Cannot thank you enough for making this video, seriously helps when someone "gets it!" I was diagnosed March 5th of this year by a Neurologist and I have focal or, musicians dystonia. Guitarist 15 years. Was in acoustic duo performing gigs and retired this time last year. Truly a mind mess and erodes your confidence... As a very dedicated musician, I just kept telling myself I need to work more, harder. Then realized things I could easily do were no longer possible. Discovered Billy Mc Laughlin one nite, first I had ever heard someone describe how I was quietly feeling for nearly 3 years..didn't know if I should jump for joy or, cry? Focal Dystonia? Never heard of it. Now i do big time. It has effected me so deeply. Most would never know but wow, it has just crushed my heart & soul. Optimist by nature, this has been very challenging to accept but I'm trusting the process. Paul, SO happy where it has leads you, my friend! Thank you again and again for this. So many just don't get it. At all. It's given me more empathy and has taught me patience. Positives. ; )
This interesting I have never heard this kind of dystonia. I have a condition that causes involuntary movements and it is called Functional Neurological Disorder. But my condition acts up even when i am not doing certain tasks and stress and lack of sleep can make it worse. It makes my body move in painful and awkward ways randomly. I do have calm moments but the violent episodes come back with vengeance.
Cannot thank you enough for making this video, seriously helps when someone "gets it!" I was diagnosed March 5th of this year by a Neurologist and I have focal or, musicians dystonia. Guitarist 15 years. Was in acoustic duo performing gigs and retired this time last year. Truly a mind mess and erodes your confidence... As a very dedicated musician, I just kept telling myself I need to work more, harder. Then realized things I could easily do were no longer possible. Discovered Billy Mc Laughlin one nite, first I had ever heard someone describe how I was quietly feeling for nearly 3 years..didn't know if I should jump for joy or, cry? Focal Dystonia? Never heard of it. Now i do big time. It has effected me so deeply. Most would never know but wow, it has just crushed my heart & soul. Optimist by nature, this has been very challenging to accept but I'm trusting the process. Paul, SO happy where it has leads you, my friend! Thank you again and again for this. So many just don't get it. At all. It's given me more empathy and has taught me patience. Positives. ; )
Crazy stuff, Paulie. I just learned something new today thanks to this video!
Thanks for watching, my friend!
This interesting I have never heard this kind of dystonia. I have a condition that causes involuntary movements and it is called Functional Neurological Disorder. But my condition acts up even when i am not doing certain tasks and stress and lack of sleep can make it worse. It makes my body move in painful and awkward ways randomly. I do have calm moments but the violent episodes come back with vengeance.