Hey Jasmine, I just subscribed to you! Yours was the first I saw on nephrotic syndrome. I hAve it too and am waiting to be put on the schedule for my Rituximab infusions. I’m sorry you are living w this you are so young. You have a good attitude tho. I am 70 so I can’t really complain. Ha, yes I can! Anyway, thanks for being so candid about it all. Karen
I feel you! It gets fairly annoying! A friend with NS told me it could be I wasn’t eating enough potassium, but in the end I was actually over hydrated so lowered my water intake a little bit and now I’m fine ☺️
@@JasminesJourney hope you're doing fine! I know how it feels to have a relapse. I am relapsing like up to 3 times a year but I have glomerulonephritis not the minimal change. It's "calming" to know somebody who is going through the same situation
Hey Jasmine, I just subscribed to you! Yours was the first I saw on nephrotic syndrome. I hAve it too and am waiting to be put on the schedule for my Rituximab infusions. I’m sorry you are living w this you are so young. You have a good attitude tho. I am 70 so I can’t really complain. Ha, yes I can! Anyway, thanks for being so candid about it all. Karen
I get major heart pounding too😭
That hand twisting also happened to me
I feel you! It gets fairly annoying! A friend with NS told me it could be I wasn’t eating enough potassium, but in the end I was actually over hydrated so lowered my water intake a little bit and now I’m fine ☺️
Hey I also have that disease
I haven’t lost much weight at all .. day 17 for me ..
Are you on prednisolone and ciclosporine or "just" prednisolone?
That’s right- I’m on both!
@@JasminesJourney hope you're doing fine! I know how it feels to have a relapse. I am relapsing like up to 3 times a year but I have glomerulonephritis not the minimal change. It's "calming" to know somebody who is going through the same situation
Bless you thank you so much, wishing you well too and yes definitely ’calming’ knowing we’re not alone