Multiple Myeloma Stories: Relapsed/Refractory MM Patient Shares Daratumumab, Elotuzimab Experience

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  • Опубликовано: 18 апр 2021
  • Clay dives in-depth into his relapsed/refractory multiple myeloma story. In this video conversation with The Patient Story founder, Stephanie, he shares his most recent treatment experiences since his first interview two years ago (FULL STORY/TRANSCRIPT HERE: www.thepatientstory.com/cance...)
    Newest therapies/regimen:
    - Daratumumab (Darzalex) monthly
    - Elotuzimab (Empliciti) bi-monthly
    - IVIg infusions, Intravenous immunoglobulin (IVIg)
    - Lenalidomide (Revlimid) 28 days a month
    Clay also talks about powering through years worth of treatments, managing his mental and physical health, and his thoughts on the current treatment options for RR multiple myeloma.

Комментарии • 12

  • @michellekrebs9958
    @michellekrebs9958 3 года назад +8

    Clay is an amazing pillar of strength and hope for so many. He is fighting everyday positively and courageously. We are proud of you Clay!

    • @ThePatientStory
      @ThePatientStory  3 года назад

      Michelle, couldn't agree more. Clay is so incredible and we are so grateful to have him represent his story on our platform! -Stephanie

  • @shebadevonish1436
    @shebadevonish1436 3 года назад +5

    Hi Clay, thank you for sharing you story. I think the part of your story I'm more grateful for is that sometimes, you have to do more than one line of treatment to not only get better, but sometimes stay better. I'm currently undergoing treatment in Toronto Canada for Stage 4 Diffuse Large B cell Lymphoma. It was quite advanced when we finally found it and I know that the first line treatment just might not be enough. Thank you for fighting and for sharing.

    • @ThePatientStory
      @ThePatientStory  3 года назад

      Sheba, thanks for your kind words. So glad you're in treatment now - sending my very best wishes to you as you go through everything. If it's helpful, there are more patient stories here (for NHL): www.thepatientstory.com/cancers/non-hodgkin-lymphoma/

  • @brennadickinson2920
    @brennadickinson2920 Год назад +1

    Thanks for this great video. Now I'm on Dara, Dex and side effects meds. Been diagnosed 6 1/2 years, so I feel I'm living successfully with MM. Allergic to Revlimid but did it for a year with anti-histamines. Dara has been spectacularly successful with my lowest ever MM numbers, but I find the Dex more problematic with weight gain and insomnia. Worth it tho'!

  • @donnamiley6778
    @donnamiley6778 Год назад

    Good luck Clay!

  • @natashab3412
    @natashab3412 2 года назад

    Thank you so helpful .. 🙏🌻

  • @natashab3412
    @natashab3412 2 года назад +2

    Brother diagnosed in dec.
    On vd.
    Suggesting dara then rev next.
    This is such helpful information,
    Dara fastpro i think its called.
    Just watched til the end ,
    This was so comprehensive
    You both , a great team covering all the bases.

    • @ThePatientStory
      @ThePatientStory  2 года назад +1

      Sharon, so glad to hear that this was helpful. Your brother is so lucky to have such a wonderful support system in you. -Stephanie

    • @natashab3412
      @natashab3412 2 года назад

      @@ThePatientStory ty for kind words, im so grateful to have access to all this sorted and up to the minute pivotal information.

    • @miryamgonzalez4322
      @miryamgonzalez4322 Год назад

      Hello Natasha! My name is Miryam and I work for Global Patients. We are a medical research company and we are currently working on a study about Multiple Myeloma in the UK. It is a non interventional paid study. Do you think your brother would be interested? Many thanks!

  • @emmanuelking9988
    @emmanuelking9988 3 месяца назад

    I have multiple myeloma and will begin Dara (immunotherapy) next week...can anyone please share their first experiences with Dara? Thank you in advance 🙏