better and heal my nervous system.
About 6 months ago I shared one of your videos to a FB CFS group. I was attracted by several members and told you were a fake just selling things and you knew it. They said healing wasn't possible. I was so upset I immediately left the group. I've been watching you for quite a while, while I can't afford anything to help myself I meditate, do tapping, and eat well. I feel better knowing it's possible to heal from CFS.
I need to really put an effort into tapping - don’t know why I resist it so. I think mostly because I don’t know what to say and also with the fibro it’s actually a bit difficult to do the physical tapping after awhile. Guess I could just do until shoulders start to hurt. Bought the app one year and rarely used it. How much percentage do you think it helps you?
That is why I don't join CFS Facebook groups anymore because they're all so negative and everybody feeds off each other's misery
@@Candleflower42-zp3sh If you don't feel like tapping is for you, I wouldn't do it. It's not for me either. People heal in many different ways.
Keep working at the meditation, the body will follow in time - best wishes.
yes. I went to a couple of "support" groups many years ago when i was first unwell and diagnosed, they were awful. Like swarms of self perpetuating illness. I knew that getting support to be ill wasnt the way out. Focus on whats good has always served me...even when its hell there is something small and good. Good grows when you focus on it.
yes Raelan, you can: transcribe the interviews and get ChatGPT paid version, feed your own custom GPT with the transcripts. You can then retrieve information, such as "how many interviewees mentioned marathons?", no coding skills required.
I’m an ex competitive athlete and would never run a marathon. Chronic cardio isn’t healthy and is highly inflammatory. I think a lot of people with CFS are highly sensitive individuals. I can totally see how and why I came down with it.
RAELAN THANK YOU ❤ MAYBE SO MANY RECOVERY STORIES HERE ARE WITH MARATHON RUNNERS BECOUSE MARATHON RUNNERS DONT GIVE UP AND ARE NOT SCARED BY LONG DISTANCE JOURNYES ... THEY KEEP EFFORTING UNTIL THE FINISH LINE OF RECOVERY...
@@efi4930
That is actually a really excellent point!!! 🙌🏻 I love that! 💕
I’m from the Uk, and had CFS since 2006, the amount of forms I’ve filled out that ask ‘on a scale of 1 to 10 how is …..?’ I’m definitely buying your book.
Thank you for taking the time to comment, it means so much to me to have connected in some way. I hope you enjoy the book. Very best wishes for a speedy recovery.
Very interesting thank you. I will look at all the very useful links and hopefully find help. Suffering intermittently for 3 years and now seems quite constant. I'm uk so happy to see Jeff.
Thanks soooooooo much for sharing ‼️ will def look up your info and book 🩵
Thank you for taking the time to comment, it means so much to me to have connected in some way. I hope you enjoy the book. Very best wishes for a speedy recovery.
What a lovely energy he has! So nice to hear this interview. Grateful for Dr. Sarno’s book too, I typically hear of two others of his. 🙏🏼🙂
@@AnrupB
He sure does! He seems like such a kind person. 😊
♥
♥
3:11 Yes!! Raelan, I was thinking this exact same thing when he said he was running marathons. Sooo many CFS stories are about people who used to run marathons, and I’ve heard so many times how long distance running is very hard on the body. It’s a big stressor and does seem to be a factor for some. And then of course, there are people like me who weren’t active at all when they got sick (I was a straight-A student though, so I did have that drive). 😆 But I was “floxed,” as a teenager, so my mild CFS was created by man made drugs.
Physics Girl has had long COVID for 1.5-2 years, and she was a marathon runner too. I wish she’d find your channel. 🙏🏻 She recently did a long live stream on her illness.
Could he share what he was eating as his diet?It would be lovely to know because he said that he was eating healthy or thought he was , could he share more
♥
Been with CFS for 30 years. Haven't found anything that helps. Believe me....tried everything. The worst part is that people think that this is the "real" you and have family members that chastise you for everything you do or don't do.
You might have mould!
Thank you both for helpful information and HOPE !
Best wishes for a speedy recovery. In time you will more from hoping, to believing and then knowing you will recovery. Best wishes.
thanks for another Raelyn!! ❤️❤️❤️
Great interview! Love his Venn diagram explanation!
BTW, There is a double S in his website.
Oh, no! Thanks for letting me know 🧡 🧡 (Just corrected it)
@@RaelanAgle knew you’d want to know…
Haha, great spot regards my author name, even I missed that! Pleased you like the Venn diagram comment - but genuinely I absorb and use information and advice that way - feel more assured that I am avoiding the charlatans and snake oil sellers that way 😉
Raelan where can I purchase your book please, and thanks a million for your channel and amazing help and information ❤
Much appreciated, Maggie! 🧡 🧡
Thus was so good to watch. When I contracted CFS I was in the process of falling in love with a wonderful colleague (at work). Sadly, he realising that I was wanting to sleep during the day, I became ’lazy’ in his mind and I needed help instead but didn’t understand what was happening.
I’ve recently reconnected online with him and am in 2 minds as to whether I should tell him about it. Interestingly, he married a doctor!
please don't reconnect, he is married and both of you have moved on. Hope you don't mind my saying this. I wish you well.
@@margaretwhittaker2291 Thank you, you're absolutely right. I need peace now. I hated being told I was lazy - which was far from the truth. ps. Don't get me wrong, we are both nearly 60 years old so romance is far from the mind :) My pic is a bit old!
