Multiple Myeloma Stories: Relapsed/Refractory MM Patient Shares Daratumumab, Elotuzimab Experience
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- Опубликовано: 18 апр 2021
- Clay dives in-depth into his relapsed/refractory multiple myeloma story. In this video conversation with The Patient Story founder, Stephanie, he shares his most recent treatment experiences since his first interview two years ago (FULL STORY/TRANSCRIPT HERE: www.thepatientstory.com/cance...)
Newest therapies/regimen:
- Daratumumab (Darzalex) monthly
- Elotuzimab (Empliciti) bi-monthly
- IVIg infusions, Intravenous immunoglobulin (IVIg)
- Lenalidomide (Revlimid) 28 days a month
Clay also talks about powering through years worth of treatments, managing his mental and physical health, and his thoughts on the current treatment options for RR multiple myeloma.
Clay is an amazing pillar of strength and hope for so many. He is fighting everyday positively and courageously. We are proud of you Clay!
Michelle, couldn't agree more. Clay is so incredible and we are so grateful to have him represent his story on our platform! -Stephanie
Hi Clay, thank you for sharing you story. I think the part of your story I'm more grateful for is that sometimes, you have to do more than one line of treatment to not only get better, but sometimes stay better. I'm currently undergoing treatment in Toronto Canada for Stage 4 Diffuse Large B cell Lymphoma. It was quite advanced when we finally found it and I know that the first line treatment just might not be enough. Thank you for fighting and for sharing.
Sheba, thanks for your kind words. So glad you're in treatment now - sending my very best wishes to you as you go through everything. If it's helpful, there are more patient stories here (for NHL): www.thepatientstory.com/cancers/non-hodgkin-lymphoma/
Thanks for this great video. Now I'm on Dara, Dex and side effects meds. Been diagnosed 6 1/2 years, so I feel I'm living successfully with MM. Allergic to Revlimid but did it for a year with anti-histamines. Dara has been spectacularly successful with my lowest ever MM numbers, but I find the Dex more problematic with weight gain and insomnia. Worth it tho'!
Good luck Clay!
Thank you so helpful .. 🙏🌻
Brother diagnosed in dec.
On vd.
Suggesting dara then rev next.
This is such helpful information,
Dara fastpro i think its called.
Just watched til the end ,
This was so comprehensive
You both , a great team covering all the bases.
Sharon, so glad to hear that this was helpful. Your brother is so lucky to have such a wonderful support system in you. -Stephanie
@@ThePatientStory ty for kind words, im so grateful to have access to all this sorted and up to the minute pivotal information.
Hello Natasha! My name is Miryam and I work for Global Patients. We are a medical research company and we are currently working on a study about Multiple Myeloma in the UK. It is a non interventional paid study. Do you think your brother would be interested? Many thanks!
I have multiple myeloma and will begin Dara (immunotherapy) next week...can anyone please share their first experiences with Dara? Thank you in advance 🙏