@@Jamiejamjar I am almost 62 and I had the lazy label pinned to me by a former female colleague, it is always far , far from the truth. Take care
@@Jamiejamjar60 year olds don’t care about romance? I think that is a misnomer that older people aren’t interested in intimacy and companionship. It’s okay to feel attractive and post an updated picture at 60. Accepting and embracing who you are at every age is healthy!🌻
@@Jamiejamjar
I’m so very sorry you got sick while falling in love. 💔 But you never know who else may be out there for you. I clicked on your profile, and you are just lovely! I’m sure you still are and always will be! 💕
My parents are in their late 70s, and they are almost literally joined at the hip. I love how much they still love each other. It’s never too late for love. 🥰
Great interview..I'm in the UK and I can relate to what he was talking about..my trigger was COVID vaccine.I also diagnosed myself and told the GP what it was...they just aren't interested
You would probabaly get more validation if you said the trigger was covid. Drs just don't want to hear that a vaccine can do anything but good. Having said that, I'm not sure there is much help from long covid clinics either, but may be you wouldn't be out right dismissed?
I feel like, of all the triggers, covid is the one that's taken more seriously. Although if dr's really understood, then they would realise that the trigger is almost irrelevant.
CFS 27 years fybromyalgia 6 pain worst symptom get checked for hypomobility I've found out I have heds causation with a trigger
@@leaperrins8373It doesn't really matter what the trigger was. If it wasn't the vaccine it would have been the next time they got sick. The trigger doesn't effect the recovery for CFS.
Great video 📹 Ricky Gervais fellow cast minds in one of shows gas got ME/cfs so that's why he understands it. I think the actor is called David Earl. I'm in the UK myself. I agree that the nhs system here isn't great with people with me/cfs and fibromyalgia. I got told once by a health professional that fibromyalgia is a mental health thing and it is an illness. I was really mad after meeting this person. I understand the mind cause trigger physical health issues maybe. But fibromyalgia and me/cfs are real issues in the body. I agree that the mind and bodies are connected but I feel alot of medical professionals gas light us, sadly.
L
Your health professional is right! Fibromyalgia and me/cfs is a mind body issue caused by the signals send from the brain. The signals are 100% real, but luckily they can be turned down and go away 👌
Glad you picked up on the Gervais reference - I didn't know his awareness was based on a close acquaintance. Agreed, NHS could do far better in this area, but feel it will be down to communities like Raelan's to help each other, sadly - 'self-health'.
The Ricky Gervais quip actually just mocked the illness stating that no one in the third world has ME/CFS.
Sarcastically implying the illness is not real.
You can see this on RUclips.
Not sure how this became misunderstood that he sympathises
@@MyFriendPeter I believe the point Gervais was making is that the illness is a 'modern' condition that affects those in the developed world more often because of our intense lifestyles and diet. He certainly brought the condition to the fore.
how did he come out of it...didnt really say
I used to run and exercise regularly before getting ill
What he did to resolve this?
Do you think many have ebv? Dr won't check unless asked?
EBV is a classic trigger for ME/CFS much the same as COVID.
Most of us carry the EBV virus. The question is: is it active and causing symptoms. The tests can't confirm that, so they are not worthwhile
I have a high viral load of EBV and have M.E./CFS, fibromyalgia, hypothyroidism, and MCS.
@@domsa_ tests can confirm it. Dr do have to know how to run the test though and know what to look for. I had a reactivated EBV ran by a nurse practitioner she said it was reactivated and gave me a book to reference it by. I took that test to 2 different naturopaths. The 1st said-oh that just means you had it in the past (she actually ran the initial ebv test but didn't test the right thing that I had the nurse practitioner verify). The 2nd said-that means nothing everyone has it. I just saw another naturopath recently that said you definitely have it reactivated and that's a problem. Sooooo- be careful who you go to/make sure they know what they're doing. The real issue is both the Nurse practitioners and the 3rd naturopath said it's not your root problem. We have to figure out why your immune system hasn't put it in check. So my best conclusion is my limbic system from past stress has not calmed down. I'm doing Primal Trust and it has helped a variety of symptoms caused by ebv to go
Hope this info helps anyone..
Such a shame that Jeff didn't find out what it was for so long and had to work it out himself. ME/CFS is well know in the UK, I've certainly known about it for years. Sadly was called 'yuppy flu' in the 1980s.
Certainly his GP should have been to diagnose it! However, tbh it probably wouldn't have lead to any better care, because after the label there's very little here. I got referred to my local ME/CFS clinic which was 2 cities away and by the time I got in, I'd learnt about pacing which was all they really had for me 🤦🏻♀️
14:42 14:45
Florence nightingale had it to
And marcel proust mayby
@@volmariiso-hollola1815 yes and Charles Darwin had mcas highly comorbid with autism ADHD I've found out the genes for it
Wow, what an inspiration to us all!
Hi I have felt unwell since 2021 I tested positive for cmv but my doctor won't prescribe anti viral as he said most adults woukd test positive it frustrates me that he long even try has any one experienced this
What's cmv
@Truerealism747 it's a herpes virus which I got told 90persent of adults have had its like a cold flu illness from what I understand
I think most people with ME/CFS have higher CMV, EBV, or HHV-6 IgG titers, and some have acute IgM reactivations (I had acute EBV IgM titers, showing reactivations, and high IgG titers). However 11 months of antivirals did not make it go back into dormancy. What did was quitting my job, getting into nature, doing brain retraining, communicating and acting on what was best for my health even if it was awkward, and all the stuff others often talk about on this channel like Jeff here.
Gps still think its primarily depression and just offer antidepressants 😢
That's because of government Train ing...
Yes, sadly this is the case. n my view, only communities like this can help, sharing experiences and how we overcome the many facets of this condition.
Nothing learned except I need to buy more books thx
The core message I picked up was that in his experience nervous system dysregulation needs to be addressed in order to influence the downstream issues that accumulate quite quickly with illness duration.
You don't necessarily need more books. :)